Guest guest Posted March 30, 2009 Report Share Posted March 30, 2009 Joyce I'm just so thrilled beyond words that your experience there turned out so well and you found doctors who communicated with you and you could trust. To everyone, let Joyce serve as an inspiration that if you're not getting the answers and attention you need, to get somewhere you can. She had to go through so much effort to get to Denver but it was rewarded. Others have found the same whether its been UAB or Duke or Emorty or any number of other medical schools and hospitals. > > > > > > I was dx'd with polymyositis in Dec. 1988 (cpk over 15,000), then > > pulmonary fibrosis the falling summer, then a number of other med. > > problems to follow - but that's not why I'm here...I stay as active > Quote Link to comment Share on other sites More sharing options...
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