Guest guest Posted May 6, 2003 Report Share Posted May 6, 2003 This morning I packed up the kids for an " in-take " interview with the developmental pediatrician. I spent the night before reviewing n's medical history and various evaluations, trying to correct the inaccuracies. As many of you may be able to relate, I was terrified at the prospect of managing both kids in an unfamiliar environment by myself. Should I put n in the stroller and carry Phoebe? Put Phoebe in the car sear carrier and n in the stroller? Can I carry all that? Can I possibly manage n out of a stroller? Well the office had steps out front so I knew I would have to forego the stroller. This made me quite nervous. But I took n by the hand, lugging Phoebe in her carrier, determined to make the best of it. We were early ... Once inside n began to help himself to office supplies at the front desk and pushing buttons on the copier. The front desk attendant did not seem thrilled. Things did not bode well. We were directed to a waiting room in the back. Thankfully n followed. I was given a clipboard of paperwork. I laughed to myself thinking it would be impossible to fill it out with n on the loose. However n found a tupperware container of matchbox cars and began to happily obsess on them, which was convenient. The social worker then directed us into a back office, n followed of his own accord, which was down right shocking. Inside he located a box of crayons, colored pencils, and markers. He happily proceeded to line them up and tote them about. Phoebe dozed in her carrier. Again, convenient so I could take to the social worker. She was a very nice lady who was very kind to n. We spoke of n's history, his many evaluations, therapies, etc, touching briefly here and there on my personally journey in coming to terms with his challenges. Yes, I told her, I think he is autistic, that's why we're here. In the past I had made every imaginable excuse to explain away his " quirks " . And, yes, it makes me feel like a bad *evil* mother to say that I am no longer holding out hope that he will " just be a late bloomer " or " grow out of it " . I need answers as we approach the school dilemma. She felt fairly certain based on what I had told her and what she observed that we would get a spectrum diagnosis. I was surprised at how easily this she made this determination. I like to think that n's autistic tendencies are subtle ... But then our ST said the same thing within the first two visits. She recommended that we begin the process for n to be evaluated by the school district for special ed preschool. However I am somewhat ashamed to admit that I am reluctant to do this. Naturally I want n to have as many therapies as we can get, but a part of me balks at the finality of enrolling him in special ed preschool. I know it will be a lightening rod issue in our family, that extended members will openly question my judgment, try to call and talk me out of it. And even I must concede that I second guess myself daily. Did I feel emotionally crushed when the social worker said she did indeed think he was on the spectrum? No. I had expected it. But on the way home I began thinking about how much n is the center of our lives and that we just adore him. And how he was such a wonderful baby. He was so good, you could take him anywhere. And I thought about how profoundly grateful I was for that first year when he was just my perfect little baby. Then I had some tears. This is tough. (SAHM in GA) MSN elizabethloht@... n 33, mo, no formal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2003 Report Share Posted May 6, 2003 Yes, it is very very difficult. I am thinking of you. Maggie ________________________________________________________________ The best thing to hit the internet in years - Juno SpeedBand! Surf the web up to FIVE TIMES FASTER! Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2003 Report Share Posted May 6, 2003 Yes, it is very very difficult. I am thinking of you. Maggie ________________________________________________________________ The best thing to hit the internet in years - Juno SpeedBand! Surf the web up to FIVE TIMES FASTER! Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2003 Report Share Posted May 6, 2003 Try not to look at what the others will say. Starting in special ed preschool is the best you can do for him. He needs intervention at a very young age in order to attain his highest level of functioning as an adult. The more he is taught the easier things may be to manage at home too. Sending you a big cybe hug! Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2003 Report Share Posted May 6, 2003 Try not to look at what the others will say. Starting in special ed preschool is the best you can do for him. He needs intervention at a very young age in order to attain his highest level of functioning as an adult. The more he is taught the easier things may be to manage at home too. Sending you a big cybe hug! Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2003 Report Share Posted May 6, 2003 , I hurt for you just reading your post. I was in your shoes just a few months ago and admitting to myself that he needed to go to a " special " school was very hard. It was like in one signing of my name, I was washing away all my dreams for ...His first day at " normal " preschool, his first day at Kindergarten etc..and it truly sucked however within a few days, I realized that I was really opening doors for his future and who knows what will come next. He is on his 4 week now and it doing amazing (not like a " NT " 2.5 yr. old) but I will take it!! He signed " more " and then said Please today for a snack at school!!!!!!!!!!!!!!!!!!!!!!!!!! I can't help on the family front. We have only told our immediate family and even though my sister thinks " there is nothing wrong with that boy " she is now being great and networking information for me. Stand strong and do wheat your head tells you (your heart is busy right now) Hugs to you! Warm Regards & ASD 11/25/00 in Maine Re: The cotinuing march toward diagnosis This morning I packed up the kids for an " in-take " interview with the developmental pediatrician. I spent the night before reviewing n's medical history and various evaluations, trying to correct the inaccuracies. As many of you may be able to relate, I was terrified at the prospect of managing both kids in an unfamiliar environment by myself. Should I put n in the stroller and carry Phoebe? Put Phoebe in the car sear carrier and n in the stroller? Can I carry all that? Can I possibly manage n out of a stroller? Well the office had steps out front so I knew I would have to forego the stroller. This made me quite nervous. But I took n by the hand, lugging Phoebe in her carrier, determined to make the best of it. We were early ... Once inside n began to help himself to office supplies at the front desk and pushing buttons on the copier. The front desk attendant did not seem thrilled. Things did not bode well. We were directed to a waiting room in the back. Thankfully n followed. I was given a clipboard of paperwork. I laughed to myself thinking it would be impossible to fill it out with n on the loose. However n found a tupperware container of matchbox cars and began to happily obsess on them, which was convenient. The social worker then directed us into a back office, n followed of his own accord, which was down right shocking. Inside he