Guest guest Posted May 1, 2002 Report Share Posted May 1, 2002 ---Hi , Welcome, I hope we can help you understand this fibro, it is something you will have to deal with every day but I guess you all ready know that, how somedays are better than others. I have had this for several years and I don't have many answers. One good thing about this place is when you can't sleep in the middle of the night you will have some one to talk to that understand. Audie In @y..., wrote: > > Hi, My name is and I am from So. Cal. > > Age range: 50 > > Male/female: Male > > What are the symptoms? Burning, aching, tingling pain in all of the points. And then some. > > Has you illness been diagnosed? Yes, last December > > How long did you suffer before you got help? Probably at least a few years. I also have spinal problems with similar symptoms. > > Is there a time that you can remember when it started? I think after a near divorce, just before my last neck surgery. > > Some of us have found lack of exercise we are overweight. Have you > found this to be a problem also? I weigh 215 and am 5'11''. Not to well in proportion though. > > Are you on disability? Disibility retirement, still working on Social Security. > > If you are any pointers for others trying to get on disability? Start as soon as possible as it takes a long time. > > What have you found that helps ease the pain, warm baths, medications > etc.? Warm bathes, showers, spas help and I am on alot of Vicodin for the ortho stuff which helps. Often though I cant tell where the pain originates from. > > Do you have sleep problems? How do you deal with it? Yes, Ambien worked for awhile, not so well now. Elavil helps be sleep but i dont like the effect. Have been on a number of anti-depressants but cant tolerate them. Again dont remember which came first, the pain or the depression. > > Do you have family that understands your illness? Somewhat but it is a strain on everyone. Findind info on Fibro has helped greatly. I thought I was going crazy before i found place like this. > > Some have found certain foods causes problems with CFS or Fibro, have > you? Nothing yet. > > What type of Doctor have you found that has helped you the most? No one really. > > I have been in pain for so long I really cant remember when it all started. Memory is another problem. I often feel Flu like symptoms. I get feverish and sweaty with no temperature after little exertion. Always tired and irratable bowel. I do occasionally feel like it goes away for a short time and then it returns. I hope this helps someone!! > > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2002 Report Share Posted May 1, 2002 ---Hi , Welcome, I hope we can help you understand this fibro, it is something you will have to deal with every day but I guess you all ready know that, how somedays are better than others. I have had this for several years and I don't have many answers. One good thing about this place is when you can't sleep in the middle of the night you will have some one to talk to that understand. Audie In @y..., wrote: > > Hi, My name is and I am from So. Cal. > > Age range: 50 > > Male/female: Male > > What are the symptoms? Burning, aching, tingling pain in all of the points. And then some. > > Has you illness been diagnosed? Yes, last December > > How long did you suffer before you got help? Probably at least a few years. I also have spinal problems with similar symptoms. > > Is there a time that you can remember when it started? I think after a near divorce, just before my last neck surgery. > > Some of us have found lack of exercise we are overweight. Have you > found this to be a problem also? I weigh 215 and am 5'11''. Not to well in proportion though. > > Are you on disability? Disibility retirement, still working on Social Security. > > If you are any pointers for others trying to get on disability? Start as soon as possible as it takes a long time. > > What have you found that helps ease the pain, warm baths, medications > etc.? Warm bathes, showers, spas help and I am on alot of Vicodin for the ortho stuff which helps. Often though I cant tell where the pain originates from. > > Do you have sleep problems? How do you deal with it? Yes, Ambien worked for awhile, not so well now. Elavil helps be sleep but i dont like the effect. Have been on a number of anti-depressants but cant tolerate them. Again dont remember which came first, the pain or the depression. > > Do you have family that understands your illness? Somewhat but it is a strain on everyone. Findind info on Fibro has helped greatly. I thought I was going crazy before i found place like this. > > Some have found certain foods causes problems with CFS or Fibro, have > you? Nothing yet. > > What type of Doctor have you found that has helped you the most? No one really. > > I have been in pain for so long I really cant remember when it all started. Memory is another problem. I often feel Flu like symptoms. I get feverish and sweaty with no temperature after little exertion. Always tired and irratable bowel. I do occasionally feel like it goes away for a short time and then it returns. I hope this helps someone!! > > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2002 Report Share Posted May 1, 2002 Welcome, to our list. This is a very good list. We are very caring, loving and supportive. If you have any question, let us know. Someone will more than likely have the answer. If you have something to say, just sump right in. We have all had our times at being angry and upset about this fibro and we say so. Out loud. So if you want to vent, feel free. Take care, Irene Books may well be the only true magic Alice Hoffman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2002 Report Share Posted May 4, 2002 Hi everyone and hello to our new members. You've come to the right group. I went to the doctors yesterday for my son I ended up having an appt to. He squeezed me in. Well, he put me on flexeril/cyclobenzaprine for my pain and I went back on wellbutrin SR(anti-depressant). He told me it would help my baseline. I was on it before. My cardiologist prescribed it for my neurocronigic sycope. When I went off of it before I noticed more pain. My family dr also gave me a prescription for massage therapy. I need to call the insurance company though. I hope they cover it. I still have alot of pain in my back and it radiates up to my sternum. I hope that I start feeling better. I need to go plant my veggies in the garden. Well, I thought I'd let you know that I went to the doctor. He is very attentive and listens to what my symptoms are. He does help out alot. Well, everyone have a great evening everyone!! rox6602000 rox660@...> wrote: a lot --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2002 Report Share Posted May 22, 2002 Cinda, welcome to our group. It is a very good one. The people are friendly, caring, loving and very supportive. If you have anymore questions, ask away, someone will probably have the answer. if you feel like venting, this is the place to do it. There is always someone to listen. Take care, Irene Books may well be the only true magic Alice Hoffman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2002 Report Share Posted May 22, 2002 Cinda, welcome to our group. It is a very good one. The people are friendly, caring, loving and very supportive. If you have anymore questions, ask away, someone will probably have the answer. if you feel like venting, this is the place to do it. There is always someone to listen. Take care, Irene Books may well be the only true magic Alice Hoffman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2002 Report Share Posted May 27, 2002 Hi , when I was reading your life story, haha boy it sound like me. In March of 2001 I was slurry my words, dropping things, tripping over my feet for no reason at all, I had pain thru out my body. went thru so many tests and they thought I was dx with a stoke, but that was not it, so they couldn';t find anything wrong with me. In october 2001, I lost my memory, went thru more tests and the doc said that I was faking and trying to get attention; and get this, she said that my kids were out of control. What does that have to do with my test results? Well I didn;t get the test results until about month ago saying that I cheating, faked my tests. Tell me something WHY would I do that... I just can't belieive some of this doctors, so I know how you feel . I was dx with FM in the last 3 months ago, and it is a big pain. So let me ask a Question, my doc will not rx me any pain killers..its because of my Bi-polar, and ADD, will along my Boardline personity disorder, the question is , where can I get some relief for my pain? Help!!! In @y..., " evilwoman_21 " wrote: > Hi everyone, > I just wanted to give a brief hello. I was diagnosed with FM about > a year ago and have been on ultram for pain and flexaril for > restless leg. I however was diagnosed with FM but i do not have the > common pain points. As a matter of fact i only have 1 pain point in > my neck. I do however have mystery pain throughout my intire body > and it is different from week to week. After seeing countless > doctors and being told it was all in my head I finally found one > that would believe me and is working with me to control my pain. I > guess I am lucky though because my family doctor is great and he > doesnt cut everything off as being " faked " . I