Re: IPF and treatment Sharon Prendergast

[Guest guest]

> > >

> > > Hi I have just joined. I have IPF and am on 2 litres oxygen 24/7. I

> > have been turned down for transplant due to heart and kidney issues.

> > > I am 62 years old. I am searching for survival and have talked to a

> > homeopathic doctor who has put me on Serrapeptase enzyme and other

> > > natural medications since the last 4 weeks. I want to know from you

> > folks if anyone has tried anything like this. Please help

> > >

> >

> > I was dx in 2007 with IPF and I have not heard of this,I am not sure

> > about natural medicationI' m also on oxygen 2 liters at night and during

> > day when needed.Please let Me know how Your doing.If I can help in any

> > way let Me know.

> >

>

[Guest guest]

Hi Sharon: Sorry I screwed up on the previous message and hit enter before I

posted anything.

Sorry to hear about your disease. I have had IPF dx since 2003 and was being

monitored by Toronto Transplant Team since 2005 and was being considered for a

transplant My lung capacity is now 34% and I have to use Oxygen 24/7. I was

re-evaluated in Dec 2008 and the doctors have decided that due to kidney and

heart issues I will die on the table hence the transplant is not going to

happen. I went through a major life crises in Jan 2009 since I found out about

the decision. However since I have tremendous faith in God and I have a very

supportive wife, and a twelve year old Pomeranion Dog who all want me to live

for as long and as best as I can I decided to join the Rehab Program.I had my

struggles at first but soon realized that all the folks in the program had

similar issues and were all struggling with their abilities. The Presenters of

the program tailored each individuals exercise and swimming and equipment use

based on their level of strength.The main points were as follows.

Pace yourself. Keep stretching your time on the equipment as you get better at

it. Also walk a little further in the next session.We live in a very cold

climate so we were shown how to cover our nose and mouth with a scarf or muffler

so the cold air does not trigger the coughing. This I was very skeptical about

but once I got a hang of the technique it really helped. They also taught to

breathe deeply and what they called Pursed Lip breathing. This technique

involves breathing in through your nose and out through your mouth until you get

over your anxiety attack and your breathing gets under control.

This technique helped me a lot since I used to get in long coughing

spells and I used to get out of breath and I used to panic which used to make

the situation even worse. They also taught us to avoid the triggers of the

disease and to recognize the limitations and taught us to slow down and take

deep breaths as you enter your trigger.

Like showering with extremely hot water. Making your bed in the morning. Putting

your clothes on. Vacuuming and other household chores. The one thing they

stressed was one needs to stay active and exercise as well oiled muscles need

less oxygen to move then muscles that are not being used regularly. I also have

started doing yoga every morning. I do not do anything fancy. I deep breathe in

and out through the lungs for about 3 to 5 minutes. When you start this is the

most difficult but as you keep doing it and extending your time it becomes

easier. The next breathing exercise is to inhale though your nose and exhale

through your mouth. As you exhale you have to pull your stomach in. So as you

exhale you are forcing the air through your mouth to be pumped out by

contraction of your abdomen.

This over time I have started doing for about 15 to 20 minutes. This exercise

stretches your diaphram and the lung capacity and helps you to breathe

easier.The third exercise is to breathe through your each nose trill. The way

this exercise works is you breathe in from your left nose trill and then cover

it up with your thumb and breathe out through your right nose trill. Then

breathe in through your right nose trill and cover it up with your third and

fourth finger and breathe out through your left nose trill. Again you start

slowly and gradually increase your time. I do these techniques every day by

watching a DVD by an Indian Yoga teacher known as Baba Ramdev that you can

purchase on their website. The bottom line is you need to want to do this if you

are going to be successful. I know this is a lot of information but it has taken

me over three months and a will to live that makes it possible. Please do not

hesitate to ask if you need any clarification. Also do you have family support

and what part of the country are you from.

Good luck with your journey

Pravin

> > >

> > > Hi I have just joined. I have IPF and am on 2 litres oxygen 24/7. I

> > have been turned down for transplant due to heart and kidney issues.

> > > I am 62 years old. I am searching for survival and have talked to a

> > homeopathic doctor who has put me on Serrapeptase enzyme and other

> > > natural medications since the last 4 weeks. I want to know from you

> > folks if anyone has tried anything like this. Please help

> > >

> >

> > I was dx in 2007 with IPF and I have not heard of this,I am not sure

> > about natural medicationI' m also on oxygen 2 liters at night and during

> > day when needed.Please let Me know how Your doing.If I can help in any

> > way let Me know.

> >

>