Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 Hi, I'm not certain at all why that happens but what you describe has been happening to me since prior to my diagnosis. It's almost like a small involuntary gasp. Is that what you mean? Unfortunately I can't tell you anything about what it is and why it happens. No one has ever been able to tell me. But you're not alone. Maybe someone else will know. Bruce??? Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Thursday, March 26, 2009 6:07:01 PMSubject: Shortness of Breath I was diagnosed with polymyalgia rheumatica in 1997. At the onset I noticed I had shortness of breath upon lifting heavy objects and sweeping floor. It comes and goes and I even have good times when I can walk a tred mill. I have not tested positive for RA but did have lung studies and have been diagnosed with pulmonay fibrosis. I am now experiencing something strange which can't get a satisfactory answer for. At rest I suddenly have a spasm of my diaphragm with causes me to take a sudden rapid deep breath. I have no control over this and it is getting painful. Any ideas of what is happening. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 Hi, I'm not certain at all why that happens but what you describe has been happening to me since prior to my diagnosis. It's almost like a small involuntary gasp. Is that what you mean? Unfortunately I can't tell you anything about what it is and why it happens. No one has ever been able to tell me. But you're not alone. Maybe someone else will know. Bruce??? Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Thursday, March 26, 2009 6:07:01 PMSubject: Shortness of Breath I was diagnosed with polymyalgia rheumatica in 1997. At the onset I noticed I had shortness of breath upon lifting heavy objects and sweeping floor. It comes and goes and I even have good times when I can walk a tred mill. I have not tested positive for RA but did have lung studies and have been diagnosed with pulmonay fibrosis. I am now experiencing something strange which can't get a satisfactory answer for. At rest I suddenly have a spasm of my diaphragm with causes me to take a sudden rapid deep breath. I have no control over this and it is getting painful. Any ideas of what is happening. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 MB/Vella Do you feel like these are in your airways or deeper in your diaphragm? > > Hi, > I'm not certain at all why that happens but what you describe has been happening to me since prior to my diagnosis. It's almost like a small involuntary gasp. Is that what you mean? Unfortunately I can't tell you anything about what it is and why it happens. No one has ever been able to tell me. > But you're not alone. Maybe someone else will know. Bruce??? > > Beth > Moderator > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > > > ________________________________ > From: vella_vesture bpello@... > To: Breathe-Support > Sent: Thursday, March 26, 2009 6:07:01 PM > Subject: Shortness of Breath > > > I was diagnosed with polymyalgia rheumatica in 1997. At the onset I noticed I had shortness of breath upon lifting heavy objects and sweeping floor. It comes and goes and I even have good times when I can walk a tred mill. I have not tested positive for RA but did have lung studies and have been diagnosed with pulmonay fibrosis. I am now experiencing something strange which can't get a satisfactory answer for. At rest I suddenly have a spasm of my diaphragm with causes me to take a sudden rapid deep breath. I have no control over this and it is getting painful. Any ideas of what is happening. Thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 MB/Vella Do you feel like these are in your airways or deeper in your diaphragm? > > Hi, > I'm not certain at all why that happens but what you describe has been happening to me since prior to my diagnosis. It's almost like a small involuntary gasp. Is that what you mean? Unfortunately I can't tell you anything about what it is and why it happens. No one has ever been able to tell me. > But you're not alone. Maybe someone else will know. Bruce??? > > Beth > Moderator > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > > > ________________________________ > From: vella_vesture bpello@... > To: Breathe-Support > Sent: Thursday, March 26, 2009 6:07:01 PM > Subject: Shortness of Breath > > > I was diagnosed with polymyalgia rheumatica in 1997. At the onset I noticed I had shortness of breath upon lifting heavy objects and sweeping floor. It comes and goes and I even have good times when I can walk a tred mill. I have not tested positive for RA but did have lung studies and have been diagnosed with pulmonay fibrosis. I am now experiencing something strange which can't get a satisfactory answer for. At rest I suddenly have a spasm of my diaphragm with causes me to take a sudden rapid deep breath. I have no control over this and it is getting painful. Any ideas of what is happening. Thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 Bruce, Speaking for myself it doesn't come from up high but deeper. Vella described it as a spasm of the diaphragm which is what it kind of feels like. On the other hand a hiccup is also a diaphragmatic spasm and this isn't a hiccup. It's a sharp intake of breath like a small gasp, totally involuntary and always takes me by surprise. Vella describes hers as painful, mine is not. It's merely annoying and somewhat embarrassing when it happens, say in line at the grocery store. It doesn't happen to me often, maybe 3 or 4 times a week. When I mention it to a doctor they invariably get a puzzled look on their faces and kind of shrug. I've given up trying to figure it out. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Thursday, March 26, 2009 6:45:47 PMSubject: Re: Shortness of Breath MB/VellaDo you feel like these are in your airways or deeper in your diaphragm?>> Hi,> I'm not certain at all why that happens but what you describe has beenhappening to me since prior to my diagnosis. It's almost like a smallinvoluntary gasp. Is that what you mean? Unfortunately I can't tell youanything about what it is and why it happens. No one has ever been ableto tell me.> But you're not alone. Maybe someone else will know. Bruce???>> Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08>>>>> ____________ _________ _________ __> To: Breathe-Support@ yahoogroups. com> Sent: Thursday, March 26, 2009 6:07:01 PM> Subject: Shortness of Breath>>> I was diagnosed with polymyalgia rheumatica in 1997. At the onset Inoticed I had shortness of breath upon lifting heavy objects andsweeping floor. It comes and goes and I even have good times when I canwalk a tred mill. I have not tested positive for RA but did have lungstudies and have been diagnosed with pulmonay fibrosis. I am nowexperiencing something strange which can't get a satisfactory answerfor. At rest I suddenly have a spasm of my diaphragm with causes me totake a sudden rapid deep breath. I have no control over this and it isgetting painful. Any ideas of what is happening. Thanks> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 Bruce, Speaking for myself it doesn't come from up high but deeper. Vella described it as a spasm of the diaphragm which is what it kind of feels like. On the other hand a hiccup is also a diaphragmatic spasm and this isn't a hiccup. It's a sharp intake of breath like a small gasp, totally involuntary and always takes me by surprise. Vella describes hers as painful, mine is not. It's merely annoying and somewhat embarrassing when it happens, say in line at the grocery store. It doesn't happen to me often, maybe 3 or 4 times a week. When I mention it to a doctor they invariably get a puzzled look on their faces and kind of shrug. I've given up trying to figure it out. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Thursday, March 26, 2009 6:45:47 PMSubject: Re: Shortness of Breath MB/VellaDo you feel like these are in your airways or deeper in your diaphragm?>> Hi,> I'm not certain at all why that happens but what you describe has beenhappening to me since prior to my diagnosis. It's almost like a smallinvoluntary gasp. Is that what you mean? Unfortunately I can't tell youanything about what it is and why it happens. No one has ever been ableto tell me.> But you're not alone. Maybe someone else will know. Bruce???>> Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08>>>>> ____________ _________ _________ __> To: Breathe-Support@ yahoogroups. com> Sent: Thursday, March 26, 2009 6:07:01 PM> Subject: Shortness of Breath>>> I was diagnosed with polymyalgia rheumatica in 1997. At the onset Inoticed I had shortness of breath upon lifting heavy objects andsweeping floor. It comes and goes and I even have good times when I canwalk a tred mill. I have not tested positive for RA but did have lungstudies and have been diagnosed with pulmonay fibrosis. I am nowexperiencing something strange which can't get a satisfactory answerfor. At rest I suddenly have a spasm of my diaphragm with causes me totake a sudden rapid deep breath. I have no control over this and it isgetting painful. Any ideas of what is happening. Thanks> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 Bruce, Speaking for myself it doesn't come from up high but deeper. Vella described it as a spasm of the diaphragm which is what it kind of feels like. On the other hand a hiccup is also a diaphragmatic spasm and this isn't a hiccup. It's a sharp intake of breath like a small gasp, totally involuntary and always takes me by surprise. Vella describes hers as painful, mine is not. It's merely annoying and somewhat embarrassing when it happens, say in line at the grocery store. It doesn't happen to me often, maybe 3 or 4 times a week. When I mention it to a doctor they invariably get a puzzled look on their faces and kind of shrug. I've given up trying to figure it out. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Thursday, March 26, 2009 6:45:47 PMSubject: Re: Shortness of Breath MB/VellaDo you feel like these are in your airways or deeper in your diaphragm?>> Hi,> I'm not certain at all why that happens but what you describe has beenhappening to me since prior to my diagnosis. It's almost like a smallinvoluntary gasp. Is that what you mean? Unfortunately I can't tell youanything about what it is and why it happens. No one has ever been ableto tell me.> But you're not alone. Maybe someone else will know. Bruce???>> Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08>>>>> ____________ _________ _________ __> To: Breathe-Support@ yahoogroups. com> Sent: Thursday, March 26, 2009 6:07:01 PM> Subject: Shortness of Breath>>> I was diagnosed with polymyalgia rheumatica in 1997. At the onset Inoticed I had shortness of breath upon lifting heavy objects andsweeping floor. It comes and goes and I even have good times when I canwalk a tred mill. I have not tested positive for RA but did have lungstudies and have been diagnosed with pulmonay fibrosis. I am nowexperiencing something strange which can't get a satisfactory answerfor. At rest I suddenly have a spasm of my diaphragm with causes me totake a sudden rapid deep breath. I have no control over this and it isgetting painful. Any ideas of what is happening. Thanks> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 ask your doc about the possibility of acid reflux Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 www.transplantfund.org--- Subject: Re: Shortness of BreathTo: Breathe-Support Date: Thursday, March 26, 2009, 6:23 PM Hi, I'm not certain at all why that happens but what you describe has been happening to me since prior to my diagnosis. It's almost like a small involuntary gasp. Is that what you mean? Unfortunately I can't tell you anything about what it is and why it happens. No one has ever been able to tell me. But you're not alone. Maybe someone else will know. Bruce??? Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: vella_vesture <bpello (AT) comcast (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Thursday, March 26, 2009 6:07:01 PMSubject: Shortness of Breath I was diagnosed with polymyalgia rheumatica in 1997. At the onset I noticed I had shortness of breath upon lifting heavy objects and sweeping floor. It comes and goes and I even have good times when I can walk a tred mill. I have not tested positive for RA but did have lung studies and have been diagnosed with pulmonay fibrosis. I am now experiencing something strange which can't get a satisfactory answer for. At rest I suddenly have a spasm of my diaphragm with causes me to take a sudden rapid deep breath. I have no control over this and it is getting painful. Any ideas of what is happening. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 ask your doc about the possibility of acid reflux Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 www.transplantfund.org--- Subject: Re: Shortness of BreathTo: Breathe-Support Date: Thursday, March 26, 2009, 6:23 PM Hi, I'm not certain at all why that happens but what you describe has been happening to me since prior to my diagnosis. It's almost like a small involuntary gasp. Is that what you mean? Unfortunately I can't tell you anything about what it is and why it happens. No one has ever been able to tell me. But you're not alone. Maybe someone else will know. Bruce??? Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: vella_vesture <bpello (AT) comcast (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Thursday, March 26, 2009 6:07:01 PMSubject: Shortness of Breath I was diagnosed with polymyalgia rheumatica in 1997. At the onset I noticed I had shortness of breath upon lifting heavy objects and sweeping floor. It comes and goes and I even have good times when I can walk a tred mill. I have not tested positive for RA but did have lung studies and have been diagnosed with pulmonay fibrosis. I am now experiencing something strange which can't get a satisfactory answer for. At rest I suddenly have a spasm of my diaphragm with causes me to take a sudden rapid deep breath. I have no control over this and it is getting painful. Any ideas of what is happening. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 ask your doc about the possibility of acid reflux Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 www.transplantfund.org--- Subject: Re: Shortness of BreathTo: Breathe-Support Date: Thursday, March 26, 2009, 6:23 PM Hi, I'm not certain at all why that happens but what you describe has been happening to me since prior to my diagnosis. It's almost like a small involuntary gasp. Is that what you mean? Unfortunately I can't tell you anything about what it is and why it happens. No one has ever been able to tell me. But you're not alone. Maybe someone else will know. Bruce??? Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: vella_vesture <bpello (AT) comcast (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Thursday, March 26, 2009 6:07:01 PMSubject: Shortness of Breath I was diagnosed with polymyalgia rheumatica in 1997. At the onset I noticed I had shortness of breath upon lifting heavy objects and sweeping floor. It comes and goes and I even have good times when I can walk a tred mill. I have not tested positive for RA but did have lung studies and have been diagnosed with pulmonay fibrosis. I am now experiencing something strange which can't get a satisfactory answer for. At rest I suddenly have a spasm of my diaphragm with causes me to take a sudden rapid deep breath. I have no control over this and it is getting painful. Any ideas of what is happening. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 Joyce, Speaking for myself this is definitely respiratory not a GI symptom. I do have reflux and it's been well controlled now for a couple of years, first on Nexium and now on omeprozole. This is a sharp inspiration of breath that's completely involuntary and takes me by surprise. For me there is no component of it that's GI in nature at all. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Thursday, March 26, 2009 7:27:52 PMSubject: Re: Shortness of Breath ask your doc about the possibility of acid reflux Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 www.transplantfund. org From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Re: Shortness of BreathTo: Breathe-Support@ yahoogroups. comDate: Thursday, March 26, 2009, 6:23 PM Hi, I'm not certain at all why that happens but what you describe has been happening to me since prior to my diagnosis. It's almost like a small involuntary gasp. Is that what you mean? Unfortunately I can't tell you anything about what it is and why it happens. No one has ever been able to tell me. But you're not alone. Maybe someone else will know. Bruce??? Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: vella_vesture <bpello (AT) comcast (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Thursday, March 26, 2009 6:07:01 PMSubject: Shortness of Breath I was diagnosed with polymyalgia rheumatica in 1997. At the onset I noticed I had shortness of breath upon lifting heavy objects and sweeping floor. It comes and goes and I even have good times when I can walk a tred mill. I have not tested positive for RA but did have lung studies and have been diagnosed with pulmonay fibrosis. I am now experiencing something strange which can't get a satisfactory answer for. At rest I suddenly have a spasm of my diaphragm with causes me to take a sudden rapid deep breath. I have no control over this and it is getting painful. Any ideas of what is happening. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 Joyce, Speaking for myself this is definitely respiratory not a GI symptom. I do have reflux and it's been well controlled now for a couple of years, first on Nexium and now on omeprozole. This is a sharp inspiration of breath that's completely involuntary and takes me by surprise. For me there is no component of it that's GI in nature at all. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Thursday, March 26, 2009 7:27:52 PMSubject: Re: Shortness of Breath ask your doc about the possibility of acid reflux Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 www.transplantfund. org From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Re: Shortness of BreathTo: Breathe-Support@ yahoogroups. comDate: Thursday, March 26, 2009, 6:23 PM Hi, I'm not certain at all why that happens but what you describe has been happening to me since prior to my diagnosis. It's almost like a small involuntary gasp. Is that what you mean? Unfortunately I can't tell you anything about what it is and why it happens. No one has ever been able to tell me. But you're not alone. Maybe someone else will know. Bruce??? Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: vella_vesture <bpello (AT) comcast (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Thursday, March 26, 2009 6:07:01 PMSubject: Shortness of Breath I was diagnosed with polymyalgia rheumatica in 1997. At the onset I noticed I had shortness of breath upon lifting heavy objects and sweeping floor. It comes and goes and I even have good times when I can walk a tred mill. I have not tested positive for RA but did have lung studies and have been diagnosed with pulmonay fibrosis. I am now experiencing something strange which can't get a satisfactory answer for. At rest I suddenly have a spasm of my diaphragm with causes me to take a sudden rapid deep breath. I have no control over this and it is getting painful. Any ideas of what is happening. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 MB... I get that too. To me it's like a hic cup is coming on and then, doesn't. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Shortness of Breath>>> I was diagnosed with polymyalgia rheumatica in 1997. At the onset Inoticed I had shortness of breath upon lifting heavy objects andsweeping floor. It comes and goes and I even have good times when I canwalk a tred mill. I have not tested positive for RA but did have lungstudies and have been diagnosed with pulmonay fibrosis. I am nowexperiencing something strange which can't get a satisfactory answerfor. At rest I suddenly have a spasm of my diaphragm with causes me totake a sudden rapid deep breath. I have no control over this and it isgetting painful. Any ideas of what is happening. Thanks> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 MB, I have the gasping happening while sleeping or just watching TV.. My Dr. said I was probably because we are breathing to shallow. I just hate that. I have had such a horrible cough yesterday and all night last night that I just would do anything for a rest from it. went to the drug store and came home with a bag full of STUFF.. I am hoping for a better night. Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Joyce,Speaking for myself this is definitely respiratory not a GI symptom. I do have reflux and it's been well controlled now for a couple of years, first on Nexium and now on omeprozole.This is a sharp inspiration of breath that's completely involuntary and takes me by surprise. For me there is no component of it that's GI in nature at all. BethModeratorFibrotic NSIP 06/06 Dermatomyositis 11/08From: Joyce T Rosenberg <pinkrockybeach (AT) yahoo (DOT) com>To: Breathe-Support Sent: Thursday, March 26, 2009 7:27:52 PMSubject: Re: Shortness of Breathask your doc about the possibility of acid refluxPink Joyce IPF 3/06  Pennsylvania Donate Life Listed 1/09www.transplantfund. org--- On Thu, 3/26/09, Beth <mbmurtha (AT) yahoo (DOT) com> wrote:From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Re: Shortness of BreathTo: Breathe-Support@ yahoogroups. comDate: Thursday, March 26, 2009, 6:23 PMHi,I'm not certain at all why that happens but what you describe has been happening to me since prior to my diagnosis. It's almost like a small involuntary gasp. Is that what you mean? Unfortunately I can't tell you anything about what it is and why it happens. No one has ever been able to tell