Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 Hi Kay, Welcome! Every time I see my pulmonologist he ask about heartburn, GURD, and I know there is some correlation but since I do not have it I don't know the exact percentage of PF patients who have it but I believe it is more than 50%. I believe it was Bruce that wrote about it recently, he does a lot of research. Good luck on your up coming tests. Margaret in Alaska pneumonitis 97, PH 04, COPD, PF 08 To: Breathe-Support Sent: Tuesday, March 3, 2009 6:19:31 PMSubject: Re: kay from york pa 2009 Hi! Yes, it is a shock! You will find great encouragement on this board. I thought I would just check it once in awhile but find myself on it more and more - such good information and support is here! I was diagnosed about a year ago with ILD/IPF. I have GERD as well as do many here. I know of no solid evidence that there is a connection between the two but from what I am learning it could very well be the case. A new friend, Ken R. Hi my name IS Card I was Diagonsed with The Begining of Pulmornary Fibrosis.In Sept Of 2008 and I HAVE A FEW Question's? of concern's I feel terrible all the time. I saw my Pulmornary Doctor on wedesday I Asked him what stage of Fibrosis I had said I DON'T KNOWasked what he thought how long I had to live he said two early to tell did not like his bed side matter you allready getting your coffin ready he said to me. he said that oxygen level looks good so farI have Sleep apena I am getting my mask on wedesday.also yelling at me about my weight.. I UNDERSTAND that I put weight on also I have had a Hysteromty a full one that I AM ALSO HORMOMEL I WENT to the hosiptal yesteday i feel so lightheaded and dizzy hardley can see and weak and tired that said the some thing as alway's that it is Veritgo.and they gave me Myccline for dizzyness in which it is does nothing,I feel very weakand tired I sufferd with chronic sunises and asthma and gerd before I got this monster. I dont like my pulmornary how talks to me like there is nothing wrong with me knowing what he has found and the way i feel.plus my racing heart.my pulse is always 130 with exercise or walking any type of exercise.sitting is 107 or 90s please let me know what you guy;s think I am on cardizem 300 and Linspriol for blood pressure. -- Dyane 53 Phoenix, AZ Diabetic 96, NSIP 02 Breast Cancer 02, Fibro 07, IPF 07, lipodermatosclerosi s 08, and Ive forgotten the rest HA HA Quote Link to comment Share on other sites More sharing options...
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