Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009  Peggy... I really don't know what's going on. Only explanation is like a cold that just doesn't go away. Runny nose, little hacking cough (sometimes productive), of course sob. Sinus.... Took a series of antibiotics, didn't help. Talked to dr 2x about possible prednisone he suggested, I said no for now but may reconsider since I feel so crummy. But I want to know WHY I'm taking it and what he hopes it will accomplish other than 'make me feel better'... hell's bells, a gin and tonic will do that! Extremely tired, little fever spikes...my normal is about 97.5 to 97.7. I'm running 98 to 98.9 and all in between. Once, I've been down to normal. For me, that's a low grade fever... The annoying thing is I have so many chronic problems going on it's hard to tell which one is flaring. My meds are being adjusted as well. Apparently I don't have pneumonia or pulmodude would have heard that a week or so ago... I'm in limbo...waiting to get better or worse. Thanks for caring. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! � Re: ML SherBut the common factor is they have both used hospice and benefitted fromit. They also have both faced the feeling of being at death's door andthen found relief from their pain. You're right in that it's difficultto know. Just reading what Lou writes today, you'd never believe itwas the same woman so full of despair such a short time ago. She made adecision that has turned her life so much for the better.The one thing I keep in mind and hope everyone here does is that whilewe can't control the disease, beyond taking every preventive measure ofcomplications, we can maintain control over our lives. Whether it'sseeing new doctors or deciding what to do about meds or our livingarrangements or hospice, we are very much alive and very capable ofstill making decisions on how we live. Look how alive Lou is todaywith the help of a caring provider and morphine. Her spirit still shinesthrough.I, like everyone here, don't like having the disease nor do I like theprognosis. But, I do know how I want to live through each stage of theprogression, however fast the stages come or however long each onelasts. I learn from so many here. I learned so much from Gwynne. I sithere seeing Peggy's excitement over all those coming to Orlando and knowhow much she's going to enjoy it. I talk to you and see you and Richhaving a full life. I try to keep up with Beth on traveling, butshe's charged ahead for now. I'll get back on the road though. I learnsome painful things such as Joyce's Pulmonary Hypertension, but it suremakes me diligent on echocardiograms and on maintaining oxygen levels. Ialso know about Flolan if I ever face that decision. I do thinkfollowing others and reading and communicating gives knowledge that isinvaluable. To me, knowledge is power. I feel better having the power todecide how I want to face today and the future.> > >> > > Hi Group, I forgot to post that ML called yesterday and what a joy> to> > > talk to her and hear her spirit just so strong and feisty.> > > She is weak but her voice was strong yesterday. She is content and> > > happy. says Hello to all.> > >> > > Gotta LOVE that one.. SWEET SWEET.> > >> > >> > > Love & Prayers, Peggy> > > Florida, IPF/UIP 2004> > >> > > "I believe that friends are quiet angels who lift us to our feet,> > > when our wings have trouble remembering how to fly."> > >> > >> > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009  Peggy... I really don't know what's going on. Only explanation is like a cold that just doesn't go away. Runny nose, little hacking cough (sometimes productive), of course sob. Sinus.... Took a series of antibiotics, didn't help. Talked to dr 2x about possible prednisone he suggested, I said no for now but may reconsider since I feel so crummy. But I want to know WHY I'm taking it and what he hopes it will accomplish other than 'make me feel better'... hell's bells, a gin and tonic will do that! Extremely tired, little fever spikes...my normal is about 97.5 to 97.7. I'm running 98 to 98.9 and all in between. Once, I've been down to normal. For me, that's a low grade fever... The annoying thing is I have so many chronic problems going on it's hard to tell which one is flaring. My meds are being adjusted as well. Apparently I don't have pneumonia or pulmodude would have heard that a week or so ago... I'm in limbo...waiting to get better or worse. Thanks for caring. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! � Re: ML SherBut the common factor is they have both used hospice and benefitted fromit. They also have both faced the feeling of being at death's door andthen found relief from their pain. You're right in that it's difficultto know. Just reading what Lou writes today, you'd never believe itwas the same woman so full of despair such a short time ago. She made adecision that has turned her life so much for the better.The one thing I keep in mind and hope everyone here does is that whilewe can't control the disease, beyond taking every preventive measure ofcomplications, we can maintain control over our lives. Whether it'sseeing new doctors or deciding what to do about meds or our livingarrangements or hospice, we are very much alive and very capable ofstill making decisions on how we live. Look how alive Lou is todaywith the help of a caring provider and morphine. Her spirit still shinesthrough.I, like everyone here, don't like having the disease nor do I like theprognosis. But, I do know how I want to live through each stage of theprogression, however fast the stages come or however long each onelasts. I learn from so many here. I learned so much from Gwynne. I sithere seeing Peggy's excitement over all those coming to Orlando and knowhow much she's going to enjoy it. I talk to you and see you and Richhaving a full life. I try to keep up with Beth on traveling, butshe's charged ahead for now. I'll get back on the road though. I learnsome painful things such as Joyce's Pulmonary Hypertension, but it suremakes me diligent on echocardiograms and on maintaining oxygen levels. Ialso know about Flolan if I ever face that decision. I do thinkfollowing others and reading and communicating gives knowledge that isinvaluable. To me, knowledge is power. I feel better having the power todecide how I want to face today and the future.> > >> > > Hi Group, I forgot to post that ML called yesterday and what a joy> to> > > talk to her and hear her spirit just so strong and feisty.> > > She is weak but her voice was strong yesterday. She is content and> > > happy. says Hello to all.> > >> > > Gotta LOVE that one.. SWEET SWEET.> > >> > >> > > Love & Prayers, Peggy> > > Florida, IPF/UIP 2004> > >> > > "I believe that friends are quiet angels who lift us to our feet,> > > when our wings have trouble remembering how to fly."> > >> > >> > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 Bruce.....ahhhh my Rosebud lives with Marly now. My granddaughter so loved her that I gave Rosebud to her. Shame on me, now I'm kinda sorry I did. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Re: ML SherHug Rosebud.> > > >> > > > Hi Group, I forgot to post that ML called yesterday and what ajoy> > to> > > > talk to her and hear her spirit just so strong and feisty.> > > > She is weak but her voice was strong yesterday. She is contentand> > > > happy. says Hello to all.> > > >> > > > Gotta LOVE that one.. SWEET SWEET.> > > >> > > >> > > > Love & Prayers, Peggy> > > > Florida, IPF/UIP 2004> > > >> > > > "I believe that friends are quiet angels who lift us to ourfeet,> > > > when our wings have trouble remembering how to fly."> > > >> > > >> > > > > > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 Bruce.....ahhhh my Rosebud lives with Marly now. My granddaughter so loved her that I gave Rosebud to her. Shame on me, now I'm kinda sorry I did. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Re: ML SherHug Rosebud.> > > >> > > > Hi Group, I forgot to post that ML called yesterday and what ajoy> > to> > > > talk to her and hear her spirit just so strong and feisty.> > > > She is weak but her voice was strong yesterday. She is contentand> > > > happy. says Hello to all.> > > >> > > > Gotta LOVE that one.. SWEET SWEET.> > > >> > > >> > > > Love & Prayers, Peggy> > > > Florida, IPF/UIP 2004> > > >> > > > "I believe that friends are quiet angels who lift us to ourfeet,> > > > when our wings have trouble remembering how to fly."> > > >> > > >> > > > > > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 Hi Peggy, That sounds like what I had. Mine lasted three weeks. It was no fun but I came out of it just fine. Ken To: Breathe-Support Sent: Tuesday, March 10, 2009 9:04:50 AMSubject: Re: Re: ML  Peggy.... I really don't know what's going on. Only explanation is like a cold that just doesn't go away. Runny nose, little hacking cough (sometimes productive), of course sob. Sinus.... Took a series of antibiotics, didn't help. Talked to dr 2x about possible prednisone he suggested, I said no for now but may reconsider since I feel so crummy. But I want to know WHY I'm taking it and what he hopes it will accomplish other than 'make me feel better'... hell's bells, a gin and tonic will do that! Extremely tired, little fever spikes...my normal is about 97.5 to 97.7. I'm running 98 to 98.9 and all in between. Once, I've been down to normal. For me, that's a low grade fever... The annoying thing is I have so many chronic problems going on it's hard to tell which one is flaring. My meds are being adjusted as well. Apparently I don't have pneumonia or pulmodude would have heard that a week or so ago... I'm in limbo...waiting to get better or worse. Thanks for caring. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! � Re: ML SherBut the common factor is they have both used hospice and benefitted fromit. They also have both faced the feeling of being at death's door andthen found relief from their pain. You're right in that it's difficultto know. Just reading what Lou writes today, you'd never believe itwas the same woman so full of despair such a short time ago. She made adecision that has turned her life so much for the better.The one thing I keep in mind and hope everyone here does is that whilewe can't control the disease, beyond taking every preventive measure ofcomplications, we can maintain control over our lives. Whether it'sseeing new doctors or deciding what to do about meds or our livingarrangements or hospice, we are very much alive and very capable ofstill making decisions on how we live. Look how alive Lou is todaywith the help of a caring provider and morphine. Her spirit still shinesthrough.I, like everyone here, don't like having the disease nor do I like theprognosis. But, I do know how I want to live through each stage of theprogression, however fast the stages come or however long each onelasts. I learn from so many here. I learned so much from Gwynne. I sithere seeing Peggy's excitement over all those coming to Orlando and knowhow much she's going to enjoy it. I talk to you and see you and Richhaving a full life. I try to keep up with Beth on traveling, butshe's charged ahead for now. I'll get back on the road though. I learnsome painful things such as Joyce's Pulmonary Hypertension, but it suremakes me diligent on echocardiograms and on maintaining oxygen levels. Ialso know about Flolan if I ever face that decision. I do thinkfollowing others and reading and communicating gives knowledge that isinvaluable. To me, knowledge is power. I feel better having the power todecide how I want to face today and the future.> > >> > > Hi Group, I forgot to post that ML called yesterday and what a joy> to> > > talk to her and hear her spirit just so strong and feisty.> > > She is weak but her voice was strong yesterday. She is content and> > > happy. says Hello to all.> > >> > > Gotta LOVE that one.. SWEET SWEET.> > >> > >> > > Love & Prayers, Peggy> > > Florida, IPF/UIP 2004> > >> > > "I believe that friends are quiet angels who lift us to our feet,> > > when our wings have trouble remembering how to fly."> > >> > >> > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 Hi Peggy, That sounds like what I had. Mine lasted three weeks. It was no fun but I came out of it just fine. Ken To: Breathe-Support Sent: Tuesday, March 10, 2009 9:04:50 AMSubject: Re: Re: ML  Peggy.... I really don't know what's going on. Only explanation is like a cold that just doesn't go away. Runny nose, little hacking cough (sometimes productive), of course sob. Sinus.... Took a series of antibiotics, didn't help. Talked to dr 2x about possible prednisone he suggested, I said no for now but may reconsider since I feel so crummy. But I want to know WHY I'm taking it and what he hopes it will accomplish other than 'make me feel better'... hell's bells, a gin and tonic will do that! Extremely tired, little fever spikes...my normal is about 97.5 to 97.7. I'm running 98 to 98.9 and all in between. Once, I've been down to normal. For me, that's a low grade fever... The annoying thing is I have so many chronic problems going on it's hard to tell which one is flaring. My meds are being adjusted as well. Apparently I don't have pneumonia or pulmodude would have heard that a week or so ago... I'm in limbo...waiting to get better or worse. Thanks for caring. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! � Re: ML SherBut the common factor is they have both used hospice and benefitted fromit. They also have both faced the feeling of being at death's door andthen found relief from their pain. You're right in that it's difficultto know. Just reading what Lou writes today, you'd never believe itwas the same woman so full of despair such a short time ago. She made adecision that has turned her life so much for the better.The one thing I keep in mind and hope everyone here does is that whilewe can't control the disease, beyond taking every preventive measure ofcomplications, we can maintain control over our lives. Whether it'sseeing new doctors or deciding what to do about meds or our livingarrangements or hospice, we are very much alive and very capable ofstill making decisions on how we live. Look how alive Lou is todaywith the help of a caring provider and morphine. Her