actually had an > orthopedist tell my family doctor that there was nothing wrong with > me i was faking for attention. Like i really want to pay $2,000.00 > for an overnights stay in the hospital for attention. I cant > believe some doctors these days and their bedside manner. I also am > pretty lucky because i dont have depression either. I do however > have my moments just as everyone does. Well I am starting to write > a book here and I only wanted to say hi. > Thanks For hearing me > stephanie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2002 Report Share Posted May 27, 2002 Hi , when I was reading your life story, haha boy it sound like me. In March of 2001 I was slurry my words, dropping things, tripping over my feet for no reason at all, I had pain thru out my body. went thru so many tests and they thought I was dx with a stoke, but that was not it, so they couldn';t find anything wrong with me. In october 2001, I lost my memory, went thru more tests and the doc said that I was faking and trying to get attention; and get this, she said that my kids were out of control. What does that have to do with my test results? Well I didn;t get the test results until about month ago saying that I cheating, faked my tests. Tell me something WHY would I do that... I just can't belieive some of this doctors, so I know how you feel . I was dx with FM in the last 3 months ago, and it is a big pain. So let me ask a Question, my doc will not rx me any pain killers..its because of my Bi-polar, and ADD, will along my Boardline personity disorder, the question is , where can I get some relief for my pain? Help!!! In @y..., " evilwoman_21 " wrote: > Hi everyone, > I just wanted to give a brief hello. I was diagnosed with FM about > a year ago and have been on ultram for pain and flexaril for > restless leg. I however was diagnosed with FM but i do not have the > common pain points. As a matter of fact i only have 1 pain point in > my neck. I do however have mystery pain throughout my intire body > and it is different from week to week. After seeing countless > doctors and being told it was all in my head I finally found one > that would believe me and is working with me to control my pain. I > guess I am lucky though because my family doctor is great and he > doesnt cut everything off as being " faked " . I actually had an > orthopedist tell my family doctor that there was nothing wrong with > me i was faking for attention. Like i really want to pay $2,000.00 > for an overnights stay in the hospital for attention. I cant > believe some doctors these days and their bedside manner. I also am > pretty lucky because i dont have depression either. I do however > have my moments just as everyone does. Well I am starting to write > a book here and I only wanted to say hi. > Thanks For hearing me > stephanie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2002 Report Share Posted May 27, 2002 Hi , when I was reading your life story, haha boy it sound like me. In March of 2001 I was slurry my words, dropping things, tripping over my feet for no reason at all, I had pain thru out my body. went thru so many tests and they thought I was dx with a stoke, but that was not it, so they couldn';t find anything wrong with me. In october 2001, I lost my memory, went thru more tests and the doc said that I was faking and trying to get attention; and get this, she said that my kids were out of control. What does that have to do with my test results? Well I didn;t get the test results until about month ago saying that I cheating, faked my tests. Tell me something WHY would I do that... I just can't belieive some of this doctors, so I know how you feel . I was dx with FM in the last 3 months ago, and it is a big pain. So let me ask a Question, my doc will not rx me any pain killers..its because of my Bi-polar, and ADD, will along my Boardline personity disorder, the question is , where can I get some relief for my pain? Help!!! In @y..., " evilwoman_21 " wrote: > Hi everyone, > I just wanted to give a brief hello. I was diagnosed with FM about > a year ago and have been on ultram for pain and flexaril for > restless leg. I however was diagnosed with FM but i do not have the > common pain points. As a matter of fact i only have 1 pain point in > my neck. I do however have mystery pain throughout my intire body > and it is different from week to week. After seeing countless > doctors and being told it was all in my head I finally found one > that would believe me and is working with me to control my pain. I > guess I am lucky though because my family doctor is great and he > doesnt cut everything off as being " faked " . I actually had an > orthopedist tell my family