Guest guest Posted March 3, 2009 Report Share Posted March 3, 2009 , I'm with you on the weight thing. It's the one thing I can't seem to kick. Hermansky-Pudlak Syndrome 02 / PF 06 Kansas >> Hello to everyone, > > I've been on the board everyday and have responded to some posts but have mostly stayed to myself. > > I visited my Internal Med. Dr. Monday. She increased my antidepressant because of the anxiety and emotion I've had later in the days for about a month now. She also ordered an MRI on my left hip because of the pain I've been having there. An echocardiagram has been ordered to check for PH (heart rate hasn't gotten low enough yet.) And she suggested persuing Lapband surgery for my weight. I've been strugling with my weight all my life and have been getting no where fast lately. If I were to be eligible for the Lapband it would help me to reach the weight goals I'm required to meet before being evaluated for transplant. > > After my appointment I came home, logged in to the board and saw the bad news about Sherry.I didn't know her well but the news just broke my heart for her family. I can only imagine what they are feeling. Personally I've been uneasy about the idea of transplant since the first time it was mentioned to me by my pulmonologist. I only started considering it when some of my family asked me to.I have big decisions to make over the next few weeks. I'm feeling very overwhelmed and scared.> > On a more positive note: I have made sure I am LIVING life.I got my nose pierced a few weeks ago. It's something I've always liked on other people but didn't do myself because of work or worry of someone elses opinion. Well now I'm not working and there's no one to tell me I can't. So I did it and I love it! I've also decided to start sewing and will begin a baby quilt for a friend tomorrow. > > 33 FL> IPF dx 1/06> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2009 Report Share Posted March 3, 2009 , I'm with you on the weight thing. It's the one thing I can't seem to kick. Hermansky-Pudlak Syndrome 02 / PF 06 Kansas >> Hello to everyone, > > I've been on the board everyday and have responded to some posts but have mostly stayed to myself. > > I visited my Internal Med. Dr. Monday. She increased my antidepressant because of the anxiety and emotion I've had later in the days for about a month now. She also ordered an MRI on my left hip because of the pain I've been having there. An echocardiagram has been ordered to check for PH (heart rate hasn't gotten low enough yet.) And she suggested persuing Lapband surgery for my weight. I've been strugling with my weight all my life and have been getting no where fast lately. If I were to be eligible for the Lapband it would help me to reach the weight goals I'm required to meet before being evaluated for transplant. > > After my appointment I came home, logged in to the board and saw the bad news about Sherry.I didn't know her well but the news just broke my heart for her family. I can only imagine what they are feeling. Personally I've been uneasy about the idea of transplant since the first time it was mentioned to me by my pulmonologist. I only started considering it when some of my family asked me to.I have big decisions to make over the next few weeks. I'm feeling very overwhelmed and scared.> > On a more positive note: I have made sure I am LIVING life.I got my nose pierced a few weeks ago. It's something I've always liked on other people but didn't do myself because of work or worry of someone elses opinion. Well now I'm not working and there's no one to tell me I can't. So I did it and I love it! I've also decided to start sewing and will begin a baby quilt for a friend tomorrow. > > 33 FL> IPF dx 1/06> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 glad you are starting a baby quilt please post a picture of it when it's finished, the crafters on the board would like to see it meeting people who have had successful transplants has been encouraging for me i see them when i go to the transplant doc and there is a transplant support group that i went to twice, plus the holiday party in December i met people who had it done about 15 years ago, 10 years ago, eight years ago, 5 years ago, and more recently than that they are the light at the end of the tunnel for me Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 www.transplantfund.org--- Subject: Update/To: Breathe-Support Date: Tuesday, March 3, 2009, 9:16 PM Hello to everyone, I've been on the board everyday and have responded to some posts but have mostly stayed to myself. I visited my Internal Med. Dr. Monday. She increased my antidepressant because of the anxiety and emotion I've had later in the days for about a month now. She also ordered an MRI on my left hip because of the pain I've been having there. An echocardiagram has been ordered to check for PH (heart rate hasn't gotten low enough yet.) And she suggested persuing Lapband surgery for my weight. I've been strugling with my weight all my life and have been getting no where fast lately. If I were to be eligible for the Lapband it would help me to reach the weight goals I'm required to meet before being evaluated for transplant. After my appointment I came home, logged in to the board and saw the bad news about Sherry.I didn't know her well but the news just broke my heart for her family. I can only imagine what they are feeling. Personally I've been uneasy about the idea of transplant since the first time it was mentioned to me by my pulmonologist. I only started considering it when some of my family asked me to.I have big decisions to make over the next few weeks. I'm feeling very overwhelmed and scared.On a more positive note: I have made sure I am LIVING life.I got my nose pierced a few weeks ago. It's something I've always liked on other people but didn't do myself because of work or worry of someone elses opinion. Well now I'm not working and there's no one to tell me I can't. So I did it and I love it! I've also decided to start sewing and will begin a baby quilt for a friend tomorrow. 