Guest guest Posted August 9, 2005 Report Share Posted August 9, 2005 I'm so frustrated and tired. We had a meeting with the hospice people at the hospital last Friday and they said how they will do anything you ask--I said I was worried about helping my Mom with personal stuff like bathroom stuff and they said they would help with everything. Now my Mom comes home on Saturday and was in horrible pain--the stupid morphine pump wasn't working. It took forever to get a nurse to come back to the house. My Mom seems to be declining fast since she's been home--they say there's no need to force food or water and she doesn't need the i.v. for fluids in her final stage--this is so depressing and I just feel there should be some help for her--I don't want to give up! The nurses now say they are going to train us on giving her suppositories and everything else--I thought they were going to be doing this? I feel like my head is going to explode--I just can't do this stuff alone. Am I misinformed about what a hospice really does? I keep getting told different things and I don't know what to do. My Mom can hardly get out of the bed and I can't carry her to the bathroom- -everything is so goofy right now and I wish I had help. Just needed to vent and any suggestions would be so helpful to me. Take care. Diane Quote Link to comment Share on other sites More sharing options...
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