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Re: Orlando Weekend

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Eileen

So glad you had the chance. It's an experience one can't truly describe.

I use this as a reminder to anyone else that while this is an annual

event, you can always have a local or regional get together with a

couple of you, or several. This sure isn't our way of choice to make

friends, but those you make here and by meeting sure can be special.

I've had the privilege of meeting many board members but given a chance

I'd try to meet you all. So, again...don't wait for the annual events to

meet those within driving distance.

>

> What a wonderful experience. This was my first time meeting anyone

from our Air Family and I cannot tell you how much it meant to me. My

husband and I both enoyed meeting Leigh, Beth, Peggy, Sandy, Jane,

Steve, Bob, Sharon, and all their caregivers. I know I have left

out someone, forgive me if I did. I feel so much better having met even

of small part of the Air Family and I do feel like part of the family

now. I only wish everyone from our Air Family could have come. I

will take you up on the help and advice for applying for SS. God bless

each and every one of you.

>

> Eileen IPF/UIP May 07

>

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Eileen,

I'll be glad to help you. I look forward to talking with you more. I'll email

you with extra contact info.

I couldn't agree with you more. This weekend was amazing! Hubby and I learned

quite a bit. The most valuable thing we got from this trip was the opportunity

to meet our new friends. I'm so thankful to have had this experience.

33 FL

IPF dx 1/06

>

> What a wonderful experience. This was my first time meeting anyone from our

Air Family and I cannot tell you how much it meant to me. My husband and I both

enoyed meeting Leigh, Beth, Peggy, Sandy, Jane, Steve, Bob, Sharon,

and all their caregivers. I know I have left out someone, forgive me if I did.

I feel so much better having met even of small part of the Air Family and I do

feel like part of the family now. I only wish everyone from our Air Family

could have come. I will take you up on the help and advice for applying

for SS. God bless each and every one of you.

>

> Eileen IPF/UIP May 07

>

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goood morning

i live in Lompoc, Ca. and was wondering if there was anyone in this area, Lompoc, Santa Barbara, Santa , Pismo Beach, San Obispo, who could get together?

Ken O.

To: Breathe-Support Sent: Sunday, March 15, 2009 5:04:23 PMSubject: Re: Orlando Weekend

EileenSo glad you had the chance. It's an experience one can't truly describe.I use this as a reminder to anyone else that while this is an annualevent, you can always have a local or regional get together with acouple of you, or several. This sure isn't our way of choice to makefriends, but those you make here and by meeting sure can be special.I've had the privilege of meeting many board members but given a chanceI'd try to meet you all. So, again...don' t wait for the annual events tomeet those within driving distance.>> What a wonderful experience. This was my first time meeting anyonefrom our Air Family and I cannot tell you how much it meant to me. Myhusband and I both

enoyed meeting Leigh, Beth, Peggy, Sandy, Jane,Steve, Bob, Sharon, and all their caregivers. I know I have leftout someone, forgive me if I did. I feel so much better having met evenof small part of the Air Family and I do feel like part of the familynow. I only wish everyone from our Air Family could have come. Iwill take you up on the help and advice for applying for SS. God blesseach and every one of you.>> Eileen IPF/UIP May 07>

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goood morning

i live in Lompoc, Ca. and was wondering if there was anyone in this area, Lompoc, Santa Barbara, Santa , Pismo Beach, San Obispo, who could get together?

Ken O.

To: Breathe-Support Sent: Sunday, March 15, 2009 5:04:23 PMSubject: Re: Orlando Weekend

EileenSo glad you had the chance. It's an experience one can't truly describe.I use this as a reminder to anyone else that while this is an annualevent, you can always have a local or regional get together with acouple of you, or several. This sure isn't our way of choice to makefriends, but those you make here and by meeting sure can be special.I've had the privilege of meeting many board members but given a chanceI'd try to meet you all. So, again...don' t wait for the annual events tomeet those within driving distance.>> What a wonderful experience. This was my first time meeting anyonefrom our Air Family and I cannot tell you how much it meant to me. Myhusband and I both

enoyed meeting Leigh, Beth, Peggy, Sandy, Jane,Steve, Bob, Sharon, and all their caregivers. I know I have leftout someone, forgive me if I did. I feel so much better having met evenof small part of the Air Family and I do feel like part of the familynow. I only wish everyone from our Air Family could have come. Iwill take you up on the help and advice for applying for SS. God blesseach and every one of you.>> Eileen IPF/UIP May 07>

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I'm GREEN with ENVY......at least that's in keeping with today for an Irish hearted girl (albeit with Scots/Flemish/Viking/Anglo/ Saxon undertones....) I KNOW I've kissed the Blarney Stone......my Mum was forever lamenting my Irish -ness when I was a kid.. it caused HER no end of grief she said! She thought she was 'PURE' English BUT .......I've found out her grandfather & family was from Cork ... I lament that I can't tell her that....I even reckon it was those genes that was responsible for her delightful whimsy (when she was off-guard & allowed it to shine through!) I still miss my Mum!