33 FLIPF dx 1/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 ... yes, you'll have big decisions about transplant ok. Be sure and gather all the information you can before making your decision and then be sure it's YOUR decision based on the information you gathered. It seems to me that once we find this board then we also find we are constantly 'dealing' with something...thank God for so much support here. I do a lot of handwork and it passes the time quickly. Keep on keepin' on . MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Update/ Hello to everyone, I've been on the board everyday and have responded to some posts but have mostly stayed to myself. I visited my Internal Med. Dr. Monday. She increased my antidepressant because of the anxiety and emotion I've had later in the days for about a month now. She also ordered an MRI on my left hip because of the pain I've been having there. An echocardiagram has been ordered to check for PH (heart rate hasn't gotten low enough yet.) And she suggested persuing Lapband surgery for my weight. I've been strugling with my weight all my life and have been getting no where fast lately. If I were to be eligible for the Lapband it would help me to reach the weight goals I'm required to meet before being evaluated for transplant. After my appointment I came home, logged in to the board and saw the bad news about Sherry.I didn't know her well but the news just broke my heart for her family. I can only imagine what they are feeling. Personally I've been uneasy about the idea of transplant since the first time it was mentioned to me by my pulmonologist. I only started considering it when some of my family asked me to.I have big decisions to make over the next few weeks. I'm feeling very overwhelmed and scared.On a more positive note: I have made sure I am LIVING life.I got my nose pierced a few weeks ago. It's something I've always liked on other people but didn't do myself because of work or worry of someone elses opinion. Well now I'm not working and there's no one to tell me I can't. So I did it and I love it! I've also decided to start sewing and will begin a baby quilt for a friend tomorrow. 33 FLIPF dx 1/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 Joyce, I will make sure to put the picture up as soon as I finish. I bought a " quilt in a day " kit to do this as I haven't sewn in years. Santa brought my my first multi stitch sewing machine for Christmas. I've also bought patterns and material to make purses. I'm excited at the thought of a new hobby and nervous too. I'm hoping to have it done before our trip to Orlando. Also, thank you for your response. It's nice to hear about transplant success.I should probably schedule a visit to the Mayo transplant support group before I decide what to do. 33 FL IPF dx 1/06 > > From: hunnybunnybinky > Subject: Update/ > To: Breathe-Support > Date: Tuesday, March 3, 2009, 9:16 PM > > > > > > > Hello to everyone, > > I've been on the board everyday and have responded to some posts but have mostly stayed to myself. > > I visited my Internal Med. Dr. Monday. She increased my antidepressant because of the anxiety and emotion I've had later in the days for about a month now. She also ordered an MRI on my left hip because of the pain I've been having there. An echocardiagram has been ordered to check for PH (heart rate hasn't gotten low enough yet.) And she suggested persuing Lapband surgery for my weight. I've been strugling with my weight all my life and have been getting no where fast lately. If I were to be eligible for the Lapband it would help me to reach the weight goals I'm required to meet before being evaluated for transplant. > > After my appointment I came home, logged in to the board and saw the bad news about Sherry.I didn't know her well but the news just broke my heart for her family. I can only imagine what they are feeling. Personally I've been uneasy about the idea of transplant since the first time it was mentioned to me by my pulmonologist. I only started considering it when some of my family asked me to.I have big decisions to make over the next few weeks. I'm feeling very overwhelmed and scared. > > On a more positive note: I have made sure I am LIVING life.I got my nose pierced a few weeks ago. It's something I've always liked on other people but didn't do myself because of work or worry of someone elses opinion. Well now I'm not working and there's no one to tell me I can't. So I did it and I love it! I've also decided to start sewing and will begin a baby quilt for a friend tomorrow. > > 33 FL > IPF dx 1/06 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 , Good for you! Isn't it nice to do something special for yourself? It is hard fighting this disease and giving yourself a treat once in awhile is like a well deserved pat on the back. Today I am visiting a benedictine Abbey that Aunt Suzy recommended. I am no longer Catholic but thought a day of quiet and reflection and prayer sounded great. So when I am up on the hill overlooking the ocean and praying, I just wanted you to know that I will be saying several for you and your decision about lap band surgery. God bless you - R. (53) Sarcoid/PF 3/2006 Carlsbad, California Subject: Update/To: Breathe-Support Date: Tuesday, March 3, 2009, 6:16 PM Hello to everyone, I've been on the board everyday and have responded to some posts but have mostly stayed to myself. I visited my Internal Med. Dr. Monday. She increased my antidepressant because of the anxiety and emotion I've had later in the days for about a month now. She also ordered an MRI on my left hip because of the pain I've been having there. An echocardiagram has been ordered to check for PH (heart rate hasn't gotten low enough yet.) And she suggested persuing Lapband surgery for my weight. I've been strugling with my weight all my life