Re: kay from york pa 2009

[Guest guest]

Hi Kay, Welcome! Every time I see my pulmonologist he ask about heartburn, GURD, and I know there is some correlation but since I do not have it I don't know the exact percentage of PF patients who have it but I believe it is more than 50%. I believe it was Bruce that wrote about it recently, he does a lot of research. Good luck on your up coming tests.

Margaret in Alaska

pneumonitis 97, PH 04, COPD, PF 08

To: Breathe-Support Sent: Tuesday, March 3, 2009 6:19:31 PMSubject: Re: kay from york pa 2009

Hi!

Yes, it is a shock! You will find great encouragement on this board. I thought I would just check it once in awhile but find myself on it more and more - such good information and support is here!

I was diagnosed about a year ago with ILD/IPF. I have GERD as well as do many here. I know of no solid evidence that there is a connection between the two but from what I am learning it could very well be the case.

A new friend,

Ken R.

Hi my name IS Card I was Diagonsed with The Begining of Pulmornary Fibrosis.In Sept Of 2008 and I HAVE A FEW Question's? of concern's I feel terrible all the time. I saw my Pulmornary Doctor on wedesday I Asked him what stage of Fibrosis I had said I DON'T KNOWasked what he thought how long I had to live he said two early to tell did not like his bed side matter you allready getting your coffin ready he said to me. he said that oxygen level looks good so farI have Sleep apena I am getting my mask on wedesday.also yelling at me about my weight.. I UNDERSTAND that I put weight on also I have had a Hysteromty a full one that I AM ALSO HORMOMEL I WENT to the hosiptal yesteday i feel so lightheaded and dizzy hardley can see and weak and tired that said the some thing as alway's that it is Veritgo.and they gave me Myccline for dizzyness in which it is does nothing,I feel very

weakand tired I sufferd with chronic sunises and asthma and gerd before I got this monster. I dont like my pulmornary how talks to me like there is nothing wrong with me knowing what he has found and the way i feel.plus my racing heart.my pulse is always 130 with exercise or walking any type of exercise.sitting is 107 or 90s please let me know what you guy;s think I am on cardizem 300 and Linspriol for blood pressure.

-- Dyane 53 Phoenix, AZ Diabetic 96, NSIP 02 Breast Cancer 02, Fibro 07, IPF 07, lipodermatosclerosi s 08, and Ive forgotten the rest HA HA

[Guest guest]

hello linda, glad to met you, waynesboro is close to where i live,i'm a

little bit east of gettysburg , i do live close to queen street.

I'm going to lung sleep and critical care ,a pulmo doctor that came from hopkins,he's highly thought of here. we shall see on wednesday.thank you for all your concern .gotta go, i still work and i'm due there soon.thank you

kay r,52,ipf,09,pa

To: Breathe-Support Sent: Wednesday, March 4, 2009 11:21:45 PMSubject: Re: kay from york pa 2009

Kay, Hello...When we were first married we lived in a really small town right near you...Waynesboro, PAI taught in the Hagerstown MD school district! There was a member Bob W.. from York here for a while. He got a different DX and I think he may have left the group. Welcome.Do you go to s Hopkins in land for your Medical stuff or burg or Hershey Medical?Small world time...my brother worked for McCrory Mclellan and Green in York in the 70's and livedoff of Queen street in York.Sorry I'm asking non-PF questions?Just curious.Anyway, welcome to another PA person, I'm sorry your needed to find us but pleased for you that you did.You will get loads of answers to your questions and all the support you need.

Z 65, fibriotic NSIP/o5/PA

And “mild†PH/10/07 and Reynaud’s too!!

No, NSIP was not self-inflicted…I never smoked!

Potter, reader,carousel lover and MomMom to Darah

and Sara

“I’m gonna be iron like a lion in Zion†Bob Marley

Vinca Minor-periwinkle is my flower

Beverly Romich wrote:

I'm from York its between burg and the land line.Tell me about yourself.How long have you been in this support group? I'm so glad to have people to talk to about this.

I just got home from work and i'm pooped.I will write more later.

Thanks kay

From: Joyce T Rosenberg <pinkrockybeach@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Tuesday, March 3, 2009 10:48:06 AMSubject: Re: Hi Everyone

Hi Kay

sorry you need us, but glad you found us

i am from Langhorne PA, near Philly, what part of PA are you from?

there are a few of us from PA

2 of us go to Penn

1 goes to Temple (she lives in NJ now)

some live further west or north

if you are close by, maybe we can meet

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund. org

Hi my name IS Card I was Diagonsed with The Begining of Pulmornary Fibrosis.In Sept Of 2008 and I HAVE A FEW Question's? of concern's I feel terrible all the time. I saw my Pulmornary Doctor on wedesday I Asked him what stage of Fibrosis I had said I DON'T KNOWasked what he thought how long I had to live he said two early to tell did not like his bed side matter you allready getting your coffin ready he said to me. he said that oxygen level looks good so farI have Sleep apena I am getting my mask on wedesday.also yelling at me about my weight. I UNDERSTAND that I put weight on also I have had a Hysteromty a full one that I AM ALSO HORMOMEL I WENT to the hosiptal yesteday i feel so lightheaded and dizzy hardley can see and weak and tired that said the some thing as alway's that it is Veritgo.and they gave me Myccline for dizzyness in which it is does nothing,I feel very

weakand tired I sufferd with chronic sunises and asthma and gerd before I got this monster. I dont like my pulmornary how talks to me like there is nothing wrong with me knowing what he has found and the way i feel.plus my racing heart.my pulse is always 130 with exercise or walking any type of exercise.sitting is 107 or 90s please let me know what you guy;s think I am on cardizem 300 and Linspriol for blood pressure.-- Dyane 53 Phoenix, AZ Diabetic 96, NSIP 02 Breast Cancer 02, Fibro 07, IPF 07, lipodermatosclerosi s 08, and Ive forgotten the rest HA HA

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