Re: Re: IPF and treatment Margaret McConnell

[Guest guest]

Pravin

glad to hear pulmonary rehab is going well for you

continue going as often as possible

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09

www.transplantfund.org---

Subject: Re: IPF and treatment Margaret McConnellTo: Breathe-Support Date: Saturday, March 14, 2009, 3:39 PM

Hi Margaret:Just wanted to know how you are keeping.I have completed my 8 week pulmonary rehab program at the local hospital and decided to continue with the drop in program 3 days a week. I have started walking the dog, driving, exercising, going grocery shopping and helping my wife with Dish washing I fill the dishwasher and empty it once the dishes are done. Keeps me in the good book with my lovely wife. Since the program I am noticing I am not as tired as before. I am breathing a little easier with the techniques they taught at the program even though my lungs are as crappy as before. My last respirator visit she said that I was stable and had not deteriorated since Nov 2008. I am hoping to keeping the disease at bay by doing all I can to delay and defer its advancement.Please let me know how you are handling your daily struggles.RegardsPravin> >> > Hi I have just joined. I have IPF and am on 2 litres oxygen 24/7. I > have been turned down for transplant due to heart and kidney issues.> > I am 62 years old. I am searching for survival and have talked to a > homeopathic doctor who has put me on Serrapeptase enzyme and other> > natural medications since the last 4 weeks. I want to know from you

> folks if anyone has tried anything like this. Please help> >> > I was dx in 2007 with IPF and I have not heard of this,I am not sure > about natural medicationI' m also on oxygen 2 liters at night and during > day when needed.Please let Me know how Your doing.If I can help in any > way let Me know.>

[Guest guest]

Hi Pravin, my name is Sharon and I have asthma and ph. I only take meds for asthma and treadmill and bike at home because we have no insurance. This board is great and they give alot of info to each other. What type of techniques did they show you? Bruce turned me on to the pflex and has really helped alot. Is there anything you could add?Are they techniques deep breathing or different? thanks for any input Sharonp asthma ph2008 Hi Bruce!

From: pbhatt1 (AT) rogers (DOT) com <pbhatt1 (AT) rogers (DOT) com>Subject: Re: IPF and treatment Margaret McConnellTo: Breathe-Support@ yahoogroups. comDate: Saturday, March 14, 2009, 3:39 PM

Hi Margaret:Just wanted to know how you are keeping.I have completed my 8 week pulmonary rehab program at the local hospital and decided to continue with the drop in program 3 days a week. I have started walking the dog, driving, exercising, going grocery shopping and helping my wife with Dish washing I fill the dishwasher and empty it once the dishes are done. Keeps me in the good book with my lovely wife. Since the program I am noticing I am not as tired as before. I am breathing a little easier with the techniques they taught at the program even though my lungs are as crappy as before. My last respirator visit she said that I was stable and had not deteriorated since Nov 2008. I am hoping to keeping the disease at bay by doing all I can to delay and defer its advancement.Please let me know how you are handling your daily struggles.RegardsPravin> >> > Hi I have just joined. I have IPF and am on 2 litres oxygen 24/7. I > have been turned down for transplant due to heart and kidney

issues.> > I am 62 years old. I am searching for survival and have talked to a > homeopathic doctor who has put me on Serrapeptase enzyme and other> > natural medications since the last 4 weeks. I want to know from you > folks if anyone has tried anything like this. Please help> >> > I was dx in 2007 with IPF and I have not heard of this,I am not sure > about natural medicationI' m also on oxygen 2 liters at night and during > day when needed.Please let Me know how Your doing.If I can help in any > way let Me know.>