and have been getting no where fast lately. If I were to be eligible for the Lapband it would help me to reach the weight goals I'm required to meet before being evaluated for transplant. After my appointment I came home, logged in to the board and saw the bad news about Sherry.I didn't know her well but the news just broke my heart for her family. I can only imagine what they are feeling. Personally I've been uneasy about the idea of transplant since the first time it was mentioned to me by my pulmonologist. I only started considering it when some of my family asked me to.I have big decisions to make over the next few weeks. I'm feeling very overwhelmed and scared.On a more positive note: I have made sure I am LIVING life.I got my nose pierced a few weeks ago. It's something I've always liked on other people but didn't do myself because of work or worry of someone elses opinion. Well now I'm not working and there's no one to tell me I can't. So I did it and I love it! I've also decided to start sewing and will begin a baby quilt for a friend tomorrow. 33 FLIPF dx 1/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 , Good for you! Isn't it nice to do something special for yourself? It is hard fighting this disease and giving yourself a treat once in awhile is like a well deserved pat on the back. Today I am visiting a benedictine Abbey that Aunt Suzy recommended. I am no longer Catholic but thought a day of quiet and reflection and prayer sounded great. So when I am up on the hill overlooking the ocean and praying, I just wanted you to know that I will be saying several for you and your decision about lap band surgery. God bless you - R. (53) Sarcoid/PF 3/2006 Carlsbad, California Subject: Update/To: Breathe-Support Date: Tuesday, March 3, 2009, 6:16 PM Hello to everyone, I've been on the board everyday and have responded to some posts but have mostly stayed to myself. I visited my Internal Med. Dr. Monday. She increased my antidepressant because of the anxiety and emotion I've had later in the days for about a month now. She also ordered an MRI on my left hip because of the pain I've been having there. An echocardiagram has been ordered to check for PH (heart rate hasn't gotten low enough yet.) And she suggested persuing Lapband surgery for my weight. I've been strugling with my weight all my life and have been getting no where fast lately. If I were to be eligible for the Lapband it would help me to reach the weight goals I'm required to meet before being evaluated for transplant. After my appointment I came home, logged in to the board and saw the bad news about Sherry.I didn't know her well but the news just broke my heart for her family. I can only imagine what they are feeling. Personally I've been uneasy about the idea of transplant since the first time it was mentioned to me by my pulmonologist. I only started considering it when some of my family asked me to.I have big decisions to make over the next few weeks. I'm feeling very overwhelmed and scared.On a more positive note: I have made sure I am LIVING life.I got my nose pierced a few weeks ago. It's something I've always liked on other people but didn't do myself because of work or worry of someone elses opinion. Well now I'm not working and there's no one to tell me I can't. So I did it and I love it! I've also decided to start sewing and will begin a baby quilt for a friend tomorrow. 33 FLIPF dx 1/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 , Good for you! Isn't it nice to do something special for yourself? It is hard fighting this disease and giving yourself a treat once in awhile is like a well deserved pat on the back. Today I am visiting a benedictine Abbey that Aunt Suzy recommended. I am no longer Catholic but thought a day of quiet and reflection and prayer sounded great. So when I am up on the hill overlooking the ocean and praying, I just wanted you to know that I will be saying several for you and your decision about lap band surgery. God bless you - R. (53) Sarcoid/PF 3/2006 Carlsbad, California Subject: Update/To: Breathe-Support Date: Tuesday, March 3, 2009, 6:16 PM Hello to everyone, I've been on the board everyday and have responded to some posts but have mostly stayed to myself. I visited my Internal Med. Dr. Monday. She increased my antidepressant because of the anxiety and emotion I've had later in the days for about a month now. She also ordered an MRI on my left hip because of the pain I've been having there. An echocardiagram has been ordered to check for PH (heart rate hasn't gotten low enough yet.) And she suggested persuing Lapband surgery for my weight. I've been strugling with my weight all my life and have been getting no where fast lately. If I were to be eligible for the Lapband it would help me to reach the weight goals I'm required to meet before being evaluated for transplant. After my appointment I came home, logged in to the board and saw the bad news about Sherry.I didn't know her well but the news just broke my heart for her family. I can only imagine what they are feeling. Personally I've been uneasy about the idea of transplant since the first time it was mentioned to me by my pulmonologist. I only started considering it when some of my family asked me to.I have big decisions to make over the next few weeks. I'm feeling very overwhelmed and scared.On a more positive note: I have made sure I am LIVING life.I got my nose pierced a few weeks ago. It's something I've always liked on other people but didn't do myself because of work or worry of someone elses opinion. Well now I'm not working and there's no one to tell me I can't. So I did it and I love it! I've also decided to start sewing and will begin a baby quilt for a friend tomorrow. 