Re: Long term ATD use -- rare danger

[Guest guest]

" aredhen " wrote:

>

> Last week, she developed embolisms in both lungs. Her doctor believes

> that this is a result of long term PTU use.

May be a strange question but how do they diagnose embolisms on

the lungs?

I know my mum spent the best part of one Christmas in the chest

ward being piped full of Warfarin, till I think day 4 when they

realised it wasn't an embolism, and the rat poison wouldn't help

her.

Is it just something they guess at through symptoms, or can they

spot the embolism in some way?

Embarassed to say I've forgotten the final diagnosis on that

occaison (it wasn't the only Christmas spent in and around

hospitals), but it all resulted from her Lupus attacking the

lungs.

[Guest guest]

Red,

I believe it would help everyone if you would explain why PTU could be the

cause. I searched the Atomic Women's site and found nothing there.

Before anyone gets up in the morning and reads this and quits their PTU, I

did look up the basics.

http://www.ehendrick.org/healthy/00062720.html

How long was this woman on PTU and was she seeing a doctor on schedule to be

watched for any odd complications, like the rest of us do ?

What was her maintenance dose ?

Did she not have any symptoms ?

What literature supports this ?

-Pam L -

[Guest guest]

How long was long-term use? What were her symptoms?

Holly

Dx. 8/2001; 5 mg. MMI

Long term ATD use -- rare danger

Hi, everybody.

There is a lady, whom I believe belongs to this group as well as

AtomicWomen, who has just been released from the hospital. Last

week, she developed embolisms in both lungs. Her doctor believes

that this is a result of long term PTU use.

She will elaborate on this if she chooses, but I feel that it is the

responsible thing for me to do to report this, as we have often

discussed the long term use of ATDs to avoid RAI.

Elaine and I have both searched the literature on this, and she has

found some references which may support the doctor's assessment of

the situation.

I am by no means suggesting that anyone on long term ATDs should be

fearful of what is likely to be an extremely rare occurrance, but

that anyone on this regime be very observant of physical symptoms and

address them in a timely manner, because these drugs are potent.

Red

[Guest guest]

How long was long-term use? What were her symptoms?

Holly

Dx. 8/2001; 5 mg. MMI

Long term ATD use -- rare danger

Hi, everybody.

There is a lady, whom I believe belongs to this group as well as

AtomicWomen, who has just been released from the hospital. Last

week, she developed embolisms in both lungs. Her doctor believes

that this is a result of long term PTU use.

She will elaborate on this if she chooses, but I feel that it is the

responsible thing for me to do to report this, as we have often

discussed the long term use of ATDs to avoid RAI.

Elaine and I have both searched the literature on this, and she has

found some references which may support the doctor's assessment of

the situation.

I am by no means suggesting that anyone on long term ATDs should be

fearful of what is likely to be an extremely rare occurrance, but

that anyone on this regime be very observant of physical symptoms and

address them in a timely manner, because these drugs are potent.

Red

[Guest guest]

How long was long-term use? What were her symptoms?

Holly

Dx. 8/2001; 5 mg. MMI

Long term ATD use -- rare danger

Hi, everybody.

There is a lady, whom I believe belongs to this group as well as

AtomicWomen, who has just been released from the hospital. Last

week, she developed embolisms in both lungs. Her doctor believes

that this is a result of long term PTU use.

She will elaborate on this if she chooses, but I feel that it is the

responsible thing for me to do to report this, as we have often

discussed the long term use of ATDs to avoid RAI.

Elaine and I have both searched the literature on this, and she has

found some references which may support the doctor's assessment of

the situation.

I am by no means suggesting that anyone on long term ATDs should be

fearful of what is likely to be an extremely rare occurrance, but

that anyone on this regime be very observant of physical symptoms and

address them in a timely manner, because these drugs are potent.

Red