Guest guest Posted March 6, 2009 Report Share Posted March 6, 2009 Hi All, I am trying ( for the 4th time in 3 years) to come off of prednisone and wanted to document the experience for anyone who is interested. I began taking prednisone after my VAT on May, 8 2006 and except for a few months have been on various doses since. I credit it with saving my life but the side effects have been horrible- bone loss, shakiness, blurred vision, weight gain, rapid heart rate, prediabetic, etc., etc. Each time I have tried to come off I have ended up sick and on antibiotics. Several months ago posted about a woman who had successfully come off of prednisone by dropping 1 mg a month. I decided to try it ( with doctor's permission of course). January- I dropped from 10 to 9 mgs. Very little change except that I needed to turn up the oxygen when exercising and I was more tired each day. Sats- 97 at rest or sitting, 91 walking around the house, 80s when walking more than 5 or 6 minutes. February-8mgs. Beginning of the month I had headaches each morning ( lasted 6 days). Less shaky, eyesight better, but using more oxygen. Sats- 96 at rest and sitting, 91 walking around the house, 80s if walking more than 4-5 minutes. March-7mgs. I am no longer starving and do not want to mainline sugar! Good news-Eyesight is no longer blurry, no shaking except when I am tired, no longer puffy, and I feel like me again. This is so hard to explain other than with prednisone I feel like I am in a fog and at the 7 it feels like the fog has lifted. Bad News- the cough is back,dry eyes again, heaviness in my lungs and velcro sounds are back also. Sats- 94 when resting or sitting, can not walk more than 2-3 minutes without oxygen. After 3 minutes my sats drop dramatically, and I get pale and dizzy ( don't worry I am not practicing this move:). I am hoping that my body regulates itself in a few weeks and my symptoms decrease, but in the meantime I have upped my oil pills to 6 ( from 3) for the dry eyes, have started taking NAC again, am using oxygen more and talking less. I see the doctor for tests March 18 and again in April. R. (53) Sarcoid/PF 3/2006 Carlsbad, California Subject: Re: Re: Off Topic: Test for Scilly TranslatorTo: Breathe-Support Date: Friday, March 6, 2009, 10:44 AM Bruce...your new home sure sounds nice and just what you want/need. Do drop us a post once in awhile...you know how nosey we are! lol. Take care of you. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Off Topic: Test for ScillyTranslator> > > > > To: Breathe-Support@ yahoogroups. com> > > > > Date: Wednesday, March 4, 2009, 7:31 PM> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > > Ok BWBB it's time for you to undergo your Annual Licence to> > > Translate> > > > Scilliness Test:> > > > > Why would a bloke have the Nickname 'Raw Sugar'???> > > > > What sort of person would SHAKE the feet of a fly that had> landed> > in> > > > sugar BEFORE swatting said fly??????> > > > > Why would a Politician get the nickname 'The Mirror' ?????> > > > > What is the nickname for a kid that's got RED Hair?> > > > > What do we call someone who never shuts up????> > > > > Answers will be checked Tomorrow .........> > > > > SGIO> > > > > PS I can talk 10 feet under water with a snorkel in my gob!> > > > > PPS Until I was about 35 I was as skinny as a sapling with the> > wood> > > > scraped off!> > > > > These days I've given in to Gravity!> > > > >> > > > >> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
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