Anyways back to Orlando... I'll enjoy soaking up the piccies & imagining I was there.....you LUCKY ducks.. you sure found one of those POTS of Gold !

lotsa

in Oz

>> What a wonderful experience. This was my first time meeting anyone from our Air Family and I cannot tell you how much it meant to me. My husband and I both enoyed meeting Leigh, Beth, Peggy, Sandy, Jane, Steve, Bob, Sharon, and all their caregivers. I know I have left out someone, forgive me if I did. I feel so much better having met even of small part of the Air Family and I do feel like part of the family now. I only wish everyone from our Air Family could have come. I will take you up on the help and advice for applying for SS. God bless each and every one of you.> > Eileen IPF/UIP May 07>

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I'm GREEN with ENVY......at least that's in keeping with today for an Irish hearted girl (albeit with Scots/Flemish/Viking/Anglo/ Saxon undertones....) I KNOW I've kissed the Blarney Stone......my Mum was forever lamenting my Irish -ness when I was a kid.. it caused HER no end of grief she said! She thought she was 'PURE' English BUT .......I've found out her grandfather & family was from Cork ... I lament that I can't tell her that....I even reckon it was those genes that was responsible for her delightful whimsy (when she was off-guard & allowed it to shine through!) I still miss my Mum!

Anyways back to Orlando... I'll enjoy soaking up the piccies & imagining I was there.....you LUCKY ducks.. you sure found one of those POTS of Gold !

lotsa

in Oz

>> What a wonderful experience. This was my first time meeting anyone from our Air Family and I cannot tell you how much it meant to me. My husband and I both enoyed meeting Leigh, Beth, Peggy, Sandy, Jane, Steve, Bob, Sharon, and all their caregivers. I know I have left out someone, forgive me if I did. I feel so much better having met even of small part of the Air Family and I do feel like part of the family now. I only wish everyone from our Air Family could have come. I will take you up on the help and advice for applying for SS. God bless each and every one of you.> > Eileen IPF/UIP May 07>

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Eileen,

I've just noticed the date of your diagnosis... it's the same as mine.. I'll have to go back & check on your messages... I do a lot of scanning of Posts & seem to have missed you... that's wot happens when one is a jump in n' outer!

in Oz

IPF: Fibrotic NSIP/UIP?????

Raynauds'

May 2007

Ro52

May 2008

>> What a wonderful experience. This was my first time meeting anyone from our Air Family and I cannot tell you how much it meant to me. My husband and I both enoyed meeting Leigh, Beth, Peggy, Sandy, Jane, Steve, Bob, Sharon, and all their caregivers. I know I have left out someone, forgive me if I did. I feel so much better having met even of small part of the Air Family and I do feel like part of the family now. I only wish everyone from our Air Family could have come. I will take you up on the help and advice for applying for SS. God bless each and every one of you.> > Eileen IPF/UIP May 07>

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...my great gr/parents were from Cork too...

Hope you're doing ok.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Re: Orlando Weekend

I'm GREEN with ENVY......at least that's in keeping with today for an Irish hearted girl (albeit with Scots/Flemish/Viking/Anglo/ Saxon undertones....) I KNOW I've kissed the Blarney Stone......my Mum was forever lamenting my Irish -ness when I was a kid.. it caused HER no end of grief she said! She thought she was 'PURE' English BUT .......I've found out her grandfather & family was from Cork ... I lament that I can't tell her that....I even reckon it was those genes that was responsible for her delightful whimsy (when she was off-guard & allowed it to shine through!) I still miss my Mum!

Anyways back to Orlando... I'll enjoy soaking up the piccies & imagining I was there.....you LUCKY ducks.. you sure found one of those POTS of Gold !

lotsa

in Oz

>> What a wonderful experience. This was my first time meeting anyone from our Air Family and I cannot tell you how much it meant to me. My husband and I both enoyed meeting Leigh, Beth, Peggy, Sandy, Jane, Steve, Bob, Sharon, and all their caregivers. I know I have left out someone, forgive me if I did. I feel so much better having met even of small part of the Air Family and I do feel like part of the family now. I only wish everyone from our Air Family could have come. I will take you up on the help and advice for applying for SS. God bless each and every one of you.> > Eileen IPF/UIP May 07>

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...my great gr/parents were from Cork too...

Hope you're doing ok.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Re: Orlando Weekend

I'm GREEN with ENVY......at least that's in keeping with today for an Irish hearted girl (albeit with Scots/Flemish/Viking/Anglo/ Saxon undertones....) I KNOW I've kissed the Blarney Stone......my Mum was forever lamenting my Irish -ness when I was a kid.. it caused HER no end of grief she said! She thought she was 'PURE' English BUT .......I've found out her grandfather & family was from Cork ... I lament that I can't tell her that....I even reckon it was those genes that was responsible for her delightful whimsy (when she was off-guard & allowed it to shine through!) I still miss my Mum!

Anyways back to Orlando... I'll enjoy soaking up the piccies & imagining I was there.....you LUCKY ducks.. you sure found one of those POTS of Gold !

lotsa

in Oz

>> What a wonderful experience. This was my first time meeting anyone from our Air Family and I cannot tell you how much it meant to me. My husband and I both enoyed meeting Leigh, Beth, Peggy, Sandy, Jane, Steve, Bob, Sharon, and all their caregivers. I know I have left out someone, forgive me if I did. I feel so much better having met even of small part of the Air Family and I do feel like part of the family now. I only wish everyone from our Air Family could have come. I will take you up on the help and advice for applying for SS. God bless each and every one of you.> > Eileen IPF/UIP May 07>

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