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Orlando trip

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Hi everyone,

Sitting here in my hotel room in Walterboro, SC reviewing the weekend in my mind. It seems to be the same everytime I meet someone from this group in person. Regardless of who it is and how little we may have in common, meeting someone with this disease is like finding a long lost sibling. It's an incredible experience. I have two regrets about this weekend, one that my crappy camera doesn't take better pictures. (At least I have the little videos, especially the one from Olive Garden where Peggy's daughter filmed the entire group. Those videos are at www.youtube.com/mbmurtha)

The other regret is that there is never enough time to sit and talk with everyone. I was so happy to meet newer members...like , Barbara, Sandy, Eileen etc etc etc. If start naming names I'm going to get in trouble I don't want my oxygen deprived brain to forget someone. And of course I was happy to see old friends like Peggy, Leanne and Jane. Peggy's "SuperCaregiver" husband and her daughter Theresa were with us also as was Jane's sweetheart of a daughter .

I honestly feel as though my family expands everytime I go to one of these things and I'm grateful for that.

This group is one of the blessings of this horrible disease. It's not a small blessing either. You all make this bearable for me and I thank you all for that.

Here's to the next get together!

Beth

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Fibrotic NSIP 06/06 Dermatomyositis 11/08

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