ZENA Re: Women and PF

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I have times when I beat myself up trying to work out what I've done to cause this, looking for something or someone to blame. But other times (like right now) when I know that it's not worth expending the energy on worrying about it. I have it, even if it's something that could have been prevented then it was something that I wasn't aware of.

I've been dealing with my ever increasing conditions for 15 years now, and I will still get told things that I never knew, like for instance as I'm on imuran I shouldn't be dealing with the dog food But I get told like I already know.

Love Ze xx>> No, No, No ...... you said nothing to prompt that that reaction from me. Let's just say I read between lines that are not even there. LOL> > Ze ... I was diagnosed with PH before the PF and pulmo docs have assured me they are not related --- totally separate diseases. The PH, they stopped just short of saying it was due to my taking of Phen-Fen (I took it all of 3 months) I've told this story before ... after being told I had a heart murmur after never having one prior even after a heart attack (from which I flat-lined) a full 10 years prior to taking Phen-Fen. Since I could find no rhyme of reason for contacting PF, I waz grasping at straws wondering if maybe the battle of the bulge (in my case) could be the culprit also. Just shooting in the dark. LOL> > I should just let it ride I think ....... things are going along pretty good although I am looking forward to my appt with pulmo doc on the 13th. so see what the numbers possibly say. I have increased my oxygen on my own and feel that maybe the numbers may not be so good ... I pray I am wrong, however. I feel pretty good most days in spite of things.> > Thanks so much for your sweet reply. I love ya for your concern, but all is GOOD!!!> > ~ Donna ~> Yesterday I dared to struggle .....> Today I dare to win!!!> > ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ * ~ *> > Hi Donna,> > > > I hope nothing in my reply implied that you'd stepped on anyones toes,> > it certainly wasn't meant to.> > > > I don't think weight has a huge amount to do with PH. Mine's because I> > have PF. The scar tissue causes both the aveoli and the blood vessals> > to stiffen up and the PH is the heart is working harder trying to pump> > the blood through the stiffness. Your arterial blood pressure (the one> > they take with a cuff on your arm) has nothing to do with, and will not> > give any indication of, PH.> > > > I think pred tends to be a default med. I'm on it because of an auto> > immune disease. It's was discovered that it kept the pf at bay by> > accident really. And I started on the pred when I was naive of both my> > condition and steroids. As far as I was concerned the steroid took away> > the horrible symptoms that I had been suffering with and that was good> > enough for me.> > > > Keep posting Donna, we will learn as much from you as you will from us> > > > Love Ze xx>