Jump to content
RemedySpot.com

Re: The cotinuing march toward diagnosis

Rate this topic


Guest guest

Recommended Posts

Guest guest

This morning I packed up the kids for an " in-take " interview with the

developmental pediatrician. I spent the night before reviewing n's

medical history and various evaluations, trying to correct the inaccuracies.

As many of you may be able to relate, I was terrified at the prospect of

managing both kids in an unfamiliar environment by myself. Should I put

n in the stroller and carry Phoebe? Put Phoebe in the car sear carrier

and n in the stroller? Can I carry all that? Can I possibly manage

n out of a stroller?

Well the office had steps out front so I knew I would have to forego the

stroller. This made me quite nervous. But I took n by the hand,

lugging Phoebe in her carrier, determined to make the best of it. We were

early ...

Once inside n began to help himself to office supplies at the front

desk and pushing buttons on the copier. The front desk attendant did not

seem thrilled. Things did not bode well. We were directed to a waiting

room in the back. Thankfully n followed. I was given a clipboard of

paperwork. I laughed to myself thinking it would be impossible to fill it

out with n on the loose. However n found a tupperware container

of matchbox cars and began to happily obsess on them, which was convenient.

The social worker then directed us into a back office, n followed of

his own accord, which was down right shocking. Inside he located a box of

crayons, colored pencils, and markers. He happily proceeded to line them up

and tote them about. Phoebe dozed in her carrier. Again, convenient so I

could take to the social worker.

She was a very nice lady who was very kind to n. We spoke of n's

history, his many evaluations, therapies, etc, touching briefly here and

there on my personally journey in coming to terms with his challenges. Yes,

I told her, I think he is autistic, that's why we're here. In the past I

had made every imaginable excuse to explain away his " quirks " . And, yes, it

makes me feel like a bad *evil* mother to say that I am no longer holding

out hope that he will " just be a late bloomer " or " grow out of it " . I need

answers as we approach the school dilemma.

She felt fairly certain based on what I had told her and what she observed

that we would get a spectrum diagnosis. I was surprised at how easily this

she made this determination. I like to think that n's autistic

tendencies are subtle ... But then our ST said the same thing within the

first two visits.

She recommended that we begin the process for n to be evaluated by the

school district for special ed preschool. However I am somewhat ashamed to

admit that I am reluctant to do this. Naturally I want n to have as

many therapies as we can get, but a part of me balks at the finality of

enrolling him in special ed preschool. I know it will be a lightening rod

issue in our family, that extended members will openly question my judgment,

try to call and talk me out of it. And even I must concede that I second

guess myself daily.

Did I feel emotionally crushed when the social worker said she did indeed

think he was on the spectrum? No. I had expected it. But on the way home

I began thinking about how much n is the center of our lives and that

we just adore him. And how he was such a wonderful baby. He was so good,

you could take him anywhere. And I thought about how profoundly grateful I

was for that first year when he was just my perfect little baby. Then I had

some tears.

This is tough.

(SAHM in GA)

MSN elizabethloht@...

n 33, mo, no formal

Link to comment
Share on other sites

Guest guest

Yes, it is very very difficult. I am thinking of you.

Maggie

________________________________________________________________

The best thing to hit the internet in years - Juno SpeedBand!

Surf the web up to FIVE TIMES FASTER!

Only $14.95/ month - visit www.juno.com to sign up today!

Link to comment
Share on other sites

Guest guest

Yes, it is very very difficult. I am thinking of you.

Maggie

________________________________________________________________

The best thing to hit the internet in years - Juno SpeedBand!

Surf the web up to FIVE TIMES FASTER!

Only $14.95/ month - visit www.juno.com to sign up today!

Link to comment
Share on other sites

Guest guest

Try not to look at what the others will say. Starting in special ed

preschool is the best you can do for him. He needs intervention at a very

young age in order to attain his highest level of functioning as an adult.

The more he is taught the easier things may be to manage at home too.

Sending you a big cybe hug!

Sue

Link to comment
Share on other sites

Guest guest

Try not to look at what the others will say. Starting in special ed

preschool is the best you can do for him. He needs intervention at a very

young age in order to attain his highest level of functioning as an adult.

The more he is taught the easier things may be to manage at home too.

Sending you a big cybe hug!

Sue

Link to comment
Share on other sites

Guest guest

,

I hurt for you just reading your post. I was in your shoes just a few months ago

and admitting to myself that he needed to go to a " special " school was very

hard. It was like in one signing of my name, I was washing away all my dreams

for ...His first day at " normal " preschool, his first day at Kindergarten

etc..and it truly sucked however within a few days, I realized that I was really

opening doors for his future and who knows what will come next. He is on his 4

week now and it doing amazing (not like a " NT " 2.5 yr. old) but I will take it!!

He signed " more " and then said Please today for a snack at

school!!!!!!!!!!!!!!!!!!!!!!!!!!

I can't help on the family front. We have only told our immediate family and

even though my sister thinks " there is nothing wrong with that boy " she is now

being great and networking information for me. Stand strong and do wheat your

head tells you (your heart is busy right now) Hugs to you!

Warm Regards

& ASD 11/25/00 in Maine

Re: The cotinuing march toward diagnosis

This morning I packed up the kids for an " in-take " interview with the

developmental pediatrician. I spent the night before reviewing n's

medical history and various evaluations, trying to correct the inaccuracies.

As many of you may be able to relate, I was terrified at the prospect of

managing both kids in an unfamiliar environment by myself. Should I put

n in the stroller and carry Phoebe? Put Phoebe in the car sear carrier

and n in the stroller? Can I carry all that? Can I possibly manage

n out of a stroller?

Well the office had steps out front so I knew I would have to forego the

stroller. This made me quite nervous. But I took n by the hand,

lugging Phoebe in her carrier, determined to make the best of it. We were

early ...

Once inside n began to help himself to office supplies at the front

desk and pushing buttons on the copier. The front desk attendant did not

seem thrilled. Things did not bode well. We were directed to a waiting

room in the back. Thankfully n followed. I was given a clipboard of

paperwork. I laughed to myself thinking it would be impossible to fill it

out with n on the loose. However n found a tupperware container

of matchbox cars and began to happily obsess on them, which was convenient.