33 FLIPF dx 1/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 Thank you . That's very sweet of you. 33 FL IPF dx 1/06 > > From: hunnybunnybinky > Subject: Update/ > To: Breathe-Support > Date: Tuesday, March 3, 2009, 6:16 PM > > > > > > > Hello to everyone, > > I've been on the board everyday and have responded to some posts but have mostly stayed to myself. > > I visited my Internal Med. Dr. Monday. She increased my antidepressant because of the anxiety and emotion I've had later in the days for about a month now. She also ordered an MRI on my left hip because of the pain I've been having there. An echocardiagram has been ordered to check for PH (heart rate hasn't gotten low enough yet.) And she suggested persuing Lapband surgery for my weight. I've been strugling with my weight all my life and have been getting no where fast lately. If I were to be eligible for the Lapband it would help me to reach the weight goals I'm required to meet before being evaluated for transplant. > > After my appointment I came home, logged in to the board and saw the bad news about Sherry.I didn't know her well but the news just broke my heart for her family. I can only imagine what they are feeling. Personally I've been uneasy about the idea of transplant since the first time it was mentioned to me by my pulmonologist. I only started considering it when some of my family asked me to.I have big decisions to make over the next few weeks. I'm feeling very overwhelmed and scared. > > On a more positive note: I have made sure I am LIVING life.I got my nose pierced a few weeks ago. It's something I've always liked on other people but didn't do myself because of work or worry of someone elses opinion. Well now I'm not working and there's no one to tell me I can't. So I did it and I love it! I've also decided to start sewing and will begin a baby quilt for a friend tomorrow. > > 33 FL > IPF dx 1/06 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 Thank you . That's very sweet of you. 33 FL IPF dx 1/06 > > From: hunnybunnybinky > Subject: Update/ > To: Breathe-Support > Date: Tuesday, March 3, 2009, 6:16 PM > > > > > > > Hello to everyone, > > I've been on the board everyday and have responded to some posts but have mostly stayed to myself. > > I visited my Internal Med. Dr. Monday. She increased my antidepressant because of the anxiety and emotion I've had later in the days for about a month now. She also ordered an MRI on my left hip because of the pain I've been having there. An echocardiagram has been ordered to check for PH (heart rate hasn't gotten low enough yet.) And she suggested persuing Lapband surgery for my weight. I've been strugling with my weight all my life and have been getting no where fast lately. If I were to be eligible for the Lapband it would help me to reach the weight goals I'm required to meet before being evaluated for transplant. > > After my appointment I came home, logged in to the board and saw the bad news about Sherry.I didn't know her well but the news just broke my heart for her family. I can only imagine what they are feeling. Personally I've been uneasy about the idea of transplant since the first time it was mentioned to me by my pulmonologist. I only started considering it when some of my family asked me to.I have big decisions to make over the next few weeks. I'm feeling very overwhelmed and scared. > > On a more positive note: I have made sure I am LIVING life.I got my nose pierced a few weeks ago. It's something I've always liked on other people but didn't do myself because of work or worry of someone elses opinion. Well now I'm not working and there's no one to tell me I can't. So I did it and I love it! I've also decided to start sewing and will begin a baby quilt for a friend tomorrow. > > 33 FL > IPF dx 1/06 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 Even years ago when I was 130 lbs doctors told me I would breathe better if I just lost weight. Certainly it might help a little but, no matter what weight I've ever been at my breathing was bad. I'll still continue to try reminding myself that it's more about my overall health than my breathing. Besides if I want new lungs I have to do this. Decisions, decisions... 33 FL IPF dx 1/06 > > > > Hello to everyone, > > > > I've been on the board everyday and have responded to some posts but have mostly stayed to myself. > > > > I visited my Internal Med. Dr. Monday. She increased my antidepressant because of the anxiety and emotion I've had later in the days for about a month now. She also ordered an MRI on my left hip because of the pain I've been having there. An echocardiagram has been ordered to check for PH (heart rate hasn't gotten low enough yet.) And she suggested persuing Lapband surgery for my weight. I've been strugling with my weight all my life and have been getting no where fast lately. If I were to be eligible for the Lapband it would help me to reach the weight goals I'm required to meet before being evaluated for transplant. > > > > After my appointment I came home, logged in to the board and saw the bad news about Sherry.I didn't know her well but the news just broke my heart for her family. I can only imagine what they are feeling. Personally I've been uneasy about the idea of transplant since the first time it was mentioned to me by my pulmonologist. I only started considering it when some of my family asked me to.I have big decisions to make over the next few weeks. I'm feeling very overwhelmed and scared. > > > > On a more positive note: I have made sure I am LIVING life.I got my nose pierced a few weeks ago. It's something I've always liked on other people but didn't do myself because of work or worry of someone elses opinion. Well now I'm not working and there's no one to tell me I can't. So I did it and I love it! I've also decided to start sewing and will begin a baby quilt for a friend tomorrow. > > > > 33 FL > > IPF dx 1/06 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 Even years ago when I was 130 lbs doctors told me I would breathe better if I just lost weight. Certainly it might help a little but, no matter what weight I've ever been at my breathing was bad. I'll still continue to try reminding myself that it's more about my overall health than my breathing. Besides if I want new lungs I have to do this. Decisions, decisions... 