located a box of crayons, colored pencils, and markers. He happily proceeded to line them up and tote them about. Phoebe dozed in her carrier. Again, convenient so I could take to the social worker. She was a very nice lady who was very kind to n. We spoke of n's history, his many evaluations, therapies, etc, touching briefly here and there on my personally journey in coming to terms with his challenges. Yes, I told her, I think he is autistic, that's why we're here. In the past I had made every imaginable excuse to explain away his " quirks " . And, yes, it makes me feel like a bad *evil* mother to say that I am no longer holding out hope that he will " just be a late bloomer " or " grow out of it " . I need answers as we approach the school dilemma. She felt fairly certain based on what I had told her and what she observed that we would get a spectrum diagnosis. I was surprised at how easily this she made this determination. I like to think that n's autistic tendencies are subtle ... But then our ST said the same thing within the first two visits. She recommended that we begin the process for n to be evaluated by the school district for special ed preschool. However I am somewhat ashamed to admit that I am reluctant to do this. Naturally I want n to have as many therapies as we can get, but a part of me balks at the finality of enrolling him in special ed preschool. I know it will be a lightening rod issue in our family, that extended members will openly question my judgment, try to call and talk me out of it. And even I must concede that I second guess myself daily. Did I feel emotionally crushed when the social worker said she did indeed think he was on the spectrum? No. I had expected it. But on the way home I began thinking about how much n is the center of our lives and that we just adore him. And how he was such a wonderful baby. He was so good, you could take him anywhere. And I thought about how profoundly grateful I was for that first year when he was just my perfect little baby. Then I had some tears. This is tough. (SAHM in GA) MSN elizabethloht@... n 33, mo, no formal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2003 Report Share Posted May 6, 2003 , I hurt for you just reading your post. I was in your shoes just a few months ago and admitting to myself that he needed to go to a " special " school was very hard. It was like in one signing of my name, I was washing away all my dreams for ...His first day at " normal " preschool, his first day at Kindergarten etc..and it truly sucked however within a few days, I realized that I was really opening doors for his future and who knows what will come next. He is on his 4 week now and it doing amazing (not like a " NT " 2.5 yr. old) but I will take it!! He signed " more " and then said Please today for a snack at school!!!!!!!!!!!!!!!!!!!!!!!!!! I can't help on the family front. We have only told our immediate family and even though my sister thinks " there is nothing wrong with that boy " she is now being great and networking information for me. Stand strong and do wheat your head tells you (your heart is busy right now) Hugs to you! Warm Regards & ASD 11/25/00 in Maine Re: The cotinuing march toward diagnosis This morning I packed up the kids for an " in-take " interview with the developmental pediatrician. I spent the night before reviewing n's medical history and various evaluations, trying to correct the inaccuracies. As many of you may be able to relate, I was terrified at the prospect of managing both kids in an unfamiliar environment by myself. Should I put n in the stroller and carry Phoebe? Put Phoebe in the car sear carrier and n in the stroller? Can I carry all that? Can I possibly manage n out of a stroller? Well the office had steps out front so I knew I would have to forego the stroller. This made me quite nervous. But I took n by the hand, lugging Phoebe in her carrier, determined to make the best of it. We were early ... Once inside n began to help himself to office supplies at the front desk and pushing buttons on the copier. The front desk attendant did not seem thrilled. Things did not bode well. We were directed to a waiting room in the back. Thankfully n followed. I was given a clipboard of paperwork. I laughed to myself thinking it would be impossible to fill it out with n on the loose. However n found a tupperware container of matchbox cars and began to happily obsess on them, which was convenient. The social worker then directed us into a back office, n followed of his own accord, which was down right shocking. Inside he located a box of crayons, colored pencils, and markers. He happily proceeded to line them up and tote them about. Phoebe dozed in her carrier. Again, convenient so I could take to the social worker. She was a very nice lady who was very kind to n. We spoke of n's history, his many evaluations, therapies, etc, touching briefly here and there on my personally journey in coming to terms with his challenges. Yes, I told her, I think he is autistic, that's why we're here. In the past I had made every imaginable excuse to explain away his " quirks " . And, yes, it makes me feel like a bad *evil* mother to say that I am no longer holding out hope that he will " just be a late bloomer " or " grow out of it " . I need answers as we approach the school dilemma. She felt fairly certain based on what I had told her and what she observed that we would get a spectrum diagnosis. I was surprised at how easily this she made this determination. I like to think that n's autistic tendencies are subtle ... But then our ST said the same thing within the first two visits. She recommended that we begin the process for n to be evaluated by the school district for special ed preschool. However I am somewhat ashamed to admit that I am reluctant to do this. Naturally I want n to have as many therapies as we can get, but a part of me balks at the finality of enrolling him in special ed preschool. I know it will be a lightening rod issue in our family, that extended members will openly question my judgment, try to call and talk me out of it. And even I must concede that I second guess myself daily. Did I feel emotionally crushed when the social worker said she did indeed think he was on the spectrum? No. I had expected it. But on the way home I began thinking about how much n is the center of our lives and that we just adore him. And how he was such a wonderful baby. He was so good, you could take him anywhere. And I thought about how profoundly grateful I was for that first year when he was just my perfect little baby. Then I had some tears. This is tough. (SAHM in GA) MSN elizabethloht@... n 33, mo, no formal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2003 Report Share Posted May 6, 2003 >>> This is tough. <<< Yes it is. ((())) Tuna ===== mom to: , 8, ASD , 4, NT Normal is just a setting on the washing machine. - Whoopi Goldberg ______________________________________________________________________ Post your free ad now! http://personals.yahoo.