doctor that there was nothing wrong with > me i was faking for attention. Like i really want to pay $2,000.00 > for an overnights stay in the hospital for attention. I cant > believe some doctors these days and their bedside manner. I also am > pretty lucky because i dont have depression either. I do however > have my moments just as everyone does. Well I am starting to write > a book here and I only wanted to say hi. > Thanks For hearing me > stephanie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2002 Report Share Posted June 9, 2002 Thanks for the welcome. One thing I forgot to mention that helps me with pain is the magnetic wrist band. It provides a lot of relief for a few hours. This may have more to do with osteoarthritis than FM, I would like to learn more if anyone has any experience or knowledge on the subject. Peace, jim > Jim~ > Welcome to the group! This group is full of understanding, > compassion but lets not forget humor! Feel free to ask questions > because someone useally knows the answer and also if you are > having a bad day feel free to let it out. Welcome!!! > ~ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2002 Report Share Posted June 9, 2002 Thanks for the welcome. One thing I forgot to mention that helps me with pain is the magnetic wrist band. It provides a lot of relief for a few hours. This may have more to do with osteoarthritis than FM, I would like to learn more if anyone has any experience or knowledge on the subject. Peace, jim > Jim~ > Welcome to the group! This group is full of understanding, > compassion but lets not forget humor! Feel free to ask questions > because someone useally knows the answer and also if you are > having a bad day feel free to let it out. Welcome!!! > ~ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2002 Report Share Posted June 9, 2002 Thanks for the welcome. One thing I forgot to mention that helps me with pain is the magnetic wrist band. It provides a lot of relief for a few hours. This may have more to do with osteoarthritis than FM, I would like to learn more if anyone has any experience or knowledge on the subject. Peace, jim > Jim~ > Welcome to the group! This group is full of understanding, > compassion but lets not forget humor! Feel free to ask questions > because someone useally knows the answer and also if you are > having a bad day feel free to let it out. Welcome!!! > ~ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2002 Report Share Posted June 12, 2002 Hello Tammi!! Welcome to the group! Glad to have you! , 31, CO In a message dated Tue, 11 Jun 2002 10:07:17 PM Eastern Daylight Time, leskadog@... writes: > Hi all. My name is Tammie, and I am a new member to this list. I am 29 years old, and I am from Utah. I was diagnosed in 1986, when I was 13 years old, and if it hadn't been for a Rheumatologist believing me, and taking me seriously, I don't know what would have happened to me. I was told by several Doctors that this was all in my head, and I got several referrals to Psychologists. When I was diagnosed, the term Fibrositis was used. I don't know if we'll ever know for sure, but my parents think I had Fibromyalgia since I was little. I never could sleep through the night, and my parents would often find me roaming the house, even when I was 3 and 4 years old. I've always had sleep problems as far back as I can remember. > > Well, I'll try to keep this message short. There's more I would like to share, but I'll wait until next time. I look > forward to getting to know all of you. > > Take care. > > Tammie & Leska Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2002 Report Share Posted June 12, 2002 Hello Tammi!! Welcome to the group! Glad to have you! , 31, CO In a message dated Tue, 11 Jun 2002 10:07:17 PM Eastern Daylight Time, leskadog@... writes: > Hi all. My name is Tammie, and I am a new member to this list. I am 29 years old, and I am from Utah. I was diagnosed in 1986, when I was 13 years old, and if it hadn't been for a Rheumatologist believing me, and taking me seriously, I don't know what would have happened to me. I was told by several Doctors that this was all in my head, and I got several referrals to Psychologists. When I was diagnosed, the term Fibrositis was used. I don't know if we'll ever know for sure, but my parents think I had Fibromyalgia since I was little. I never could sleep through the night, and my parents would often find me roaming the house, even when I was 3 and 4 years old. I've always had sleep problems as far back as I can remember. > > Well, I'll try to keep this message short. There's more I would like to share, but I'll wait until next time. I look > forward to getting to know all of you. > > Take care. > > Tammie & Leska Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2002 Report Share Posted June 12, 2002 Welcome Tammie, and everyone else who is new. I've always been a light sleeper and found it harder than everyone else to get to sleep. My husband always tells me " naps are wonderful things. " I tell him, " no, they're not, they're a lot of work to go to sleep, and you feel like crap when you wake up. " I don't nap. I'll lay down for a few minutes, usually 10-20 minutes, but don't even come close to sleeping. On the days where I'm really bad, I'll go into a state where I can still hear the tv, but don't know what they're saying. That's as close to napping as I come. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2002 Report Share Posted June 12, 2002 Welcome Tammie, and everyone else who is new. I've always been a light sleeper and found it harder than everyone else to get to sleep. My husband always tells me " naps are wonderful things. " I tell him, " no, they're not, they're a lot of work to go to sleep, and you feel like crap when you wake up. " I don't nap. I'll lay down for a few minutes, usually 10-20 minutes, but don't even come close to sleeping. On the days where I'm really bad, I'll go into a state where I can still hear the tv, but don't know what they're saying. That's as close to napping as I come. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2002 Report Share Posted July 4, 2002 -Sounds as if the massage theapist is going too deep and the rotator cuff is already irritated. Do you have an osteopath who does manipulations in your area? That would be your best best. You need to rest that shoulder until it is no longer irritated and ice. Have you had a sleep study done. Sometimes, there is an underlying sleep problem. Star -- In @y..., " jaxxxchic " wrote: > Greetings Newbie here....I wanted to get some suggestions maybe > answers of why I have so much PAIN! > It all stems back more then a year ago. I worked at Sams club > stocking Cigarette cases. I would complain nightly about shoulder > pain and wake with morning stiffness. This went on for at least 6 > months...Till one day I was asked to move carts/flatbeds. Flatbeds > are heavy metal carts. I moved approx 5 to 10 at a times. As time > progressed I experienced more and more pain until Labor day weekend > of last year. The pain got so bad I was choking down handfuls of IB's > and crying/waking away from my register.Needless to say the spervisor > said I need to see a DOC,not their just a doc. Which I did. This doc > DX me with Rotator cuff tendonitis. Time went on with him and > aggressive therapy. The pain worstened so much I couldn't move my > head to left.After Xrays and MRI the doc said there was nothing he > could do for me and sent me on my way...Great doc eh? > So Now I am seeing another doc...I have improved some in areas and > gotten worst in others. I have trouble dressing(esp the > bra),cleaning,driving,and doing certain things. I can lift a half > gallon of milk without pain.The Doc has been giving me Steroids,pain > killers ( which don't really help),and a nerve block. I also get > massage therapy. Now even after a year and all this I STILL am in > great pain? After massage therapy I am so stiff and in pain I can > barely move. I go threw weird sleep patterns...I mostly sleep 3 -5 > hours give or take a night and maybe nap during the day. I find the > recliner more comfy and haven't slept in a bed for a year now. I also > have bouts of depression...just crying because I feel like a failure > and useless. The doc now wants me to return to work. But I feel I > couldn't drive there plus lifting heavy items I would do more calling > out then being at work.Somedays are better then others but I have > most pain at night esp while sleeping. > So any suggestions???? I don't know if I have this...my pain is > generalized around my left shoulder with neck pain and severe > headaches...so bad I wanna cry.Now and then I have back pain but > nothing a few IB's don't cure. > so suggestions??? Ideas??? anything would be GREATFUL as I have no > clue why I hurt so bad still??? > Thankx > Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2002 Report Share Posted July 4, 2002 -Sounds as if the massage theapist is going too deep and the rotator cuff is already irritated. Do you have an osteopath who does manipulations in your area? That would be your best best. You need to rest that shoulder until it is no longer irritated and ice. Have you had a sleep study done. Sometimes, there is an underlying sleep problem. Star -- In @y..., " jaxxxchic " wrote: > Greetings Newbie here....I wanted to get some suggestions maybe > answers of why I have so much PAIN! > It all