Re: /was:Re: Andy's protocol vs. ARI's protocol

[Guest guest]

Hi ,

Confusing for sure. I felt the same way in the beginning so I joined all the

lists and read everything and still couldn't figure out what to do. So I just

kept track of what people said they were doing, Dan! or Andy's protocol and what

I found after 9 months of carefully watching is that some kids did well with the

huge amounts of chelators and less frequent dosing....but some did horrible,

banging their heads, regressing and every other sort of side effect you wouldn't

want.

I didn't find that on Andy's protocol, just kids doing better, no reports of

horrible regressions or side effects. So the conclusion is that some kids can

take the Dan! protocol, but a LOT can't and it is, for me, about finding the

safest way to get ours better.

This is my granddaughter who was formerly autistic, now totally

indistinguishable from other children, except in good ways, no dx, in a regular

first grade with no aide, doing beautifully both academically and socially.

I wish you luck with your quest, let us know if we can answer any further

questions.

: frequent-dose-chelation

Sent: Thursday, February 28, 2008 6:09 PM

Subject: Re: Andy's protocol vs. ARI's protocol

>Jackie,

Thanks for the reply. Yes, I do belong to the groups and I have read

my eyes out on this subject. The troubling thing to me is that with

the ARI, there are 33 phd's signing off on their protocol. My gut

feeling to Andy's gentle and frequent approach but the vast contrast

between the two is very troubling.

I will continue to absorb info.. We are likely weeks away from

starting whatever it is we decide to do.

Where do you recommend me obtaining DMSA should we opt to go that

route?

This is a new revelation to me, thanks to my sons condition. I have

9 amalgam fillings in my mouth and I am already set on having them

replaced with white composite. Do you feel that it is safe to assume

that I am mercury toxic? I have not read Andy's book but Im sure he

would feel that I am.

Any more input would be great. Thanks,

>

>

[Guest guest]

> The recommended intervention was oregano

> oil, niacinamide or grapefruit products. I use oregano oil and

> honestly that little insight changed my life significantly. I still

> sway but not as much - about 80% of my really awful symptoms went

> away.

Hi Collette,

I bet we all wish we knew about Andy sooner :-)

What were the exact recommendations (dosages) for the oregano, niacinamide

and grapefruit please?

And did you have the plasma cysteine test to diagnose sulphur problems, or

was it by elimination?

Thanks,

Dean