Guest guest Posted August 17, 2011 Report Share Posted August 17, 2011 I hope the aching is gone tomorrow morning and you are feeling GREAT! Let us all know. I'll be thinking about you.hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: mserslife <mserslife >Sent: Wednesday, August 17, 2011 7:45 PMSubject: Tysabri treatment #1 Okay, so I went to St. Louis and had my first Tysabri infusion. My doc wants it done in her building the first few times in case I get a reaction. So 45 minute drive, 3 hours there, 45 minutes back. Infusion went well, no overt reactions, but on the way back to the car, I started to get joint stiffness. I'm hoping it was just from sitting in the damn treatment chair for so long. Now it's pretty much confined to one hip, one shoulder, and all over my foot - all on the left side, which is the side most affected by my MS anyway. After we got home, muscle aches started in, pretty much around the achy joints, but some other muscles, too, like my back. Again, I'm hoping this is just from 5 hours sitting. I don't do good with lengthy car travel anymore, and I don't even sit on my couch for three hours in a row usually, even reclined. I alternate between my couch and my desk chair. Even when I'm not in the mood to be on the computer, I need the change in positions. Plus, I follow my husband into the den unless he explicitly wants to be alone - the reasons for that are two fold, one, we smoke from the same pack of cigarettes, so when we aren't in the same room, he doesn't tell me when he's smoking, so when I go and get a cigarette, I never know if I'm smoking more or less than him, and I try not to smoke more than him, and two, I like the company. I'll talk to him about what he's playing, or about something I'm reading, or something on the news websites, whatever. Well, I guess three reasons - I have friends in Norway, so I chat with them, too, when I'm in here and they aren't consumed with WOW. Anyway, got off track. Joint pain is one of the listed side effects, according to my latest e-mail from Biogen Idec. I suppose the muscle pain could just be from sitting for so long, or in response to the joint pain. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2011 Report Share Posted August 17, 2011 Thanks. The nurse was doing the pre-treatment checklist, and asked the question about do you have any cognitive dysfunction, etc., then she qualified that with " Other than the normal MS stuff? " Tina I hope the aching is gone tomorrow morning and you are feeling GREAT! Let us all know. I'll be thinking about you. hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: mserslife <mserslife > Sent: Wednesday, August 17, 2011 7:45 PMSubject: Tysabri treatment #1 Okay, so I went to St. Louis and had my first Tysabri infusion. My doc wants it done in her building the first few times in case I get a reaction. So 45 minute drive, 3 hours there, 45 minutes back. Infusion went well, no overt reactions, but on the way back to the car, I started to get joint stiffness. I'm hoping it was just from sitting in the damn treatment chair for so long. Now it's pretty much confined to one hip, one shoulder, and all over my foot - all on the left side, which is the side most affected by my MS anyway. After we got home, muscle aches started in, pretty much around the achy joints, but some other muscles, too, like my back. Again, I'm hoping this is just from 5 hours sitting. I don't do good with lengthy car travel anymore, and I don't even sit on my couch for three hours in a row usually, even reclined. I alternate between my couch and my desk chair. Even when I'm not in the mood to be on the computer, I need the change in positions. Plus, I follow my husband into the den unless he explicitly wants to be alone - the reasons for that are two fold, one, we smoke from the same pack of cigarettes, so when we aren't in the same room, he doesn't tell me when he's smoking, so when I go and get a cigarette, I never know if I'm smoking more or less than him, and I try not to smoke more than him, and two, I like the company. I'll talk to him about what he's playing, or about something I'm reading, or something on the news websites, whatever. Well, I guess three reasons - I have friends in Norway, so I chat with them, too, when I'm in here and they aren't consumed with WOW. Anyway, got off track. Joint pain is one of the listed side effects, according to my latest e-mail from Biogen Idec. I suppose the muscle pain could just be from sitting for so long, or in response to the joint pain. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2011 Report Share Posted August 17, 2011 Thanks. The nurse was doing the pre-treatment checklist, and asked the question about do you have any cognitive dysfunction, etc., then she qualified that with " Other than the normal MS stuff? " Tina I hope the aching is gone tomorrow morning and you are feeling GREAT! Let us all know. I'll be thinking about you. hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: mserslife <mserslife > Sent: Wednesday, August 17, 2011 7:45 PMSubject: Tysabri treatment #1 Okay, so I went to St. Louis and had my first Tysabri infusion. My doc wants it done in her building the first few times in case I get a reaction. So 45 minute drive, 3 hours there, 45 minutes back. Infusion went well, no overt reactions, but on the way back to the car, I