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2003 Report Share Posted May 6, 2003 Sue: I know I shouldn't concern myself about what others will think, but I guess we are all sensitive to the opinions of our parents and in-laws, you know? Thanks for the support, (SAHM in GA) MSN elizabethloht@... n 33, mo, no formal dx Phoebe, 12 weeks Re: The cotinuing march toward diagnosis > Try not to look at what the others will say. Starting in special ed > preschool is the best you can do for him. He needs intervention at a very > young age in order to attain his highest level of functioning as an adult. > The more he is taught the easier things may be to manage at home too. > Sending you a big cybe hug! > > Sue > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2003 Report Share Posted May 6, 2003 Oh, , how I remember. I was nine months pregnant when Putter had his first evaluation by someone who actually knew something, i.e., not our pediatrician. Robbie was born five days later. Carting a tiny baby and an autistic three year old places, oh, dear, well, it wasn't pretty at all. > Did I feel emotionally crushed when the social worker said she did indeed > think he was on the spectrum? No. I had expected it. But on the way home > I began thinking about how much n is the center of our lives and that > we just adore him. And how he was such a wonderful baby. He was so good, > you could take him anywhere. And I thought about how profoundly grateful I > was for that first year when he was just my perfect little baby. Then I had > some tears. > Yes. I cried and cried when Putter turned three. Robbie was just two weeks old, but Putter also was a good and easy baby, just a pure delight really. I was so happy when he was born. But I am happy about Putter in many ways still. He is still almost pure delight to me, and still a happy person. It gets better, much better. Salli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2003 Report Share Posted May 6, 2003 : Thank you for the support. It is one thing when you have the kids at home, but quite another when you send them out into the world with an ASD label. I don't know why, but I guess the words are going to stick in my throat for a while. (SAHM in GA) MSN elizabethloht@... n 33, mo, no formal dx Phoebe, 12 weeks Re: The cotinuing march toward diagnosis > > > > > This morning I packed up the kids for an " in-take " interview with the > developmental pediatrician. I spent the night before reviewing n's > medical history and various evaluations, trying to correct the inaccuracies. > > As many of you may be able to relate, I was terrified at the prospect of > managing both kids in an unfamiliar environment by myself. Should I put > n in the stroller and carry Phoebe? Put Phoebe in the car sear carrier > and n in the stroller? Can I carry all that? Can I possibly manage > n out of a stroller? > > Well the office had steps out front so I knew I would have to forego the > stroller. This made me quite nervous. But I took n by the hand, > lugging Phoebe in her carrier, determined to make the best of it. We were > early ... > > Once inside n began to help himself to office supplies at the front > desk and pushing buttons on the copier. The front desk attendant did not > seem thrilled. Things did not bode well. We were directed to a waiting > room in the back. Thankfully n followed. I was given a clipboard of > paperwork. I laughed to myself thinking it would be impossible to fill it > out with n on the loose. However n found a tupperware container > of matchbox cars and began to happily obsess on them, which was convenient. > > The social worker then directed us into a back office, n followed of > his own accord, which was down right shocking. Inside he located a box of > crayons, colored pencils, and markers. He happily proceeded to line them up > and tote them about. Phoebe dozed in her carrier. Again, convenient so I > could take to the social worker. > > She was a very nice lady who was very kind to n. We spoke of n's > history, his many evaluations, therapies, etc, touching briefly here and > there on my personally journey in coming to terms with his challenges. Yes, > I told her, I think he is autistic, that's why we're here. In the past I > had made every imaginable excuse to explain away his " quirks " . And, yes, it > makes me feel like a bad *evil* mother to say that I am no longer holding > out hope that he will " just be a late bloomer " or " grow out of it " . I need > answers as we approach the school dilemma. > > She felt fairly certain based on what I had told her and what she observed > that we would get a spectrum diagnosis. I was surprised at how easily this > she made this determination. I like to think that n's autistic > tendencies are subtle ... But then our ST said the same thing within the > first two visits. > > She recommended that we begin the process for n to be evaluated by the > school district for special ed preschool. However I am somewhat ashamed to > admit that I am reluctant to do this. Naturally I want n to have as > many therapies as we can get, but a part of me balks at the finality of > enrolling him in special ed preschool. I know it will be a lightening rod > issue in our family, that extended members will openly question my judgment, > try to call and talk me out of it. And even I must concede that I second > guess myself daily. > > Did I feel emotionally crushed when the social worker said she did indeed > think he was on the spectrum? No. I had expected it. But on the way home > I began thinking about how much n is the center of our lives and that > we just adore him. And how he was such a wonderful baby. He was so good, > you could take him anywhere. And I thought about how profoundly grateful I > was for that first year when he was just my perfect little baby. Then I had > some tears. > > This is tough. > > (SAHM in GA) > MSN elizabethloht@... > n 33, mo, no formal > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2003 Report Share Posted May 6, 2003 this is a bittersweet ache isn't it elizabeth. the answer you are so anxious to hear in order to get the help your child needs is an answer that deep down nobody wants to hear. i can still remember how gutted i felt when i heard the words " rowan meets criteria " . it was over four years ago and that wound has never fully healed and i know it won't. despite what anyone else might say you need to know you are doing the right thing and the best thing in pursuing this for julian. he is a lucky boy and will do well with you on his side. love to all four of you. M.G.mum to Sebastian, 11 kinda quirky(NT) Rowan, 6 extra quirky (ASD) married to and living in Northern Ontario Re: The cotinuing march toward diagnosis This morning I packed up the kids for an " in-take " interview with the developmental pediatrician. I spent the night before reviewing n's medical history and various evaluations, trying to correct the inaccuracies. As many of you may be able to relate, I was terrified at the prospect of managing both kids in an unfamiliar environment by myself. Should I put n in the stroller and carry Phoebe? Put Phoebe in the car sear carrier and n in the stroller? Can I carry all that? Can I possibly manage n out of a stroller? Well the office had steps out front so I knew I would have to forego the stroller. This made me quite nervous. But I took n by the hand, lugging Phoebe in her carrier, determined to make the best of it. We were early ... Once inside n began to help himself to office supplies at the front desk and pushing buttons on the copier. The front desk attendant did not seem thrilled. Things did not bode well. We were directed to a waiting room in the back. Thankfully n followed. I was given a clipboard of paperwork. I laughed to myself thinking it would be impossible to