Guest guest Posted March 12, 2009 Report Share Posted March 12, 2009 Kathleen, I have not had an opportunity yet to welcome you to the board. So...welcome. I'm glad you're here. In answer to the question you asked, this board is for all of that, the fear and the joy, the pain and death and the fun and laughter. It's all part of the human condition and we share all of it. I am so sorry for all the loss you've had in your family. This disease makes me so damn angry sometimes I can't see straight. I understand your feelings and encourage you to share them. Sometimes there are misunderstandings on this board, once again we're all human. The trick is to forgive and move on. We always say here that we're sorry you had reason to look for a group like this but we're glad you found us. Welcome aboard! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Thursday, March 12, 2009 8:19:40 AMSubject: Re: Hi all - welcome Ray and other news When I saw your results my heart felt for you.. Sometimes I just don't know to respond so I evade it. Do we talk about our fear of pain or Death on this forum, or do we just give encouragement with love and humor? About the fun, I feel you can never have too much. From: <lbsmith789@sbcgloba l.net>Subject: Hi all - welcome Ray and other newsTo: Breathe-Support@ yahoogroups. comDate: Tuesday, March 10, 2009, 10:02 PM Welcome to the Air family Ray. We aren't all about doom and gloom here because obviously some of us need to discuss our derrieres and what position we were in to check our expiration stamps. I personally prefer bending over, crooking my head backwards and just looking up. Nah, just teasing. I haven't been able to do that for simply years! Seriously, welcome to our world. Sorry you had to be here but this is a good place to be amongst your peers. No foolin. Did I mention I'm in Texas and we have a tendency to tell tall tales out here? OH! The Rattlesnake Roundup is in Sweetwater this weekend if anybody is interested.. Bruce? Wally? No? Oh well.Good news today. Saw pulmo guy and he had nothin but love for the way my chest x-ray looked. The PFT's were good and my lungs sounded clear and I made it thru the winter without a flareup. So yeah!!! I told him the rheumatologist has decided I have RA, Sjogren's,lupus or mixed connective. Definitely something of the connective tissue nature. He is treating me with Plaquenil and I do feel better. We're just going with that as long as it works. I don't care what disease he wants to call it. And Doc was pleased so we're all good out here in West Texas tonight. Except for the rattlesnake thing. S, Lubbock, TXNSIP w/PF 12/2006 et al Quote Link to comment Share on other sites More sharing options...
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