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wish i could help, but don't have the magic wand

glad you are discussing with your doc

Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Oh my aching everything...To: Breathe-Support Date: Wednesday, May 27, 2009, 12:09 AM

Hi all, I need some advice. Aside from PF, So far I have not been diagnosed with any Auto Immune Disease or Connective Tissue Dissorders. My Rhuematoid Factor is "only slightly elevated." Over the years I've had joint pain on and off, usually in my hands. And one very odd symptom...I can tell (without a themometer) when I have a fever because of a burning pain I get in my wrists. Lately, my joint pain has gotten much worse, more often (almost every day,) and involves more than just my hands now. It's happening in EVERY joint. I'll be getting more blood work done soon to include checking rha, ana, etc... I was taking Naproxen for it, ran out and have been taking Aleve which does help. The only problem with taking Aleve and Naproxen is that it's an NSAID. NSAID's can be dangerous if taken too often while on I'm on Cymbalta for depression. In addition I have the usual pain in my ribs and chest muscles from breathing and coughing. This

pain I'm able to take the edge off with my prescription of Hycodan. I go through a bottle every 3 1/2 weeks being careful to take only the prescribed amount. I try to only take it when the pain is unbearable which is at least once a day. There are some days I've had to take it 3 x.Just when you thought I was done.... I have scholiosis in my upper back and a degenerative disc in my lower back. There is no pain releaver that works on my lower back. I've learned I can be more comfortable using Glucosamine, Chondroitin and doing different stretches.Thankfully I haven't had any migraines lately. I'm just so tired of being in pain.I've already asked for the bloodwork I mentioned before in hopes of some sort of answer. I feel like I'm all out of choices other than asking the doctor for yet another RX.If anyone has exercies, stretches, vitamins, or even a tribal fire dance that has helped you I'm open for suggestion. 33

FLIPF dx 1/06

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wish i could help, but don't have the magic wand

glad you are discussing with your doc

Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Oh my aching everything...To: Breathe-Support Date: Wednesday, May 27, 2009, 12:09 AM

Hi all, I need some advice. Aside from PF, So far I have not been diagnosed with any Auto Immune Disease or Connective Tissue Dissorders. My Rhuematoid Factor is "only slightly elevated." Over the years I've had joint pain on and off, usually in my hands. And one very odd symptom...I can tell (without a themometer) when I have a fever because of a burning pain I get in my wrists. Lately, my joint pain has gotten much worse, more often (almost every day,) and involves more than just my hands now. It's happening in EVERY joint. I'll be getting more blood work done soon to include checking rha, ana, etc... I was taking Naproxen for it, ran out and have been taking Aleve which does help. The only problem with taking Aleve and Naproxen is that it's an NSAID. NSAID's can be dangerous if taken too often while on I'm on Cymbalta for depression. In addition I have the usual pain in my ribs and chest muscles from breathing and coughing. This

pain I'm able to take the edge off with my prescription of Hycodan. I go through a bottle every 3 1/2 weeks being careful to take only the prescribed amount. I try to only take it when the pain is unbearable which is at least once a day. There are some days I've had to take it 3 x.Just when you thought I was done.... I have scholiosis in my upper back and a degenerative disc in my lower back. There is no pain releaver that works on my lower back. I've learned I can be more comfortable using Glucosamine, Chondroitin and doing different stretches.Thankfully I haven't had any migraines lately. I'm just so tired of being in pain.I've already asked for the bloodwork I mentioned before in hopes of some sort of answer. I feel like I'm all out of choices other than asking the doctor for yet another RX.If anyone has exercies, stretches, vitamins, or even a tribal fire dance that has helped you I'm open for suggestion. 33