spirit still shinesthrough.I, like everyone here, don't like having the disease nor do I like theprognosis. But, I do know how I want to live through each stage of theprogression, however fast the stages come or however long each onelasts. I learn from so many here. I learned so much from Gwynne. I sithere seeing Peggy's excitement over all those coming to Orlando and knowhow much she's going to enjoy it. I talk to you and see you and Richhaving a full life. I try to keep up with Beth on traveling, butshe's charged ahead for now. I'll get back on the road though. I learnsome painful things such as Joyce's Pulmonary Hypertension, but it suremakes me diligent on echocardiograms and on maintaining oxygen levels. Ialso know about Flolan if I ever face that decision. I do thinkfollowing others and reading and communicating gives knowledge that isinvaluable. To me, knowledge is power. I feel better having the power todecide how I want to face today and the future.> > >> > > Hi Group, I forgot to post that ML called yesterday and what a joy> to> > > talk to her and hear her spirit just so strong and feisty.> > > She is weak but her voice was strong yesterday. She is content and> > > happy. says Hello to all.> > >> > > Gotta LOVE that one.. SWEET SWEET.> > >> > >> > > Love & Prayers, Peggy> > > Florida, IPF/UIP 2004> > >> > > "I believe that friends are quiet angels who lift us to our feet,> > > when our wings have trouble remembering how to fly."> > >> > >> > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 Sher Well, I hope you talk to her occasionally. You should have Marly bring her to visit next time you see her. > > > > > > > > > > Hi Group, I forgot to post that ML called yesterday and what a > joy > > > to > > > > > talk to her and hear her spirit just so strong and feisty. > > > > > She is weak but her voice was strong yesterday. She is content > and > > > > > happy. says Hello to all. > > > > > > > > > > Gotta LOVE that one.. SWEET SWEET. > > > > > > > > > > > > > > > Love & Prayers, Peggy > > > > > Florida, IPF/UIP 2004 > > > > > > > > > > " I believe that friends are quiet angels who lift us to our > feet, > > > > > when our wings have trouble remembering how to fly. " > > > > > > > > > > > > > > >  > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 Sher Well, I hope you talk to her occasionally. You should have Marly bring her to visit next time you see her. > > > > > > > > > > Hi Group, I forgot to post that ML called yesterday and what a > joy > > > to > > > > > talk to her and hear her spirit just so strong and feisty. > > > > > She is weak but her voice was strong yesterday. She is content > and > > > > > happy. says Hello to all. > > > > > > > > > > Gotta LOVE that one.. SWEET SWEET. > > > > > > > > > > > > > > > Love & Prayers, Peggy > > > > > Florida, IPF/UIP 2004 > > > > > > > > > > " I believe that friends are quiet angels who lift us to our > feet, > > > > > when our wings have trouble remembering how to fly. " > > > > > > > > > > > > > > >  > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 Sher Well, I hope you talk to her occasionally. You should have Marly bring her to visit next time you see her. > > > > > > > > > > Hi Group, I forgot to post that ML called yesterday and what a > joy > > > to > > > > > talk to her and hear her spirit just so strong and feisty. > > > > > She is weak but her voice was strong yesterday. She is content > and > > > > > happy. says Hello to all. > > > > > > > > > > Gotta LOVE that one.. SWEET SWEET. > > > > > > > > > > > > > > > Love & Prayers, Peggy > > > > > Florida, IPF/UIP 2004 > > > > > > > > > > " I believe that friends are quiet angels who lift us to our > feet, > > > > > when our wings have trouble remembering how to fly. " > > > > > > > > > > > > > > >  > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2009 Report Share Posted March 11, 2009  Caro... I think I'm feeling a bit better this morning. You are sure in my thoughts too. I hope today brings you some relief in what you deal with. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! � Re: ML SherBut the common factor is they have both used hospice and benefitted fromit. They also have both faced the feeling of being at death's door andthen found relief from their pain. You're right in that it's difficultto know. Just reading what Lou writes today, you'd never believe itwas the same woman so full of despair such a short time ago. She made adecision that has turned her life so much for the better.The one thing I keep in mind and hope everyone here does is that whilewe can't control the disease, beyond taking every preventive measure ofcomplications, we can maintain control over our lives. Whether it'sseeing new doctors or deciding what to do about meds or our