me.But you're not alone. Maybe someone else will know. Bruce??? BethModeratorFibrotic NSIP 06/06 Dermatomyositis 11/08From: vella_vesture <bpello (AT) comcast (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Thursday, March 26, 2009 6:07:01 PMSubject: Shortness of BreathI was diagnosed with polymyalgia rheumatica in 1997. At the onset I noticed I had shortness of breath upon lifting heavy objects and sweeping floor. It comes and goes and I even have good times when I can walk a tred mill. I have not tested positive for RA but did have lung studies and have been diagnosed with pulmonay fibrosis. I am now experiencing something strange which can't get a satisfactory answer for. At rest I suddenly have a spasm of my diaphragm with causes me to take a sudden rapid deep breath. I have no control over this and it is getting painful. Any ideas of what is happening. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009  I for you a better night! MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! � Shortness of Breath I was diagnosed with polymyalgia rheumatica in 1997. At the onset I noticed I had shortness of breath upon lifting heavy objects and sweeping floor. It comes and goes and I even have good times when I can walk a tred mill. I have not tested positive for RA but did have lung studies and have been diagnosed with pulmonay fibrosis. I am now experiencing something strange which can't get a satisfactory answer for. At rest I suddenly have a spasm of my diaphragm with causes me to take a sudden rapid deep breath. I have no control over this and it is getting painful. Any ideas of what is happening. Thanks� Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 Actually, the same sudden gasp for breath happens periodically to me. I just assumed it was part of the NSIP. Isn't it? Should I be looking for something else? I am on o2 24/7 at 2l. NSIP 08 Raleigh, NC > > Subject: Re: Shortness of Breath > To: Breathe-Support > Date: Thursday, March 26, 2009, 6:23 PM > Hi, > I'm not certain at all why that happens but what you > describe has been happening to me since prior to my > diagnosis. It's almost like a small involuntary gasp. Is > that what you mean? Unfortunately I can't tell you > anything about what it is and why it happens. No one has > ever been able to tell me. > But you're not alone. Maybe someone else will know. > Bruce??? >  > Beth > Moderator > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > > > ________________________________ > > To: Breathe-Support > Sent: Thursday, March 26, 2009 6:07:01 PM > Subject: Shortness of Breath > > > I was diagnosed with polymyalgia rheumatica in 1997. At the > onset I noticed I had shortness of breath upon lifting heavy > objects and sweeping floor. It comes and goes and I even > have good times when I can walk a tred mill. I have not > tested positive for RA but did have lung studies and have > been diagnosed with pulmonay fibrosis. I am now experiencing > something strange which can't get a satisfactory answer > for. At rest I suddenly have a spasm of my diaphragm with > causes me to take a sudden rapid deep breath. I have no > control over this and it is getting painful. Any ideas of > what is happening. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 I have that breathing thingie like all of a sudden with no warning, I am suddenly taking a very sharp intake of air. I was with Peggy at her house last Sept and I asked her what it was. I have never understood the spasmic intaking of air from my nose and the way through to my diaphram. She told me what it was. I understood her to say that it meant that I needed to get some oxygen into my lungs. Maybe Peggy can further elaborate on this. I do it a lot when I first lay down in the bed to go to sleep. It just shakes me all over. Toodles! Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl> >> > Hi,> > I'm not certain at all why that happens but what you describe has been> happening to me since prior to my diagnosis. It's almost like a small> involuntary gasp. Is that what you mean? Unfortunately I can't tell you> anything about what it is and why it happens. No one has ever been able> to tell me.> > But you're not alone. Maybe someone else will know. Bruce???> >> > Beth> > Moderator> > Fibrotic NSIP 06/06 Dermatomyositis 11/08> >> >> >> >> > ____________ _________ _________ __> > From: vella_vesture bpello@> > To: Breathe-Support@ yahoogroups. com> > Sent: Thursday, March 26, 2009 6:07:01 PM> > Subject: Shortness of Breath> >> >> > I was diagnosed with polymyalgia rheumatica in 1997. At the onset I> noticed I had shortness of breath upon lifting heavy objects and> sweeping floor. It comes and goes and I even have good times when I can> walk a tred mill. I have not tested positive for RA but did have lung> studies and have been diagnosed with pulmonay fibrosis. I am now> experiencing something strange which can't get a satisfactory answer> for. At rest I suddenly have a spasm of my diaphragm with causes me to> take a sudden rapid deep breath. I have no control over this and it is> getting painful. Any ideas of what is happening. Thanks> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 Beth, It's nice to know I'm not the only one this happens to. I have no control of it and no idea when it's going to happen. I've stopped eating alot of crumbly type breads or crackers because it has happened way too many times while eating causing me to suck in crumbs along with the air. And that can be very