Hi Everyone

[Guest guest]

! This is exciting news! You must be so proud! Congratulations

to your son. :-)

Take care,

> Hi everyone. I have some exciting news. Well, it was exciting for

> me. =-) My 8 year old tested into the gifted class for next year. I

> almost fell over when his 3rd grade teacher told me on the last day

> of school. I just thought I'd share my bit of good news.

>

> ~

[Guest guest]

-, A couple of years ago I woke up and could not lift up out of

bed due to my right shoulder. I had the most horrible pain in my

shoulder blade. It remained this way for 2 months. My husband would

massage it, which helped keep me off of pain killers. I had flexeril

at the time and took them occassionaly but they dont seem to help me

much. This was the worst flare I have had.

-- In @y..., Sweet Katlin wrote:

>

> Hi everyone. I just wanted to see how everyone's day went. My day

went ok. Although I had a bad headache all day and of all day's for

the kids to be wild. =-) Well, tomorrow they start back to school and

all on the home front should be quiet during the day. All except for

the 3 cats running around wrestling each other. I sense that Dusty

(the only female) doesn't enjoy playing too much with Shash & Titus.

She has a tude. .....anyway, I had a question for those of you who

could answer this question....well, lately my right shoulder has been

killing me. It is the same shoulder which was the inital trauma to my

body that started the fibro. I was wondering if anyone else

experianced something simular when a flare was coming on. I am unsure

if it is a flare or if it was from lifting some boxes, but I lift my

neice who is heavier than anyone of those boxes. So I don't know why

the pain has been getting worse and didn't know if anyone would shed

alittle light for me. I refuse to take the muscle relaxer that the

dr. rx'd for me during the day because it knocks me out. I only take

it when I am on the verge of pain levels over 10...this is at about a

8.5. Anyway, just a question I wanted to throw out there. Oh, my

parents call the other day to let me know that the family dog of 16

years or 112 human years is gone.

> =-( Poor puppy...But she was bad. I felt bad for her. Anyways, I'm

off to bed. Take care and everyone have a good rest!

> Huggz~

>

> P.S. Welcome to all of you new members!

>

>

>

> ---------------------------------

>

[Guest guest]

-, A couple of years ago I woke up and could not lift up out of

bed due to my right shoulder. I had the most horrible pain in my

shoulder blade. It remained this way for 2 months. My husband would

massage it, which helped keep me off of pain killers. I had flexeril

at the time and took them occassionaly but they dont seem to help me

much. This was the worst flare I have had.

-- In @y..., Sweet Katlin wrote:

>

> Hi everyone. I just wanted to see how everyone's day went. My day

went ok. Although I had a bad headache all day and of all day's for

the kids to be wild. =-) Well, tomorrow they start back to school and

all on the home front should be quiet during the day. All except for

the 3 cats running around wrestling each other. I sense that Dusty

(the only female) doesn't enjoy playing too much with Shash & Titus.

She has a tude. .....anyway, I had a question for those of you who

could answer this question....well, lately my right shoulder has been

killing me. It is the same shoulder which was the inital trauma to my

body that started the fibro. I was wondering if anyone else

experianced something simular when a flare was coming on. I am unsure

if it is a flare or if it was from lifting some boxes, but I lift my

neice who is heavier than anyone of those boxes. So I don't know why

the pain has been getting worse and didn't know if anyone would shed

alittle light for me. I refuse to take the muscle relaxer that the

dr. rx'd for me during the day because it knocks me out. I only take

it when I am on the verge of pain levels over 10...this is at about a

8.5. Anyway, just a question I wanted to throw out there. Oh, my

parents call the other day to let me know that the family dog of 16

years or 112 human years is gone.

> =-( Poor puppy...But she was bad. I felt bad for her. Anyways, I'm

off to bed. Take care and everyone have a good rest!

> Huggz~

>

> P.S. Welcome to all of you new members!

