Guest guest Posted April 6, 2009 Report Share Posted April 6, 2009 , The test you're talking about is called 24 hour oximetry (at least that's what it's called in the US). It obviously gives a much broader and more complete picture of someone's oxygen situation than getting a reading while sitting in the doctors office, or a 6 minute walk. It's a very practical test, in my case the test was set up in my home by my oxygen supplier. The set up was brought to my home. A small clip was attached to my ear. It transmitted my O2 sats to the base wirelessly. As long as I stayed within 100 yards of the base it picked up my sats and my heart rate. The base recorded the information. At the end of the 24 hours they picked it up, sent the data and the report to my doctor. This was all done back in 2006 shortly after I was diagnosed. My O2 usage was adjusted slightly upwards during activity after that. I mean think of it this way...if you want to tell a somewhat complex story would you tell it with a single photograph, or a 3 minute video on YouTube or a full length motion picture? The more information we have and our doctors have, the better our treatment can be. And since for many of us oxygen is pretty much our only treatment isn't it important that we get it as soon as we need it? I know that we tend to go on oxygen earlier here in the US (maybe Canada too?) than folks in other places. As difficult as it can be to adjust to using oxygen, for me it would be more difficult to be without it. Knowing how easily my sats drop I would literally do nothing but sit and move very slowly around my house. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Monday, April 6, 2009 9:04:04 PMSubject: Re: Sunday afternoon rant 2 For goodness SAKE Doctors where's the point in putting off O2 delivery when a patient is BORDERLINE.. . what's it going to DO that's so terrible that they have to maintain such CAUTION to WAIT until the blinkin' test shows DEFINITELY NEEDS O2......I mean CRIKEY is it POISON ... will it bring on the Downfall of the Nation..... What the Blinkin HECK would it matter if the patient got it on the UP side of Down rather than the Down side of UP! It's THAT Silly!!!!!!! !!!!!!!!! !!!!!!!! By the way I remember our HRh Queen Huggy Joyce got he O2 prescriberd after a sinilar debacle... she got to wear some device that actually measure & Recordedf her O2 Sats all day & night while going about her daily life. That test showed a VERY different story than her current 6 MWT did! She was put on O2 immediately! Does anyone know what this device is & how widespread is it's practical use????? GIO >> Thanks for the responses, Bruce, Beth, Jane, Sher and Joyce. I do appreciate the feedback. I usually am very positive, and focus on the good rather than the bad. It keeps me a fairly happy person. I am beginning to think that in spite of what BOTH pulmodudes say, I do need oxygen. They both say that I'm "borderline" . I'm tired of avoiding doing things I want to do because my heart goes to racing, and my throat goes dry, and I feel like I just have to sit down NOW.> > Living in the mountains, the walk back up my driveway is exactly that - UP. I guess I'll need to put a paper and pencil in my pocket and the oxymeter on a cord around my neck, and just start keeping records. > > Again, thanks!> B> Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.