Re: Amy's pulse up; watery eyes/Jody

November 14, 2002

Hi, Jody,

Tapazole is 5 mg. twice a day, and has been that way for some time now. Last

labs reported her best numbers yet. Levoxyl is 0.05 mg once a day. No

changes in either one in about three months now.

You know, her endo never recommended a baseline ophthalmologist exam,

although she'd just had a regular eye exam right before all this started.

Two visits ago I pressed him for more information, since he'd adjusted her

meds and started the Levoxyl over the phone previously. He kept backing out

of the room and basically insulted my husband and me by saying that " the

internet really isn't a good place for information " . I was so fried. I'd

never told him we use a support group but he apparently figured out we'd been

doing our homework and didn't want to converse with us too much. I felt he

was irritated that we're trying to learn more about our daughter's condition

and disease, although in every other visit he's been stellar in his approach.

I finally decided he might have been having a bad day when he didn't want to

discuss much with us. End of rambling here. :-)

I stopped vitamin C today and will watch for any changes. I hate to drag her

into the office for blood work if I can help her with lowering or cutting out

the vitamin C. sent some excellent information on C.

Amy's Pam

In a message dated 11/14/2002 12:00:36 PM Central Standard Time,

luckystrike928@... writes:

> Hi Amy's Pam,

>

> Glad to see you back! I am sure PamL will be chiming in here as she was

> the first person to make a connection between hyper symptoms and vitamin C!

> I don't feel the hyper from it, but I believe that is because I am post

> RAI and it doesn't affect in the same ways it does those of you who are

> keeping your thyroids. Reducing vitamin C intake to keep ones own thyroid

> would be so worth it!

>

> What dose of tapazole is Amy on now? Are you making sure they do small

> reductions when it is time to reduce...is she still on hormone replacement

> also? As for her eyes, if the vitamin c moved her more hyper or she is

> moving hyper, that could cause her eyes to flare a bit. Has Amy gotten a

> baseline exam from an ophthalmologist who is skilled in our eye disease for

> future use, should it be needed?

>

> Jody

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