>

>

>

> ---------------------------------

>

[Guest guest]

~

My should is hurting all the time. I told my husband that I thought about

calling the doctor and see if he can do something for it. The last time I had

this pain was when I first hurt it. Which was 2000. I received a shot of

something, but I don't remember. I'm sure I could find out because my sister

works in medical records at the hospital. I'm very frustrated with it. I haven't

lifted anything over 10 lbs. and going back to the restrictions I had after the

injury. We'll see how it goes. Thanks for the reply. I'm heading to bed. I just

got the kids tucked in and now it's time for me to be tucked in. =-))

Take care everyone and have a good weekend!

Huggz~

~

---------------------------------

[Guest guest]

In a message dated 11/20/2002 5:57:35 AM Central Standard Time,

tammyfischer2001@... writes:

> Vondie, you can still check in to Make A Wish. Just because you weren't

> ready at the time, doesn't mean you no longer qualify. The public system is

> really funny about them missing alot of school, but to bad, they have to

> deal with it. My daughter is in 3rd grade and they get rewarded every

> Friday if they didn't miss during the week, and Brittany misses at least

> one day every other week, and this makes her feel un worthy when she's in

> the library, while her class is having a party, makes me feel like crap,

> and it just makes me want her to stay home every Friday, so she doesn't

> have to sit alone.You would think they would cut her some slack...now if

> that was their child....

> Tammy

>

THAT IS CRAP TAMMY!!! You need to take to the CF foundation and see if there

is anything they can do for you. Because that is not fair at all! I would

threaten a law suit to the school system!! Your child has a disability and

she shouldn't be punished for that!! Deb A

[Guest guest]

In a message dated 11/20/2002 5:57:35 AM Central Standard Time,

tammyfischer2001@... writes:

> Vondie, you can still check in to Make A Wish. Just because you weren't

> ready at the time, doesn't mean you no longer qualify. The public system is

> really funny about them missing alot of school, but to bad, they have to

> deal with it. My daughter is in 3rd grade and they get rewarded every

> Friday if they didn't miss during the week, and Brittany misses at least

> one day every other week, and this makes her feel un worthy when she's in

> the library, while her class is having a party, makes me feel like crap,

> and it just makes me want her to stay home every Friday, so she doesn't

> have to sit alone.You would think they would cut her some slack...now if

> that was their child....

> Tammy

>

THAT IS CRAP TAMMY!!! You need to take to the CF foundation and see if there

is anything they can do for you. Because that is not fair at all! I would

threaten a law suit to the school system!! Your child has a disability and

she shouldn't be punished for that!! Deb A

[Guest guest]

In a message dated 11/20/2002 5:57:35 AM Central Standard Time,

tammyfischer2001@... writes:

> Vondie, you can still check in to Make A Wish. Just because you weren't

> ready at the time, doesn't mean you no longer qualify. The public system is

> really funny about them missing alot of school, but to bad, they have to

> deal with it. My daughter is in 3rd grade and they get rewarded every

> Friday if they didn't miss during the week, and Brittany misses at least

> one day every other week, and this makes her feel un worthy when she's in

> the library, while her class is having a party, makes me feel like crap,

> and it just makes me want her to stay home every Friday, so she doesn't

> have to sit alone.You would think they would cut her some slack...now if

> that was their child....

> Tammy

>

THAT IS CRAP TAMMY!!! You need to take to the CF foundation and see if there

is anything they can do for you. Because that is not fair at all! I would

threaten a law suit to the school system!! Your child has a disability and

she shouldn't be punished for that!! Deb A

[Guest guest]

You can also talk to someone at the clinic, see if they can make a call to the

school.

Josh gets what they call jumbo's, extra portions at lunch at no extra charge.

All it took was a call from the nutritionist to the school and it was taken care

of. He was never given any hassle or made to feel embarrassed about it. I was

given a letter from the clinic in case they gave him a hard time but i've never

had to use it.

Re: hi everyone

In a message dated 11/20/2002 5:57:35 AM Central Standard Time,

tammyfischer2001@... writes:

> Vondie, you can still check in to Make A Wish. Just because you weren't

> ready at the time, doesn't mean you no longer qualify. The public system is

> really funny about them missing alot of school, but to bad, they have to

> deal with it. My daughter is in 3rd grade and they get rewarded every

> Friday if they didn't miss during the week, and Brittany misses at least

> one day every other week, and this makes her feel un worthy when she's in

> the library, while her class is having a party, makes me feel like crap,

> and it just makes me want her to stay home every Friday, so she doesn't

> have to sit alone.You would think they would cut her some slack...now if

> that was their child....

