Introduction and Open Biopsy

[Guest guest]

Hi ,

My name is and I live in Anthem, Arizona. I had a Vats Biopsy May 2, 2008, a year ago. I, like you, wanted to know everything about my IPF problem and how to live with it. I was not afraid of the surgery as I have had varies surgeries during my life and have always recovered extremely well everytime. My Vats Biopsy was done in Phoenix and again I came through the surgery with flying colors and actually felt so good that I told my wife and Doctor that I would consider doing it every 6 months--LOL. I could breathe better after the Biopsy and my exercise routine had improved dramatically, I almost felt like they cured me!! I only posted my success story one other time and feel very reluctant to offer my experience as a possible result of a Biopsy. It seems that what you are experiencing post/biopsy is better than normal so I am happy for you.

The only information that I got from the Biopsy was the confirmation of the IPF diagnosis that I was given in May 2007, but it did open up some doors for me as far as getting into different drug study programs and how far advanced the disease is.

I am currently in a drug study (Bosentan), my Pulmonologist got me into the study about 1 month after my Biopsy and the study is full at this time. I do know that there is a new study that will be starting involving a drug that & has developed, I can't remember the name of it, but your Pulmonologist should be able to get you into the program if you fit the criteria. If he isn't aware of the new study, I can get you the Phone # of the clinic administering the program. Good luck

G. UIP/IPF 5/07 AZ.