The social worker then directed us into a back office, n followed of

his own accord, which was down right shocking. Inside he located a box of

crayons, colored pencils, and markers. He happily proceeded to line them up

and tote them about. Phoebe dozed in her carrier. Again, convenient so I

could take to the social worker.

She was a very nice lady who was very kind to n. We spoke of n's

history, his many evaluations, therapies, etc, touching briefly here and

there on my personally journey in coming to terms with his challenges. Yes,

I told her, I think he is autistic, that's why we're here. In the past I

had made every imaginable excuse to explain away his " quirks " . And, yes, it

makes me feel like a bad *evil* mother to say that I am no longer holding

out hope that he will " just be a late bloomer " or " grow out of it " . I need

answers as we approach the school dilemma.

She felt fairly certain based on what I had told her and what she observed

that we would get a spectrum diagnosis. I was surprised at how easily this

she made this determination. I like to think that n's autistic

tendencies are subtle ... But then our ST said the same thing within the

first two visits.

She recommended that we begin the process for n to be evaluated by the

school district for special ed preschool. However I am somewhat ashamed to

admit that I am reluctant to do this. Naturally I want n to have as

many therapies as we can get, but a part of me balks at the finality of

enrolling him in special ed preschool. I know it will be a lightening rod

issue in our family, that extended members will openly question my judgment,

try to call and talk me out of it. And even I must concede that I second

guess myself daily.

Did I feel emotionally crushed when the social worker said she did indeed

think he was on the spectrum? No. I had expected it. But on the way home

I began thinking about how much n is the center of our lives and that

we just adore him. And how he was such a wonderful baby. He was so good,

you could take him anywhere. And I thought about how profoundly grateful I

was for that first year when he was just my perfect little baby. Then I had

some tears.

This is tough.

(SAHM in GA)

MSN elizabethloht@...

n 33, mo, no formal

Link to comment
Share on other sites

Guest guest

,

I hurt for you just reading your post. I was in your shoes just a few months ago

and admitting to myself that he needed to go to a " special " school was very

hard. It was like in one signing of my name, I was washing away all my dreams

for ...His first day at " normal " preschool, his first day at Kindergarten

etc..and it truly sucked however within a few days, I realized that I was really

opening doors for his future and who knows what will come next. He is on his 4

week now and it doing amazing (not like a " NT " 2.5 yr. old) but I will take it!!

He signed " more " and then said Please today for a snack at

school!!!!!!!!!!!!!!!!!!!!!!!!!!

I can't help on the family front. We have only told our immediate family and

even though my sister thinks " there is nothing wrong with that boy " she is now

being great and networking information for me. Stand strong and do wheat your

head tells you (your heart is busy right now) Hugs to you!

Warm Regards

& ASD 11/25/00 in Maine

Re: The cotinuing march toward diagnosis

This morning I packed up the kids for an " in-take " interview with the

developmental pediatrician. I spent the night before reviewing n's

medical history and various evaluations, trying to correct the inaccuracies.

As many of you may be able to relate, I was terrified at the prospect of

managing both kids in an unfamiliar environment by myself. Should I put

n in the stroller and carry Phoebe? Put Phoebe in the car sear carrier

and n in the stroller? Can I carry all that? Can I possibly manage

n out of a stroller?

Well the office had steps out front so I knew I would have to forego the

stroller. This made me quite nervous. But I took n by the hand,

lugging Phoebe in her carrier, determined to make the best of it. We were

early ...

Once inside n began to help himself to office supplies at the front

desk and pushing buttons on the copier. The front desk attendant did not

seem thrilled. Things did not bode well. We were directed to a waiting

room in the back. Thankfully n followed. I was given a clipboard of

paperwork. I laughed to myself thinking it would be impossible to fill it

out with n on the loose. However n found a tupperware container

of matchbox cars and began to happily obsess on them, which was convenient.

The social worker then directed us into a back office, n followed of

his own accord, which was down right shocking. Inside he located a box of

crayons, colored pencils, and markers. He happily proceeded to line them up

and tote them about. Phoebe dozed in her carrier. Again, convenient so I

could take to the social worker.

She was a very nice lady who was very kind to n. We spoke of n's

history, his many evaluations, therapies, etc, touching briefly here and

there on my personally journey in coming to terms with his challenges. Yes,

I told her, I think he is autistic, that's why we're here. In the past I

had made every imaginable excuse to explain away his " quirks " . And, yes, it

makes me feel like a bad *evil* mother to say that I am no longer holding

out hope that he will " just be a late bloomer " or " grow out of it " . I need

answers as we approach the school dilemma.

She felt fairly certain based on what I had told her and what she observed

that we would get a spectrum diagnosis. I was surprised at how easily this

she made this determination. I like to think that n's autistic

tendencies are subtle ... But then our ST said the same thing within the

first two visits.

She recommended that we begin the process for n to be evaluated by the

school district for special ed preschool. However I am somewhat ashamed to

admit that I am reluctant to do this. Naturally I want n to have as

many therapies as we can get, but a part of me balks at the finality of

enrolling him in special ed preschool. I know it will be a lightening rod

issue in our family, that extended members will openly question my judgment,

try to call and talk me out of it. And even I must concede that I second

guess myself daily.

Did I feel emotionally crushed when the social worker said she did indeed

think he was on the spectrum? No. I had expected it. But on the way home

I began thinking about how much n is the center of our lives and that

we just adore him. And how he was such a wonderful baby. He was so good,

you could take him anywhere. And I thought about how profoundly grateful I

was for that first year when he was just my perfect little baby. Then I had

some tears.

This is tough.

(SAHM in GA)

MSN elizabethloht@...

n 33, mo, no formal

Link to comment
Share on other sites

Guest guest

>>> This is tough. <<<

Yes it is.

((()))

Tuna

=====

mom to:

, 8, ASD

, 4, NT

Normal is just a setting on the washing machine.

- Whoopi Goldberg

______________________________________________________________________

Post your free ad now! http://personals.yahoo.ca

Link to comment
Share on other sites

Guest guest

Sue: I know I shouldn't concern myself about what others will think, but I

guess we are all sensitive to the opinions of our parents and in-laws, you

know?

Thanks for the support,

(SAHM in GA)

MSN elizabethloht@...

n 33, mo, no formal dx

Phoebe, 12 weeks

Re: The cotinuing march toward diagnosis

> Try not to look at what the others will say. Starting in special ed

> preschool is the best you can do for him. He needs intervention at a very

> young age in order to attain his highest level of functioning as an adult.