> Tammy

>

THAT IS CRAP TAMMY!!! You need to take to the CF foundation and see if there

is anything they can do for you. Because that is not fair at all! I would

threaten a law suit to the school system!! Your child has a disability and

she shouldn't be punished for that!! Deb A

[Guest guest]

You can also talk to someone at the clinic, see if they can make a call to the

school.

Josh gets what they call jumbo's, extra portions at lunch at no extra charge.

All it took was a call from the nutritionist to the school and it was taken care

of. He was never given any hassle or made to feel embarrassed about it. I was

given a letter from the clinic in case they gave him a hard time but i've never

had to use it.

Re: hi everyone

In a message dated 11/20/2002 5:57:35 AM Central Standard Time,

tammyfischer2001@... writes:

> Vondie, you can still check in to Make A Wish. Just because you weren't

> ready at the time, doesn't mean you no longer qualify. The public system is

> really funny about them missing alot of school, but to bad, they have to

> deal with it. My daughter is in 3rd grade and they get rewarded every

> Friday if they didn't miss during the week, and Brittany misses at least

> one day every other week, and this makes her feel un worthy when she's in

> the library, while her class is having a party, makes me feel like crap,

> and it just makes me want her to stay home every Friday, so she doesn't

> have to sit alone.You would think they would cut her some slack...now if

> that was their child....

> Tammy

>

THAT IS CRAP TAMMY!!! You need to take to the CF foundation and see if there

is anything they can do for you. Because that is not fair at all! I would

threaten a law suit to the school system!! Your child has a disability and

she shouldn't be punished for that!! Deb A

[Guest guest]

You can also talk to someone at the clinic, see if they can make a call to the

school.

Josh gets what they call jumbo's, extra portions at lunch at no extra charge.

All it took was a call from the nutritionist to the school and it was taken care

of. He was never given any hassle or made to feel embarrassed about it. I was

given a letter from the clinic in case they gave him a hard time but i've never

had to use it.

Re: hi everyone

In a message dated 11/20/2002 5:57:35 AM Central Standard Time,

tammyfischer2001@... writes:

> Vondie, you can still check in to Make A Wish. Just because you weren't

> ready at the time, doesn't mean you no longer qualify. The public system is

> really funny about them missing alot of school, but to bad, they have to

> deal with it. My daughter is in 3rd grade and they get rewarded every

> Friday if they didn't miss during the week, and Brittany misses at least

> one day every other week, and this makes her feel un worthy when she's in

> the library, while her class is having a party, makes me feel like crap,

> and it just makes me want her to stay home every Friday, so she doesn't

> have to sit alone.You would think they would cut her some slack...now if

> that was their child....

> Tammy

>

THAT IS CRAP TAMMY!!! You need to take to the CF foundation and see if there

is anything they can do for you. Because that is not fair at all! I would

threaten a law suit to the school system!! Your child has a disability and

she shouldn't be punished for that!! Deb A

[Guest guest]

Vondie:

We got that same letter a couple times. It was a school district

policy to send a form letter whenever a child missed 9 days within a

grading period.

But both times, someone from my son's schools (once in grade school

the other in high school) called to tell me to expect the letter in

the mail but just disregard it because they knew why he'd been absent.

I remember laughing and saying, " Then why send the letter? Save a

stamp and paper! " But I was told it's school policy; they had to send

the letter.

If you know your child is going to be out at least a week or more due

to illness, then inquire about home tutor. I think this is something

every public school is legally required to do. They have to send a

licensed teacher to your home (or hospital) so many hours a week to

tutor so the student doesn't fall behind.

Kim

Mom to (23 with asthma and cf) and (20 asthma no cf)

Schools. We are having fun with ours. (public) I got a note today,

saying has missed 9 days and we need to fix the situation. Grrr.

Lets see, a week out with mono, a broken toe. I wonder why he missed

9 days. I guess public schools are ok, but every once in awhile I

want to strangle someone. I guess we will see what happens. You

would think that the principal would know better than to get me going.

