Guest guest Posted May 10, 2009 Report Share Posted May 10, 2009 -- Re: new> > > > > Welcome to the group. My IPF was first picked up on a CT Scan. The> pulmonologist ordered a high resolution CT Scan at that point and confirmed> that's what it was and said I didn't need an open lung biopsy. I'm alone> and couldn't really afford going to a teaching hospital, especially one that> the insurance company says is "out of network". My doc, though, sent the> results to the U. of Penn Lung Center in Philadelphia, who confirmed the> diagnosis from the high rez CT Scan and said the open lung biopsy wasn't> necessary, and arrangements have been made for me to go there for> consultations. I had to quit work and I live alone, so if there were any> procedures, it would be tough to drive the two hours back and forth. The> docs I spoke with all seemed to think the open lung biopsy would do more> harm than good with me. But every case is different. Listen to your> pulmonologists and if you have questions, by all means get a second opinion.> I did that, and my second opinion doc is MUCH more informed and aggressive> than the first one was. Good luck!> > Bill IPF 10/08> Slatington, PA> > > > Recession-proof vacation ideas. Find free things to do in the U.S.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2009 Report Share Posted May 10, 2009 -- Re: new> > > > > Welcome to the group. My IPF was first picked up on a CT Scan. The> pulmonologist ordered a high resolution CT Scan at that point and confirmed> that's what it was and said I didn't need an open lung biopsy. I'm alone> and couldn't really afford going to a teaching hospital, especially one that> the insurance company says is "out of network". My doc, though, sent the> results to the U. of Penn Lung Center in Philadelphia, who confirmed the> diagnosis from the high rez CT Scan and said the open lung biopsy wasn't> necessary, and arrangements have been made for me to go there for> consultations. I had to quit work and I live alone, so if there were any> procedures, it would be tough to drive the two hours back and forth. The> docs I spoke with all seemed to think the open lung biopsy would do more> harm than good with me. But every case is different. Listen to your> pulmonologists and if you have questions, by all means get a second opinion.> I did that, and my second opinion doc is MUCH more informed and aggressive> than the first one was. Good luck!> > Bill IPF 10/08> Slatington, PA> > > > Recession-proof vacation ideas. Find free things to do in the U.S.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2009 Report Share Posted May 10, 2009 -- Re: new> > > > > Welcome to the group. My IPF was first picked up on a CT Scan. The> pulmonologist ordered a high resolution CT Scan at that point and confirmed> that's what it was and said I didn't need an open lung biopsy. I'm alone> and couldn't really afford going to a teaching hospital, especially one that> the insurance company says is "out of network". My doc, though, sent the> results to the U. of Penn Lung Center in Philadelphia, who confirmed the> diagnosis from the high rez CT Scan and said the open lung biopsy wasn't> necessary, and arrangements have been made for me to go there for> consultations. I had to quit work and I live alone, so if there were any> procedures, it would be tough to drive the two hours back and forth. The> docs I spoke with all seemed to think the open lung biopsy would do more> harm than good with me. But every case is different. Listen to your> pulmonologists and if you have questions, by all means get a second opinion.> I did that, and my second opinion doc is MUCH more informed and aggressive> than the first one was. Good luck!> > Bill IPF 10/08> Slatington, PA> > > > Recession-proof vacation ideas. Find free things to do in the U.S.> Quote Link to comment Share on other sites More sharing options...
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