> The more he is taught the easier things may be to manage at home too.

> Sending you a big cybe hug!

>

> Sue

>

>

>

Link to comment
Share on other sites

Guest guest

Oh, , how I remember. I was nine months pregnant when Putter had

his first evaluation by someone who actually knew something, i.e., not our

pediatrician. Robbie was born five days later. Carting a tiny baby and an

autistic three year old places, oh, dear, well, it wasn't pretty at all.

> Did I feel emotionally crushed when the social worker said she did indeed

> think he was on the spectrum? No. I had expected it. But on the way

home

> I began thinking about how much n is the center of our lives and that

> we just adore him. And how he was such a wonderful baby. He was so good,

> you could take him anywhere. And I thought about how profoundly grateful

I

> was for that first year when he was just my perfect little baby. Then I

had

> some tears.

>

Yes. I cried and cried when Putter turned three. Robbie was just two weeks

old, but Putter also was a good and easy baby, just a pure delight really.

I was so happy when he was born. But I am happy about Putter in many ways

still. He is still almost pure delight to me, and still a happy person. It

gets better, much better.

Salli

Link to comment
Share on other sites

Guest guest

:

Thank you for the support. It is one thing when you have the kids at home,

but quite another when you send them out into the world with an ASD label.

I don't know why, but I guess the words are going to stick in my throat for

a while.

(SAHM in GA)

MSN elizabethloht@...

n 33, mo, no formal dx

Phoebe, 12 weeks

Re: The cotinuing march toward diagnosis

>

>

>

>

> This morning I packed up the kids for an " in-take " interview with the

> developmental pediatrician. I spent the night before reviewing n's

> medical history and various evaluations, trying to correct the

inaccuracies.

>

> As many of you may be able to relate, I was terrified at the prospect of

> managing both kids in an unfamiliar environment by myself. Should I put

> n in the stroller and carry Phoebe? Put Phoebe in the car sear

carrier

> and n in the stroller? Can I carry all that? Can I possibly

manage

> n out of a stroller?

>

> Well the office had steps out front so I knew I would have to forego the

> stroller. This made me quite nervous. But I took n by the hand,

> lugging Phoebe in her carrier, determined to make the best of it. We

were

> early ...

>

> Once inside n began to help himself to office supplies at the front

> desk and pushing buttons on the copier. The front desk attendant did

not

> seem thrilled. Things did not bode well. We were directed to a waiting

> room in the back. Thankfully n followed. I was given a clipboard

of

> paperwork. I laughed to myself thinking it would be impossible to fill

it

> out with n on the loose. However n found a tupperware

container

> of matchbox cars and began to happily obsess on them, which was

convenient.

>

> The social worker then directed us into a back office, n followed

of

> his own accord, which was down right shocking. Inside he located a box

of

> crayons, colored pencils, and markers. He happily proceeded to line

them up

> and tote them about. Phoebe dozed in her carrier. Again, convenient so

I

> could take to the social worker.

>

> She was a very nice lady who was very kind to n. We spoke of

n's

> history, his many evaluations, therapies, etc, touching briefly here and

> there on my personally journey in coming to terms with his challenges.

Yes,

> I told her, I think he is autistic, that's why we're here. In the past

I

> had made every imaginable excuse to explain away his " quirks " . And,

yes, it

> makes me feel like a bad *evil* mother to say that I am no longer

holding

> out hope that he will " just be a late bloomer " or " grow out of it " . I

need

> answers as we approach the school dilemma.

>

> She felt fairly certain based on what I had told her and what she

observed

> that we would get a spectrum diagnosis. I was surprised at how easily

this

> she made this determination. I like to think that n's autistic

> tendencies are subtle ... But then our ST said the same thing within

the

> first two visits.

>

> She recommended that we begin the process for n to be evaluated by

the

> school district for special ed preschool. However I am somewhat ashamed

to

> admit that I am reluctant to do this. Naturally I want n to have

as

> many therapies as we can get, but a part of me balks at the finality of

> enrolling him in special ed preschool. I know it will be a lightening

rod

> issue in our family, that extended members will openly question my

judgment,

> try to call and talk me out of it. And even I must concede that I

second

> guess myself daily.

>

> Did I feel emotionally crushed when the social worker said she did

indeed

> think he was on the spectrum? No. I had expected it. But on the way

home

> I began thinking about how much n is the center of our lives and

that

> we just adore him. And how he was such a wonderful baby. He was so

good,

> you could take him anywhere. And I thought about how profoundly

grateful I

> was for that first year when he was just my perfect little baby. Then I

had

> some tears.

>

> This is tough.

>

> (SAHM in GA)

> MSN elizabethloht@...

> n 33, mo, no formal

>

>

>

>

>

>

Link to comment
Share on other sites

Guest guest

this is a bittersweet ache isn't it elizabeth. the answer you are so anxious to

hear in order to get the help your child needs is an answer that deep down

nobody wants to hear. i can still remember how gutted i felt when i heard the

words " rowan meets criteria " . it was over four years ago and that wound has

never fully healed and i know it won't. despite what anyone else might say you

need to know you are doing the right thing and the best thing in pursuing this

for julian. he is a lucky boy and will do well with you on his side. love to

all four of you.

M.G.mum to

Sebastian, 11 kinda quirky(NT)

Rowan, 6 extra quirky (ASD)

married to and living in Northern Ontario

Re: The cotinuing march toward diagnosis

This morning I packed up the kids for an " in-take " interview with the

developmental pediatrician. I spent the night before reviewing n's

medical history and various evaluations, trying to correct the inaccuracies.

As many of you may be able to relate, I was terrified at the prospect of

managing both kids in an unfamiliar environment by myself. Should I put

n in the stroller and carry Phoebe? Put Phoebe in the car sear carrier

and n in the stroller? Can I carry all that? Can I possibly manage

n out of a stroller?

Well the office had steps out front so I knew I would have to forego the

stroller. This made me quite nervous. But I took n by the hand,

lugging Phoebe in her carrier, determined to make the best of it. We were

early ...

Once inside n began to help himself to office supplies at the front

desk and pushing buttons on the copier. The front desk attendant did not

seem thrilled. Things did not bode well. We were directed to a waiting

room in the back. Thankfully n followed. I was given a clipboard of

paperwork. I laughed to myself thinking it would be impossible to fill it

out with n on the loose. However n found a tupperware container

of matchbox cars and began to happily obsess on them, which was convenient.

