Guest guest Posted April 17, 2009 Report Share Posted April 17, 2009 Hi Stephani, I am in the same place you are although I've had open biopsy. I also live in Utah. St. , to be exact. I've had 3 pulmonologists and the only thing they ever offer is the comparison of scan and pft in comparison to the last. Tells me NOTHING! PFT looks about the same as a year ago. No change in scan. Even so, I am SOB much of the time and this past week is the first time I actually thought I could use O2. I called his office yesterday for advice. Since a huge exposure to my trigger, mold, I have been on 40mg of pred a day with very little results. Also on Advair inhaler (high dose) and Qvar. Using Albuterol which doesn't help much and eating cough drops like candy. To get to the point, I left a message and asked his nurse to "run it by him" as they said, and call me with advice. Never heard from them. There are only two in this practice. So, it would be off to Salt Lake (300 miles) or Vegas (120 miles) if I want to get demanding. Too darn weak and tired to get demanding. Also, if anyone has advice as to someone to see in the Huntington Beach CA area I'd be interested. Near Long Beach Memorial. I have family there and they would be most helpful in getting around. I am about ready to confront them with the squeaky wheel routine. Possibly I will squeak a bit louder today and get some results. ann, Interstitial Pneumonitis 1997, Hypersensitivity Pneumonitis 2004 (biopsy) Quote Link to comment Share on other sites More sharing options...
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