Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 Can anyone let me know what this consists of?Windsor, Ontario CanadaDx 03/08 IPFSent on the TELUS Mobility network with BlackBerryFrom: "Sher Bauman" Date: Thu, 5 Mar 2009 10:27:38 -0800To: <Breathe-Support >Subject: Re: Re: ILD/Pulm. Fibrosis  Peggy...speaking of teaching hospitals...I've sent in my requested records/tests to University of Washington (Dr. Ragu) and hopefully will get in about Aug or Sept.We're not all that far from Seattle so I think I should do this too.MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Re: Re: ILD/Pulm. Fibrosis Sunny, I am glad they offered you the cd. You should keep a copy of all your tests and ct's. Also if there is a University teaching Hospital near you that would be the place to go.� Love & Prayers, Peggy Florida, �IPF/UIP 2004 "I believe that friends are quiet angels�who lift us to our feet,� when our wings�have trouble remembering how to fly."� On Mar 5, 2009, at 12:46 AM, sunnypickel (AT) ymail (DOT) com wrote: Oops I was just in a little shock. We had just returned from a trip to Oregon soooo... Anyway I am 51 and see Dr. Elmer in Spokane. The called yesterday to tell me that my sputum showed vast amounts of infection and put me on an antibiotic. 7 pills $170 with my insurance. Had my CT today and was shocked when they offered me a cd of the test and I can pick up the radiology report tomorrow. Things have sure changed from the old days when they were so secretive. Joy I would love to meet for lunch sometime. Just e-mail me and I will give you my number. Sunnyrt , sparrow4@... wrote:>> Quoting "sunnypickel@..." :>�> > Joyce, I live in a tiny town called Rathdrum Oregon.� My doctors are> > in Spokane WA but we are closer to Coeur d' Alene, ID.� How do you> > find a teaching hospital and how do you approach them?� Also how much> > does an oximeter cost.� We me not working and all the medical bills> > we are in very poor financial shape.� I applied for Social Security 3> > years ago and after 2 denials am waiting on a judge.� They say it> > might take another 17 months but with this new diagnoses things may> > go quicker.� Do I ask my pulmodoc for a referral for a second opinion> > or my primary?� I do not want to make my current pulmo guy mad as it> > took me sooooooooooo long just to see him the first time.� You are> > correc the my pulse ox is okay at rest but moving around changes that> > drastically.� I also wonder if in the morning or if lying in certain> > positions makes things worse.� I wake up drowning out of breath and> > my lungs hurt so bad. It takes quite a while of just sitting up> > before I can draw very much breath at all.� It seems like the pain in> > my lungs is much worse lying on my right side.� Is this my> > imagination do you think?> >> Sunny, I don't mean to tell you where you live but I live in Blanchard,�> Idaho. Not far from Rathdrum, Idaho and near Coeur'd'Alene. You said�> that you live in Oregon. My pulmo dr. is in Spokane. His name is�> Puruckherr. Who do you go to? I was just diagnosed Jan.6, so I am also�> new to this list. As far as I can tell the nearest IPF center is at the�> University of Wahington near Seattle. I lived on Port Orchard Wa. for�> 40 years. My children, grandchildren and greatgrandchild all live�> around there. I am planning on selling my house and moving back there.�> This summer I hope. I need to be near my children now. Since we are so�> close maybe we can meet sometine. Did you say how old you are? Beverley�> Joy> Quote Link to comment Share on other sites More sharing options...
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