The social worker then directed us into a back office, n followed of

his own accord, which was down right shocking. Inside he located a box of

crayons, colored pencils, and markers. He happily proceeded to line them up

and tote them about. Phoebe dozed in her carrier. Again, convenient so I

could take to the social worker.

She was a very nice lady who was very kind to n. We spoke of n's

history, his many evaluations, therapies, etc, touching briefly here and

there on my personally journey in coming to terms with his challenges. Yes,

I told her, I think he is autistic, that's why we're here. In the past I

had made every imaginable excuse to explain away his " quirks " . And, yes, it

makes me feel like a bad *evil* mother to say that I am no longer holding

out hope that he will " just be a late bloomer " or " grow out of it " . I need

answers as we approach the school dilemma.

She felt fairly certain based on what I had told her and what she observed

that we would get a spectrum diagnosis. I was surprised at how easily this

she made this determination. I like to think that n's autistic

tendencies are subtle ... But then our ST said the same thing within the

first two visits.

She recommended that we begin the process for n to be evaluated by the

school district for special ed preschool. However I am somewhat ashamed to

admit that I am reluctant to do this. Naturally I want n to have as

many therapies as we can get, but a part of me balks at the finality of

enrolling him in special ed preschool. I know it will be a lightening rod

issue in our family, that extended members will openly question my judgment,

try to call and talk me out of it. And even I must concede that I second

guess myself daily.

Did I feel emotionally crushed when the social worker said she did indeed

think he was on the spectrum? No. I had expected it. But on the way home

I began thinking about how much n is the center of our lives and that

we just adore him. And how he was such a wonderful baby. He was so good,

you could take him anywhere. And I thought about how profoundly grateful I

was for that first year when he was just my perfect little baby. Then I had

some tears.

This is tough.

(SAHM in GA)

MSN elizabethloht@...

n 33, mo, no formal

Link to comment
Share on other sites

Guest guest

this is a bittersweet ache isn't it elizabeth. the answer you are so anxious to

hear in order to get the help your child needs is an answer that deep down

nobody wants to hear. i can still remember how gutted i felt when i heard the

words " rowan meets criteria " . it was over four years ago and that wound has

never fully healed and i know it won't. despite what anyone else might say you

need to know you are doing the right thing and the best thing in pursuing this

for julian. he is a lucky boy and will do well with you on his side. love to

all four of you.

M.G.mum to

Sebastian, 11 kinda quirky(NT)

Rowan, 6 extra quirky (ASD)

married to and living in Northern Ontario

Re: The cotinuing march toward diagnosis

This morning I packed up the kids for an " in-take " interview with the

developmental pediatrician. I spent the night before reviewing n's

medical history and various evaluations, trying to correct the inaccuracies.

As many of you may be able to relate, I was terrified at the prospect of

managing both kids in an unfamiliar environment by myself. Should I put

n in the stroller and carry Phoebe? Put Phoebe in the car sear carrier

and n in the stroller? Can I carry all that? Can I possibly manage

n out of a stroller?

Well the office had steps out front so I knew I would have to forego the

stroller. This made me quite nervous. But I took n by the hand,

lugging Phoebe in her carrier, determined to make the best of it. We were

early ...

Once inside n began to help himself to office supplies at the front

desk and pushing buttons on the copier. The front desk attendant did not

seem thrilled. Things did not bode well. We were directed to a waiting

room in the back. Thankfully n followed. I was given a clipboard of

paperwork. I laughed to myself thinking it would be impossible to fill it

out with n on the loose. However n found a tupperware container

of matchbox cars and began to happily obsess on them, which was convenient.

The social worker then directed us into a back office, n followed of

his own accord, which was down right shocking. Inside he located a box of

crayons, colored pencils, and markers. He happily proceeded to line them up

and tote them about. Phoebe dozed in her carrier. Again, convenient so I

could take to the social worker.

She was a very nice lady who was very kind to n. We spoke of n's

history, his many evaluations, therapies, etc, touching briefly here and

there on my personally journey in coming to terms with his challenges. Yes,

I told her, I think he is autistic, that's why we're here. In the past I

had made every imaginable excuse to explain away his " quirks " . And, yes, it

makes me feel like a bad *evil* mother to say that I am no longer holding

out hope that he will " just be a late bloomer " or " grow out of it " . I need

answers as we approach the school dilemma.

She felt fairly certain based on what I had told her and what she observed

that we would get a spectrum diagnosis. I was surprised at how easily this

she made this determination. I like to think that n's autistic

tendencies are subtle ... But then our ST said the same thing within the

first two visits.

She recommended that we begin the process for n to be evaluated by the

school district for special ed preschool. However I am somewhat ashamed to

admit that I am reluctant to do this. Naturally I want n to have as

many therapies as we can get, but a part of me balks at the finality of

enrolling him in special ed preschool. I know it will be a lightening rod

issue in our family, that extended members will openly question my judgment,

try to call and talk me out of it. And even I must concede that I second

guess myself daily.

Did I feel emotionally crushed when the social worker said she did indeed

think he was on the spectrum? No. I had expected it. But on the way home

I began thinking about how much n is the center of our lives and that

we just adore him. And how he was such a wonderful baby. He was so good,

you could take him anywhere. And I thought about how profoundly grateful I

was for that first year when he was just my perfect little baby. Then I had

some tears.

This is tough.

(SAHM in GA)

MSN elizabethloht@...

n 33, mo, no formal

Link to comment
Share on other sites

Guest guest

this is a bittersweet ache isn't it elizabeth. the answer you are so anxious to

hear in order to get the help your child needs is an answer that deep down

nobody wants to hear. i can still remember how gutted i felt when i heard the

words " rowan meets criteria " . it was over four years ago and that wound has

never fully healed and i know it won't. despite what anyone else might say you

need to know you are doing the right thing and the best thing in pursuing this

for julian. he is a lucky boy and will do well with you on his side. love to

all four of you.

M.G.mum to

Sebastian, 11 kinda quirky(NT)

Rowan, 6 extra quirky (ASD)

married to and living in Northern Ontario

Re: The cotinuing march toward diagnosis

This morning I packed up the kids for an " in-take " interview with the

developmental pediatrician. I spent the night before reviewing n's

medical history and various evaluations, trying to correct the inaccuracies.