stems back more then a year ago. I worked at Sams club > stocking Cigarette cases. I would complain nightly about shoulder > pain and wake with morning stiffness. This went on for at least 6 > months...Till one day I was asked to move carts/flatbeds. Flatbeds > are heavy metal carts. I moved approx 5 to 10 at a times. As time > progressed I experienced more and more pain until Labor day weekend > of last year. The pain got so bad I was choking down handfuls of IB's > and crying/waking away from my register.Needless to say the spervisor > said I need to see a DOC,not their just a doc. Which I did. This doc > DX me with Rotator cuff tendonitis. Time went on with him and > aggressive therapy. The pain worstened so much I couldn't move my > head to left.After Xrays and MRI the doc said there was nothing he > could do for me and sent me on my way...Great doc eh? > So Now I am seeing another doc...I have improved some in areas and > gotten worst in others. I have trouble dressing(esp the > bra),cleaning,driving,and doing certain things. I can lift a half > gallon of milk without pain.The Doc has been giving me Steroids,pain > killers ( which don't really help),and a nerve block. I also get > massage therapy. Now even after a year and all this I STILL am in > great pain? After massage therapy I am so stiff and in pain I can > barely move. I go threw weird sleep patterns...I mostly sleep 3 -5 > hours give or take a night and maybe nap during the day. I find the > recliner more comfy and haven't slept in a bed for a year now. I also > have bouts of depression...just crying because I feel like a failure > and useless. The doc now wants me to return to work. But I feel I > couldn't drive there plus lifting heavy items I would do more calling > out then being at work.Somedays are better then others but I have > most pain at night esp while sleeping. > So any suggestions???? I don't know if I have this...my pain is > generalized around my left shoulder with neck pain and severe > headaches...so bad I wanna cry.Now and then I have back pain but > nothing a few IB's don't cure. > so suggestions??? Ideas??? anything would be GREATFUL as I have no > clue why I hurt so bad still??? > Thankx > Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2002 Report Share Posted July 4, 2002 -Sounds as if the massage theapist is going too deep and the rotator cuff is already irritated. Do you have an osteopath who does manipulations in your area? That would be your best best. You need to rest that shoulder until it is no longer irritated and ice. Have you had a sleep study done. Sometimes, there is an underlying sleep problem. Star -- In @y..., " jaxxxchic " wrote: > Greetings Newbie here....I wanted to get some suggestions maybe > answers of why I have so much PAIN! > It all stems back more then a year ago. I worked at Sams club > stocking Cigarette cases. I would complain nightly about shoulder > pain and wake with morning stiffness. This went on for at least 6 > months...Till one day I was asked to move carts/flatbeds. Flatbeds > are heavy metal carts. I moved approx 5 to 10 at a times. As time > progressed I experienced more and more pain until Labor day weekend > of last year. The pain got so bad I was choking down handfuls of IB's > and crying/waking away from my register.Needless to say the spervisor > said I need to see a DOC,not their just a doc. Which I did. This doc > DX me with Rotator cuff tendonitis. Time went on with him and > aggressive therapy. The pain worstened so much I couldn't move my > head to left.After Xrays and MRI the doc said there was nothing he > could do for me and sent me on my way...Great doc eh? > So Now I am seeing another doc...I have improved some in areas and > gotten worst in others. I have trouble dressing(esp the > bra),cleaning,driving,and doing certain things. I can lift a half > gallon of milk without pain.The Doc has been giving me Steroids,pain > killers ( which don't really help),and a nerve block. I also get > massage therapy. Now even after a year and all this I STILL am in > great pain? After massage therapy I am so stiff and in pain I can > barely move. I go threw weird sleep patterns...I mostly sleep 3 -5 > hours give or take a night and maybe nap during the day. I find the > recliner more comfy and haven't slept in a bed for a year now. I also > have bouts of depression...just crying because I feel like a failure > and useless. The doc now wants me to return to work. But I feel I > couldn't drive there plus lifting heavy items I would do more calling > out then being at work.Somedays are better then others but I have > most pain at night esp while sleeping. > So any suggestions???? I don't know if I have this...my