Muscular Dystrophy - in a child -

[Guest guest]

This is always a challenge: how to tell a young child what disease hehas inherited or acquired--especially the inherited part--perhaps left for later.I also have cystic fibrosis, which my youngest child also has. We had en-deavored to explain it to her. She is and was as a young child, very bright.However, after we had explained, her specialist and pediatrician had ex-plained, we overheard her answering a neighbor child's question, i.e.,"What is this 'CF'?" She gave a logical and clear answer; she was four years old. She said:"Oh, that! That means 'see if things get better!'" It had not occurred to usthat she would think of "CF" as "see if," but we decided that she had givenan excellent response.May

this child who will learn of Muscular Dystrophy come up with some-thing equally positive!Love to this child, Sharon, and thank you for telling us about him, andyour other relatives,n, "totally 'MSed' up!"

[Guest guest]

Your daughter was(is) as smart as a whip! Amazing.love, KateTo: MSersLife Sent: Thursday, November 17, 2011 12:35 AMSubject: Muscular Dystrophy - in a child -

This is always a challenge: how to tell a young child what disease hehas inherited or acquired--especially the inherited part--perhaps left for later.I also have cystic fibrosis, which my youngest child also has. We had en-deavored to explain it to her. She is and was as a young child, very bright.However, after we had explained, her specialist and pediatrician had ex-plained, we overheard her answering a neighbor child's question, i.e.,"What is this 'CF'?" She gave a logical and clear answer; she was four years old. She said:"Oh, that! That means 'see if things get better!'" It had not occurred to usthat she would think of "CF" as "see if," but we decided that she had givenan excellent

response.May

this child who will learn of Muscular Dystrophy come up with some-thing equally positive!Love to this child, Sharon, and thank you for telling us about him, andyour other relatives,n, "totally 'MSed' up!"

[Guest guest]

Sammy will have the excellent example of his Grampa Greg. Greg has been in a wheelchair for many years and requires a lot of assistance. Greg is an inspiration to all who meet him because he deals with his disability with such wit and has a positive attitude. I love the CF explanation!hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or

defects. To: MSersLife Sent: Wednesday, November 16, 2011 10:35 PM Subject: Muscular Dystrophy - in a child -

This is always a challenge: how to tell a young child what disease hehas inherited or acquired--especially the inherited part--perhaps left for later.I also have cystic fibrosis, which my youngest child also has. We had en-deavored to explain it to her. She is and was as a young child, very bright.However, after we had explained, her specialist and pediatrician had ex-plained, we overheard her answering a neighbor child's question, i.e.,"What is this 'CF'?" She gave a logical and clear answer; she was four years old. She said:"Oh, that! That means 'see if things get better!'" It had not occurred to usthat she would think of "CF" as "see if," but we decided that she had givenan excellent

response.May

this child who will learn of Muscular Dystrophy come up with some-thing equally positive!Love to this child, Sharon, and thank you for telling us about him, andyour other relatives,n, "totally 'MSed' up!"