Re: Setback

[Guest guest]

In frequent-dose-chelation kyrrefoerli wrote:

Things are not (no longer) moving in the right direction.

---------I'm sorry to hear this Kyrre. I understand how frustrating it is to

have setbacks. Have had plenty myself, and it sucks.--------Jackie

During the last few weeks I have gone from feeling relatively ok

----------Has anything else changed during this time? Were you feeling better

and maybe over-did-it? Had you gotten sick, and maybe took antibiotics? I got

much worse after a couple rounds of Levaquin a year and a half ago. And I have

gotten worse from over-doing-it, hard on the adrenals and the physical exercise

mobilizes more mercury.--------Jackie

(able to work about 60%, and have even had some energy left for my

familiy)

to feeling like I did prior to and during amalgam removal, which

means tired, fatigued, twitches are back (bigtime), loss of muscle

power/stamina,

burning/aching muscles, visionary disturbances, shaky (like I'm

loosing motoric precision; this I can't remember having had earlier),

and just feeling crappy.

My arms and legs feel heavy.

----------This is a variety of symptoms, and some of it sounds adrenal and

maybe thyroid to me, and some of it sounds like redistribution possibly too. I

remember when I tried a FIR sauna (didn't know any better back then) a few years

ago, it must have caused redistribution, because my arms felt like lead weights

afterwards, and I didn't feel good. I also get the burning/aching muscles, when

I have over-done-it, and have probably caused redistribution.---------Jackie

What seems to have started this turn for the worse was a round of 25

mg DMSA / 3 mg ALA every 3 hours (left me feeling worse)

------------I know it sounds like such a tiny dose, but I truly believe that

ALA is a very powerful chelator. I tried 6mg last fall, and I only took about 5

doses and quit, because it just knocked me out. And this was after 2 years of

chelating! So possibly some of us just have huge body stores that we must work

on for a long time before tolerating ALA?

My other thought, which I believe is a factor in my case, is other metals. I

have arsenic too, and the DMSA I had been using doesn't chelate it, so when I

tried ALA for the first time, it grabbed onto that for the first time, and threw

me for a loop. So I am now chelating with DMPS, which chelates arsenic also, to

hopefully lower my body burden of arsenic, before I try ALA again.------Jackie

followed by a couple of

rounds of 33 mg DMSA every 4 hours. Just before the last round off 33

mg DMSA I felt 'ok' again, but after that round I was back in the

ditch.

During the two DMSA only rounds there was worsening, and it took a

few days off round to get back to 'normal' after the first one. I

thought maybe

there has been a shift and that I need to take DMSA every 3 hours. So

I have reduced the dose to 12.5 mg and taken it every 3 hours for two

rounds (3 days on, 4 days off),

but I'm still just getting worse. I haven't really felt very

different on or off rounds the last two rounds.

Is this setback due to redistribution from dosing with too long

intervals, or could it be something else ?

----------If this was the first time you tried ALA, then that's what I would

suspect. If you had done fine with DMSA up to that point, then to me, it points

to the ALA. It may just take some time for things to settle down. And people

do report going through some rough patches, and you can't always figure out why

exactly.----Jackie

Take a break from chelating maybe, to see if things stabilize (which

isn't exactly what I want...) ?

-----------There is nothing wrong with taking a little longer break. I think

most of us end up doing it for one reason or another. And maybe your body is

getting low on minerals or something, and taking a break might help you build

those back up. I would try upping your antioxidants, especially C and E, and

review your supplements, and make sure you're getting enough things like zinc

and mag. I know and others have commented that their needs have changed

with time, so maybe that is part of your problem?---------Jackie

Has someone else had this experience ? If so, what did you do to get

better (and for how long) ?

-------------I have had many setbacks, caused by a variety of things, and many

of them were very hard on my adrenals. I started out with no adrenal support,

and I do believe that chelation is hard on the adrenals, besides other stresses,

so getting adrenal support has helped alot. Also finding out and addressing my

other hormones has helped too, like progesterone.---------Jackie

I have started a new search for someone who can help me with possible

adrenal/thyroid issues, but this is not easy (either).

----------I understand this frustration, I couldn't find a local doctor

either, and I finally went to see . It was so refreshing to talk to

someone that understood everything. She's the one that tested my hormones and

found out I was severely deficient in progresterone and low in others too.

You can get testing done without a doctor. You can test your adrenals and

other hormones with a saliva test from places like ZRT labs. And there are

things that are OTC you can take, if you can't get a doctor to prescribe

HC.--------Jackie

Frustrating business this. I have been chelating for 11 months now,

and I have had some improvement during this period, until now that

is.

I have read the 'muddle along' posts, but I'm finding it hard to do

nothing when a 'down' lasts this long. Also of course afraid I'm

going to get worse.

----------I know this is frustrating, but they do call the first year a

" rollercoaster ride " . And Andy has said that you can go through a long stall

period of no improvement or possibly getting worse, before you start improving

again. He says this is the natural progression of mercury detox, and you just

have to keep chelating right through it. He says to study the graph on page 52

of AI, so you understand this.

I know this is frustrating, but chelation is not an easy road for most of us.

We all have our ups and downs. And believe me, I have had mine! And the

process of chelation is hard on the body, so that's why we encourage people to

go slow. And if you have been chelating for 11 months with no

adrenal/thyroid/hormone support, then this has probably taken its toll, and you

do probably really need to address those issues as soon as possible. I know

when I first started taking Isocort for adrenal support, it made a big

difference.---------Jackie

- Kyrre