Joe vs Neuropathy , Neuropathy is winning :(

[Guest guest]

Well , Joe has been done with chemo for going on 8weeks monday and his

Neuropathy is getting worse!

Called the oncologist and they had upped his Neurontin from 100mg x1 a day , to

100mg x3 a day. Still NO relief.

Well called them again , they upped the dosage to 200mg x3 a day

And they are recommending him to a neurologist ( which he is balking at going )

His neuropathy is in his hands/feet/ankles/ and he gets this electric shooting

vibes from top of neck down his whole body (like getting zapped ) several times

a day

All of this is making him GGGG RRRR UUU MMM PPP YYY !!!!

Dani is doing fairly well , except she is upset , one of her bestest chums has a

birthday party tomorrow night , she KIND OF wanted to go , but daddy said NO not

until check up

(she only kind of wanted to go , because she is self conscious about the scars

on her head)

Gosh when will this all be over???????????????????

sorry for venting

Deb

33yrold husband Joe, was diagnosed with CC in Sept,

resection on Sept 27th 2004

found mets to the abdominal wall lining 3 lymph nodes involved

open wound from infection until Jan 2005

Ileostomy reversal Dec 7th 2004

Chemo regiment begun Jan 2005

5fu/levorican/Oxaplatin/ Avastin added Feb 14 2005 (Happy Valentines

Calcium Magnesium added for the Tingles Feb 28 2005

Ct Scan done March 23rd 2005 , 16 millimeter cyst like object on liver found

April 1 2005 PET scan done awaiting results

April 11 PET SCAN SHOWS

NED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

May 9 Plateletts are low 75,000

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