FLIPF dx 1/06

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Hi hon, I was put on a statin  drug for cholesterol and that caused unbearable pain in my joints. Lipator doesn't cause it. I am so sorry you are going through all this stuff. What a crazy thing these bodies we have..  Peggy Florida, IPF 2004and  from my FriendLife is not measured by the number of breaths we take, But by the number of moments that take our breath away... Joyce  Hi all, I need some advice. Aside from PF, So far I have not been diagnosed with any Auto Immune Disease or Connective Tissue Dissorders. My Rhuematoid Factor is "only slightly elevated." Over the years I've had joint pain on and off, usually in my hands. And one very odd symptom...I can tell (without a themometer) when I have a fever because of a burning pain I get in my wrists. Lately, my joint pain has gotten much worse, more often (almost every day,) and involves more than just my hands now. It's happening in EVERY joint. I'll be getting more blood work done soon to include checking rha, ana, etc... I was taking Naproxen for it, ran out and have been taking Aleve which does help. The only problem with taking Aleve and Naproxen is that it's an NSAID. NSAID's can be dangerous if taken too often while on I'm on Cymbalta for depression. In addition I have the usual pain in my ribs and chest muscles from breathing and coughing. This pain I'm able to take the edge off with my prescription of Hycodan. I go through a bottle every 3 1/2 weeks being careful to take only the prescribed amount. I try to only take it when the pain is unbearable which is at least once a day. There are some days I've had to take it 3 x.Just when you thought I was done.... I have scholiosis in my upper back and a degenerative disc in my lower back. There is no pain releaver that works on my lower back. I've learned I can be more comfortable using Glucosamine, Chondroitin and doing different stretches.Thankfully I haven't had any migraines lately. I'm just so tired of being in pain.I've already asked for the bloodwork I mentioned before in hopes of some sort of answer. I feel like I'm all out of choices other than asking the doctor for yet another RX.If anyone has exercies, stretches, vitamins, or even a tribal fire dance that has helped you I'm open for suggestion. 33 FLIPF dx 1/06

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Hi hon, I was put on a statin  drug for cholesterol and that caused unbearable pain in my joints. Lipator doesn't cause it. I am so sorry you are going through all this stuff. What a crazy thing these bodies we have..  Peggy Florida, IPF 2004and  from my FriendLife is not measured by the number of breaths we take, But by the number of moments that take our breath away... Joyce  Hi all, I need some advice. Aside from PF, So far I have not been diagnosed with any Auto Immune Disease or Connective Tissue Dissorders. My Rhuematoid Factor is "only slightly elevated." Over the years I've had joint pain on and off, usually in my hands. And one very odd symptom...I can tell (without a themometer) when I have a fever because of a burning pain I get in my wrists. Lately, my joint pain has gotten much worse, more often (almost every day,) and involves more than just my hands now. It's happening in EVERY joint. I'll be getting more blood work done soon to include checking rha, ana, etc... I was taking Naproxen for it, ran out and have been taking Aleve which does help. The only problem with taking Aleve and Naproxen is that it's an NSAID. NSAID's can be dangerous if taken too often while on I'm on Cymbalta for depression. In addition I have the usual pain in my ribs and chest muscles from breathing and coughing. This pain I'm able to take the edge off with my prescription of Hycodan. I go through a bottle every 3 1/2 weeks being careful to take only the prescribed amount. I try to only take it when the pain is unbearable which is at least once a day. There are some days I've had to take it 3 x.Just when you thought I was done.... I have scholiosis in my upper back and a degenerative disc in my lower back. There is no pain releaver that works on my lower back. I've learned I can be more comfortable using Glucosamine, Chondroitin and doing different stretches.Thankfully I haven't had any migraines lately. I'm just so tired of being in pain.I've already asked for the bloodwork I mentioned before in hopes of some sort of answer. I feel like I'm all out of choices other than asking the doctor for yet another RX.If anyone has exercies, stretches, vitamins, or even a tribal fire dance that has helped you I'm open for suggestion. 33 FLIPF dx 1/06

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,I'm so sorry you are in so much pain.  I always hesitate to say to someone "that sounds exactly like me" but in your case, it does.When you have your blood work done ask the doc to test your ace level and check for sarcoidosis.  The ace level can't confirm sarcoid but will show them that there is a high level of inflammation in the body.  They can then follow this with additional testing to confirm sarcoid.  I too have extreme joint pain primarily in my fingers and hands but also shoulders, knees, ankles and feet.  I currently take MTX weekly and I am beginning to feel like a 59 year old again instead of a 90 year old.  The fevers and night sweats are also getting fewer and less intense.Good luck !Roxanne, 59, South Carolina

2006 Asthma/ PF

2008 PF/ Sarcoidosis/Gerd

Lady Slipper OrchidSubject: Oh my aching everything...To: Breathe-Support Date: Wednesday, May 27, 2009, 12:09 AM

Hi all, I need some advice.