scary! IPF dx1/06 > > From: Beth > Subject: Re: Shortness of Breath > To: Breathe-Support@ yahoogroups. com > Date: Thursday, March 26, 2009, 6:23 PM > > > Hi, > I'm not certain at all why that happens but what you describe has been happening to me since prior to my diagnosis. It's almost like a small involuntary gasp. Is that what you mean? Unfortunately I can't tell you anything about what it is and why it happens. No one has ever been able to tell me. > But you're not alone. Maybe someone else will know. Bruce??? >  > Beth > Moderator > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > > > ________________________________ > From: vella_vesture > To: Breathe-Support@ yahoogroups. com > Sent: Thursday, March 26, 2009 6:07:01 PM > Subject: Shortness of Breath > > > I was diagnosed with polymyalgia rheumatica in 1997. At the onset I noticed I had shortness of breath upon lifting heavy objects and sweeping floor. It comes and goes and I even have good times when I can walk a tred mill. I have not tested positive for RA but did have lung studies and have been diagnosed with pulmonay fibrosis. I am now experiencing something strange which can't get a satisfactory answer for. At rest I suddenly have a spasm of my diaphragm with causes me to take a sudden rapid deep breath. I have no control over this and it is getting painful. Any ideas of what is happening. Thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 Beth, It's nice to know I'm not the only one this happens to. I have no control of it and no idea when it's going to happen. I've stopped eating alot of crumbly type breads or crackers because it has happened way too many times while eating causing me to suck in crumbs along with the air. And that can be very scary! IPF dx1/06 > > From: Beth > Subject: Re: Shortness of Breath > To: Breathe-Support@ yahoogroups. com > Date: Thursday, March 26, 2009, 6:23 PM > > > Hi, > I'm not certain at all why that happens but what you describe has been happening to me since prior to my diagnosis. It's almost like a small involuntary gasp. Is that what you mean? Unfortunately I can't tell you anything about what it is and why it happens. No one has ever been able to tell me. > But you're not alone. Maybe someone else will know. Bruce??? >  > Beth > Moderator > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > > > ________________________________ > From: vella_vesture > To: Breathe-Support@ yahoogroups. com > Sent: Thursday, March 26, 2009 6:07:01 PM > Subject: Shortness of Breath > > > I was diagnosed with polymyalgia rheumatica in 1997. At the onset I noticed I had shortness of breath upon lifting heavy objects and sweeping floor. It comes and goes and I even have good times when I can walk a tred mill. I have not tested positive for RA but did have lung studies and have been diagnosed with pulmonay fibrosis. I am now experiencing something strange which can't get a satisfactory answer for. At rest I suddenly have a spasm of my diaphragm with causes me to take a sudden rapid deep breath. I have no control over this and it is getting painful. Any ideas of what is happening. Thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 I think we're talking about a number of very similar sounding but slightly different things. The sudden shortness is pretty much common to all of us as lack of oxygen and an extra need. When I first lay down my oxygen also takes a plunge downward and then starts back up. I can be on two liters and 95%, lay down and watch it fall to 86-88%, and then watch it steadily rise 1% at a time until its around 98%. Another situation is where it feels like a spasm or hiccup or another form of sudden gasping when somehow we have an impactful shortage. This can be through eating too much, through positioning and compression, through just a poor breathing habit for an instant, but its here and gone. Still another is when there is a spasm which may be in our esophagus area or elsewhere and explained through many disparate causes. This is more muscular in nature and may be caused by acid or many other things. The esophagus is especially prone because of the number of muscles that make it up. Sometimes these muscular issues are unexplained too. One very common cause of this spasm feeling too, which I overlooked, is a hiatal hernia. Many of us do have hiatal hernias and they will periodically cause spasms. Now, someone mentioned lifting. For me lifting or bending over is a very significant and sudden drop. However, this is explained by understanding that lifting is an anaeroebic and our bodies need to draw on more than the oxygen we're breathing, but the oxygen our muscles would normally supply. They will effect many of us much more significantly. Also, whether we realize it or not, we tend to hold our breath when we lift. Obviously this makes the problem greater. There is one other issue that is more common with asthma sufferers but can impact us at certain times and feel like a spasm and that is when we have some form of obstruction or a movement that suddenly the CO2 we're forcing out gets caught for a moment. Guess this subject is pretty complex but while these various things seem similar when we describe them we may be experiencing them quite differently. > > > > > > Hi, > > > I'm not certain at all why that happens but what you describe has > been > > happening to me since prior to my diagnosis. It's almost like a small > > involuntary gasp. Is that what you mean? Unfortunately I can't tell > you > > anything about what it is and why it happens. No one has ever been > able > > to tell me. > > > But you're not alone. Maybe someone else will know. Bruce??? > > > > > > Beth > > > Moderator > > > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > > > > > > > > > > > > > ____________ _________ _________ __ > > > From: vella_vesture bpello@ > > > To: Breathe-Support@ yahoogroups. com > > > Sent: Thursday, March 26, 2009 6:07:01 PM > > > Subject: Shortness of Breath > > > > > > > > > I was diagnosed with polymyalgia rheumatica in 1997. At the onset I > > noticed I had shortness of breath upon lifting heavy objects and > > sweeping floor. It comes and goes and I even have good times when I > can > > walk a tred mill. I have not tested positive for RA but did have lung > > studies and have been diagnosed with pulmonay fibrosis. I am now > > experiencing something strange which can't get a satisfactory answer > > for. At rest I suddenly have a spasm of my diaphragm with causes me to > > take a sudden rapid deep breath. I have no control over this and it is > > getting painful. Any ideas of what is happening. Thanks > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 Just jumping in. . . this only happens to me at night when I am just falling asleep or just waking up. It is never painful , just surprises me. It is a deep intake of air and totally involuntary. I have always thought it must be beacuse I was breathing too shallow and my body needed a very deep breath. Have never asked the doctor just assumed it was part of PF. R. (53) Sarcoid/PF 3/2006 Carlsbad, California Subject: Re: Re: Shortness of BreathTo: Breathe-Support Date: Thursday, March 26, 2009, 4:05 PM Bruce, Speaking for myself it doesn't come from up high but deeper. Vella described it as a spasm of the diaphragm which is what it kind of feels like. On the other hand a hiccup is also a diaphragmatic spasm and this isn't a hiccup. It's a sharp intake of breath like a small gasp, totally involuntary and always takes me by surprise. Vella describes hers as painful, mine is not. It's merely annoying and somewhat embarrassing when it happens, say in line at the grocery store. It doesn't happen to me often, maybe 3 or 4 times a week. When I mention it to a doctor they invariably get a puzzled look on their faces and kind of shrug. I've given up trying to figure it out. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Bruce Moreland <brucemoreland@ gmail.com>To: Breathe-Support@ yahoogroups. comSent: Thursday, March 26, 2009 6:45:47 PMSubject: Re: Shortness of Breath MB/VellaDo you feel like these are in your airways or deeper in your diaphragm?>> Hi,> I'm not certain at all why that happens but what you describe has beenhappening to me since prior to my diagnosis. It's almost like a smallinvoluntary gasp. Is that what you mean? Unfortunately I can't tell youanything about what it is and why it happens. No one has ever been ableto tell me.> But you're not alone. Maybe someone else will know. Bruce???>> Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08>>>>> ____________ _________ _________ __> To: Breathe-Support@ yahoogroups. com> Sent: Thursday, March 26, 2009 6:07:01 PM> Subject: Shortness of Breath>>> I was diagnosed with polymyalgia rheumatica in 1997. At the onset Inoticed I had shortness of breath upon lifting heavy objects andsweeping floor. It comes and goes and I even have good times when I canwalk a tred mill. I have not tested positive for RA but did have lungstudies and have been diagnosed with pulmonay fibrosis. I am nowexperiencing something strange which can't get a satisfactory answerfor. At rest I suddenly have a spasm of my diaphragm with causes me totake a sudden rapid deep breath. I have no control over this and it isgetting painful. Any ideas of what is happening. Thanks> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 Isn't it funny how a question from one person can bring something up that we hadn't ever talked about before? When it happens to me it's at totally random moments, not predictable at all. I remember once sitting in a movie theatre with my sister...the whole theatre quiet, everyone watching...and Beth gasps for no apparent reason....around 30 people turned and looked at me like I was nuts. Sigh...oh well this disease doesn't allow for alot of dignity does it? Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Thursday, March 26, 2009 11:26:16 PMSubject: Re: Shortness of Breath Beth, It's nice to know I'm not the only one this happens to. I have no control of it and no idea when it's going to happen. I've stopped eating alot of crumbly type breads or crackers because it has happened way too many times while eating causing me to suck in crumbs along with the air. And that can be very scary! IPF dx1/06> > From: Beth <mbmurtha (AT) yahoo (DOT) com>> Subject: Re: Shortness of Breath> To: Breathe-Support@ yahoogroups. com> Date: Thursday, March 26, 2009, 6:23 PM> > > Hi,> I'm not certain at all why that happens but what you describe has been happening to me since prior to my diagnosis. It's almost like a small involuntary gasp. Is that what you mean? Unfortunately I can't tell you anything about what it is and why it happens. No one has ever been able to tell me. > But you're not alone. Maybe someone else will know. Bruce???> > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08> > > > > ____________ _________ _________ __> From: vella_vesture <bpello (AT) comcast (DOT) net>> To: Breathe-Support@ yahoogroups. com> Sent: Thursday, March 26, 2009 6:07:01 PM> Subject: Shortness of Breath> > > I was diagnosed with polymyalgia rheumatica in 1997. At the onset I noticed I had shortness of breath upon lifting heavy objects and sweeping floor. It comes and goes and I even have good times when I can walk a tred mill. I have not tested positive for RA but did have lung studies and have been diagnosed with pulmonay fibrosis. I am now experiencing something strange which can't get a satisfactory answer for. At rest I suddenly have a spasm of my diaphragm with causes me to take a sudden rapid deep breath. I have no control over this and it is getting painful. Any ideas of what is happening. Thanks> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 thanks for responding, it was just a suiggestion Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 www.transplantfund.org--- Subject: Re: Shortness of BreathTo: Breathe-Support Date: Thursday, March 26, 2009, 7:39 PM Joyce, Speaking for myself this is definitely respiratory not a GI symptom. I do have reflux and it's been well controlled now for a couple of years, first on Nexium and now on omeprozole. This is a sharp inspiration of breath that's completely involuntary and takes me by surprise. For me there is no component of it that's GI in nature at all. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Joyce T Rosenberg <pinkrockybeach@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Thursday, March 26, 2009 7:27:52 PMSubject: Re: Shortness of Breath ask your doc about the possibility of acid reflux Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 www.transplantfund. org From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Re: Shortness of BreathTo: Breathe-Support@ yahoogroups. comDate: Thursday, March 26, 2009, 6:23 PM Hi, I'm not certain at all why that happens but what you describe has been happening to me since prior to my diagnosis. It's almost like a small involuntary gasp. Is that what you mean? Unfortunately I can't tell you anything about what it is and why it happens. No one has ever been able to tell me. But you're not alone. Maybe someone else will know. Bruce??? Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: vella_vesture <bpello (AT) comcast (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Thursday, March 26, 2009 6:07:01 PMSubject: Shortness of Breath I was diagnosed with polymyalgia rheumatica in 1997. At the onset I noticed I had shortness of breath upon lifting heavy objects and sweeping floor. It comes and goes and I even have good times when I can walk a tred mill. I have not tested positive for RA but did have lung studies and have been diagnosed with pulmonay fibrosis. I am now experiencing something strange which can't get a satisfactory answer for. At rest I suddenly have a spasm of my diaphragm with causes me to take a sudden rapid deep breath. I have no control over this and it is getting painful. Any ideas of what is happening. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 Joyce, Thanks! If I sounded sharp it was unintentional. I'm sorry if I hurt your feelings...wouldn't do that on purpose for anything in the world. And as we've discussed there may be a couple of different things going on with a similar symptom and you are correct it's always good to explore all the possibilities, including reflux with our doctors. Hugs, Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Friday, March 27, 2009 8:08:23 AMSubject: Re: Shortness of Breath thanks for responding, it was just a suiggestion Pink Joyce IPF 3/06 Pennsylvania Donate Life Listed 1/09 www.transplantfund. org From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Re: Shortness of BreathTo: Breathe-Support@ yahoogroups. comDate: Thursday, March 26, 2009, 6:23 PM Hi, I'm not certain at all why that happens but what you describe has been happening to me since prior to my diagnosis. It's almost like a small involuntary gasp. Is that what you mean? Unfortunately I can't tell you anything about what it is and why it happens. No one has ever been able to tell me. But you're not alone. Maybe someone else will know. Bruce??? Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: vella_vesture <bpello (AT) comcast (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Thursday, March 26, 2009 6:07:01 PMSubject: Shortness of Breath I was diagnosed with polymyalgia rheumatica in 1997. At the onset I noticed I had shortness of breath upon lifting heavy objects and sweeping floor. It comes and goes and I even have good times when I can walk a tred mill. I have not tested positive for RA but did have lung studies and have been diagnosed with pulmonay fibrosis. I am now experiencing something strange which can't get a satisfactory answer for. At rest I suddenly have a spasm of my diaphragm with causes me to take a sudden rapid deep breath. I have no control over this and it is getting painful. Any ideas of what is happening. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 Thanks for all the replies. This is something that happens when I am sitting or lying and not very active. I think I can chalk this up to pulmonary fibrosis. I have had a complete cardiac workup and everything " LOOKS GREAT FOR A 77 YEAR OLD " One doctor referred it to " make up breath " . I will be constantly checking with you for info on my pulmonary fibrosis. Glad I found you. Quote Link to comment Share on other sites More sharing options...
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