started to get joint stiffness. I'm hoping it was just from sitting in the damn treatment chair for so long. Now it's pretty much confined to one hip, one shoulder, and all over my foot - all on the left side, which is the side most affected by my MS anyway. After we got home, muscle aches started in, pretty much around the achy joints, but some other muscles, too, like my back. Again, I'm hoping this is just from 5 hours sitting. I don't do good with lengthy car travel anymore, and I don't even sit on my couch for three hours in a row usually, even reclined. I alternate between my couch and my desk chair. Even when I'm not in the mood to be on the computer, I need the change in positions. Plus, I follow my husband into the den unless he explicitly wants to be alone - the reasons for that are two fold, one, we smoke from the same pack of cigarettes, so when we aren't in the same room, he doesn't tell me when he's smoking, so when I go and get a cigarette, I never know if I'm smoking more or less than him, and I try not to smoke more than him, and two, I like the company. I'll talk to him about what he's playing, or about something I'm reading, or something on the news websites, whatever. Well, I guess three reasons - I have friends in Norway, so I chat with them, too, when I'm in here and they aren't consumed with WOW. Anyway, got off track. Joint pain is one of the listed side effects, according to my latest e-mail from Biogen Idec. I suppose the muscle pain could just be from sitting for so long, or in response to the joint pain. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2011 Report Share Posted August 18, 2011 Tina I am glad the first treatment went well. Continued prayers. Hugs nne To the world you might be one person, but to one person you just might be the world""May the Lord Bless you and keep you,May the Lord Make his face shine upon you, and give you Peace...Forever"Breast Cancer Patients Soul Mates for Lifehttp://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancerhttp://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancerAngel Feather Loomerwww.angelfeatherloomer.blogspot.comThe Cancer Clubwww.cancerclub.com -----Original Message-----From: spydre74@...Sent: Wed, 17 Aug 2011 21:45:11 -0500To: mserslife Subject: Tysabri treatment #1 Okay, so I went to St. Louis and had my first Tysabri infusion. My doc wants it done in her building the first few times in case I get a reaction. So 45 minute drive, 3 hours there, 45 minutes back. Infusion went well, no overt reactions, but on the way back to the car, I started to get joint stiffness. I'm hoping it was just from sitting in the damn treatment chair for so long. Now it's pretty much confined to one hip, one shoulder, and all over my foot - all on the left side, which is the side most affected by my MS anyway. After we got home, muscle aches started in, pretty much around the achy joints, but some other muscles, too, like my back. Again, I'm hoping this is just from 5 hours sitting. I don't do good with lengthy car travel anymore, and I don't even sit on my couch for three hours in a row usually, even reclined. I alternate between my couch and my desk chair. Even when I'm not in the mood to be on the computer, I need the change in positions. Plus, I follow my husband into the den unless he explicitly wants to be alone - the reasons for that are two fold, one, we smoke from the same pack of cigarettes, so when we aren't in the same room, he doesn't tell me when he's smoking, so when I go and get a cigarette, I never know if I'm smoking more or less than him, and I try not to smoke more than him, and two, I like the company. I'll talk to him about what he's playing, or about something I'm reading, or something on the news websites, whatever. Well, I guess three reasons - I have friends in Norway, so I chat with them, too, when I'm in here and they aren't consumed with WOW.Anyway, got off track. Joint pain is one of the listed side effects, according to my latest e-mail from Biogen Idec. I suppose the muscle pain could just be from sitting for so long, or in response to the joint pain. Try FREE IM ToolPack at www.imtoolpack.com Capture screenshots, upload images, edit and send them to your friends through IMs, post on Twitter®, Facebook®, MySpace™, LinkedIn® – FAST! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2011 Report Share Posted August 18, 2011 Tina I am glad the first treatment went well. Continued prayers. Hugs nne To the world you might be one person, but to one person you just might be the world""May the Lord Bless you and keep you,May the Lord Make his face shine upon you, and give you Peace...Forever"Breast Cancer Patients Soul Mates for Lifehttp://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancerhttp://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancerAngel Feather Loomerwww.angelfeatherloomer.blogspot.comThe Cancer Clubwww.cancerclub.com -----Original Message-----From: spydre74@...Sent: Wed, 17 Aug 2011 21:45:11 -0500To: mserslife Subject: Tysabri treatment #1 Okay, so I went to St. Louis and had my first Tysabri infusion. My doc wants it done in her building the first few times in case I get a reaction. So 45 minute drive, 3 hours there, 45 minutes back. Infusion went well, no overt reactions, but on the way back to the car, I started to get joint stiffness. I'm hoping it