33 FL IPF dx 1/06 > > > > Hello to everyone, > > > > I've been on the board everyday and have responded to some posts but have mostly stayed to myself. > > > > I visited my Internal Med. Dr. Monday. She increased my antidepressant because of the anxiety and emotion I've had later in the days for about a month now. She also ordered an MRI on my left hip because of the pain I've been having there. An echocardiagram has been ordered to check for PH (heart rate hasn't gotten low enough yet.) And she suggested persuing Lapband surgery for my weight. I've been strugling with my weight all my life and have been getting no where fast lately. If I were to be eligible for the Lapband it would help me to reach the weight goals I'm required to meet before being evaluated for transplant. > > > > After my appointment I came home, logged in to the board and saw the bad news about Sherry.I didn't know her well but the news just broke my heart for her family. I can only imagine what they are feeling. Personally I've been uneasy about the idea of transplant since the first time it was mentioned to me by my pulmonologist. I only started considering it when some of my family asked me to.I have big decisions to make over the next few weeks. I'm feeling very overwhelmed and scared. > > > > On a more positive note: I have made sure I am LIVING life.I got my nose pierced a few weeks ago. It's something I've always liked on other people but didn't do myself because of work or worry of someone elses opinion. Well now I'm not working and there's no one to tell me I can't. So I did it and I love it! I've also decided to start sewing and will begin a baby quilt for a friend tomorrow. > > > > 33 FL > > IPF dx 1/06 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 Yes, I'd love to see it! BTW - speaking of fundraising ideas, one thing we've started at the HPS Network is a "craft bank." So many of us don't have the funds to donate much, but we've got talents. The crafts are then sold at different events or auctioned off at other people's fundraisers. I do painting, so that's my contribution - grin! Hermansky-Pudlak Syndrome albinism 02 / PF 06 Kansas > > Subject: Update/> To: Breathe-Support > Date: Tuesday, March 3, 2009, 9:16 PM> > > > > > > Hello to everyone, > > I've been on the board everyday and have responded to some posts but have mostly stayed to myself. > > I visited my Internal Med. Dr. Monday. She increased my antidepressant because of the anxiety and emotion I've had later in the days for about a month now. She also ordered an MRI on my left hip because of the pain I've been having there. An echocardiagram has been ordered to check for PH (heart rate hasn't gotten low enough yet.) And she suggested persuing Lapband surgery for my weight. I've been strugling with my weight all my life and have been getting no where fast lately. If I were to be eligible for the Lapband it would help me to reach the weight goals I'm required to meet before being evaluated for transplant. > > After my appointment I came home, logged in to the board and saw the bad news about Sherry.I didn't know her well but the news just broke my heart for her family. I can only imagine what they are feeling. Personally I've been uneasy about the idea of transplant since the first time it was mentioned to me by my pulmonologist. I only started considering it when some of my family asked me to.I have big decisions to make over the next few weeks. I'm feeling very overwhelmed and scared.> > On a more positive note: I have made sure I am LIVING life.I got my nose pierced a few weeks ago. It's something I've always liked on other people but didn't do myself because of work or worry of someone elses opinion. Well now I'm not working and there's no one to tell me I can't. So I did it and I love it! I've also decided to start sewing and will begin a baby quilt for a friend tomorrow. > > 33 FL> IPF dx 1/06> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 i should really check out Joann fabrics near here i think they have quilting kits i know they have the stuff for making it from scratch Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 www.transplantfund.org--- Subject: Re: Update/To: Breathe-Support Date: Wednesday, March 4, 2009, 12:54 PM Joyce, I will make sure to put the picture up as soon as I finish. I bought a "quilt in a day" kit to do this as I haven't sewn in years. Santa brought my my first multi stitch sewing machine for Christmas. I've also bought patterns and material to make purses. I'm excited at the thought of a new hobby and nervous too. I'm hoping to have it done before our trip to Orlando. Also, thank you for your response. It's nice to hear about transplant success.I should probably schedule a visit to the Mayo transplant support group before I decide what to do. 33 FLIPF dx 1/06> > > Subject: Update/> To: Breathe-Support@ yahoogroups. com> Date: Tuesday, March 3, 2009, 9:16 PM> > > > > > > Hello to everyone, > > I've been on the board everyday and have responded to some posts but have mostly stayed to myself. > > I visited my Internal Med. Dr. Monday. She increased my antidepressant because of the anxiety and emotion I've had later in the days for about a month now. She also ordered an MRI on my left hip because of the pain I've been having there. An echocardiagram has been ordered to check for PH (heart rate hasn't gotten low enough yet.) And she suggested persuing Lapband surgery for my weight. I've been strugling with my weight all my life and have been getting no where fast lately. If I were to be eligible for the Lapband it would help me to reach the weight goals I'm required to meet before being evaluated for transplant. > > After my appointment I came home, logged in to the board and saw the bad news about Sherry.I didn't know her well but the news just broke my heart for her family. I can only imagine what they are feeling. Personally I've been uneasy about the idea of transplant since the first time it was mentioned to me by my pulmonologist. I only started considering it when some of my family asked me to.I have big decisions to make over the next few weeks. I'm feeling very overwhelmed and scared.