Aside from PF, So far I have not been diagnosed with any Auto Immune Disease or Connective Tissue Dissorders. My Rhuematoid Factor is "only slightly elevated." Over the years I've had joint pain on and off, usually in my hands. And one very odd symptom...I can tell (without a themometer) when I have a fever because of a burning pain I get in my wrists. Lately, my joint pain has gotten much worse, more often (almost every day,) and involves more than just my hands now. It's happening in EVERY joint. I'll be getting more blood work done soon to include checking rha, ana, etc... I was taking Naproxen for it, ran out and have been taking Aleve which does help. The only problem with taking Aleve and Naproxen is that it's an NSAID. NSAID's can be dangerous if taken too often while on I'm on Cymbalta for depression.

In addition I have the usual pain in my ribs and chest muscles from breathing and coughing. This pain I'm able to take the edge off with my prescription of Hycodan. I go through a bottle every 3 1/2 weeks being careful to take only the prescribed amount. I try to only take it when the pain is unbearable which is at least once a day. There are some days I've had to take it 3 x.

Just when you thought I was done.... I have scholiosis in my upper back and a degenerative disc in my lower back. There is no pain releaver that works on my lower back. I've learned I can be more comfortable using Glucosamine, Chondroitin and doing different stretches.

Thankfully I haven't had any migraines lately.

I'm just so tired of being in pain.I've already asked for the bloodwork I mentioned before in hopes of some sort of answer. I feel like I'm all out of choices other than asking the doctor for yet another RX.If anyone has exercies, stretches, vitamins, or even a tribal fire dance that has helped you I'm open for suggestion.

33 FL

IPF dx 1/06

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,I'm so sorry you are in so much pain.  I always hesitate to say to someone "that sounds exactly like me" but in your case, it does.When you have your blood work done ask the doc to test your ace level and check for sarcoidosis.  The ace level can't confirm sarcoid but will show them that there is a high level of inflammation in the body.  They can then follow this with additional testing to confirm sarcoid.  I too have extreme joint pain primarily in my fingers and hands but also shoulders, knees, ankles and feet.  I currently take MTX weekly and I am beginning to feel like a 59 year old again instead of a 90 year old.  The fevers and night sweats are also getting fewer and less intense.Good luck !Roxanne, 59, South Carolina

2006 Asthma/ PF

2008 PF/ Sarcoidosis/Gerd

Lady Slipper OrchidSubject: Oh my aching everything...To: Breathe-Support Date: Wednesday, May 27, 2009, 12:09 AM

Hi all, I need some advice.

Aside from PF, So far I have not been diagnosed with any Auto Immune Disease or Connective Tissue Dissorders. My Rhuematoid Factor is "only slightly elevated." Over the years I've had joint pain on and off, usually in my hands. And one very odd symptom...I can tell (without a themometer) when I have a fever because of a burning pain I get in my wrists. Lately, my joint pain has gotten much worse, more often (almost every day,) and involves more than just my hands now. It's happening in EVERY joint. I'll be getting more blood work done soon to include checking rha, ana, etc... I was taking Naproxen for it, ran out and have been taking Aleve which does help. The only problem with taking Aleve and Naproxen is that it's an NSAID. NSAID's can be dangerous if taken too often while on I'm on Cymbalta for depression.

In addition I have the usual pain in my ribs and chest muscles from breathing and coughing. This pain I'm able to take the edge off with my prescription of Hycodan. I go through a bottle every 3 1/2 weeks being careful to take only the prescribed amount. I try to only take it when the pain is unbearable which is at least once a day. There are some days I've had to take it 3 x.

Just when you thought I was done.... I have scholiosis in my upper back and a degenerative disc in my lower back. There is no pain releaver that works on my lower back. I've learned I can be more comfortable using Glucosamine, Chondroitin and doing different stretches.

Thankfully I haven't had any migraines lately.

I'm just so tired of being in pain.I've already asked for the bloodwork I mentioned before in hopes of some sort of answer. I feel like I'm all out of choices other than asking the doctor for yet another RX.If anyone has exercies, stretches, vitamins, or even a tribal fire dance that has helped you I'm open for suggestion.

33 FL

IPF dx 1/06

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,I'm so sorry you are in so much pain.  I always hesitate to say to someone "that sounds exactly like me" but in your case, it does.When you have your blood work done ask the doc to test your ace level and check for sarcoidosis.  The ace level can't confirm sarcoid but will show them that there is a high level of inflammation in the body.  They can then follow this with additional testing to confirm sarcoid.  I too have extreme joint pain primarily in my fingers and hands but also shoulders, knees, ankles and feet.  I currently take MTX weekly and I am beginning to feel like a 59 year old again instead of a 90 year old.  The fevers and night sweats are also getting fewer and less intense.Good luck !Roxanne, 59, South Carolina

2006 Asthma/ PF

2008 PF/ Sarcoidosis/Gerd

Lady Slipper OrchidSubject: Oh my aching everything...To: Breathe-Support Date: Wednesday, May 27, 2009, 12:09 AM

Hi all, I need some advice.