She was the one refereeing(sp?) the old bat of a teacher & me last

time. It wasn't really pretty. I was nice, but got my point across.

And that incident didn't even have to do with cf.

Well, I guess that is enough griping for now.

Vondie

[Guest guest]

Vondie:

We got that same letter a couple times. It was a school district

policy to send a form letter whenever a child missed 9 days within a

grading period.

But both times, someone from my son's schools (once in grade school

the other in high school) called to tell me to expect the letter in

the mail but just disregard it because they knew why he'd been absent.

I remember laughing and saying, " Then why send the letter? Save a

stamp and paper! " But I was told it's school policy; they had to send

the letter.

If you know your child is going to be out at least a week or more due

to illness, then inquire about home tutor. I think this is something

every public school is legally required to do. They have to send a

licensed teacher to your home (or hospital) so many hours a week to

tutor so the student doesn't fall behind.

Kim

Mom to (23 with asthma and cf) and (20 asthma no cf)

Schools. We are having fun with ours. (public) I got a note today,

saying has missed 9 days and we need to fix the situation. Grrr.

Lets see, a week out with mono, a broken toe. I wonder why he missed

9 days. I guess public schools are ok, but every once in awhile I

want to strangle someone. I guess we will see what happens. You

would think that the principal would know better than to get me going.

She was the one refereeing(sp?) the old bat of a teacher & me last

time. It wasn't really pretty. I was nice, but got my point across.

And that incident didn't even have to do with cf.

Well, I guess that is enough griping for now.

Vondie

[Guest guest]

Vondie:

We got that same letter a couple times. It was a school district

policy to send a form letter whenever a child missed 9 days within a

grading period.

But both times, someone from my son's schools (once in grade school

the other in high school) called to tell me to expect the letter in

the mail but just disregard it because they knew why he'd been absent.

I remember laughing and saying, " Then why send the letter? Save a

stamp and paper! " But I was told it's school policy; they had to send

the letter.

If you know your child is going to be out at least a week or more due

to illness, then inquire about home tutor. I think this is something

every public school is legally required to do. They have to send a

licensed teacher to your home (or hospital) so many hours a week to

tutor so the student doesn't fall behind.

Kim

Mom to (23 with asthma and cf) and (20 asthma no cf)

Schools. We are having fun with ours. (public) I got a note today,

saying has missed 9 days and we need to fix the situation. Grrr.

Lets see, a week out with mono, a broken toe. I wonder why he missed

9 days. I guess public schools are ok, but every once in awhile I

want to strangle someone. I guess we will see what happens. You

would think that the principal would know better than to get me going.

She was the one refereeing(sp?) the old bat of a teacher & me last

time. It wasn't really pretty. I was nice, but got my point across.

And that incident didn't even have to do with cf.

Well, I guess that is enough griping for now.

Vondie

[Guest guest]

In a message dated 11/20/2002 9:51:26 AM Central Standard Time,

tammyfischer2001@... writes:

> Tammy

>

Make threats that is what makes them listen a little bit better. Tell them

you will contact your local CF foundation and that they are discriminating

against your child's illness. If that don't work tell them you will write to

you local news paper about it. That will work they hate it when things get in

the press. Deb A

[Guest guest]

In a message dated 11/20/2002 9:51:26 AM Central Standard Time,

tammyfischer2001@... writes:

> Tammy

>

Make threats that is what makes them listen a little bit better. Tell them

you will contact your local CF foundation and that they are discriminating

against your child's illness. If that don't work tell them you will write to

you local news paper about it. That will work they hate it when things get in

the press. Deb A

[Guest guest]

In a message dated 11/20/2002 9:51:26 AM Central Standard Time,

tammyfischer2001@... writes:

> Tammy

>

Make threats that is what makes them listen a little bit better. Tell them

you will contact your local CF foundation and that they are discriminating

against your child's illness. If that don't work tell them you will write to

you local news paper about it. That will work they hate it when things get in

the press. Deb A

[Guest guest]

