Re: I HAVE NOT BEEN WELL THIS PAST WEEK..............................

[Guest guest]

Lou

I know within your post there is the 30 lpm and other less positive

pieces, but what I see is you, your personality, you alive and joking,

you cooking chili, you with a new bed. I know there's a fear there but I

see such beauty as you make each moment still special. Now, I don't like

your choice of foods for the picnic. If i'm going to eat that

assortment, I am going to need morphine.

>

> can hardly type at all, no one behind me today just want to let you

know that last night 7Pm Hospice brought my new bed. It is beautiful.

The incentive of bringing it means I may be around a few more days or

weeks. I got up this morning and made huge pot of chili. Can not keep

my fingers where they belong on the boards to type words. Frustrating.

> The bed is very nice with all the extra inches of foam on the top it

needs for body parts, etc.

>

>

> they came this morning nd removed the old bed and side taboel ''Nice

in hre nowl I am in puter room, so nice and quietl '

> can[ seem to get this togetherl ]]

> ( Menu for picnic is livrworst or braunswagrk lettuce, honey mustard,

reg. mustard, picklcd pigs feet, and these are only the hordeorves'.

>

> who will be in charge f next weeks picnic:?: Or will there even be

one: this whole past weeek 1/2 Earl has been up with me al night can['t

get me to bath on time, katie crying all up and down the hall, I am on

30 mil. oxygen now, 'Earl figured out a way to do it with mssk. His

sister was here and between them both seemed to get me back to a

reasonable positition in bed to give meds to me. taking 2 5oz xanax

every 2 hrs. and seems to keep giving me more nd moe more moreiene until

I settle down for more rest. Sat night and 'Sun. night and tis mornin

'Earl almost could not bring me around back again. Semms

> will be with me mostly all next week. Earl's sch. has been

changed around so much tht we dont know where the next help id coming

fom I am having to hve more and more morphine every time i TURN arundl

I feel marvelous Darling. Becoming a pproblem. '''''We re heating

cchili for sujpper again. 'S o good too.

> The charge for the picnic willl be extra doses for morphine and I am

trying to be xra carefl that I don't fall.]

>

> Don'[t think ill of me today. I am just requiring so much mmore

morphine and more xanax and more morphinel

>

> We all ought to catch the 5pm rollrcoaster run up trhe then pray

reaooy hrdl]]

>

> don[t know what's going going but for me, guysk I think i is alsmost

oer voer surel]

>

> have to go noww prog won[ be reading much of my mal this coming weeekk

i will try to kep p on yoursl]

>

> please help with any words of wisdome or help.

>

> I LOVE Y9U THIS DAYL]

> MARY OOU IPF - 02

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[Guest guest]

Lou, I Love You This Day and

Every Day!

Z fibriotic NSIP/05

Z 65, fibriotic NSIP/05/PA

And

“mild” PH/10/07 and Reynaud’s too!!

No,

NSIP was not self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to Darah and Sara

“I’m

gonna be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

Lou wrote:

can hardly type at all, no one behind me today just want to let

you know that last night 7Pm Hospice brought my new bed. It is

beautiful. The incentive of bringing it means I may be around a few

more days or weeks. I got up this morning and made huge pot of chili.

Can not keep my fingers where they belong on the boards to type words.

Frustrating.

The bed is very nice with all the extra inches of foam on the top it

needs for body parts, etc.

they came this morning nd removed the old bed and side taboel ''Nice in

hre nowl I am in puter room, so nice and quietl '

can[ seem to get this togetherl ]]

( Menu for picnic is livrworst or braunswagrk lettuce, honey mustard,

reg. mustard, picklcd pigs feet, and these are only the hordeorves'.

who will be in charge f next weeks picnic:?: Or will there even be one:

this whole past weeek 1/2 Earl has been up with me al night can['t get

me to bath on time, katie crying all up and down the hall, I am on 30

mil. oxygen now, 'Earl figured out a way to do it with mssk. His sister

was here and between them both seemed to get me back to a reasonable

positition in bed to give meds to me. taking 2 5oz xanax every 2 hrs.

and seems to keep giving me more nd moe more moreiene until I settle

down for more rest. Sat night and 'Sun. night and tis mornin 'Earl

almost could not bring me around back again. Semms

will be with me mostly all next week. Earl's sch. has been changed

around so much tht we dont know where the next help id coming fom I am

having to hve more and more morphine every time i TURN arundl I feel

marvelous Darling. Becoming a pproblem. '''''We re heating cchili for

sujpper again. 'S o good too.

The charge for the picnic willl be extra doses for morphine and I am

trying to be xra carefl that I don't fall.]

Don'[t think ill of me today. I am just requiring so much mmore

morphine and more xanax and more morphinel

We all ought to catch the 5pm rollrcoaster run up trhe then pray reaooy

hrdl]]

don[t know what's going going but for me, guysk I think i is alsmost

oer voer surel]

have to go noww prog won[ be reading much of my mal this coming weeekk

i will try to kep p on yoursl]

please help with any words of wisdome or help.