Aside from PF, So far I have not been diagnosed with any Auto Immune Disease or Connective Tissue Dissorders. My Rhuematoid Factor is "only slightly elevated." Over the years I've had joint pain on and off, usually in my hands. And one very odd symptom...I can tell (without a themometer) when I have a fever because of a burning pain I get in my wrists. Lately, my joint pain has gotten much worse, more often (almost every day,) and involves more than just my hands now. It's happening in EVERY joint. I'll be getting more blood work done soon to include checking rha, ana, etc... I was taking Naproxen for it, ran out and have been taking Aleve which does help. The only problem with taking Aleve and Naproxen is that it's an NSAID. NSAID's can be dangerous if taken too often while on I'm on Cymbalta for depression.

In addition I have the usual pain in my ribs and chest muscles from breathing and coughing. This pain I'm able to take the edge off with my prescription of Hycodan. I go through a bottle every 3 1/2 weeks being careful to take only the prescribed amount. I try to only take it when the pain is unbearable which is at least once a day. There are some days I've had to take it 3 x.

Just when you thought I was done.... I have scholiosis in my upper back and a degenerative disc in my lower back. There is no pain releaver that works on my lower back. I've learned I can be more comfortable using Glucosamine, Chondroitin and doing different stretches.

Thankfully I haven't had any migraines lately.

I'm just so tired of being in pain.I've already asked for the bloodwork I mentioned before in hopes of some sort of answer. I feel like I'm all out of choices other than asking the doctor for yet another RX.If anyone has exercies, stretches, vitamins, or even a tribal fire dance that has helped you I'm open for suggestion.

33 FL

IPF dx 1/06

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I'm so sorry you are feeling poorly. Wish I had some good advice to offer, but I don't. Hopefully someone else on here can help. In the meantime, I will keep you in my prayers.

B

Barbara McD

IPF, Sept 08

Beautiful Western NC

Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

To: Breathe-Support Sent: Wednesday, May 27, 2009 12:09:03 AMSubject: Oh my aching everything...

Hi all, I need some advice. Aside from PF, So far I have not been diagnosed with any Auto Immune Disease or Connective Tissue Dissorders. My Rhuematoid Factor is "only slightly elevated." Over the years I've had joint pain on and off, usually in my hands. And one very odd symptom...I can tell (without a themometer) when I have a fever because of a burning pain I get in my wrists. Lately, my joint pain has gotten much worse, more often (almost every day,) and involves more than just my hands now. It's happening in EVERY joint. I'll be getting more blood work done soon to include checking rha, ana, etc... I was taking Naproxen for it, ran out and have been taking Aleve which does help. The only problem with taking Aleve and Naproxen is that it's an NSAID. NSAID's can be dangerous if taken too often while on I'm on Cymbalta for depression. In addition I have the usual pain in my ribs and chest muscles from breathing and coughing. This

pain I'm able to take the edge off with my prescription of Hycodan. I go through a bottle every 3 1/2 weeks being careful to take only the prescribed amount. I try to only take it when the pain is unbearable which is at least once a day. There are some days I've had to take it 3 x.Just when you thought I was done.... I have scholiosis in my upper back and a degenerative disc in my lower back. There is no pain releaver that works on my lower back. I've learned I can be more comfortable using Glucosamine, Chondroitin and doing different stretches.Thankfully I haven't had any migraines lately. I'm just so tired of being in pain.I've already asked for the bloodwork I mentioned before in hopes of some sort of answer. I feel like I'm all out of choices other than asking the doctor for yet another RX.If anyone has exercies, stretches, vitamins, or even a tribal fire dance that has helped you I'm open for suggestion. 33

FLIPF dx 1/06

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-

I'm so sorry you are feeling poorly. Wish I had some good advice to offer, but I don't. Hopefully someone else on here can help. In the meantime, I will keep you in my prayers.

B

Barbara McD

IPF, Sept 08

Beautiful Western NC

Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

To: Breathe-Support Sent: Wednesday, May 27, 2009 12:09:03 AMSubject: Oh my aching everything...

