Re: Barb Ky>Peggy

March 22, 2009

I LOVE you Princess Hee Hee!

GIO> > > Hi.ï¿½ My name is Barb and I was diagnosed about three years ago with > IPF.ï¿½ Then several months later I got diagnosed with Adult Pulmonary > Langerhan's Cell Histiocytosis.ï¿½ So, what do I have?ï¿½ I don't have > a clue, but whatever it is it is killing me.ï¿½ I am on four liters of > oxygen 24/7.ï¿½ I have developed heart problems and am on prednisone > daily.ï¿½ I have difficulty walking a few feet without running out of > breath.ï¿½ I just spent two months in three different hospitals and > three weeks in a nursing home.ï¿½ I will be returning to the nursing > home this coming Tuesday, because my 49 year old sister who works > third shift found out it is hard to take care of someone in my > shape,ï¿½ May God Bless her, at least she gave it a try.ï¿½ After one > week, she is exhausted.ï¿½> ï¿½> I have read your posts and can relate to the post that talked about > pain.ï¿½ Yes, I know what they are talking about.ï¿½ï¿½ It is pain, > but not pain.ï¿½ï¿½ It is very scary trying to catch your breath and > can't and it kinda hurts.ï¿½ Anyway, it is a daily thing for me to > feel this kind of pain.ï¿½ï¿½ï¿½> ï¿½> I am gaining a lot of water weight and wondering if anyone else is > blowing up like a balloon.ï¿½ Also, I have aï¿½ lot of swelling of the > feet and legs.ï¿½ï¿½ My diabetes is out of control.ï¿½ I am up to > three shots a day.ï¿½ Anybody else feel like their life has spun out > of control?> ï¿½> I joined this group to offer support to other sufferer's of this lung > disease and I also joined it to get much needed support.ï¿½ I feel > like my life is at the end and it is frightening.> ï¿½> May God Bless You All,> ï¿½> Barb> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> 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ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> Hi. My name is Barb and I am a 51 year old female who lives in > southern Kentucky.ï¿½ I was a member two years ago.ï¿½ï¿½ Now, I am > back.ï¿½ï¿½ I have had two diagnoses one is IPF and the other is Adult > Pulmonary Langerhan's Cell Histiocytosis.ï¿½ Which one do I have?ï¿½ I > don't have a clue.ï¿½ All I know is it is pretty apparent I am > dying.ï¿½ Dummy me, quit smoking New Year's Eve of this year and about > two weeks ago I smoked two cigarettes and had a big set back and am > still trying to recover.ï¿½ I would give anything had I quit smoking > when I was first diagnosed.ï¿½> ï¿½> I am on four liters of oxygen, prednisone, warfarin, heart medication > and so much more.ï¿½ Yep, now my lungs are affecting my heart.ï¿½ï¿½ I > can't walk but a few feet and I am totally out of breath.ï¿½ I just > spent two months in the hospital, originally admitted for my > breathing or lack of, congestive heart failure, then I somehow > managed to cough so much that I tore open the vessels in my lower > stomach and almost died of internal bleed.ï¿½ I had to have several > pints of blood and plasma.ï¿½ At least that is what they tell me.ï¿½ > When the dr.'s found the bleed, they put me on diladah (not sure of > the spelling, but it is a strong pain killer given to me in my > IV).ï¿½ï¿½ï¿½ï¿½So, most of what I know about the bleed is > hearsay.ï¿½ï¿½ After being in three different hospitals (transferred > from one to the other), I spent twenty days in the nursing home doing > rehabilitation, because my legs became so weak from lying on my back > that I had to get the strength back in them so I could walk.ï¿½ Now, I > am living with my 49 year old sister who works third shift and who > has decided after aï¿½ week with me being here, that I am just to much > to care for, so I am being readmitted to the nursing home this coming > Tuesday.ï¿½ There I will be until I die.> ï¿½> I read your posts and can relate to the pain thing.ï¿½ï¿½ That is all > I know to call it is pain.ï¿½ It is pain , but it isn't pain.ï¿½ It is > kinda smothering with the sense of pressure on my chest.> ï¿½> I am having tremendous difficulty with water weight.ï¿½ Is anyone else > blowing up like a balloon?ï¿½ Also, I am having memory problems.ï¿½ I > can't even remember what my screen name was when I was in this group > last.ï¿½ Anyone else having memory problems?ï¿½> ï¿½> I joined this group to get encouragement to go on, I also want to > provide encouragement to others.ï¿½ So, please feel free to ask me > questions or offer me advice.> ï¿½> May God Bless You All,> ï¿½> Barb> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> ï¿½> 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Re: Barb Ky>Peggy

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