Guest guest Posted May 3, 2009 Report Share Posted May 3, 2009 Hi my name is realy Winifred Hampton, and every one calls me . My email is pgales@... I join the group April 13, 2009. I am very proud of my family I am very sorry that no one remember my story. I don't have a very long one I was diagnosis with Scleroderma and Raynaud's in 97. Did not know what it was until it can to me that I had seen a movie about it. Then I know my life was over. In 2000 I had to stop working , be put n oxygen 2liters and need a heart and lung transplant. Went to rehab for a month and as we would say but God!!! I did not need the oxygen any more and they was not talking about a transplant. I was getting around much better. Back in 2005 I had to be put back on oxygen was diagnosis with PH, PF, Fibromyalgia, and Gerd. Now here it is 2009 and my doctor is talking about a lung transplant again. I have to gave them an answer weather are not I want to go through with it. When I was talking to the doctor, the only question that came to my mind was about the life time 3 to 5 years. And I got so afriad and sad every time I try to read the booklet that they gave me to look over I get so sad and upset all I do is cry. It is not that I don't believe in God yes I do with all my heart I have faith in him. Because it is by Him that I have made it this far. So this is how I found this site and 2nd wind site. I had needed to talk to people who had and is going through the samething. To see if there where people who live longer then that and I thank God that there is. Quote Link to comment Share on other sites More sharing options...
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