Guest guest Posted December 18, 2002 Report Share Posted December 18, 2002 Kristi, What a raw deal -- really, your doctor should be hearing loud and clear by this point that you're not doing RAI. I remember my primary GP saying to me early on that the decision, RAI or surgery or ATDs, had to my OWN and that the most important thing -- as far as he was concerned -- was that I was comfortable with my choice and doing what was right for me. that's the quality you need!! So sorry she was so unhelpful! B Dr.'s visit Hi all, Well, I had a disappointing visit with my doctor today. I wanted her to do the TSI, but she refused! This really surprised me. She didn't even want to talk about it. She also pushed RAI again, trying to convince me that I wouldn't have to deal with fluctuations and could stay on that one little pill. I told her my father has hypothryoidism and I knew it wasn't that easy. She said he has a different disease...blah,blah,blah. Anyway, they did do a blood draw and I'm curious to see what my TSH is. (was 3.98 last month) I guess I need to try to find a doctor that is willing to work with me on doing ATD's long term. I've been on them for one year now. Today the doc tried to tell me that I really need RAI because I'm still having what she calls " fluctuations " after a year....I tried to explain that I wouldn't have had if the first endo hadn't totally screwed up the meds in the first place. She said that I will now be in a difficult position with the ATDs because 10mg might be too much and 5mg might be too little. She said that my disease might " flare up " and then I " ll need a dosage adjustment. My question is...anyone out there dropped to 2.5mg a day and been able to stay on that for any length of time? So, I am now on 5mg and still feeling hypO. Today I noticed one of my fingernails is grooved and rough in one place. Anyone else have that? Ugh, I feel (once again) completely disgusted with doctors! I wanted so much to scream at her today, " I " M NOT DOING RAI...GET OVER IT AND HELP ME " Oh well. Does anyone have a good doctor in the Dallas/Ft. Worth area willing to do ATDs long term? Thanks for listening! Kristi ------------------------------------- The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. Please consult your doctor before changing or trying new treatments. ---------------------------------------- DISCLAIMER Advertisments placed on this yahoo groups list do not have the endorsement of the listowner. I have no input as to what ads are attached to emails. --------------------------------------------------------------------------------\ ------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2002 Report Share Posted December 19, 2002 Well, that's how I feel. I really can't understand why all these doctors are so pushy about the RAI. And I really don't understand how they can be so ill informed. Being hypO is no walk in the park, but they all act like you'll be cured if you go with RAI. I just don't get it. And they know so little about the ATDs in general...which I guess answers my question about why they all push RAI. Anyway, I hope I am never in a situation where I NEED a doctor (to live), because my faith in the medical profession is completely shot. Thanks for your kind words, Kristi Dr.'s visit Hi all, Well, I had a disappointing visit with my doctor today. I wanted her to do the TSI, but she refused! This really surprised me. She didn't even want to talk about it. She also pushed RAI again, trying to convince me that I wouldn't have to deal with fluctuations and could stay on that one little pill. I told her my father has hypothryoidism and I knew it wasn't that easy. She said he has a different disease...blah,blah,blah. Anyway, they did do a blood draw and I'm curious to see what my TSH is. (was 3.98 last month) I guess I need to try to find a doctor that is willing to work with me on doing ATD's long term. I've been on them for one year now. Today the doc tried to tell me that I really need RAI because I'm still having what she calls " fluctuations " after a year....I tried to explain that I wouldn't have had if the first endo hadn't totally screwed up the meds in the first place. She said that I will now be in a difficult position with the ATDs because 10mg might be too much and 5mg might be too little. She said that my disease might " flare up " and then I " ll need a dosage adjustment. My question is...anyone out there dropped to 2.5mg a day and been able to stay on that for any length of time? So, I am now on 5mg and still feeling hypO. Today I noticed one of my fingernails is grooved and rough in one place. Anyone else have that? Ugh, I feel (once again) completely disgusted with doctors! I wanted so much to scream at her today, " I " M NOT DOING RAI...GET OVER IT AND HELP ME " Oh well. Does anyone have a good doctor in the Dallas/Ft. Worth area willing to do ATDs long term? Thanks for listening! Kristi ------------------------------------- The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. Please consult your doctor before changing or trying new treatments. ---------------------------------------- DISCLAIMER Advertisments placed on this yahoo groups list do not have the endorsement of the listowner. I have no input as to what ads are attached to emails. --------------------------------------------------------------------------------\ ------ Quote Link to comment Share on other sites More sharing options...
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