fill it out with n on the loose. However n found a tupperware container of matchbox cars and began to happily obsess on them, which was convenient. The social worker then directed us into a back office, n followed of his own accord, which was down right shocking. Inside he located a box of crayons, colored pencils, and markers. He happily proceeded to line them up and tote them about. Phoebe dozed in her carrier. Again, convenient so I could take to the social worker. She was a very nice lady who was very kind to n. We spoke of n's history, his many evaluations, therapies, etc, touching briefly here and there on my personally journey in coming to terms with his challenges. Yes, I told her, I think he is autistic, that's why we're here. In the past I had made every imaginable excuse to explain away his " quirks " . And, yes, it makes me feel like a bad *evil* mother to say that I am no longer holding out hope that he will " just be a late bloomer " or " grow out of it " . I need answers as we approach the school dilemma. She felt fairly certain based on what I had told her and what she observed that we would get a spectrum diagnosis. I was surprised at how easily this she made this determination. I like to think that n's autistic tendencies are subtle ... But then our ST said the same thing within the first two visits. She recommended that we begin the process for n to be evaluated by the school district for special ed preschool. However I am somewhat ashamed to admit that I am reluctant to do this. Naturally I want n to have as many therapies as we can get, but a part of me balks at the finality of enrolling him in special ed preschool. I know it will be a lightening rod issue in our family, that extended members will openly question my judgment, try to call and talk me out of it. And even I must concede that I second guess myself daily. Did I feel emotionally crushed when the social worker said she did indeed think he was on the spectrum? No. I had expected it. But on the way home I began thinking about how much n is the center of our lives and that we just adore him. And how he was such a wonderful baby. He was so good, you could take him anywhere. And I thought about how profoundly grateful I was for that first year when he was just my perfect little baby. Then I had some tears. This is tough. (SAHM in GA) MSN elizabethloht@... n 33, mo, no formal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2003 Report Share Posted May 6, 2003 this is a bittersweet ache isn't it elizabeth. the answer you are so anxious to hear in order to get the help your child needs is an answer that deep down nobody wants to hear. i can still remember how gutted i felt when i heard the words " rowan meets criteria " . it was over four years ago and that wound has never fully healed and i know it won't. despite what anyone else might say you need to know you are doing the right thing and the best thing in pursuing this for julian. he is a lucky boy and will do well with you on his side. love to all four of you. M.G.mum to Sebastian, 11 kinda quirky(NT) Rowan, 6 extra quirky (ASD) married to and living in Northern Ontario Re: The cotinuing march toward diagnosis This morning I packed up the kids for an " in-take " interview with the developmental pediatrician. I spent the night before reviewing n's medical history and various evaluations, trying to correct the inaccuracies. As many of you may be able to relate, I was terrified at the prospect of managing both kids in an unfamiliar environment by myself. Should I put n in the stroller and carry Phoebe? Put Phoebe in the car sear carrier and n in the stroller? Can I carry all that? Can I possibly manage n out of a stroller? Well the office had steps out front so I knew I would have to forego the stroller. This made me quite nervous. But I took n by the hand, lugging Phoebe in her carrier, determined to make the best of it. We were early ... Once inside n began to help himself to office supplies at the front desk and pushing buttons on the copier. The front desk attendant did not seem thrilled. Things did not bode well. We were directed to a waiting room in the back. Thankfully n followed. I was given a clipboard of paperwork. I laughed to myself thinking it would be impossible to fill it out with n on the loose. However n found a tupperware container of matchbox cars and began to happily obsess on them, which was convenient. The social worker then directed us into a back office, n followed of his own accord, which was down right shocking. Inside he located a box of crayons, colored pencils, and markers. He happily proceeded to line them up and tote them about. Phoebe dozed in her carrier. Again, convenient so I could take to the social worker. She was a very nice lady who was very kind to n. We spoke of n's history, his many evaluations, therapies, etc, touching briefly here and there on my personally journey in coming to terms with his challenges. Yes, I told her, I think he is autistic, that's why we're here. In the past I had made every imaginable excuse to explain away his " quirks " . And, yes, it makes me feel like a bad *evil* mother to say that I am no longer holding out hope that he will " just be a late bloomer " or " grow out of it " . I need answers as we approach the school dilemma. She felt fairly certain based on what I had told her and what she observed that we would get a spectrum diagnosis. I was surprised at how easily this she made this determination. I like to think that n's autistic tendencies are subtle ... But then our ST said the same thing within the first two visits. She recommended that we begin the process for n to be evaluated by the school district for special ed preschool. However I am somewhat ashamed to admit that I am reluctant to do this. Naturally I want n to have as many therapies as we can get, but a part of me balks at the finality of enrolling him in special ed preschool. I know it will be a lightening rod issue in our family, that extended members will openly question my judgment, try to call and talk me out of it. And even I must concede that I second guess myself daily. Did I feel emotionally crushed when the social worker said she did indeed think he was on the spectrum? No. I had expected it. But on the way home I began thinking about how much n is the center of our lives and that we just adore him. And how he was such a wonderful baby. He was so good, you could take him anywhere. And I thought about how profoundly grateful I was for that first year when he was just my perfect little baby. Then I had some tears. This is tough. (SAHM in GA) MSN elizabethloht@... n 33, mo, no formal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2003 Report Share Posted May 6, 2003 this is a bittersweet ache isn't it elizabeth. the answer you are so anxious to hear in order to get the help your child needs is an answer that deep down nobody wants to hear. i can still remember how gutted i felt when i heard the words " rowan meets criteria " . it was over four years ago and that wound has never fully healed and i know it won't. despite what anyone else might say you need to know you are doing the right thing and the best thing in pursuing this for julian. he is a lucky boy and will do well with you on his side. love to all four of you. M.G.mum to Sebastian, 11 kinda quirky(NT) Rowan, 6 extra quirky (ASD) married to and living in Northern Ontario Re: The