was just from sitting in the damn treatment chair for so long. Now it's pretty much confined to one hip, one shoulder, and all over my foot - all on the left side, which is the side most affected by my MS anyway. After we got home, muscle aches started in, pretty much around the achy joints, but some other muscles, too, like my back. Again, I'm hoping this is just from 5 hours sitting. I don't do good with lengthy car travel anymore, and I don't even sit on my couch for three hours in a row usually, even reclined. I alternate between my couch and my desk chair. Even when I'm not in the mood to be on the computer, I need the change in positions. Plus, I follow my husband into the den unless he explicitly wants to be alone - the reasons for that are two fold, one, we smoke from the same pack of cigarettes, so when we aren't in the same room, he doesn't tell me when he's smoking, so when I go and get a cigarette, I never know if I'm smoking more or less than him, and I try not to smoke more than him, and two, I like the company. I'll talk to him about what he's playing, or about something I'm reading, or something on the news websites, whatever. Well, I guess three reasons - I have friends in Norway, so I chat with them, too, when I'm in here and they aren't consumed with WOW.Anyway, got off track. Joint pain is one of the listed side effects, according to my latest e-mail from Biogen Idec. I suppose the muscle pain could just be from sitting for so long, or in response to the joint pain. Try FREE IM ToolPack at www.imtoolpack.com Capture screenshots, upload images, edit and send them to your friends through IMs, post on Twitter®, Facebook®, MySpace™, LinkedIn® – FAST! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2011 Report Share Posted August 18, 2011 Tina I am glad the first treatment went well. Continued prayers. Hugs nne To the world you might be one person, but to one person you just might be the world""May the Lord Bless you and keep you,May the Lord Make his face shine upon you, and give you Peace...Forever"Breast Cancer Patients Soul Mates for Lifehttp://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancerhttp://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancerAngel Feather Loomerwww.angelfeatherloomer.blogspot.comThe Cancer Clubwww.cancerclub.com -----Original Message-----From: spydre74@...Sent: Wed, 17 Aug 2011 21:45:11 -0500To: mserslife Subject: Tysabri treatment #1 Okay, so I went to St. Louis and had my first Tysabri infusion. My doc wants it done in her building the first few times in case I get a reaction. So 45 minute drive, 3 hours there, 45 minutes back. Infusion went well, no overt reactions, but on the way back to the car, I started to get joint stiffness. I'm hoping it was just from sitting in the damn treatment chair for so long. Now it's pretty much confined to one hip, one shoulder, and all over my foot - all on the left side, which is the side most affected by my MS anyway. After we got home, muscle aches started in, pretty much around the achy joints, but some other muscles, too, like my back. Again, I'm hoping this is just from 5 hours sitting. I don't do good with lengthy car travel anymore, and I don't even sit on my couch for three hours in a row usually, even reclined. I alternate between my couch and my desk chair. Even when I'm not in the mood to be on the computer, I need the change in positions. Plus, I follow my husband into the den unless he explicitly wants to be alone - the reasons for that are two fold, one, we smoke from the same pack of cigarettes, so when we aren't in the same room, he doesn't tell me when he's smoking, so when I go and get a cigarette, I never know if I'm smoking more or less than him, and I try not to smoke more than him, and two, I like the company. I'll talk to him about what he's playing, or about something I'm reading, or something on the news websites, whatever. Well, I guess three reasons - I have friends in Norway, so I chat with them, too, when I'm in here and they aren't consumed with WOW.Anyway, got off track. Joint pain is one of the listed side effects, according to my latest e-mail from Biogen Idec. I suppose the muscle pain could just be from sitting for so long, or in response to the joint pain. Try FREE IM ToolPack at www.imtoolpack.com Capture screenshots, upload images, edit and send them to your friends through IMs, post on Twitter®, Facebook®, MySpace™, LinkedIn® – FAST! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2011 Report Share Posted August 18, 2011 Thank you, I need them. I'm still suffering the side effects, although I will gladly take these side effects over the side effects I had from Avonex my first year of treatment.Tina Tina I am glad the first treatment went well. Continued prayers. Hugs nne To the world you might be one person, but to one person you just might be the world " " May the Lord Bless you and keep you,May the Lord Make his face shine upon you, and give you Peace...Forever " Breast Cancer Patients Soul Mates for Lifehttp://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancer http://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancerAngel Feather Loomerwww.angelfeatherloomer.blogspot.com The Cancer Clubwww.cancerclub.com Quote Link to comment Share on other sites More sharing options...
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