I cannot remember wich group . said i needed to go to the er . i am trying to

wate it out i only have two weeks until i go have my csf flow study done and

see my neurosurgon . i know i have been having alot of problems with low

preshure and stuff so they say it feel like it is more something differnt like

the

chiari acting up with high preshure mixed with something differnt that i

cannot pinpoint wich causes my head to feel really weird so strainge that igt

causes me to feel out right weird like i could either pass out or faint . it

cuase

extreem tingles all over my head and fuzzies and feels like what i call a

scking sensation and i feel extremly nausiated when i first wake up in the

morning . and throught the day expecially if i dont take in enough caffien

then

i take to much in i get hight preshure wich tells me that actually my head

my have a csf fluid blockage again . wich could mean another brain surgery .

then if i have to have my shunt removed then what my ptc wich was never

controled before without a shunt will be raging help anyone what if he says no

shunt then i back with high preshures and high preshures . and high preshure

problems i dont wont that.. that scares me.. i guess one step at a time .lol .

i

see everyones eleses problems and i am so saddend at some of the dr responses

to people these days my dr is good right now he is just out of town he has

been a good dr just slow at doing things but over all he is a really good dr he

thinks things out and does things the right way the first time and becuase of

that i have not had to have as many surgerys as everyone else has had to have

but of course my body did not take to the first two tries to the lp shunt

like most peoples system does .. lol my preshures were way to high and i was

like

Beth M but my body is much happy at 3 and 5 yes 30 and 50 and really i

cannot tell i am having low preshures i am nauseated upon waking and that is it

nothing like the low preshure headache the neuro caused that one time he

acidently cause when he hit a blood vessel in my back and i was on diamox ..

and

i was extermely alergic to that med that is actualy what caused that incedent

... and i will never forget that... but all in all i am pleased with how every

thing is going in my life and i would do it again .. God bless everyone .And

hang in their and never forget that god is with you all and watching over

your lives and with you all at all times . remember i am alwayse praying for

you all i may not know how to offer my support sometimes or know what to say

cause i am still going through some kind of something and i am not sure what

God Bless and remember we will all Get their Gods Speeds .

Misty M From Malvern ,Arkansas

[Guest guest]

I cannot remember wich group . said i needed to go to the er . i am trying to

wate it out i only have two weeks until i go have my csf flow study done and

see my neurosurgon . i know i have been having alot of problems with low

preshure and stuff so they say it feel like it is more something differnt like

the

chiari acting up with high preshure mixed with something differnt that i

cannot pinpoint wich causes my head to feel really weird so strainge that igt

causes me to feel out right weird like i could either pass out or faint . it

cuase

extreem tingles all over my head and fuzzies and feels like what i call a

scking sensation and i feel extremly nausiated when i first wake up in the

morning . and throught the day expecially if i dont take in enough caffien

then

i take to much in i get hight preshure wich tells me that actually my head

my have a csf fluid blockage again . wich could mean another brain surgery .

then if i have to have my shunt removed then what my ptc wich was never

controled before without a shunt will be raging help anyone what if he says no

shunt then i back with high preshures and high preshures . and high preshure

problems i dont wont that.. that scares me.. i guess one step at a time .lol .

i

see everyones eleses problems and i am so saddend at some of the dr responses

to people these days my dr is good right now he is just out of town he has

been a good dr just slow at doing things but over all he is a really good dr he

thinks things out and does things the right way the first time and becuase of

that i have not had to have as many surgerys as everyone else has had to have

but of course my body did not take to the first two tries to the lp shunt

like most peoples system does .. lol my preshures were way to high and i was

like

Beth M but my body is much happy at 3 and 5 yes 30 and 50 and really i

cannot tell i am having low preshures i am nauseated upon waking and that is it

nothing like the low preshure headache the neuro caused that one time he

acidently cause when he hit a blood vessel in my back and i was on diamox ..

and

i was extermely alergic to that med that is actualy what caused that incedent

... and i will never forget that... but all in all i am pleased with how every

thing is going in my life and i would do it again .. God bless everyone .And

hang in their and never forget that god is with you all and watching over

your lives and with you all at all times . remember i am alwayse praying for

you all i may not know how to offer my support sometimes or know what to say

cause i am still going through some kind of something and i am not sure what

God Bless and remember we will all Get their Gods Speeds .