> > On a more positive note: I have made sure I am LIVING life.I got my nose pierced a few weeks ago. It's something I've always liked on other people but didn't do myself because of work or worry of someone elses opinion. Well now I'm not working and there's no one to tell me I can't. So I did it and I love it! I've also decided to start sewing and will begin a baby quilt for a friend tomorrow. > > 33 FL> IPF dx 1/06> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 i should really check out Joann fabrics near here i think they have quilting kits i know they have the stuff for making it from scratch Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 www.transplantfund.org--- Subject: Re: Update/To: Breathe-Support Date: Wednesday, March 4, 2009, 12:54 PM Joyce, I will make sure to put the picture up as soon as I finish. I bought a "quilt in a day" kit to do this as I haven't sewn in years. Santa brought my my first multi stitch sewing machine for Christmas. I've also bought patterns and material to make purses. I'm excited at the thought of a new hobby and nervous too. I'm hoping to have it done before our trip to Orlando. Also, thank you for your response. It's nice to hear about transplant success.I should probably schedule a visit to the Mayo transplant support group before I decide what to do. 33 FLIPF dx 1/06> > > Subject: Update/> To: Breathe-Support@ yahoogroups. com> Date: Tuesday, March 3, 2009, 9:16 PM> > > > > > > Hello to everyone, > > I've been on the board everyday and have responded to some posts but have mostly stayed to myself. > > I visited my Internal Med. Dr. Monday. She increased my antidepressant because of the anxiety and emotion I've had later in the days for about a month now. She also ordered an MRI on my left hip because of the pain I've been having there. An echocardiagram has been ordered to check for PH (heart rate hasn't gotten low enough yet.) And she suggested persuing Lapband surgery for my weight. I've been strugling with my weight all my life and have been getting no where fast lately. If I were to be eligible for the Lapband it would help me to reach the weight goals I'm required to meet before being evaluated for transplant. > > After my appointment I came home, logged in to the board and saw the bad news about Sherry.I didn't know her well but the news just broke my heart for her family. I can only imagine what they are feeling. Personally I've been uneasy about the idea of transplant since the first time it was mentioned to me by my pulmonologist. I only started considering it when some of my family asked me to.I have big decisions to make over the next few weeks. I'm feeling very overwhelmed and scared.> > On a more positive note: I have made sure I am LIVING life.I got my nose pierced a few weeks ago. It's something I've always liked on other people but didn't do myself because of work or worry of someone elses opinion. Well now I'm not working and there's no one to tell me I can't. So I did it and I love it! I've also decided to start sewing and will begin a baby quilt for a friend tomorrow. > > 33 FL> IPF dx 1/06> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 i should really check out Joann fabrics near here i think they have quilting kits i know they have the stuff for making it from scratch Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 www.transplantfund.org--- Subject: Re: Update/To: Breathe-Support Date: Wednesday, March 4, 2009, 12:54 PM Joyce, I will make sure to put the picture up as soon as I finish. I bought a "quilt in a day" kit to do this as I haven't sewn in years. Santa brought my my first multi stitch sewing machine for Christmas. I've also bought patterns and material to make purses. I'm excited at the thought of a new hobby and nervous too. I'm hoping to have it done before our trip to Orlando. Also, thank you for your response. It's nice to hear about transplant success.I should probably schedule a visit to the Mayo transplant support group before I decide what to do. 33 FLIPF dx 1/06> > > Subject: Update/> To: Breathe-Support@ yahoogroups. com> Date: Tuesday, March 3, 2009, 9:16 PM> > > > > > > Hello to everyone, > > I've been on the board everyday and have responded to some posts but have mostly stayed to myself. > > I visited my Internal Med. Dr. Monday. She increased my antidepressant because of the anxiety and emotion I've had later in the days for about a month now. She also ordered an MRI on my left hip because of the pain I've been having there. An echocardiagram has been ordered to check for PH (heart rate hasn't gotten low enough yet.) And she suggested persuing Lapband surgery for my weight. I've been strugling with my weight all my life and have been getting no where fast lately. If I were to be eligible for the Lapband it would help me to reach the weight goals I'm required to meet before being evaluated for transplant. > > After my appointment I came home, logged in to the board and saw the bad news about Sherry.I didn't know her well but the news just broke my heart for her family. I can only imagine what they are feeling. Personally I've been uneasy about the idea of transplant since the first time it was mentioned to me by my pulmonologist. I only started considering it when some of my family asked me to.I have big decisions to make over the next few weeks. I'm feeling very overwhelmed and scared.