Hi all, I need some advice. Aside from PF, So far I have not been diagnosed with any Auto Immune Disease or Connective Tissue Dissorders. My Rhuematoid Factor is "only slightly elevated." Over the years I've had joint pain on and off, usually in my hands. And one very odd symptom...I can tell (without a themometer) when I have a fever because of a burning pain I get in my wrists. Lately, my joint pain has gotten much worse, more often (almost every day,) and involves more than just my hands now. It's happening in EVERY joint. I'll be getting more blood work done soon to include checking rha, ana, etc... I was taking Naproxen for it, ran out and have been taking Aleve which does help. The only problem with taking Aleve and Naproxen is that it's an NSAID. NSAID's can be dangerous if taken too often while on I'm on Cymbalta for depression. In addition I have the usual pain in my ribs and chest muscles from breathing and coughing. This

pain I'm able to take the edge off with my prescription of Hycodan. I go through a bottle every 3 1/2 weeks being careful to take only the prescribed amount. I try to only take it when the pain is unbearable which is at least once a day. There are some days I've had to take it 3 x.Just when you thought I was done.... I have scholiosis in my upper back and a degenerative disc in my lower back. There is no pain releaver that works on my lower back. I've learned I can be more comfortable using Glucosamine, Chondroitin and doing different stretches.Thankfully I haven't had any migraines lately. I'm just so tired of being in pain.I've already asked for the bloodwork I mentioned before in hopes of some sort of answer. I feel like I'm all out of choices other than asking the doctor for yet another RX.If anyone has exercies, stretches, vitamins, or even a tribal fire dance that has helped you I'm open for suggestion. 33

FLIPF dx 1/06

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Hi Barb, How are you today ? Love and Prayers, Peggy   IPF  2004,  FloridaWorry looks around, Sorry looks back,  Faith looks up. -I'm so sorry you are feeling poorly.  Wish I had some good advice to offer, but I don't.  Hopefully someone else on here can help.  In the meantime, I will keep you in my prayers. B Barbara McDIPF, Sept 08Beautiful Western NC   Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up.  Galatians 6:9 From: hunnybunnybinky <brandy (AT) burnspc (DOT) com>To: Breathe-Support Sent: Wednesday, May 27, 2009 12:09:03 AMSubject:  Oh my aching everything...Hi all, I need some advice. Aside from PF, So far I have not been diagnosed with any Auto Immune Disease or Connective Tissue Dissorders. My Rhuematoid Factor is "only slightly elevated." Over the years I've had joint pain on and off, usually in my hands. And one very odd symptom...I can tell (without a themometer) when I have a fever because of a burning pain I get in my wrists. Lately, my joint pain has gotten much worse, more often (almost every day,) and involves more than just my hands now. It's happening in EVERY joint. I'll be getting more blood work done soon to include checking rha, ana, etc... I was taking Naproxen for it, ran out and have been taking Aleve which does help. The only problem with taking Aleve and Naproxen is that it's an NSAID. NSAID's can be dangerous if taken too often while on I'm on Cymbalta for depression. In addition I have the usual pain in my ribs and chest muscles from breathing and coughing. This pain I'm able to take the edge off with my prescription of Hycodan. I go through a bottle every 3 1/2 weeks being careful to take only the prescribed amount. I try to only take it when the pain is unbearable which is at least once a day. There are some days I've had to take it 3 x.Just when you thought I was done.... I have scholiosis in my upper back and a degenerative disc in my lower back. There is no pain releaver that works on my lower back. I've learned I can be more comfortable using Glucosamine, Chondroitin and doing different stretches.Thankfully I haven't had any migraines lately. I'm just so tired of being in pain.I've already asked for the bloodwork I mentioned before in hopes of some sort of answer. I feel like I'm all out of choices other than asking the doctor for yet another RX.If anyone has exercies, stretches, vitamins, or even a tribal fire dance that has helped you I'm open for suggestion. 33 FLIPF dx 1/06