As many of you may be able to relate, I was terrified at the prospect of

managing both kids in an unfamiliar environment by myself. Should I put

n in the stroller and carry Phoebe? Put Phoebe in the car sear carrier

and n in the stroller? Can I carry all that? Can I possibly manage

n out of a stroller?

Well the office had steps out front so I knew I would have to forego the

stroller. This made me quite nervous. But I took n by the hand,

lugging Phoebe in her carrier, determined to make the best of it. We were

early ...

Once inside n began to help himself to office supplies at the front

desk and pushing buttons on the copier. The front desk attendant did not

seem thrilled. Things did not bode well. We were directed to a waiting

room in the back. Thankfully n followed. I was given a clipboard of

paperwork. I laughed to myself thinking it would be impossible to fill it

out with n on the loose. However n found a tupperware container

of matchbox cars and began to happily obsess on them, which was convenient.

The social worker then directed us into a back office, n followed of

his own accord, which was down right shocking. Inside he located a box of

crayons, colored pencils, and markers. He happily proceeded to line them up

and tote them about. Phoebe dozed in her carrier. Again, convenient so I

could take to the social worker.

She was a very nice lady who was very kind to n. We spoke of n's

history, his many evaluations, therapies, etc, touching briefly here and

there on my personally journey in coming to terms with his challenges. Yes,

I told her, I think he is autistic, that's why we're here. In the past I

had made every imaginable excuse to explain away his " quirks " . And, yes, it

makes me feel like a bad *evil* mother to say that I am no longer holding

out hope that he will " just be a late bloomer " or " grow out of it " . I need

answers as we approach the school dilemma.

She felt fairly certain based on what I had told her and what she observed

that we would get a spectrum diagnosis. I was surprised at how easily this

she made this determination. I like to think that n's autistic

tendencies are subtle ... But then our ST said the same thing within the

first two visits.

She recommended that we begin the process for n to be evaluated by the

school district for special ed preschool. However I am somewhat ashamed to

admit that I am reluctant to do this. Naturally I want n to have as

many therapies as we can get, but a part of me balks at the finality of

enrolling him in special ed preschool. I know it will be a lightening rod

issue in our family, that extended members will openly question my judgment,

try to call and talk me out of it. And even I must concede that I second

guess myself daily.

Did I feel emotionally crushed when the social worker said she did indeed

think he was on the spectrum? No. I had expected it. But on the way home

I began thinking about how much n is the center of our lives and that

we just adore him. And how he was such a wonderful baby. He was so good,

you could take him anywhere. And I thought about how profoundly grateful I

was for that first year when he was just my perfect little baby. Then I had

some tears.

This is tough.

(SAHM in GA)

MSN elizabethloht@...

n 33, mo, no formal

Link to comment
Share on other sites

Guest guest

The most important thing to remember is that n is still the same n

today as he was before he got the diagnosis. He sounds a lot like my

. Easiest baby in the world. Well, after the rough 1 1/2 months

before, during and after the heart surgery. Take this kid anywhere, but

now, nope. Hang in there girl. we're here for you, and no matter what

anybody says, YOU know what's best for him.

ellen

Re: The cotinuing march toward diagnosis

This morning I packed up the kids for an " in-take " interview with the

developmental pediatrician. I spent the night before reviewing n's

medical history and various evaluations, trying to correct the

inaccuracies.

As many of you may be able to relate, I was terrified at the prospect of

managing both kids in an unfamiliar environment by myself. Should I put

n in the stroller and carry Phoebe? Put Phoebe in the car sear

carrier

and n in the stroller? Can I carry all that? Can I possibly manage

n out of a stroller?

Well the office had steps out front so I knew I would have to forego the

stroller. This made me quite nervous. But I took n by the hand,

lugging Phoebe in her carrier, determined to make the best of it. We were

early ...

Once inside n began to help himself to office supplies at the front

desk and pushing buttons on the copier. The front desk attendant did not

seem thrilled. Things did not bode well. We were directed to a waiting

room in the back. Thankfully n followed. I was given a clipboard of

paperwork. I laughed to myself thinking it would be impossible to fill it

out with n on the loose. However n found a tupperware container

of matchbox cars and began to happily obsess on them, which was

convenient.

The social worker then directed us into a back office, n followed of

his own accord, which was down right shocking. Inside he located a box of

crayons, colored pencils, and markers. He happily proceeded to line them

up

and tote them about. Phoebe dozed in her carrier. Again, convenient so I

could take to the social worker.

She was a very nice lady who was very kind to n. We spoke of

n's

history, his many evaluations, therapies, etc, touching briefly here and

there on my personally journey in coming to terms with his challenges.

Yes,

I told her, I think he is autistic, that's why we're here. In the past I

had made every imaginable excuse to explain away his " quirks " . And, yes,

it

makes me feel like a bad *evil* mother to say that I am no longer holding

out hope that he will " just be a late bloomer " or " grow out of it " . I

need

answers as we approach the school dilemma.

She felt fairly certain based on what I had told her and what she observed

that we would get a spectrum diagnosis. I was surprised at how easily

this

she made this determination. I like to think that n's autistic

tendencies are subtle ... But then our ST said the same thing within the

first two visits.

She recommended that we begin the process for n to be evaluated by

the

school district for special ed preschool. However I am somewhat ashamed

to

admit that I am reluctant to do this. Naturally I want n to have as

many therapies as we can get, but a part of me balks at the finality of

enrolling him in special ed preschool. I know it will be a lightening rod

issue in our family, that extended members will openly question my

judgment,

try to call and talk me out of it. And even I must concede that I second

guess myself daily.

Did I feel emotionally crushed when the social worker said she did indeed

think he was on the spectrum? No. I had expected it. But on the way

home

I began thinking about how much n is the center of our lives and that

we just adore him. And how he was such a wonderful baby. He was so good,

you could take him anywhere. And I thought about how profoundly grateful

I

was for that first year when he was just my perfect little baby. Then I

had

some tears.

This is tough.