> > On a more positive note: I have made sure I am LIVING life.I got my nose pierced a few weeks ago. It's something I've always liked on other people but didn't do myself because of work or worry of someone elses opinion. Well now I'm not working and there's no one to tell me I can't. So I did it and I love it! I've also decided to start sewing and will begin a baby quilt for a friend tomorrow. > > 33 FL> IPF dx 1/06> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 Joyce & , Joann Fabrics has a site where you can order the kits on line. It also emails notices of sales both on line and in the stores. There are often coupons that can be used on line and or in the stores. I ordered some scrap booking paper that I had never seen before and was very pleased. I live within a mile of a store that has become one of my addictions. My gym is on one side and the grocery next door Margaret 62 Anchorage, Alaska Pneumonitis 97, PH 06, COPD, PF, respiratory & heart failure 08 I enjoy traveling, photography, gardening, sewing, home decorating, playing with my toys & classical music aka Grammie Goose To: Breathe-Support Sent: Thursday, March 5, 2009 4:52:45 AMSubject: Re: Re: Update/ i should really check out Joann fabrics near here i think they have quilting kits i know they have the stuff for making it from scratch Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 www.transplantfund. org From: hunnybunnybinky <brandy (AT) burnspc (DOT) com>Subject: Re: Update/To: Breathe-Support@ yahoogroups. comDate: Wednesday, March 4, 2009, 12:54 PM Joyce, I will make sure to put the picture up as soon as I finish. I bought a "quilt in a day" kit to do this as I haven't sewn in years. Santa brought my my first multi stitch sewing machine for Christmas. I've also bought patterns and material to make purses. I'm excited at the thought of a new hobby and nervous too. I'm hoping to have it done before our trip to Orlando. Also, thank you for your response. It's nice to hear about transplant success.I should probably schedule a visit to the Mayo transplant support group before I decide what to do. 33 FLIPF dx 1/06> > > Subject: Update/> To: Breathe-Support@ yahoogroups. com> Date: Tuesday, March 3, 2009, 9:16 PM> > > > > > > Hello to everyone, > > I've been on the board everyday and have responded to some posts but have mostly stayed to myself. > > I visited my Internal Med. Dr. Monday. She increased my antidepressant because of the anxiety and emotion I've had later in the days for about a month now. She also ordered an MRI on my left hip because of the pain I've been having there. An echocardiagram has been ordered to check for PH (heart rate hasn't gotten low enough yet.) And she suggested persuing Lapband surgery for my weight. I've been strugling with my weight all my life and have been getting no where fast lately. If I were to be eligible for the Lapband it would help me to reach the weight goals I'm required to meet before being evaluated for transplant. > > After my appointment I came home, logged in to the board and saw the bad news about Sherry.I didn't know her well but the news just broke my heart for her family. I can only imagine what they are feeling. Personally I've been uneasy about the idea of transplant since the first time it was mentioned to me by my pulmonologist. I only started considering it when some of my family asked me to.I have big decisions to make over the next few weeks. I'm feeling very overwhelmed and scared.> > On a more positive note: I have made sure I am LIVING life.I got my nose pierced a few weeks ago. It's something I've always liked on other people but didn't do myself because of work or worry of someone elses opinion. Well now I'm not working and there's no one to tell me I can't. So I did it and I love it! I've also decided to start sewing and will begin a baby quilt for a friend tomorrow. > > 33 FL> IPF dx 1/06> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 Pink/.... here's an FYI... try www.marymaxim.com for all sorts of kits and sewing and etc. I order from them all the time. Great c/s on the phone as well. Right now I'm doing one of their Quilt Magic projects.... MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Update/> To: Breathe-Support@ yahoogroups. com> Date: Tuesday, March 3, 2009, 9:16 PM> > > > > > > Hello to everyone, > > I've been on the board everyday and have responded to some posts but have mostly stayed to myself. > > I visited my Internal Med. Dr. Monday. She increased my antidepressant because of the anxiety and emotion I've had later in the days for about a month now. She also ordered an MRI on my left hip because of the pain I've been having there. An echocardiagram has been ordered to check for PH (heart rate hasn't gotten low enough yet.) And she suggested persuing Lapband surgery for my weight. I've been strugling with my weight all my life and have been getting no where fast lately. If I were to be eligible for the Lapband it would help me to reach the weight goals I'm required to meet before being evaluated for transplant. > > After my appointment I came home, logged in to the board and saw the bad news about Sherry.I didn't know her well but the news just broke my heart for her family. I can only imagine what they are feeling. Personally I've been uneasy about the idea of transplant since the first time it was mentioned to me by my pulmonologist. I only started considering it when some of my family asked me to.I have big decisions to make over the next few weeks. I'm feeling very overwhelmed and scared.