Misty M From Malvern ,Arkansas

[Guest guest]

I cannot remember wich group . said i needed to go to the er . i am trying to

wate it out i only have two weeks until i go have my csf flow study done and

see my neurosurgon . i know i have been having alot of problems with low

preshure and stuff so they say it feel like it is more something differnt like

the

chiari acting up with high preshure mixed with something differnt that i

cannot pinpoint wich causes my head to feel really weird so strainge that igt

causes me to feel out right weird like i could either pass out or faint . it

cuase

extreem tingles all over my head and fuzzies and feels like what i call a

scking sensation and i feel extremly nausiated when i first wake up in the

morning . and throught the day expecially if i dont take in enough caffien

then

i take to much in i get hight preshure wich tells me that actually my head

my have a csf fluid blockage again . wich could mean another brain surgery .

then if i have to have my shunt removed then what my ptc wich was never

controled before without a shunt will be raging help anyone what if he says no

shunt then i back with high preshures and high preshures . and high preshure

problems i dont wont that.. that scares me.. i guess one step at a time .lol .

i

see everyones eleses problems and i am so saddend at some of the dr responses

to people these days my dr is good right now he is just out of town he has

been a good dr just slow at doing things but over all he is a really good dr he

thinks things out and does things the right way the first time and becuase of

that i have not had to have as many surgerys as everyone else has had to have

but of course my body did not take to the first two tries to the lp shunt

like most peoples system does .. lol my preshures were way to high and i was

like

Beth M but my body is much happy at 3 and 5 yes 30 and 50 and really i

cannot tell i am having low preshures i am nauseated upon waking and that is it

nothing like the low preshure headache the neuro caused that one time he

acidently cause when he hit a blood vessel in my back and i was on diamox ..

and

i was extermely alergic to that med that is actualy what caused that incedent

... and i will never forget that... but all in all i am pleased with how every

thing is going in my life and i would do it again .. God bless everyone .And

hang in their and never forget that god is with you all and watching over

your lives and with you all at all times . remember i am alwayse praying for

you all i may not know how to offer my support sometimes or know what to say

cause i am still going through some kind of something and i am not sure what

God Bless and remember we will all Get their Gods Speeds .

Misty M From Malvern ,Arkansas

[Guest guest]

WELCOME BACK KIMI

[Guest guest]

WELCOME BACK KIMI

[Guest guest]

C.

Hi everyone

Hi everyone I went out yesterday and bought me a brand new car it is hyundai accent and the color is red it's a two door i didn't get the power windows or locks cause on my other car i had that and it was starting to not to work but I do love this car and it rides really nice I will have to take a pic of it and send it to the group. I hope all is well with everyone and everyone is in my thoughts and prayers.

"The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/lupies

[Guest guest]

C.

Hi everyone

Hi everyone I went out yesterday and bought me a brand new car it is hyundai accent and the color is red it's a two door i didn't get the power windows or locks cause on my other car i had that and it was starting to not to work but I do love this car and it rides really nice I will have to take a pic of it and send it to the group. I hope all is well with everyone and everyone is in my thoughts and prayers.

"The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/lupies

[Guest guest]

C.

Hi everyone

Hi everyone I went out yesterday and bought me a brand new car it is hyundai accent and the color is red it's a two door i didn't get the power windows or locks cause on my other car i had that and it was starting to not to work but I do love this car and it rides really nice I will have to take a pic of it and send it to the group. I hope all is well with everyone and everyone is in my thoughts and prayers.

"The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/lupies

[Guest guest]

Hi Laci! My name is a and you have deffinately found a nice support group. These guys are great. Boy it sounds like you have had a great deal of health issues for such a young age! I have only got lupus and fibromyalgia and thyroid troubles. I am 35 and will be married 14 years next week. We have 8 full time kids and just recieved a new foster baby today so we have a busy house! Welcome to our group and just join right in, if you have questions, this is the place to ask them there are a lot of people here with a great deal of knowledge about lupus.

a

It is nice to find a group of people to talk to share experiences with and get a better understanding of lupus to help take better care of myself. I hope to get to know you all :)Your New Friend,Laci