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Hi Barb, How are you today ? Love and Prayers, Peggy   IPF  2004,  FloridaWorry looks around, Sorry looks back,  Faith looks up. -I'm so sorry you are feeling poorly.  Wish I had some good advice to offer, but I don't.  Hopefully someone else on here can help.  In the meantime, I will keep you in my prayers. B Barbara McDIPF, Sept 08Beautiful Western NC   Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up.  Galatians 6:9 From: hunnybunnybinky <brandy (AT) burnspc (DOT) com>To: Breathe-Support Sent: Wednesday, May 27, 2009 12:09:03 AMSubject:  Oh my aching everything...Hi all, I need some advice. Aside from PF, So far I have not been diagnosed with any Auto Immune Disease or Connective Tissue Dissorders. My Rhuematoid Factor is "only slightly elevated." Over the years I've had joint pain on and off, usually in my hands. And one very odd symptom...I can tell (without a themometer) when I have a fever because of a burning pain I get in my wrists. Lately, my joint pain has gotten much worse, more often (almost every day,) and involves more than just my hands now. It's happening in EVERY joint. I'll be getting more blood work done soon to include checking rha, ana, etc... I was taking Naproxen for it, ran out and have been taking Aleve which does help. The only problem with taking Aleve and Naproxen is that it's an NSAID. NSAID's can be dangerous if taken too often while on I'm on Cymbalta for depression. In addition I have the usual pain in my ribs and chest muscles from breathing and coughing. This pain I'm able to take the edge off with my prescription of Hycodan. I go through a bottle every 3 1/2 weeks being careful to take only the prescribed amount. I try to only take it when the pain is unbearable which is at least once a day. There are some days I've had to take it 3 x.Just when you thought I was done.... I have scholiosis in my upper back and a degenerative disc in my lower back. There is no pain releaver that works on my lower back. I've learned I can be more comfortable using Glucosamine, Chondroitin and doing different stretches.Thankfully I haven't had any migraines lately. I'm just so tired of being in pain.I've already asked for the bloodwork I mentioned before in hopes of some sort of answer. I feel like I'm all out of choices other than asking the doctor for yet another RX.If anyone has exercies, stretches, vitamins, or even a tribal fire dance that has helped you I'm open for suggestion. 33 FLIPF dx 1/06

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Thanks for the responses. I'll see how my next appointment goes. I really don't

want to have to start taking something addictive. I've heard such horror stories

of people getting addicted to RXdrugs. If the pain keeps on the way it has been

I probably won't give a crap about addiction by then.

Thanks again,

33 FL

IPF dx 1/06

>

>

>

> Hi all, I need some advice.

>

> Aside from PF, So far I have not been diagnosed with any Auto Immune

> Disease or Connective Tissue Dissorders. My Rhuematoid Factor is

> " only slightly elevated. " Over the years I've had joint pain on and

> off, usually in my hands. And one very odd symptom...I can tell

> (without a themometer) when I have a fever because of a burning pain

> I get in my wrists. Lately, my joint pain has gotten much worse, more

> often (almost every day,) and involves more than just my hands now.

> It's happening in EVERY joint. I'll be getting more blood work done

> soon to include checking rha, ana, etc... I was taking Naproxen for

> it, ran out and have been taking Aleve which does help. The only

> problem with taking Aleve and Naproxen is that it's an NSAID. NSAID's

> can be dangerous if taken too often while on I'm on Cymbalta for

> depression.

>

> In addition I have the usual pain in my ribs and chest muscles from

> breathing and coughing. This pain I'm able to take the edge off with

> my prescription of Hycodan. I go through a bottle every 3 1/2 weeks

> being careful to take only the prescribed amount. I try to only take

> it when the pain is unbearable which is at least once a day. There

> are some days I've had to take it 3 x.

>

> Just when you thought I was done.... I have scholiosis in my upper

> back and a degenerative disc in my lower back. There is no pain

> releaver that works on my lower back. I've learned I can be more

> comfortable using Glucosamine, Chondroitin and doing different

> stretches.

>

> Thankfully I haven't had any migraines lately.

>

> I'm just so tired of being in pain.I've already asked for the

> bloodwork I mentioned before in hopes of some sort of answer. I feel

> like I'm all out of choices other than asking the doctor for yet

> another RX.If anyone has exercies, stretches, vitamins, or even a

> tribal fire dance that has helped you I'm open for suggestion.

>

> 33 FL

> IPF dx 1/06

>

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Thanks for the responses. I'll see how my next appointment goes. I really don't

want to have to start taking something addictive. I've heard such horror stories

of people getting addicted to RXdrugs. If the pain keeps on the way it has been

I probably won't give a crap about addiction by then.

Thanks again,

33 FL

IPF dx 1/06

>

>

>

> Hi all, I need some advice.

