Guest guest Posted April 22, 2009 Report Share Posted April 22, 2009 Does your husband go the the doctor appointments with you? That might help him understand. Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 inactive 4/09 www.transplantfund.org--- Subject: Happy to be hearTo: Breathe-Support Date: Tuesday, April 21, 2009, 10:43 PM I am happy to have found this site. I have been going through this since 97. But now look like things is getting worse I have scleroderma (sd) on my esophageal.I had a test done yesterday I had to drank white stuff. It was better than the very first time that I had it some years ago. I have so much going on with me SD, PF, PH, Fibromyalgia, Raynaud's,Sjogren' s,Acid reflux real bad, on oxygen 24/7 and now need a lung transplant. But I know that very one hear understand what I am going through. I which that my husband who I love and know he love's me could understand. I think he is in denial, every time I would try to tell him what the doctor said. He would say that you are heal and the doctors don't know what they are doing. But if that is so why do I have all of this going on in my live. And I know that God has a healing hand and that He has a plan for my live. I just going to trust God. I have had many of test before what is CPAP don't know that one? Thank for listing Quote Link to comment Share on other sites More sharing options...
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