I LOVE Y9U THIS DAYL]

MARY OOU IPF - 02

this p

[Guest guest]

Dearest Lou,

No words of wisdom from me but an idea for you to Visualise......your Air Family holding you in a HUGE embrace.....rocking you gently & whispering calming words of courage & hope .......rock ever so gently sweet friend......

lots of love until the pic-in-nic-Aaaaaaaaaaaaaaaaaaaaaaaa!

GIO>> can hardly type at all, no one behind me today just want to let you know that last night 7Pm Hospice brought my new bed. It is beautiful. The incentive of bringing it means I may be around a few more days or weeks. I got up this morning and made huge pot of chili. Can not keep my fingers where they belong on the boards to type words. Frustrating. > The bed is very nice with all the extra inches of foam on the top it needs for body parts, etc.> > > they came this morning nd removed the old bed and side taboel ''Nice in hre nowl I am in puter room, so nice and quietl '> can[ seem to get this togetherl ]]> ( Menu for picnic is livrworst or braunswagrk lettuce, honey mustard, reg. mustard, picklcd pigs feet, and these are only the hordeorves'.> > who will be in charge f next weeks picnic:?: Or will there even be one: this whole past weeek 1/2 Earl has been up with me al night can['t get me to bath on time, katie crying all up and down the hall, I am on 30 mil. oxygen now, 'Earl figured out a way to do it with mssk. His sister was here and between them both seemed to get me back to a reasonable positition in bed to give meds to me. taking 2 5oz xanax every 2 hrs. and seems to keep giving me more nd moe more moreiene until I settle down for more rest. Sat night and 'Sun. night and tis mornin 'Earl almost could not bring me around back again. Semms > will be with me mostly all next week. Earl's sch. has been changed around so much tht we dont know where the next help id coming fom I am having to hve more and more morphine every time i TURN arundl I feel marvelous Darling. Becoming a pproblem. '''''We re heating cchili for sujpper again. 'S o good too.> The charge for the picnic willl be extra doses for morphine and I am trying to be xra carefl that I don't fall.]> > Don'[t think ill of me today. I am just requiring so much mmore morphine and more xanax and more morphinel > > We all ought to catch the 5pm rollrcoaster run up trhe then pray reaooy hrdl]]> > don[t know what's going going but for me, guysk I think i is alsmost oer voer surel]> > have to go noww prog won[ be reading much of my mal this coming weeekk i will try to kep p on yoursl]> > please help with any words of wisdome or help.> > I LOVE Y9U THIS DAYL]> MARY OOU IPF - 02> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > this p>

[Guest guest]

Lou, I am so glad you got a new comfy bed. I can't believe you can make chile... I do good to get a bowl of cereal in the AM.I know it makes you feel so good to be able to do something--anything. You just keep on keepin on girlfriend.  Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  can hardly type at all, no one behind me today just want to let you know that last night 7Pm Hospice brought my new bed. It is beautiful. The incentive of bringing it means I may be around a few more days or weeks. I got up this morning and made huge pot of chili. Can not keep my fingers where they belong on the boards to type words. Frustrating. The bed is very nice with all the extra inches of foam on the top it needs for body parts, etc.they came this morning nd removed the old bed and side taboel ''Nice in hre nowl I am in puter room, so nice and quietl 'can[ seem to get this togetherl ]]( Menu for picnic is livrworst or braunswagrk lettuce, honey mustard, reg. mustard, picklcd pigs feet, and these are only the hordeorves'.who will be in charge f next weeks picnic:?: Or will there even be one: this whole past weeek 1/2 Earl has been up with me al night can['t get me to bath on time, katie crying all up and down the hall, I am on 30 mil. oxygen now, 'Earl figured out a way to do it with mssk. His sister was here and between them both seemed to get me back to a reasonable positition in bed to give meds to me. taking 2 5oz xanax every 2 hrs. and seems to keep giving me more nd moe more moreiene until I settle down for more rest. Sat night and 'Sun. night and tis mornin 'Earl almost could not bring me around back again. Semms  will be with me mostly all next week. Earl's sch. has been changed around so much tht we dont know where the next help id coming fom I am having to hve more and more morphine every time i TURN arundl I feel marvelous Darling. Becoming a pproblem. '''''We re heating cchili for sujpper again. 'S o good too.The charge for the picnic willl be extra doses for morphine and I am trying to be xra carefl that I don't fall.]Don'[t think ill of me today. I am just requiring so much mmore morphine and more xanax and more morphinel We all ought to catch the 5pm rollrcoaster run up trhe then pray reaooy hrdl]]don[t know what's going going but for me, guysk I think i is alsmost oer voer surel]have to go noww prog won[ be reading much of my mal this coming weeekk i will try to kep p on yoursl]please help with any words of wisdome or help.I LOVE Y9U THIS DAYL]MARY OOU IPF - 02this p