>

> Aside from PF, So far I have not been diagnosed with any Auto Immune

> Disease or Connective Tissue Dissorders. My Rhuematoid Factor is

> " only slightly elevated. " Over the years I've had joint pain on and

> off, usually in my hands. And one very odd symptom...I can tell

> (without a themometer) when I have a fever because of a burning pain

> I get in my wrists. Lately, my joint pain has gotten much worse, more

> often (almost every day,) and involves more than just my hands now.

> It's happening in EVERY joint. I'll be getting more blood work done

> soon to include checking rha, ana, etc... I was taking Naproxen for

> it, ran out and have been taking Aleve which does help. The only

> problem with taking Aleve and Naproxen is that it's an NSAID. NSAID's

> can be dangerous if taken too often while on I'm on Cymbalta for

> depression.

>

> In addition I have the usual pain in my ribs and chest muscles from

> breathing and coughing. This pain I'm able to take the edge off with

> my prescription of Hycodan. I go through a bottle every 3 1/2 weeks

> being careful to take only the prescribed amount. I try to only take

> it when the pain is unbearable which is at least once a day. There

> are some days I've had to take it 3 x.

>

> Just when you thought I was done.... I have scholiosis in my upper

> back and a degenerative disc in my lower back. There is no pain

> releaver that works on my lower back. I've learned I can be more

> comfortable using Glucosamine, Chondroitin and doing different

> stretches.

>

> Thankfully I haven't had any migraines lately.

>

> I'm just so tired of being in pain.I've already asked for the

> bloodwork I mentioned before in hopes of some sort of answer. I feel

> like I'm all out of choices other than asking the doctor for yet

> another RX.If anyone has exercies, stretches, vitamins, or even a

> tribal fire dance that has helped you I'm open for suggestion.

>

> 33 FL

> IPF dx 1/06

>

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, Take it from someone who has taken as much vicoden as House, if

you have pain you will not get addicted by treating your pain! The only

thing (before the dreaded predesone) that would touch my fibro and

neuropathy pain was vicoden and luckily I have a doctor who believes in

me (and he watched the blood tests yadda yadda yadda) and would

prescribe them for me no problem. When I went back on 10 mg of pred,

the pain went away I stopped taking the pain pills no problem and I had

been on vicoden and oxycotin for 2 straight years at least. Please you

will feel so much better and will have more strength to use for more

important things than worrying about how every movement hurts! Off my

high horse now, hugs

Dyane Phoenix, IPF 02

> >

> >

> >

> > Hi all, I need some advice.

> >

> > Aside from PF, So far I have not been diagnosed with any Auto Immune

> > Disease or Connective Tissue Dissorders. My Rhuematoid Factor is

> > " only slightly elevated. " Over the years I've had joint pain on and

> > off, usually in my hands. And one very odd symptom...I can tell

> > (without a themometer) when I have a fever because of a burning pain

> > I get in my wrists. Lately, my joint pain has gotten much worse,

more

> > often (almost every day,) and involves more than just my hands now.

> > It's happening in EVERY joint. I'll be getting more blood work done

> > soon to include checking rha, ana, etc... I was taking Naproxen for

> > it, ran out and have been taking Aleve which does help. The only

> > problem with taking Aleve and Naproxen is that it's an NSAID.

NSAID's

> > can be dangerous if taken too often while on I'm on Cymbalta for

> > depression.

> >

> > In addition I have the usual pain in my ribs and chest muscles from

> > breathing and coughing. This pain I'm able to take the edge off with

> > my prescription of Hycodan. I go through a bottle every 3 1/2 weeks

> > being careful to take only the prescribed amount. I try to only take

> > it when the pain is unbearable which is at least once a day. There

> > are some days I've had to take it 3 x.

> >

> > Just when you thought I was done.... I have scholiosis in my upper

> > back and a degenerative disc in my lower back. There is no pain

> > releaver that works on my lower back. I've learned I can be more

> > comfortable using Glucosamine, Chondroitin and doing different

> > stretches.

> >

> > Thankfully I haven't had any migraines lately.

> >

> > I'm just so tired of being in pain.I've already asked for the

> > bloodwork I mentioned before in hopes of some sort of answer. I feel

> > like I'm all out of choices other than asking the doctor for yet

> > another RX.If anyone has exercies, stretches, vitamins, or even a

> > tribal fire dance that has helped you I'm open for suggestion.

> >

> > 33 FL

> > IPF dx 1/06

> >

>

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