cotinuing march toward diagnosis This morning I packed up the kids for an " in-take " interview with the developmental pediatrician. I spent the night before reviewing n's medical history and various evaluations, trying to correct the inaccuracies. As many of you may be able to relate, I was terrified at the prospect of managing both kids in an unfamiliar environment by myself. Should I put n in the stroller and carry Phoebe? Put Phoebe in the car sear carrier and n in the stroller? Can I carry all that? Can I possibly manage n out of a stroller? Well the office had steps out front so I knew I would have to forego the stroller. This made me quite nervous. But I took n by the hand, lugging Phoebe in her carrier, determined to make the best of it. We were early ... Once inside n began to help himself to office supplies at the front desk and pushing buttons on the copier. The front desk attendant did not seem thrilled. Things did not bode well. We were directed to a waiting room in the back. Thankfully n followed. I was given a clipboard of paperwork. I laughed to myself thinking it would be impossible to fill it out with n on the loose. However n found a tupperware container of matchbox cars and began to happily obsess on them, which was convenient. The social worker then directed us into a back office, n followed of his own accord, which was down right shocking. Inside he located a box of crayons, colored pencils, and markers. He happily proceeded to line them up and tote them about. Phoebe dozed in her carrier. Again, convenient so I could take to the social worker. She was a very nice lady who was very kind to n. We spoke of n's history, his many evaluations, therapies, etc, touching briefly here and there on my personally journey in coming to terms with his challenges. Yes, I told her, I think he is autistic, that's why we're here. In the past I had made every imaginable excuse to explain away his " quirks " . And, yes, it makes me feel like a bad *evil* mother to say that I am no longer holding out hope that he will " just be a late bloomer " or " grow out of it " . I need answers as we approach the school dilemma. She felt fairly certain based on what I had told her and what she observed that we would get a spectrum diagnosis. I was surprised at how easily this she made this determination. I like to think that n's autistic tendencies are subtle ... But then our ST said the same thing within the first two visits. She recommended that we begin the process for n to be evaluated by the school district for special ed preschool. However I am somewhat ashamed to admit that I am reluctant to do this. Naturally I want n to have as many therapies as we can get, but a part of me balks at the finality of enrolling him in special ed preschool. I know it will be a lightening rod issue in our family, that extended members will openly question my judgment, try to call and talk me out of it. And even I must concede that I second guess myself daily. Did I feel emotionally crushed when the social worker said she did indeed think he was on the spectrum? No. I had expected it. But on the way home I began thinking about how much n is the center of our lives and that we just adore him. And how he was such a wonderful baby. He was so good, you could take him anywhere. And I thought about how profoundly grateful I was for that first year when he was just my perfect little baby. Then I had some tears. This is tough. (SAHM in GA) MSN elizabethloht@... n 33, mo, no formal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2003 Report Share Posted May 6, 2003 The most important thing to remember is that n is still the same n today as he was before he got the diagnosis. He sounds a lot like my . Easiest baby in the world. Well, after the rough 1 1/2 months before, during and after the heart surgery. Take this kid anywhere, but now, nope. Hang in there girl. we're here for you, and no matter what anybody says, YOU know what's best for him. ellen Re: The cotinuing march toward diagnosis This morning I packed up the kids for an " in-take " interview with the developmental pediatrician. I spent the night before reviewing n's medical history and various evaluations, trying to correct the inaccuracies. As many of you may be able to relate, I was terrified at the prospect of managing both kids in an unfamiliar environment by myself. Should I put n in the stroller and carry Phoebe? Put Phoebe in the car sear carrier and n in the stroller? Can I carry all that? Can I possibly manage n out of a stroller? Well the office had steps out front so I knew I would have to forego the stroller. This made me quite nervous. But I took n by the hand, lugging Phoebe in her carrier, determined to make the best of it. We were early ... Once inside n began to help himself to office supplies at the front desk and pushing buttons on the copier. The front desk attendant did not seem thrilled. Things did not bode well. We were directed to a waiting room in the back. Thankfully n followed. I was given a clipboard of paperwork. I laughed to myself thinking it would be impossible to fill it out with n on the loose. However n found a tupperware container of matchbox cars and began to happily obsess on them, which was convenient. The social worker then directed us into a back office, n followed of his own accord, which was down right shocking. Inside he located a box of crayons, colored pencils, and markers. He happily proceeded to line them up and tote them about. Phoebe dozed in her carrier. Again, convenient so I could take to the social worker. She was a very nice lady who was very kind to n. We spoke of n's history, his many evaluations, therapies, etc, touching briefly here and there on my personally journey in coming to terms with his challenges. Yes, I told her, I think he is autistic, that's why we're here. In the past I had made every imaginable excuse to explain away his " quirks " . And, yes, it makes me feel like a bad *evil* mother to say that I am no longer holding out hope that he will " just be a late bloomer " or " grow out of it " . I need answers as we approach the school dilemma. She felt fairly certain based on what I had told her and what she observed that we would get a spectrum diagnosis. I was surprised at how easily this she made this determination. I like to think that n's autistic tendencies are subtle ... But then our ST said the same thing within the first two visits. She recommended that we begin the process for n to be evaluated by the school district for special ed preschool. However I am somewhat ashamed to admit that I am reluctant to do this. Naturally I want n to have as many therapies as we can get, but a part of me balks at the finality of enrolling him in special ed preschool. I know it will be a lightening rod issue in our family, that extended members will openly question my judgment, try to call and talk me out of it. And even I must concede that I second guess myself daily. Did I feel emotionally crushed when the social worker said she did indeed think he was on the spectrum? No. I had expected it. But on the way home I began thinking about how much n is the center of our lives and that we just adore him. And how he was such a wonderful baby. He was so good, you could take him anywhere. And I thought about how profoundly grateful I was for that first year when he was just my perfect little baby. Then I had some tears. This is tough. (SAHM