(SAHM in GA)

MSN elizabethloht@...

n 33, mo, no formal

Link to comment
Share on other sites

Guest guest

The most important thing to remember is that n is still the same n

today as he was before he got the diagnosis. He sounds a lot like my

. Easiest baby in the world. Well, after the rough 1 1/2 months

before, during and after the heart surgery. Take this kid anywhere, but

now, nope. Hang in there girl. we're here for you, and no matter what

anybody says, YOU know what's best for him.

ellen

Re: The cotinuing march toward diagnosis

This morning I packed up the kids for an " in-take " interview with the

developmental pediatrician. I spent the night before reviewing n's

medical history and various evaluations, trying to correct the

inaccuracies.

As many of you may be able to relate, I was terrified at the prospect of

managing both kids in an unfamiliar environment by myself. Should I put

n in the stroller and carry Phoebe? Put Phoebe in the car sear

carrier

and n in the stroller? Can I carry all that? Can I possibly manage

n out of a stroller?

Well the office had steps out front so I knew I would have to forego the

stroller. This made me quite nervous. But I took n by the hand,

lugging Phoebe in her carrier, determined to make the best of it. We were

early ...

Once inside n began to help himself to office supplies at the front

desk and pushing buttons on the copier. The front desk attendant did not

seem thrilled. Things did not bode well. We were directed to a waiting

room in the back. Thankfully n followed. I was given a clipboard of

paperwork. I laughed to myself thinking it would be impossible to fill it

out with n on the loose. However n found a tupperware container

of matchbox cars and began to happily obsess on them, which was

convenient.

The social worker then directed us into a back office, n followed of

his own accord, which was down right shocking. Inside he located a box of

crayons, colored pencils, and markers. He happily proceeded to line them

up

and tote them about. Phoebe dozed in her carrier. Again, convenient so I

could take to the social worker.

She was a very nice lady who was very kind to n. We spoke of

n's

history, his many evaluations, therapies, etc, touching briefly here and

there on my personally journey in coming to terms with his challenges.

Yes,

I told her, I think he is autistic, that's why we're here. In the past I

had made every imaginable excuse to explain away his " quirks " . And, yes,

it

makes me feel like a bad *evil* mother to say that I am no longer holding

out hope that he will " just be a late bloomer " or " grow out of it " . I

need

answers as we approach the school dilemma.

She felt fairly certain based on what I had told her and what she observed

that we would get a spectrum diagnosis. I was surprised at how easily

this

she made this determination. I like to think that n's autistic

tendencies are subtle ... But then our ST said the same thing within the

first two visits.

She recommended that we begin the process for n to be evaluated by

the

school district for special ed preschool. However I am somewhat ashamed

to

admit that I am reluctant to do this. Naturally I want n to have as

many therapies as we can get, but a part of me balks at the finality of

enrolling him in special ed preschool. I know it will be a lightening rod

issue in our family, that extended members will openly question my

judgment,

try to call and talk me out of it. And even I must concede that I second

guess myself daily.

Did I feel emotionally crushed when the social worker said she did indeed

think he was on the spectrum? No. I had expected it. But on the way

home

I began thinking about how much n is the center of our lives and that

we just adore him. And how he was such a wonderful baby. He was so good,

you could take him anywhere. And I thought about how profoundly grateful

I

was for that first year when he was just my perfect little baby. Then I

had

some tears.

This is tough.

(SAHM in GA)

MSN elizabethloht@...

n 33, mo, no formal

Link to comment
Share on other sites

Guest guest

The most important thing to remember is that n is still the same n

today as he was before he got the diagnosis. He sounds a lot like my

. Easiest baby in the world. Well, after the rough 1 1/2 months

before, during and after the heart surgery. Take this kid anywhere, but

now, nope. Hang in there girl. we're here for you, and no matter what

anybody says, YOU know what's best for him.

ellen

Re: The cotinuing march toward diagnosis

This morning I packed up the kids for an " in-take " interview with the

developmental pediatrician. I spent the night before reviewing n's

medical history and various evaluations, trying to correct the

inaccuracies.

As many of you may be able to relate, I was terrified at the prospect of

managing both kids in an unfamiliar environment by myself. Should I put

n in the stroller and carry Phoebe? Put Phoebe in the car sear

carrier

and n in the stroller? Can I carry all that? Can I possibly manage

n out of a stroller?

Well the office had steps out front so I knew I would have to forego the

stroller. This made me quite nervous. But I took n by the hand,

lugging Phoebe in her carrier, determined to make the best of it. We were

early ...

Once inside n began to help himself to office supplies at the front

desk and pushing buttons on the copier. The front desk attendant did not

seem thrilled. Things did not bode well. We were directed to a waiting

room in the back. Thankfully n followed. I was given a clipboard of

paperwork. I laughed to myself thinking it would be impossible to fill it

out with n on the loose. However n found a tupperware container

of matchbox cars and began to happily obsess on them, which was

convenient.

The social worker then directed us into a back office, n followed of

his own accord, which was down right shocking. Inside he located a box of

crayons, colored pencils, and markers. He happily proceeded to line them

up

and tote them about. Phoebe dozed in her carrier. Again, convenient so I

could take to the social worker.

She was a very nice lady who was very kind to n. We spoke of

n's

history, his many evaluations, therapies, etc, touching briefly here and

there on my personally journey in coming to terms with his challenges.

Yes,

I told her, I think he is autistic, that's why we're here. In the past I

had made every imaginable excuse to explain away his " quirks " . And, yes,

it

makes me feel like a bad *evil* mother to say that I am no longer holding

out hope that he will " just be a late bloomer " or " grow out of it " . I

need

answers as we approach the school dilemma.

She felt fairly certain based on what I had told her and what she observed

that we would get a spectrum diagnosis. I was surprised at how easily

this

she made this determination. I like to think that n's autistic

tendencies are subtle ... But then our ST said the same thing within the

first two visits.

She recommended that we begin the process for n to be evaluated by

the

school district for special ed preschool. However I am somewhat ashamed

to

admit that I am reluctant to do this. Naturally I want n to have as

many therapies as we can get, but a part of me balks at the finality of

enrolling him in special ed preschool. I know it will be a lightening rod

issue in our family, that extended members will openly question my

judgment,

try to call and talk me out of it. And even I must concede that I second

guess myself daily.

Did I feel emotionally crushed when the social worker said she did indeed

think he was on the spectrum? No. I had expected it. But on the way

home

I began thinking about how much n is the center of our lives and that

we just adore him. And how he was such a wonderful baby. He was so good,

you could take him anywhere. And I thought about how profoundly grateful

I

was for that first year when he was just my perfect little baby. Then I

had

some tears.

