Guest guest Posted May 27, 2009 Report Share Posted May 27, 2009 , I'm sorry you're dealing with the edema but I'm glad the doctors are taking it seriously and are treating it aggressively. The extra fluid can be hard on your heart and our hearts work hard enough. Keep those tootsies up and rest rest rest. You are in my thoughts and prayers my friend! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Wednesday, May 27, 2009 7:51:03 PMSubject: Z. has Edema Hello all "air family" members....the latest wrinkle in my ever changing condition.In spite of the HCTZ 50mg daily that I have been taking since leaving the hospital in MarchI have developed full blown Edema!!!! All as a result of the mega dosing of Prednisone in the Hospital! Great!! I had gotten back to my normal 10 mg 5 weeks ago.( going from 60 slowly back to 10).but the stuff still is causing havoc! My GP has put me on another stronger diuretic for 5 days( this happened yesterday!)with instructions to really watch salt ( I have not added salt to anything since I have no taste or smell) and to keep aneye on carbs too! Seems that carbs can make Edema worse!!! This all now explains why my bras have not fit, whyslacks that fit in March don't fit and why even socks and shoes have not fit right!!!I have felt SOB..the Sat numbers however were fine.He heard fluid in the lung area and he was very concerned.I'm supposed to take it easy, drink more than usual,keep taking the Potassium supplements and keep my legs up as much as possible!!Now..of course all this is really doable...but I had to watch Sara today so and Mike could go to see the lawyer!!!So, After a 5 hour babysitting stint..(She did nap for 2 hours).I am sitting here..feet up and trying to take it easy. I loved every minute of mytime with Sara...but Wow am I beat!!! -- Z 65, fibriotic NSIP/05/PA And “mild†PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion†Bob Marley Vinca Minor-periwinkle is my flower Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2009 Report Share Posted May 27, 2009 are you reading the labels to see how much salt is in the prepared food that you buy that's if you buy prepared food sorry to hear about the edema hope it goes away real soon Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Z. has EdemaTo: Breathe-Support Date: Wednesday, May 27, 2009, 7:51 PM Hello all "air family" members....the latest wrinkle in my ever changing condition.In spite of the HCTZ 50mg daily that I have been taking since leaving the hospital in MarchI have developed full blown Edema!!!! All as a result of the mega dosing of Prednisone in the Hospital! Great!! I had gotten back to my normal 10 mg 5 weeks ago.( going from 60 slowly back to 10).but the stuff still is causing havoc! My GP has put me on another stronger diuretic for 5 days( this happened yesterday!)with instructions to really watch salt ( I have not added salt to anything since I have no taste or smell) and to keep aneye on carbs too! Seems that carbs can make Edema worse!!! This all now explains why my bras have not fit, whyslacks that fit in March don't fit and why even socks and shoes have not fit right!!!I have felt SOB..the Sat numbers however were fine.He heard fluid in the lung area and he was very concerned.I'm supposed to take it easy, drink more than usual,keep taking the Potassium supplements and keep my legs up as much as possible!!Now..of course all this is really doable...but I had to watch Sara today so and Mike could go to see the lawyer!!!So, After a 5 hour babysitting stint..(She did nap for 2 hours).I am sitting here..feet up and trying to take it easy. I loved every minute of mytime with Sara...but Wow am I beat!!! -- Z 65, fibriotic NSIP/05/PA And “mild†PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion†Bob Marley Vinca Minor-periwinkle is my flower Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2009 Report Share Posted May 27, 2009 are you reading the labels to see how much salt is in the prepared food that you buy that's if you buy prepared food sorry to hear about the edema hope it goes away real soon Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Z. has EdemaTo: Breathe-Support Date: Wednesday, May 27, 2009, 7:51 PM Hello all "air family" members....the latest wrinkle in my ever changing condition.In spite of the HCTZ 50mg daily that I have been taking since leaving the hospital in MarchI have developed full blown Edema!!!! All as a result of the mega dosing of Prednisone in the Hospital! Great!! I had gotten back to my normal 10 mg 5 weeks ago.( going from 60 slowly back to 10).but the stuff still is causing havoc! My GP has put me on another stronger diuretic for 5 days( this happened yesterday!)with instructions to really watch salt ( I have not added salt to anything since I have no taste or smell) and to keep aneye on carbs too! Seems that carbs can make Edema worse!!! This all now explains why my bras have not fit, whyslacks that fit in March don't fit and why even socks and shoes have not fit right!!!I have felt SOB..the Sat numbers however were fine.He heard fluid in the lung area and he was very concerned.I'm supposed to take it easy, drink more than usual,keep taking the Potassium supplements and keep my legs up as much as possible!!Now..of course all this is really doable...but I had to watch Sara today so and Mike could go to see the lawyer!!!So, After a 5 hour babysitting stint..(She did nap for 2 hours).I am sitting here..feet up and trying to take it easy. I loved every minute of mytime with Sara...but Wow am I beat!!! -- Z 65, fibriotic NSIP/05/PA And “mild†PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion†Bob Marley Vinca Minor-periwinkle is my flower Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2009 Report Share Posted May 28, 2009 Take care . Hugs from me!! CaroOSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09Mississippi To: Breathe-Support Sent: Wednesday, May 27, 2009 6:51:03 PMSubject: Z. has Edema Hello all "air family" members....the latest wrinkle in my ever changing condition.In spite of the HCTZ 50mg daily that I have been taking since leaving the hospital in MarchI have developed full blown Edema!!!! All as a result of the mega dosing of Prednisone in the Hospital! Great!! I had gotten back to my normal 10 mg 5 weeks ago.( going from 60 slowly back to 10).but the stuff still is causing havoc! My GP has put me on another stronger diuretic for 5 days( this happened yesterday!)with instructions to really watch salt ( I have not added salt to anything since I have no taste or smell) and to keep aneye on carbs too! Seems that carbs can make Edema worse!!! This all now explains why my bras have not fit, whyslacks that fit in March don't fit and why even socks and shoes have not fit right!!!I have felt SOB..the Sat numbers however were fine.He heard fluid in the lung area and he was very concerned.I'm supposed to take it easy, drink more than usual,keep taking the Potassium supplements and keep my legs up as much as possible!!Now..of course all this is really doable...but I had to watch Sara today so and Mike could go to see the lawyer!!!So, After a 5 hour babysitting stint..(She did nap for 2 hours).I am sitting here..feet up and trying to take it easy. I loved every minute of mytime with Sara...but Wow am I beat!!! -- Z 65, fibriotic NSIP/05/PA And “mild†PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion†Bob Marley Vinca Minor-periwinkle is my flower Quote Link to comment Share on other sites More sharing options...
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