> > On a more positive note: I have made sure I am LIVING life.I got my nose pierced a few weeks ago. It's something I've always liked on other people but didn't do myself because of work or worry of someone elses opinion. Well now I'm not working and there's no one to tell me I can't. So I did it and I love it! I've also decided to start sewing and will begin a baby quilt for a friend tomorrow. > > 33 FL> IPF dx 1/06> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 thanks margaret, i was in AC moore today, and they some some kits too Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 www.transplantfund.org--- Subject: Re: Re: Update/To: Breathe-Support Date: Thursday, March 5, 2009, 11:45 AM Joyce & , Joann Fabrics has a site where you can order the kits on line. It also emails notices of sales both on line and in the stores. There are often coupons that can be used on line and or in the stores. I ordered some scrap booking paper that I had never seen before and was very pleased. I live within a mile of a store that has become one of my addictions. My gym is on one side and the grocery next door Margaret 62 Anchorage, Alaska Pneumonitis 97, PH 06, COPD, PF, respiratory & heart failure 08 I enjoy traveling, photography, gardening, sewing, home decorating, playing with my toys & classical music aka Grammie Goose From: Joyce T Rosenberg <pinkrockybeach@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Thursday, March 5, 2009 4:52:45 AMSubject: Re: Re: Update/ i should really check out Joann fabrics near here i think they have quilting kits i know they have the stuff for making it from scratch Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 www.transplantfund. org From: hunnybunnybinky <brandy (AT) burnspc (DOT) com>Subject: Re: Update/To: Breathe-Support@ yahoogroups. comDate: Wednesday, March 4, 2009, 12:54 PM Joyce, I will make sure to put the picture up as soon as I finish. I bought a "quilt in a day" kit to do this as I haven't sewn in years. Santa brought my my first multi stitch sewing machine for Christmas. I've also bought patterns and material to make purses. I'm excited at the thought of a new hobby and nervous too. I'm hoping to have it done before our trip to Orlando. Also, thank you for your response. It's nice to hear about transplant success.I should probably schedule a visit to the Mayo transplant support group before I decide what to do. 33 FLIPF dx 1/06> > > Subject: Update/> To: Breathe-Support@ yahoogroups. com> Date: Tuesday, March 3, 2009, 9:16 PM> > > > > > > Hello to everyone, > > I've been on the board everyday and have responded to some posts but have mostly stayed to myself. > > I visited my Internal Med. Dr. Monday. She increased my antidepressant because of the anxiety and emotion I've had later in the days for about a month now. She also ordered an MRI on my left hip because of the pain I've been having there. An echocardiagram has been ordered to check for PH (heart rate hasn't gotten low enough yet.) And she suggested persuing Lapband surgery for my weight. I've been strugling with my weight all my life and have been getting no where fast lately. If I were to be eligible for the Lapband it would help me to reach the weight goals I'm required to meet before being evaluated for transplant. > > After my appointment I came home, logged in to the board and saw the bad news about Sherry.I didn't know her well but the news just broke my heart for her family. I can only imagine what they are feeling. Personally I've been uneasy about the idea of transplant since the first time it was mentioned to me by my pulmonologist. I only started considering it when some of my family asked me to.I have big decisions to make over the next few weeks. I'm feeling very overwhelmed and scared.> > On a more positive note: I have made sure I am LIVING life.I got my nose pierced a few weeks ago. It's something I've always liked on other people but didn't do myself because of work or worry of someone elses opinion. Well now I'm not working and there's no one to tell me I can't. So I did it and I love it! I've also decided to start sewing and will begin a baby quilt for a friend tomorrow. > > 33 FL> IPF dx 1/06> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 thanks sher Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 www.transplantfund.org--- Subject: Re: Re: Update/To: Breathe-Support Date: Thursday, March 5, 2009, 1:22 PM Pink/. ... here's an FYI... try www.marymaxim. com for all sorts of kits and sewing and etc. I order from them all the time. Great c/s on the phone as well. Right now I'm doing one of their Quilt Magic projects.... MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Update/> To: Breathe-Support@ yahoogroups. com> Date: Tuesday, March 3, 2009, 9:16 PM> > > > > > > Hello to everyone, > > I've been on the board everyday and have responded to some posts but have mostly stayed to myself. > > I visited my Internal Med. Dr. Monday. She increased my antidepressant because of the anxiety and emotion I've had later in the days for about a month now. She also ordered an MRI on my left hip because of the pain I've been having there. An echocardiagram has been ordered to check for PH (heart rate hasn't gotten low enough yet.) And she suggested persuing Lapband surgery for my weight. I've been strugling with my weight all my life and have been getting no where fast lately. If I were to be eligible for the Lapband it would help me to reach the weight goals I'm required to meet before being evaluated for transplant. > > After my appointment I came home, logged in to the board and saw the bad news about Sherry.I didn't know her well but the news just broke my heart for her family. I can only imagine what they are feeling. Personally I've been uneasy about the idea of transplant since the first time it was mentioned to me by my pulmonologist. I only started considering it when some of my family asked me to.I have big decisions to make over the next few weeks. I'm feeling very overwhelmed and scared.> > On a more positive note: I have made sure I am LIVING life.I got my nose pierced a few weeks ago. It's something I've always liked on other people but didn't do myself because of work or worry of someone elses opinion. Well now I'm not working and there's no one to tell me I can't. So I did it and I love it! I've also decided to start sewing and will begin a baby quilt for a friend tomorrow. > > 33 FL> IPF dx 1/06> Quote Link to comment Share on other sites More sharing options...
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