Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 Thank-you very much for the information.Sent on the TELUS Mobility network with BlackBerryFrom: "Sher Bauman" Date: Thu, 5 Mar 2009 10:58:50 -0800To: <Breathe-Support >Subject: Re: Re: Pulmonary Rehab  ....there are so many variables that I can only be general....it's an Rx by your dr for prescribed exercises, breathing techniques, maybe stretching and/or weights, O2 or none. A certain time frame and you usually have the same RT each time that works w/you.A lot depends on what your ins. will or will not pay.I went 2x/wk for about 40 min. Weigh in each time...vitals taken each time... and then usually on the treadmill w/O2 for about 20 min. I couldn't do 20 min now but that is a general idea....Then on to a bike type thing...can't remember the name now.You do what you can as long as you safely can. You are monitored very carefully.You may not do at all what I did and maybe it's totally different in Canada even.Best thing is to ask your dr. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Re: Re: ILD/Pulm. Fibrosis Sunny, I am glad they offered you the cd. You should keep a copy of all your tests and ct's. Also if there is a University teaching Hospital near you that would be the place to go.� Love & Prayers, Peggy Florida, �IPF/UIP 2004 "I believe that friends are quiet angels�who lift us to our feet,� when our wings�have trouble remembering how to fly."� On Mar 5, 2009, at 12:46 AM, sunnypickel (AT) ymail (DOT) com wrote: Oops I was just in a little shock. We had just returned from a trip to Oregon soooo... Anyway I am 51 and see Dr. Elmer in Spokane. The called yesterday to tell me that my sputum showed vast amounts of infection and put me on an antibiotic. 7 pills $170 with my insurance. Had my CT today and was shocked when they offered me a cd of the test and I can pick up the radiology report tomorrow. Things have sure changed from the old days when they were so secretive. Joy I would love to meet for lunch sometime. Just e-mail me and I will give you my number. Sunnyrt , sparrow4@... wrote:>> Quoting "sunnypickel@..." :>�> > Joyce, I live in a tiny town called Rathdrum Oregon.� My doctors are> > in Spokane WA but we are closer to Coeur d' Alene, ID.� How do you> > find a teaching hospital and how do you approach them?� Also how much> > does an oximeter cost.� We me not working and all the medical bills> > we are in very poor financial shape.� I applied for Social Security 3> > years ago and after 2 denials am waiting on a judge.� They say it> > might take another 17 months but with this new diagnoses things may> > go quicker.� Do I ask my pulmodoc for a referral for a second opinion> > or my primary?� I do not want to make my current pulmo guy mad as it> > took me sooooooooooo long just to see him the first time.� You are> > correc the my pulse ox is okay at rest but moving around changes that> > drastically.� I also wonder if in the morning or if lying in certain> > positions makes things worse.� I wake up drowning out of breath and> > my lungs hurt so bad. It takes quite a while of just sitting up> > before I can draw very much breath at all.� It seems like the pain in> > my lungs is much worse lying on my right side.� Is this my> > imagination do you think?> >> Sunny, I don't mean to tell you where you live but I live in Blanchard,�> Idaho. Not far from Rathdrum, Idaho and near Coeur'd'Alene. You said�> that you live in Oregon. My pulmo dr. is in Spokane. His name is�> Puruckherr. Who do you go to? I was just diagnosed Jan.6, so I am also�> new to this list. As far as I can tell the nearest IPF center is at the�> University of Wahington near Seattle. I lived on Port Orchard Wa. for�> 40 years. My children, grandchildren and greatgrandchild all live�> around there. I am planning on selling my house and moving back there.�> This summer I hope. I need to be near my children now. Since we are so�> close maybe we can meet sometine. Did you say how old you are? Beverley�> Joy> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 Hi ,Had my first PR today, after an evaluation on Monday. The eval consists of lots of questions and two 6 minutewalks. Both of my walks were done with O2 since I desatin nothing flat (sats high 70s on room air after 50 foot walk). The routine in PR consists of upper body exercises, followedby treadmill, stationary bike, horizontal stair stepper. Sincethis was my first time I only got to go three minutes on eachmachine. Times will increase as my endurance improves. Twice a week for an hour, for 290 sessions, preapproved byinsurance. After that I may pay $35/month for maintenance,which I may do.It's all about the breathing...and pacing yourself.Peace, jon50, Missouri, Sarcoidosis 1/9-- Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, " I will try again tomorrow.” Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 Thank-you very much for the information. Subject: Re: Re: Pulmonary RehabTo: Breathe-Support Date: Thursday, March 5, 2009, 10:12 PM Hi ,Had my first PR today, after an evaluation on Monday. The eval consists of lots of questions and two 6 minutewalks. Both of my walks were done with O2 since I desatin nothing flat (sats high 70s on room air after 50 foot walk).The routine in PR consists of upper body exercises, followedby treadmill, stationary bike, horizontal stair stepper. Sincethis was my first time I only got to go three minutes on eachmachine. Times will increase as my endurance improves.Twice a week for an hour, for 290 sessions, preapproved byinsurance. After that I may pay $35/month for maintenance,which I may do.It's all about the breathing... and pacing yourself.Peace,jon50, Missouri, Sarcoidosis 1/9-- Courage doesn't always roar. Sometimes courageis the quiet voice at the end of the day saying, "I will try again tomorrow.†Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 Thank-you very much for the information. Subject: Re: Re: Pulmonary RehabTo: Breathe-Support Date: Thursday, March 5, 2009, 10:12 PM Hi ,Had my first PR today, after an evaluation on Monday. The eval consists of lots of questions and two 6 minutewalks. Both of my walks were done with O2 since I desatin nothing flat (sats high 70s on room air after 50 foot walk).The routine in PR consists of upper body exercises, followedby treadmill, stationary bike, horizontal stair stepper. Sincethis was my first time I only got to go three minutes on eachmachine. Times will increase as my endurance improves.Twice a week for an hour, for 290 sessions, preapproved byinsurance. After that I may pay $35/month for maintenance,which I may do.It's all about the breathing... and pacing yourself.Peace,jon50, Missouri, Sarcoidosis 1/9-- Courage doesn't always roar. Sometimes courageis the quiet voice at the end of the day saying, "I will try again tomorrow.†Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 Thank-you very much for the information. Subject: Re: Re: Pulmonary RehabTo: Breathe-Support Date: Thursday, March 5, 2009, 10:12 PM Hi ,Had my first PR today, after an evaluation on Monday. The eval consists of lots of questions and two 6 minutewalks. Both of my walks were done with O2 since I desatin nothing flat (sats high 70s on room air after 50 foot walk).The routine in PR consists of upper body exercises, followedby treadmill, stationary bike, horizontal stair stepper. Sincethis was my first time I only got to go three minutes on eachmachine. Times will increase as my endurance improves.Twice a week for an hour, for 290 sessions, preapproved byinsurance. After that I may pay $35/month for maintenance,which I may do.It's all about the breathing... and pacing yourself.Peace,jon50, Missouri, Sarcoidosis 1/9-- Courage doesn't always roar. Sometimes courageis the quiet voice at the end of the day saying, "I will try again tomorrow.†Quote Link to comment Share on other sites More sharing options...
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