livingarrangements or hospice, we are very much alive and very capable ofstill making decisions on how we live. Look how alive Lou is todaywith the help of a caring provider and morphine. Her spirit still shinesthrough.I, like everyone here, don't like having the disease nor do I like theprognosis. But, I do know how I want to live through each stage of theprogression, however fast the stages come or however long each onelasts. I learn from so many here. I learned so much from Gwynne. I sithere seeing Peggy's excitement over all those coming to Orlando and knowhow much she's going to enjoy it. I talk to you and see you and Richhaving a full life. I try to keep up with Beth on traveling, butshe's charged ahead for now. I'll get back on the road though. I learnsome painful things such as Joyce's Pulmonary Hypertension, but it suremakes me diligent on echocardiograms and on maintaining oxygen levels. Ialso know about Flolan if I ever face that decision. I do thinkfollowing others and reading and communicating gives knowledge that isinvaluable. To me, knowledge is power. I feel better having the power todecide how I want to face today and the future.> > >> > > Hi Group, I forgot to post that ML called yesterday and what a joy> to> > > talk to her and hear her spirit just so strong and feisty.> > > She is weak but her voice was strong yesterday. She is content and> > > happy. says Hello to all.> > >> > > Gotta LOVE that one.. SWEET SWEET.> > >> > >> > > Love & Prayers, Peggy> > > Florida, IPF/UIP 2004> > >> > > "I believe that friends are quiet angels who lift us to our feet,> > > when our wings have trouble remembering how to fly."> > >> > >> > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2009 Report Share Posted March 11, 2009  Caro... I think I'm feeling a bit better this morning. You are sure in my thoughts too. I hope today brings you some relief in what you deal with. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! � Re: ML SherBut the common factor is they have both used hospice and benefitted fromit. They also have both faced the feeling of being at death's door andthen found relief from their pain. You're right in that it's difficultto know. Just reading what Lou writes today, you'd never believe itwas the same woman so full of despair such a short time ago. She made adecision that has turned her life so much for the better.The one thing I keep in mind and hope everyone here does is that whilewe can't control the disease, beyond taking every preventive measure ofcomplications, we can maintain control over our lives. Whether it'sseeing new doctors or deciding what to do about meds or our livingarrangements or hospice, we are very much alive and very capable ofstill making decisions on how we live. Look how alive Lou is todaywith the help of a caring provider and morphine. Her spirit still shinesthrough.I, like everyone here, don't like having the disease nor do I like theprognosis. But, I do know how I want to live through each stage of theprogression, however fast the stages come or however long each onelasts. I learn from so many here. I learned so much from Gwynne. I sithere seeing Peggy's excitement over all those coming to Orlando and knowhow much she's going to enjoy it. I talk to you and see you and Richhaving a full life. I try to keep up with Beth on traveling, butshe's charged ahead for now. I'll get back on the road though. I learnsome painful things such as Joyce's Pulmonary Hypertension, but it suremakes me diligent on echocardiograms and on maintaining oxygen levels. Ialso know about Flolan if I ever face that decision. I do thinkfollowing others and reading and communicating gives knowledge that isinvaluable. To me, knowledge is power. I feel better having the power todecide how I want to face today and the future.> > >> > > Hi Group, I forgot to post that ML called yesterday and what a joy> to> > > talk to her and hear her spirit just so strong and feisty.> > > She is weak but her voice was strong yesterday. She is content and> > > happy. says Hello to all.> > >> > > Gotta LOVE that one.. SWEET SWEET.> > >> > >> > > Love & Prayers, Peggy> > > Florida, IPF/UIP 2004> > >> > > "I believe that friends are quiet angels who lift us to our feet,> > > when our wings have trouble remembering how to fly."> > >> > >> > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2009 Report Share Posted May 30, 2009 Oh I am so torn between crying because ML is gone or because I know she is at peace and celebrating without me. What a Lady she was. I will miss her so very much."Breathe Deep our sweet Lou" Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. Quote Link to comment Share on other sites More sharing options...
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