Re: Low WBC & Prayer request & no smooth sailing

[Guest guest]

Sher is right having a transplant does not guarantee smooth sailing but IPF can

cause really rough sailing. In 1959 I survived 9 days of high seas on the

Atlantic including 3 days of storm on a Navy transport (which took 11 days

instead of 9 it was supposed to take) returning from having lived in Germany for

a year. I guess that trip prepared me for rough sailing in the future.

Thank you Margaret and Joyce for your replies and prayers. Hope you all are

feeling better now that Spring is just around the corner.

Love and Aloha,

Judy (Ohio) IPF 11/06 TX 8/07

> >

> > Hello All & especially those who have had transplants already. Has

> > anyone else ever had their WBC drop really low? My blood tests at my

> > transplant follow up at Indianapolis today showed that my WBC has

> > dropped down to 0.6. They called me right after we got home to let

> > me know they had finally gotten the results (apparently it was

> > tested several times as it was so low) & told me to hold off taking

> > any CellCept right now. They had lowered me from 1000 mg twice a day

> > to 500 mg twice a day because it was 1.6 on Jan. 22, but on Feb. 3rd it

was 2.6, then on the 10th it was down to 2.2. I was shocked to hear it now is

0.6, but I woke up with a cold on Sun. morning, and had not had a common cold in

years. Of course I used to take lots of Vit C, but can no longer do that. Now I

am just using Benadryl for relief.

> >

> > When they get my CMV test results this week if it is still negative

> > they are also going to take me off of Valycte again. Meanwhile I am

> > going to have to stay home a lot and rest a lot to get better before

> > Easter Sun. when I am booked to go visit my family in HI. (Also,

> > they are going to be doing blood tests repeatedly the next few weeks.)

> > My 70th birthday is April 17th and plan to celebrate it there. Then

> > of my family of 6 there, 5 of them have birthdays between May 5 and

> > June 2. I'd like to change my return flight to stay until at least

> > June 6th instead of coming home the later part of April with Jeff.

> >

> > I have been going to the YMCA to do my water physical therapy

> > exercises the last 3 weeks plus went this Mon. & it has helped my

> > strength. I had planned to go tomorrow, but believe I will wait

> > until Fri. and see if I can go again then. The exercises have helped

> > my strength, and today I was able to walk through the huge Methodist

> > hospital without using my cane or my walker.

> >

> > I pray that all of you who want a transplant are successful and

> > stress how important exercising is for all of you. Also, I will

> > appreciate your prayers for my health.

> >

> > Love and Aloha,

> > Judy (OH) IPF 11/06 TX 8/07

> >

>