[Guest guest]

Lou, I am on your side and by your side in this struggle. I would be there in person if I could and

help Earl with you and hold your hand. I will be thinking of you every day. Jack79/IPF - UIP/dx06/05 Maine

To: Breathe-Support Sent: Tuesday, April 7, 2009 6:45:09 PMSubject: I HAVE NOT BEEN WELL THIS PAST WEEK..............................

can hardly type at all, no one behind me today just want to let you know that last night 7Pm Hospice brought my new bed. It is beautiful. The incentive of bringing it means I may be around a few more days or weeks. I got up this morning and made huge pot of chili. Can not keep my fingers where they belong on the boards to type words. Frustrating. The bed is very nice with all the extra inches of foam on the top it needs for body parts, etc.they came this morning nd removed the old bed and side taboel ''Nice in hre nowl I am in puter room, so nice and quietl 'can[ seem to get this togetherl ]]( Menu for picnic is livrworst or braunswagrk lettuce, honey mustard, reg. mustard, picklcd pigs feet, and these are only the hordeorves'.who will be in charge f next weeks picnic:?: Or will there even be one: this whole past weeek 1/2 Earl has been up with me al night can['t get me to bath on time, katie crying all up and down the

hall, I am on 30 mil. oxygen now, 'Earl figured out a way to do it with mssk. His sister was here and between them both seemed to get me back to a reasonable positition in bed to give meds to me. taking 2 5oz xanax every 2 hrs. and seems to keep giving me more nd moe more moreiene until I settle down for more rest. Sat night and 'Sun. night and tis mornin 'Earl almost could not bring me around back again. Semms will be with me mostly all next week. Earl's sch. has been changed around so much tht we dont know where the next help id coming fom I am having to hve more and more morphine every time i TURN arundl I feel marvelous Darling. Becoming a pproblem. '''''We re heating cchili for sujpper again. 'S o good too.The charge for the picnic willl be extra doses for morphine and I am trying to be xra carefl that I don't fall.]Don'[t think ill of me today. I am just requiring so much mmore morphine and more xanax and more morphinel

We all ought to catch the 5pm rollrcoaster run up trhe then pray reaooy hrdl]]don[t know what's going going but for me, guysk I think i is alsmost oer voer surel]have to go noww prog won[ be reading much of my mal this coming weeekk i will try to kep p on yoursl]please help with any words of wisdome or help.I LOVE Y9U THIS DAYL]MARY OOU IPF - 02this p

[Guest guest]

Lou, I am on your side and by your side in this struggle. I would be there in person if I could and

help Earl with you and hold your hand. I will be thinking of you every day. Jack79/IPF - UIP/dx06/05 Maine

To: Breathe-Support Sent: Tuesday, April 7, 2009 6:45:09 PMSubject: I HAVE NOT BEEN WELL THIS PAST WEEK..............................

can hardly type at all, no one behind me today just want to let you know that last night 7Pm Hospice brought my new bed. It is beautiful. The incentive of bringing it means I may be around a few more days or weeks. I got up this morning and made huge pot of chili. Can not keep my fingers where they belong on the boards to type words. Frustrating. The bed is very nice with all the extra inches of foam on the top it needs for body parts, etc.they came this morning nd removed the old bed and side taboel ''Nice in hre nowl I am in puter room, so nice and quietl 'can[ seem to get this togetherl ]]( Menu for picnic is livrworst or braunswagrk lettuce, honey mustard, reg. mustard, picklcd pigs feet, and these are only the hordeorves'.who will be in charge f next weeks picnic:?: Or will there even be one: this whole past weeek 1/2 Earl has been up with me al night can['t get me to bath on time, katie crying all up and down the

hall, I am on 30 mil. oxygen now, 'Earl figured out a way to do it with mssk. His sister was here and between them both seemed to get me back to a reasonable positition in bed to give meds to me. taking 2 5oz xanax every 2 hrs. and seems to keep giving me more nd moe more moreiene until I settle down for more rest. Sat night and 'Sun. night and tis mornin 'Earl almost could not bring me around back again. Semms will be with me mostly all next week. Earl's sch. has been changed around so much tht we dont know where the next help id coming fom I am having to hve more and more morphine every time i TURN arundl I feel marvelous Darling. Becoming a pproblem. '''''We re heating cchili for sujpper again. 'S o good too.The charge for the picnic willl be extra doses for morphine and I am trying to be xra carefl that I don't fall.]Don'[t think ill of me today. I am just requiring so much mmore morphine and more xanax and more morphinel

We all ought to catch the 5pm rollrcoaster run up trhe then pray reaooy hrdl]]don[t know what's going going but for me, guysk I think i is alsmost oer voer surel]have to go noww prog won[ be reading much of my mal this coming weeekk i will try to kep p on yoursl]please help with any words of wisdome or help.I LOVE Y9U THIS DAYL]MARY OOU IPF - 02this p