in GA) MSN elizabethloht@... n 33, mo, no formal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2003 Report Share Posted May 6, 2003 The most important thing to remember is that n is still the same n today as he was before he got the diagnosis. He sounds a lot like my . Easiest baby in the world. Well, after the rough 1 1/2 months before, during and after the heart surgery. Take this kid anywhere, but now, nope. Hang in there girl. we're here for you, and no matter what anybody says, YOU know what's best for him. ellen Re: The cotinuing march toward diagnosis This morning I packed up the kids for an " in-take " interview with the developmental pediatrician. I spent the night before reviewing n's medical history and various evaluations, trying to correct the inaccuracies. As many of you may be able to relate, I was terrified at the prospect of managing both kids in an unfamiliar environment by myself. Should I put n in the stroller and carry Phoebe? Put Phoebe in the car sear carrier and n in the stroller? Can I carry all that? Can I possibly manage n out of a stroller? Well the office had steps out front so I knew I would have to forego the stroller. This made me quite nervous. But I took n by the hand, lugging Phoebe in her carrier, determined to make the best of it. We were early ... Once inside n began to help himself to office supplies at the front desk and pushing buttons on the copier. The front desk attendant did not seem thrilled. Things did not bode well. We were directed to a waiting room in the back. Thankfully n followed. I was given a clipboard of paperwork. I laughed to myself thinking it would be impossible to fill it out with n on the loose. However n found a tupperware container of matchbox cars and began to happily obsess on them, which was convenient. The social worker then directed us into a back office, n followed of his own accord, which was down right shocking. Inside he located a box of crayons, colored pencils, and markers. He happily proceeded to line them up and tote them about. Phoebe dozed in her carrier. Again, convenient so I could take to the social worker. She was a very nice lady who was very kind to n. We spoke of n's history, his many evaluations, therapies, etc, touching briefly here and there on my personally journey in coming to terms with his challenges. Yes, I told her, I think he is autistic, that's why we're here. In the past I had made every imaginable excuse to explain away his " quirks " . And, yes, it makes me feel like a bad *evil* mother to say that I am no longer holding out hope that he will " just be a late bloomer " or " grow out of it " . I need answers as we approach the school dilemma. She felt fairly certain based on what I had told her and what she observed that we would get a spectrum diagnosis. I was surprised at how easily this she made this determination. I like to think that n's autistic tendencies are subtle ... But then our ST said the same thing within the first two visits. She recommended that we begin the process for n to be evaluated by the school district for special ed preschool. However I am somewhat ashamed to admit that I am reluctant to do this. Naturally I want n to have as many therapies as we can get, but a part of me balks at the finality of enrolling him in special ed preschool. I know it will be a lightening rod issue in our family, that extended members will openly question my judgment, try to call and talk me out of it. And even I must concede that I second guess myself daily. Did I feel emotionally crushed when the social worker said she did indeed think he was on the spectrum? No. I had expected it. But on the way home I began thinking about how much n is the center of our lives and that we just adore him. And how he was such a wonderful baby. He was so good, you could take him anywhere. And I thought about how profoundly grateful I was for that first year when he was just my perfect little baby. Then I had some tears. This is tough. (SAHM in GA) MSN elizabethloht@... n 33, mo, no formal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2003 Report Share Posted May 6, 2003 The most important thing to remember is that n is still the same n today as he was before he got the diagnosis. He sounds a lot like my . Easiest baby in the world. Well, after the rough 1 1/2 months before, during and after the heart surgery. Take this kid anywhere, but now, nope. Hang in there girl. we're here for you, and no matter what anybody says, YOU know what's best for him. ellen Re: The cotinuing march toward diagnosis This morning I packed up the kids for an " in-take " interview with the developmental pediatrician. I spent the night before reviewing n's medical history and various evaluations, trying to correct the inaccuracies. As many of you may be able to relate, I was terrified at the prospect of managing both kids in an unfamiliar environment by myself. Should I put n in the stroller and carry Phoebe? Put Phoebe in the car sear carrier and n in the stroller? Can I carry all that? Can I possibly manage n out of a stroller? Well the office had steps out front so I knew I would have to forego the stroller. This made me quite nervous. But I took n by the hand, lugging Phoebe in her carrier, determined to make the best of it. We were early ... Once inside n began to help himself to office supplies at the front desk and pushing buttons on the copier. The front desk attendant did not seem thrilled. Things did not bode well. We were directed to a waiting room in the back. Thankfully n followed. I was given a clipboard of paperwork. I laughed to myself thinking it would be impossible to fill it out with n on the loose. However n found a tupperware container of matchbox cars and began to happily obsess on them, which was convenient. The social worker then directed us into a back office, n followed of his own accord, which was down right shocking. Inside he located a box of crayons, colored pencils, and markers. He happily proceeded to line them up and tote them about. Phoebe dozed in her carrier. Again, convenient so I could take to the social worker. She was a very nice lady who was very kind to n. We spoke of n's history, his many evaluations, therapies, etc, touching briefly here and there on my personally journey in coming to terms with his challenges. Yes, I told her, I think he is autistic, that's why we're here. In the past I had made every imaginable excuse to explain away his " quirks " . And, yes, it makes me feel like a bad *evil* mother to say that I am no longer holding out hope that he will " just be a late bloomer " or " grow out of it " . I need answers as we approach the school dilemma. She felt fairly certain based on what I had told her and what she observed that we would get a spectrum diagnosis. I was surprised at how easily this she made this determination. I like to think that n's autistic tendencies are subtle ... But then our ST said the same thing within the first two visits. She recommended that we begin the process for n to be evaluated by the school district for special ed preschool. However I am somewhat ashamed to admit that I am reluctant to do this. Naturally I want n to have as many therapies as we can get, but a part of me balks at the finality of enrolling him in special ed preschool. I know it will be a lightening rod issue in our family, that extended members will openly question my judgment, try to call and