This is tough.

(SAHM in GA)

MSN elizabethloht@...

n 33, mo, no formal

Link to comment
Share on other sites

Guest guest

Salli:

I thought perhaps you would understand, as I also have n near 3 year

old, and a new baby. And Putter and n have always sounded a lot alike

to me. n is also a very happy autie, as long as no one challenges his

wishes ... and so full of surprises, tonight he was looking at the VCR

remote, he looks at the numbers and says, " one, two, three, four, five, six,

seven, eight, nine, zero. "

Zero?!? Where the heck did he learn that! I had purposely avoided teaching

him zero because I thought it would confuse him. It is amazing.

(SAHM in GA)

MSN elizabethloht@...

n 33, mo, no formal dx

Phoebe, 12 weeks

Re: The cotinuing march toward diagnosis

> Oh, , how I remember. I was nine months pregnant when Putter had

> his first evaluation by someone who actually knew something, i.e., not our

> pediatrician. Robbie was born five days later. Carting a tiny baby and

an

> autistic three year old places, oh, dear, well, it wasn't pretty at all.

>

> > Did I feel emotionally crushed when the social worker said she did

indeed

> > think he was on the spectrum? No. I had expected it. But on the way

> home

> > I began thinking about how much n is the center of our lives and

that

> > we just adore him. And how he was such a wonderful baby. He was so

good,

> > you could take him anywhere. And I thought about how profoundly

grateful

> I

> > was for that first year when he was just my perfect little baby. Then I

> had

> > some tears.

> >

>

> Yes. I cried and cried when Putter turned three. Robbie was just two

weeks

> old, but Putter also was a good and easy baby, just a pure delight really.

> I was so happy when he was born. But I am happy about Putter in many ways

> still. He is still almost pure delight to me, and still a happy person.

It

> gets better, much better.

>

> Salli

>

>

>

Link to comment
Share on other sites

Guest guest

Hi ,

If it helps, I have yet to say the words out loud to anyone besides the

" professionals " . I sent my family an email and just explained that it was too

hard for me to talk about but that I wanted them to know. I am close to my

family and it went well.

I will be thinking of you. It is so hard to do and I wish there was something

magical that I could say to help. (Hugs)

Warm Regards

& ASD 11/25/00 in Maine

Re: The cotinuing march toward diagnosis

>

>

>

>

> This morning I packed up the kids for an " in-take " interview with the

> developmental pediatrician. I spent the night before reviewing n's

> medical history and various evaluations, trying to correct the

inaccuracies.

>

> As many of you may be able to relate, I was terrified at the prospect of

> managing both kids in an unfamiliar environment by myself. Should I put

> n in the stroller and carry Phoebe? Put Phoebe in the car sear

carrier

> and n in the stroller? Can I carry all that? Can I possibly

manage

> n out of a stroller?

>

> Well the office had steps out front so I knew I would have to forego the

> stroller. This made me quite nervous. But I took n by the hand,

> lugging Phoebe in her carrier, determined to make the best of it. We

were

> early ...

>

> Once inside n began to help himself to office supplies at the front

> desk and pushing buttons on the copier. The front desk attendant did

not

> seem thrilled. Things did not bode well. We were directed to a waiting

> room in the back. Thankfully n followed. I was given a clipboard

of

> paperwork. I laughed to myself thinking it would be impossible to fill

it

> out with n on the loose. However n found a tupperware

container

> of matchbox cars and began to happily obsess on them, which was

convenient.

>

> The social worker then directed us into a back office, n followed

of

> his own accord, which was down right shocking. Inside he located a box

of

> crayons, colored pencils, and markers. He happily proceeded to line

them up

> and tote them about. Phoebe dozed in her carrier. Again, convenient so

I

> could take to the social worker.

>

> She was a very nice lady who was very kind to n. We spoke of

n's

> history, his many evaluations, therapies, etc, touching briefly here and

> there on my personally journey in coming to terms with his challenges.

Yes,

> I told her, I think he is autistic, that's why we're here. In the past

I

> had made every imaginable excuse to explain away his " quirks " . And,

yes, it

> makes me feel like a bad *evil* mother to say that I am no longer

holding

> out hope that he will " just be a late bloomer " or " grow out of it " . I

need

> answers as we approach the school dilemma.

>

> She felt fairly certain based on what I had told her and what she

observed

> that we would get a spectrum diagnosis. I was surprised at how easily

this

> she made this determination. I like to think that n's autistic

> tendencies are subtle ... But then our ST said the same thing within

the

> first two visits.

>

> She recommended that we begin the process for n to be evaluated by

the

> school district for special ed preschool. However I am somewhat ashamed

to

> admit that I am reluctant to do this. Naturally I want n to have

as

> many therapies as we can get, but a part of me balks at the finality of

> enrolling him in special ed preschool. I know it will be a lightening

rod

> issue in our family, that extended members will openly question my

judgment,

> try to call and talk me out of it. And even I must concede that I

second

> guess myself daily.

>

> Did I feel emotionally crushed when the social worker said she did

indeed

> think he was on the spectrum? No. I had expected it. But on the way

home

> I began thinking about how much n is the center of our lives and

that

> we just adore him. And how he was such a wonderful baby. He was so

good,

> you could take him anywhere. And I thought about how profoundly

grateful I

> was for that first year when he was just my perfect little baby. Then I

had

> some tears.

>

> This is tough.

>

> (SAHM in GA)

> MSN elizabethloht@...

> n 33, mo, no formal

>

>

>

>

>

>

Link to comment
Share on other sites

Guest guest

>

> I thought perhaps you would understand, as I also have n near 3 year

> old, and a new baby. And Putter and n have always sounded a lot

alike

> to me. n is also a very happy autie, as long as no one challenges

his

> wishes ... and so full of surprises, tonight he was looking at the VCR

> remote, he looks at the numbers and says, " one, two, three, four, five,

six,

> seven, eight, nine, zero. "

Oh, yes, I remember when Putter, watching the microwave, suddenly began

counting down with it to zero. I had no idea he knew his numbers and he was

just four so he had virtually no speech; I hadn't yet learned that I had no

idea what he actually knew.

>

> Zero?!? Where the heck did he learn that! I had purposely avoided

teaching

> him zero because I thought it would confuse him. It is amazing.