pain is > generalized around my left shoulder with neck pain and severe > headaches...so bad I wanna cry.Now and then I have back pain but > nothing a few IB's don't cure. > so suggestions??? Ideas??? anything would be GREATFUL as I have no > clue why I hurt so bad still??? > Thankx > Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 hi stephanie~ i would first like to welcome you to the group, although i'm sorry that you had to join it. i can sympathize with you, i was diagnosed with CFS/FMS right before i turned 20. i think that i've had it since i was about 16 though. it really can change your life. i have been researching like mad for the past couple of years so feel free to email me. i'll even give you my personal address because sometimes it's easier for me to answer abbuttercup55@... i think that it's easier sometimes to talk to poeple your own age because they know how things affect you. are you planning on going to college or trying? well, i hope to get to know you in the future take care ali --- rain_drop1982 rain_drop1982@...> wrote: > hi my name is . i am 19 years old. i just > recently found > out that i have fibromyalgia. i am still learning > about fibro. i > have been having pain like this for about 3 years > but like i said i > just recently found out what it was. i hope to > learn more about > this and more things that may help the pain. > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 hi stephanie~ i would first like to welcome you to the group, although i'm sorry that you had to join it. i can sympathize with you, i was diagnosed with CFS/FMS right before i turned 20. i think that i've had it since i was about 16 though. it really can change your life. i have been researching like mad for the past couple of years so feel free to email me. i'll even give you my personal address because sometimes it's easier for me to answer abbuttercup55@... i think that it's easier sometimes to talk to poeple your own age because they know how things affect you. are you planning on going to college or trying? well, i hope to get to know you in the future take care ali --- rain_drop1982 rain_drop1982@...> wrote: > hi my name is . i am 19 years old. i just > recently found > out that i have fibromyalgia. i am still learning > about fibro. i > have been having pain like this for about 3 years > but like i said i > just recently found out what it was. i hope to > learn more about > this and more things that may help the pain. > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 hi stephanie~ i would first like to welcome you to the group, although i'm sorry that you had to join it. i can sympathize with you, i was diagnosed with CFS/FMS right before i turned 20. i think that i've had it since i was about 16 though. it really can change your life. i have been researching like mad for the past couple of years so feel free to email me. i'll even give you my personal address because sometimes it's easier for me to answer abbuttercup55@... i think that it's easier sometimes to talk to poeple your own age because they know how things affect you. are you planning on going to college or trying? well, i hope to get to know you in the future take care ali --- rain_drop1982 rain_drop1982@...> wrote: > hi my name is . i am 19 years old. i just > recently found > out that i have fibromyalgia. i am still learning > about fibro. i > have been having pain like this for about 3 years > but like i said i > just recently found out what it was. i hope to > learn more about > this and more things that may help the pain. > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2002 Report Share Posted August 10, 2002 Hi , My son who will be 32 the last day of August has colitis, we though for a long time that he had crohns, he finally had the surgery to have ever thing taken out, he works night shift and he stay tired a lot, I am the only one in the family that has fibro I hope that he doesn't get it. So I really know how your are suffering with both fibro and crohns.If there is anything that I can help you with just let me know. Audie New Member > Hi, > Thanks for letting me be a part of your group. > > Age range: 27 > > > Male/female: Female > > > Has you illness been diagnosed? 5 years > > > How long did you suffer before you got help? Not too long > > > Is there a time that you can remember when it started? Yes, shortly after I > received a diagonsis of Crohns Disease. > > > Some of us have found lack of exercise we are overweight. Have you found > this to be a problem also? No > > > Are you on disability? No > > > What have you found that helps ease the pain, warm baths, medications etc.? > Reduce stress > > > sleep problems? How do you deal with it?I don't deal with it but have > severe sleep problems. > > > > Some have found certain foods causes problems with CFS or Fibro, have you? > I am on a very strict diet for the crohns and candida. > > > What type of Doctor have you found that has helped you the most? None > > > > > > SEND POST TO: fibromyalgia-cfs > > HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html > LIST OWNER: " Missy " Parrot004@...> > UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2002 Report Share Posted August 10, 2002 Hi Audie, Thanks for the welcome. I am sorry to hear that your sons has colitis. I have heard of many misdiagnosed crohns cases who in actual fact have colitis. For me, I was originally diagnosed as crohns, but it has now developed to crohns-colitis. I am going through a bad patch now with the crohns-colitis and fibro flaring. I'm sorry to hear that you suffer with fibro. Thanks for being here for me. You have no idea how much it means to me. New Member > > > > Hi, > > Thanks for letting me be a part of your group. > > > > Age range: 27 > > > > > > Male/female: Female > > > > > > Has you illness been diagnosed? 5 years > > > > > > How long did you suffer before you got help? Not too long > > > > > > Is there a time that you can remember when it started? Yes, shortly after > I > > received a diagonsis of Crohns Disease. > > > > > > Some of us have found lack of exercise we are overweight. Have you found > > this to be a problem also? No > > > > > > Are you on disability? No > > > > > > What have you found that helps ease the pain, warm baths, medications > etc.? > > Reduce stress > > > > > > sleep problems? How do you deal with it?I don't deal with it but have > > severe sleep problems. > > > > > > > > Some have found certain foods causes problems with CFS or Fibro, have > you? > > I am on a very strict diet for the crohns and candida. > > > > > > What type of Doctor have you found that has helped you the most? None > > > > > > > > > > > > SEND POST TO: fibromyalgia-cfs > > > > HOME > PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html > > LIST OWNER: " Missy " Parrot004@...> > > UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2002 Report Share Posted August 12, 2002 Welcome... I wish the best of luck with your disability. I have found that the Elavil I take for a good nights sleep has really helped me as well as trying to go to bed the same time as well as waking the same time every day. Before, I would not pay attention to this, but now, I do and it seems to help with the sleep. a Faye --- Darcy Stockstill catstamp@...> wrote: > > > > > > Age range: 45 > > > > Male/female: M > > > > What are the symptoms? Extreme fatique, pain from > head to toe > > > > Has you illness been diagnosed? Diagnosed as > having Fibromyalgia, > Psoractic Arthritis and Osteoarthritis > > > > How long did you suffer before you got help? More > years now that I > look back, roughly 8-10 years > > > > Is there a time that you can remember when it > started? When I moved > from CA to CO for job promotion > > > > Some of us have found lack of exercise we are > overweight. > > Have you found this to be a problem also? YES > > > > Are you on disability? I am currently working > with my insurance > company and Social Security > > > > If you are any pointers for others trying to get > on disability? Just > be aware that Social Security will do everything in > their power to deny > you. Do not give up, keep fighting them and > eventually you will win > your benefits.. > > > > What have you found that helps ease the pain, warm > baths, > > medications etc.? Warm, not hot epsom salt baths > help a great deal, > Advil, Ultracet (RX) positive thinking! > > > > Do you have sleep problems? How do you deal with > it? I sleep less > than 3 hours a night. The truth is that I have not > been dealing with > it. I am now taking Ambien and it helps. > > > > Do you have family that understands your illness? > My family doesn't > have a clue about this but my roommate is more like > my caregiver now and > he is with me every doctors appointments and such in > case I forget to > the doctor something and that I will mostly forget > what the doctor told > me during the visit. My roommate logs everything > down. > > > > Some have found certain foods causes problems with > CFS or > > Fibro, have you? I have noticed this too, but I > cannot pin point > which ones they are! > > > > What type of Doctor have you found that has helped > you the most? A > combination of a rheumatologist and orthopedic. > They share the same > office and they rotate me between the two doctors. > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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