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Re: transtracheal oxygen

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Hi Sue,

I've only known one person who used the TTO. That was Lentz who was a member here. She passed away last year but had the trans tracheal insertion done I think about a year before she died.

My memory is that her results were somewhat mixed. I know she had some ongoing problems with infection and ended up having to continue to use nasal oxygen and/or a mask in addition to the TTO. If you go back to the archives and search the term Trans Tracheal you will find her posts on the subject.

It does sound like a great option especially for those on higher liter flow. I do wish we had more members who've had some experience with this. Perhaps there's someone that I've forgotten who will pop up with more information.

By the way, who do you see at Duke?

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Thursday, May 14, 2009 10:06:22 AMSubject: transtracheal oxygen

Hi air friends, My local respiratory therapist mentioned to me transtracheal oxygen (TTO). A catherter would be inserted into the trachea and oxygen would be delivered directly into the lungs. This eliminates the nasal cannula and all the stuff that goes along with it. I am on a high liter flow and they say it benefits those type of oxygen users. I asked my doc at Duke and he said he would find out more about it. The ILD coordinator said it was used quite frequently in Denver. The cons are you have to do a little maintenace on the tracheal catheter (clean it--but you also have to clean the CPAP machines). If for some reason it comes out or becomes clogged, you can go back to the nasal cannula as a back up.Does anyone on the list use it or have experience with it? Thanks.Sue D63/fibrotic NSIP 9/07, VA

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Sue

From all the reading and talking I've done about it, there seems to be

widely diverse views in the medical community regarding it. In some

areas, it's just not something considered, while in other areas its

somewhat common as an alternative. I asked doctors here and it was

summarily dismissed, which I found somewhat disturbing. On the other

hand, Hopkins seems to feel it merits wider use.

http://www.hopkinsbayview.org/_delete/healthydirections/healthconditions\

/respir/tto.html

The detractors say its nothing but an appearance thing for those who

don't want to be seen wearing a cannula. The supporters say its

definitely a more efficient way of delivering oxygen. Now, some in

between think its appropriate when problems exist with cannula delivery.

For instance, a patient with difficulty getting a good flow through

their nasal passages, then you just bypass the problem.

To me it just makes sense that its more efficient. It also introduces

factors though such as infection. I'm doing ok today with cannulas so

would be quite reluctant, but, if that changed, then I would definitely

want to talk to doctors experienced with it.

Here is a link to the manufacturer's site. http://tto2.com/

>

> Hi Sue,

> I've only known one person who used the TTO. That was Lentz who

was a member here. She passed away last year but had the trans tracheal

insertion done I think about a year before she died.

> My memory is that her results were somewhat mixed. I know she had some

ongoing problems with infection and ended up having to continue to use

nasal oxygen and/or a mask in addition to the TTO. If you go back to the

archives and search the term Trans Tracheal you will find her posts on

the subject.

> It does sound like a great option especially for those on higher liter

flow. I do wish we had more members who've had some experience with

this. Perhaps there's someone that I've forgotten who will pop up with

more information.

>

> By the way, who do you see at Duke?

>

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

>

>

>

>

> ________________________________

> From: suedassel sdassel@...

> To: Breathe-Support

> Sent: Thursday, May 14, 2009 10:06:22 AM

> Subject: transtracheal oxygen

>

>

>

>

>

> Hi air friends,

> My local respiratory therapist mentioned to me transtracheal oxygen

(TTO). A catherter would be inserted into the trachea and oxygen would

be delivered directly into the lungs. This eliminates the nasal cannula

and all the stuff that goes along with it. I am on a high liter flow and

they say it benefits those type of oxygen users. I asked my doc at Duke

and he said he would find out more about it. The ILD coordinator said it

was used quite frequently in Denver. The cons are you have to do a

little maintenace on the tracheal catheter (clean it--but you also have

to clean the CPAP machines). If for some reason it comes out or becomes

clogged, you can go back to the nasal cannula as a back up.

> Does anyone on the list use it or have experience with it? Thanks.

> Sue D

> 63/fibrotic NSIP 9/07, VA

>

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