>

Putter is not easily confused either. At least not about interesting

things.

Salli

Link to comment
Share on other sites

Guest guest

>

> I thought perhaps you would understand, as I also have n near 3 year

> old, and a new baby. And Putter and n have always sounded a lot

alike

> to me. n is also a very happy autie, as long as no one challenges

his

> wishes ... and so full of surprises, tonight he was looking at the VCR

> remote, he looks at the numbers and says, " one, two, three, four, five,

six,

> seven, eight, nine, zero. "

Oh, yes, I remember when Putter, watching the microwave, suddenly began

counting down with it to zero. I had no idea he knew his numbers and he was

just four so he had virtually no speech; I hadn't yet learned that I had no

idea what he actually knew.

>

> Zero?!? Where the heck did he learn that! I had purposely avoided

teaching

> him zero because I thought it would confuse him. It is amazing.

>

Putter is not easily confused either. At least not about interesting

things.

Salli

Link to comment
Share on other sites

Guest guest

> I know it will be a lightening rod issue in our family, that extended members

will openly question my judgment, try to call and talk me out of it. <

elizabeth, i haven't read the other replies, so this may have already been said,

but...this is not your family's business. you are doing what you need to do for

JULIAN. HE is the one who matters. if aunt bessie doesn't like the idea of him

being in school, ask her if she'd care to deal with his needs. i know it's tough

when it's your first child, but you really are doing the right thing. if julian

is on the spectrum, which it sounds like he is, the earlier he can get help, the

better. good luck to you :)

~~~~~~~~~~~~~~~~~~~~~~~~~~~

What is today, but yesterday's tomorrow - Mr. Krabs

~~~~~~~~~~~~~~~~~~~~~~~~~~~

gina, 31, ny

single mom to -

kailey, 8, autism, hyperlexia, depression, anxiety, OCD, DSI

trevor, 3, multiple developmental delays, no " official " dx yet

parker jade, due 7-25-03 :-D

Link to comment
Share on other sites

Guest guest

> I know it will be a lightening rod issue in our family, that extended members

will openly question my judgment, try to call and talk me out of it. <

elizabeth, i haven't read the other replies, so this may have already been said,

but...this is not your family's business. you are doing what you need to do for

JULIAN. HE is the one who matters. if aunt bessie doesn't like the idea of him

being in school, ask her if she'd care to deal with his needs. i know it's tough

when it's your first child, but you really are doing the right thing. if julian

is on the spectrum, which it sounds like he is, the earlier he can get help, the

better. good luck to you :)

~~~~~~~~~~~~~~~~~~~~~~~~~~~

What is today, but yesterday's tomorrow - Mr. Krabs

~~~~~~~~~~~~~~~~~~~~~~~~~~~

gina, 31, ny

single mom to -

kailey, 8, autism, hyperlexia, depression, anxiety, OCD, DSI

trevor, 3, multiple developmental delays, no " official " dx yet

parker jade, due 7-25-03 :-D

Link to comment
Share on other sites

Guest guest

> And, yes, it

> makes me feel like a bad *evil* mother to say that I am no longer holding

> out hope that he will " just be a late bloomer " or " grow out of it " . I

need

> answers as we approach the school dilemma.

Oh, , I believe a bad evil mother would be one who never faced the

reality that something needed to be addressed and just denied everything --

because that would do n so much more harm than good.

You are a good mother for recognizing the truths and searching out the ways

to deal with them so that n can grow and progress and fulfill all of

his potential as soon as he can.

>

> She felt fairly certain based on what I had told her and what she observed

> that we would get a spectrum diagnosis. I was surprised at how easily

this

> she made this determination. I like to think that n's autistic

> tendencies are subtle ... But then our ST said the same thing within the

> first two visits.

They might BE subtle -- but recognizing them is what these people are

trained for!

>

> She recommended that we begin the process for n to be evaluated by

the

> school district for special ed preschool. However I am somewhat ashamed

to

> admit that I am reluctant to do this. Naturally I want n to have as

> many therapies as we can get, but a part of me balks at the finality of

> enrolling him in special ed preschool.

Finality? Not at all! So many members of this list have mainstreamed their

kids from sped preschools! The right choice today is just that -- TODAY'S

right choice! Sped preschool does NOT mean he'll be in separate school

forever, not by a long shot! In fact, it might very well give him the tools

he needs to go to public school by kindergarten. You just never know.

>And how he was such a wonderful baby. He was so good,

> you could take him anywhere. And I thought about how profoundly grateful

I

> was for that first year when he was just my perfect little baby. Then I

had

> some tears.

The irony of that just BITES, doesn't it. :-(

(((hugs)))

Jacquie

Link to comment
Share on other sites

Guest guest

> And, yes, it

> makes me feel like a bad *evil* mother to say that I am no longer holding

> out hope that he will " just be a late bloomer " or " grow out of it " . I

need

> answers as we approach the school dilemma.

Oh, , I believe a bad evil mother would be one who never faced the

reality that something needed to be addressed and just denied everything --

because that would do n so much more harm than good.

You are a good mother for recognizing the truths and searching out the ways

to deal with them so that n can grow and progress and fulfill all of

his potential as soon as he can.

>

> She felt fairly certain based on what I had told her and what she observed

> that we would get a spectrum diagnosis. I was surprised at how easily

this

> she made this determination. I like to think that n's autistic

> tendencies are subtle ... But then our ST said the same thing within the

> first two visits.

They might BE subtle -- but recognizing them is what these people are

trained for!

>

> She recommended that we begin the process for n to be evaluated by

the

> school district for special ed preschool. However I am somewhat ashamed

to

> admit that I am reluctant to do this. Naturally I want n to have as

> many therapies as we can get, but a part of me balks at the finality of

> enrolling him in special ed preschool.

Finality? Not at all! So many members of this list have mainstreamed their

kids from sped preschools! The right choice today is just that -- TODAY'S

right choice! Sped preschool does NOT mean he'll be in separate school

forever, not by a long shot! In fact, it might very well give him the tools

he needs to go to public school by kindergarten. You just never know.

>And how he was such a wonderful baby. He was so good,

> you could take him anywhere. And I thought about how profoundly grateful

I

> was for that first year when he was just my perfect little baby. Then I

had

> some tears.

The irony of that just BITES, doesn't it. :-(

(((hugs)))

Jacquie

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...