talk me out of it. And even I must concede that I second guess myself daily. Did I feel emotionally crushed when the social worker said she did indeed think he was on the spectrum? No. I had expected it. But on the way home I began thinking about how much n is the center of our lives and that we just adore him. And how he was such a wonderful baby. He was so good, you could take him anywhere. And I thought about how profoundly grateful I was for that first year when he was just my perfect little baby. Then I had some tears. This is tough. (SAHM in GA) MSN elizabethloht@... n 33, mo, no formal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2003 Report Share Posted May 6, 2003 Salli: I thought perhaps you would understand, as I also have n near 3 year old, and a new baby. And Putter and n have always sounded a lot alike to me. n is also a very happy autie, as long as no one challenges his wishes ... and so full of surprises, tonight he was looking at the VCR remote, he looks at the numbers and says, " one, two, three, four, five, six, seven, eight, nine, zero. " Zero?!? Where the heck did he learn that! I had purposely avoided teaching him zero because I thought it would confuse him. It is amazing. (SAHM in GA) MSN elizabethloht@... n 33, mo, no formal dx Phoebe, 12 weeks Re: The cotinuing march toward diagnosis > Oh, , how I remember. I was nine months pregnant when Putter had > his first evaluation by someone who actually knew something, i.e., not our > pediatrician. Robbie was born five days later. Carting a tiny baby and an > autistic three year old places, oh, dear, well, it wasn't pretty at all. > > > Did I feel emotionally crushed when the social worker said she did indeed > > think he was on the spectrum? No. I had expected it. But on the way > home > > I began thinking about how much n is the center of our lives and that > > we just adore him. And how he was such a wonderful baby. He was so good, > > you could take him anywhere. And I thought about how profoundly grateful > I > > was for that first year when he was just my perfect little baby. Then I > had > > some tears. > > > > Yes. I cried and cried when Putter turned three. Robbie was just two weeks > old, but Putter also was a good and easy baby, just a pure delight really. > I was so happy when he was born. But I am happy about Putter in many ways > still. He is still almost pure delight to me, and still a happy person. It > gets better, much better. > > Salli > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2003 Report Share Posted May 7, 2003 Hi , If it helps, I have yet to say the words out loud to anyone besides the " professionals " . I sent my family an email and just explained that it was too hard for me to talk about but that I wanted them to know. I am close to my family and it went well. I will be thinking of you. It is so hard to do and I wish there was something magical that I could say to help. (Hugs) Warm Regards & ASD 11/25/00 in Maine Re: The cotinuing march toward diagnosis > > > > > This morning I packed up the kids for an " in-take " interview with the > developmental pediatrician. I spent the night before reviewing n's > medical history and various evaluations, trying to correct the inaccuracies. > > As many of you may be able to relate, I was terrified at the prospect of > managing both kids in an unfamiliar environment by myself. Should I put > n in the stroller and carry Phoebe? Put Phoebe in the car sear carrier > and n in the stroller? Can I carry all that? Can I possibly manage > n out of a stroller? > > Well the office had steps out front so I knew I would have to forego the > stroller. This made me quite nervous. But I took n by the hand, > lugging Phoebe in her carrier, determined to make the best of it. We were > early ... > > Once inside n began to help himself to office supplies at the front > desk and pushing buttons on the copier. The front desk attendant did not > seem thrilled. Things did not bode well. We were directed to a waiting > room in the back. Thankfully n followed. I was given a clipboard of > paperwork. I laughed to myself thinking it would be impossible to fill it > out with n on the loose. However n found a tupperware container > of matchbox cars and began to happily obsess on them, which was convenient. > > The social worker then directed us into a back office, n followed of > his own accord, which was down right shocking. Inside he located a box of > crayons, colored pencils, and markers. He happily proceeded to line them up > and tote them about. Phoebe dozed in her carrier. Again, convenient so I > could take to the social worker. > > She was a very nice lady who was very kind to n. We spoke of n's > history, his many evaluations, therapies, etc, touching briefly here and > there on my personally journey in coming to terms with his challenges. Yes, > I told her, I think he is autistic, that's why we're here. In the past I > had made every imaginable excuse to explain away his " quirks " . And, yes, it > makes me feel like a bad *evil* mother to say that I am no longer holding > out hope that he will " just be a late bloomer " or " grow out of it " . I need > answers as we approach the school dilemma. > > She felt fairly certain based on what I had told her and what she observed > that we would get a spectrum diagnosis. I was surprised at how easily this > she made this determination. I like to think that n's autistic > tendencies are subtle ... But then our ST said the same thing within the > first two visits. > > She recommended that we begin the process for n to be evaluated by the > school district for special ed preschool. However I am somewhat ashamed to > admit that I am reluctant to do this. Naturally I want n to have as > many therapies as we can get, but a part of me balks at the finality of > enrolling him in special ed preschool. I know it will be a lightening rod > issue in our family, that extended members will openly question my judgment, > try to call and talk me out of it. And even I must concede that I second > guess myself daily. > > Did I feel emotionally crushed when the social worker said she did indeed > think he was on the spectrum? No. I had expected it. But on the way home > I began thinking about how much n is the center of our lives and that > we just adore him. And how he was such a wonderful baby. He was so good, > you could take him anywhere. And I thought about how profoundly grateful I > was for that first year when he was just my perfect little baby. Then I had > some tears. > > This is tough. > > (SAHM in GA) > MSN elizabethloht@... > n 33, mo, no formal > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2003 Report Share Posted May 7, 2003 > > I thought perhaps you would understand, as I also have n near 3 year > old, and a new baby. And Putter and n have always sounded a lot alike > to me. n is also a very happy autie, as long as no one challenges his > wishes ... and so full of surprises, tonight he was looking at the VCR > remote, he looks at the numbers and says, " one, two, three, four, five, six, > seven, eight, nine, zero. " Oh, yes, I remember when Putter, watching the microwave, suddenly began counting down with it to zero. I had no idea he knew his numbers and he was just four so he had virtually no speech; I hadn't yet learned that I had no idea what he actually knew. > > Zero?!? Where the heck did he learn that! I had purposely avoided teaching > him zero because I thought it would confuse him. It is amazing. > Putter is not easily confused either. At least not about interesting things. Salli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2003 Report Share Posted May 7, 2003 > > I thought perhaps you would understand, as I also have n near 3 year > old, and a new baby. And Putter and n have always sounded a lot alike > to me. n is also a very happy autie, as long as no one challenges his > wishes ... and so full of surprises, tonight he was looking at the VCR > remote, he looks at the numbers and says, " one, two, three, four, five, six, > seven, eight, nine, zero. " Oh, yes, I remember when Putter, watching the microwave, suddenly began counting down with it to zero. I had no idea he knew his numbers and he was just four so he had virtually no speech; I hadn't yet learned that I had no idea what he actually knew. > > Zero?!? Where the heck did he learn that! I had purposely avoided teaching > him zero because I thought it would confuse him. It is amazing. > Putter is not easily confused either. At least not about interesting things. Salli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2003 Report Share Posted May 7, 2003 > I know it will be a lightening rod issue in our family, that extended members will openly question my judgment, try to call and talk me out of it. < elizabeth, i haven't read the other replies, so this may have already been said, but...this is not your family's business. you are doing what you need to do for JULIAN. HE is the one who matters. if aunt bessie doesn't like the idea of him being in school, ask her if she'd care to deal with his needs. i know it's tough when it's your first child, but you really are doing the right thing. if julian is on the spectrum, which it sounds like he is, the earlier he can get help, the better. good luck to you ~~~~~~~~~~~~~~~~~~~~~~~~~~~ What is today, but yesterday's tomorrow - Mr. Krabs ~~~~~~~~~~~~~~~~~~~~~~~~~~~ gina, 31, ny single mom to - kailey, 8, autism, hyperlexia, depression, anxiety, OCD, DSI trevor, 3, multiple developmental delays, no " official " dx yet parker jade, due 7-25-03 :-D Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2003 Report Share Posted May 7, 2003 > I know it will be a lightening rod issue in our family, that extended members will openly question my judgment, try to call and talk me out of it. < elizabeth, i haven't read the other replies, so this may have already been said, but...this is not your family's business. you are doing what you need to do for JULIAN. HE is the one who matters. if aunt bessie doesn't like the idea of him being in school, ask her if she'd care to deal with his needs. i know it's tough when it's your first child, but you really are doing the right thing. if julian is on the spectrum, which it sounds like he is, the earlier he can get help, the better. good luck to you ~~~~~~~~~~~~~~~~~~~~~~~~~~~ What is today, but yesterday's tomorrow - Mr. Krabs ~~~~~~~~~~~~~~~~~~~~~~~~~~~ gina, 31, ny single mom to - kailey, 8, autism, hyperlexia, depression, anxiety, OCD, DSI trevor, 3, multiple developmental delays, no " official " dx yet parker jade, due 7-25-03 :-D Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2003 Report Share Posted May 7, 2003 > And, yes, it > makes me feel like a bad *evil* mother to say that I am no longer holding > out hope that he will " just be a late bloomer " or " grow out of it " . I need > answers as we approach the school dilemma. Oh, , I believe a bad evil mother would be one who never faced the reality that something needed to be addressed and just denied everything -- because that would do n so much more harm than good. You are a good mother for recognizing the truths and searching out the ways to deal with them so that n can grow and progress and fulfill all of his potential as soon as he can. > > She felt fairly certain based on what I had told her and what she observed > that we would get a spectrum diagnosis. I was surprised at how easily this > she made this determination. I like to think that n's autistic > tendencies are subtle ... But then our ST said the same thing within the > first two visits. They might BE subtle -- but recognizing them is what these people are trained for! > > She recommended that we begin the process for n to be evaluated by the > school district for special ed preschool. However I am somewhat ashamed to > admit that I am reluctant to do this. Naturally I want n to have as > many therapies as we can get, but a part of me balks at the finality of > enrolling him in special ed preschool. Finality? Not at all! So many members of this list have mainstreamed their kids from sped preschools! The right choice today is just that -- TODAY'S right choice! Sped preschool does NOT mean he'll be in separate school forever, not by a long shot! In fact, it might very well give him the tools he needs to go to public school by kindergarten. You just never know. >And how he was such a wonderful baby. He was so good, > you could take him anywhere. And I thought about how profoundly grateful I > was for that first year when he was just my perfect little baby. Then I had > some tears. The irony of that just BITES, doesn't it. :-( (((hugs))) Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2003 Report Share Posted May 7, 2003 > And, yes, it > makes me feel like a bad *evil* mother to say that I am no longer holding > out hope that he will " just be a late bloomer " or " grow out of it " . I need > answers as we approach the school dilemma. Oh, , I believe a bad evil mother would be one who never faced the reality that something needed to be addressed and just denied everything -- because that would do n so much more harm than good. You are a good mother for recognizing the truths and searching out the ways to deal with them so that n can grow and progress and fulfill all of his potential as soon as he can. > > She felt fairly certain based on what I had told her and what she observed > that we would get a spectrum diagnosis. I was surprised at how easily this > she made this determination. I like to think that n's autistic > tendencies are subtle ... But then our ST said the same thing within the > first two visits. They might BE subtle -- but recognizing them is what these people are trained for! > > She recommended that we begin the process for n to be evaluated by the > school district for special ed preschool. However I am somewhat ashamed to > admit that I am reluctant to do this. Naturally I want n to have as > many therapies as we can get, but a part of me balks at the finality of > enrolling him in special ed preschool. Finality? Not at all! So many members of this list have mainstreamed their kids from sped preschools! The right choice today is just that -- TODAY'S right choice! Sped preschool does NOT mean he'll be in separate school forever, not by a long shot! In fact, it might very well give him the tools he needs to go to public school by kindergarten. You just never know. >And how he was such a wonderful baby. He was so good, > you could take him anywhere. And I thought about how profoundly grateful I > was for that first year when he was just my perfect little baby. Then I had > some tears. The irony of that just BITES, doesn't it. :-( (((hugs))) Jacquie Quote Link to comment Share on other sites More sharing options...
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