Re: Late in asking -- buttttttttt have till June 4th

[Guest guest]

Do you know when your next hearing is?

Late in asking -- buttttttttt have till June 4th

Now there is another upcoming hearing stating that we have to have another

go again and because I am on state aid for time being till hopefully SSI

comes thru- my lawyer suggested I get someone from support group to come in

with me at the hearing to tell the symptoms and the dangers of VEDS.......

Now anyone here willing to come to court with me? Mercy- how do I do that?

She said ,,,, not your doctor but someone hopefully from a support

group......

I wrote the above a while back and just found it as I was putting stuff

together for the upcoming hearing- some said they would be glad

to write me an e-mail hearing how EDS- VEDS symtpoms and dangers were

affecting them so that I could take them along to court with me- I would really

appreciate it if any of you are able to still do that- as that date is too

fast approaching and I want to be able to be prepared if necessary ....

Especially now that my x married a nurse who claims to know allllllllllll about

it....... uhhuh- yet she had to ask my son what it was a few times and his dad

didn't even know or remember- and he was GIVEN PAPERS at the last hearing in

case of Dakota inheriting it ..... grrrrrrrrrrrrrr @ him.

Anyhow- don't mean to get into the anger session of that twit again oooops

that just slipped on out lol. But if any of you could do this, I'd really

appreciate it, just send me a note - telling the symptoms and dangers of VEDS

and/or EDS and how it affects your lives.

Thanks much in Advance!

Hugsssssssss TJ

[Guest guest]

Do you know when your next hearing is?

Late in asking -- buttttttttt have till June 4th

Now there is another upcoming hearing stating that we have to have another

go again and because I am on state aid for time being till hopefully SSI

comes thru- my lawyer suggested I get someone from support group to come in

with me at the hearing to tell the symptoms and the dangers of VEDS.......

Now anyone here willing to come to court with me? Mercy- how do I do that?

She said ,,,, not your doctor but someone hopefully from a support

group......

I wrote the above a while back and just found it as I was putting stuff

together for the upcoming hearing- some said they would be glad

to write me an e-mail hearing how EDS- VEDS symtpoms and dangers were

affecting them so that I could take them along to court with me- I would really

appreciate it if any of you are able to still do that- as that date is too

fast approaching and I want to be able to be prepared if necessary ....

Especially now that my x married a nurse who claims to know allllllllllll about

it....... uhhuh- yet she had to ask my son what it was a few times and his dad

didn't even know or remember- and he was GIVEN PAPERS at the last hearing in

case of Dakota inheriting it ..... grrrrrrrrrrrrrr @ him.

Anyhow- don't mean to get into the anger session of that twit again oooops

that just slipped on out lol. But if any of you could do this, I'd really

appreciate it, just send me a note - telling the symptoms and dangers of VEDS

and/or EDS and how it affects your lives.

Thanks much in Advance!

Hugsssssssss TJ

[Guest guest]

June 4th

Late in asking -- buttttttttt have till June 4th

Now there is another upcoming hearing stating that we have to have another

go again and because I am on state aid for time being till hopefully SSI

comes thru- my lawyer suggested I get someone from support group to come in

with me at the hearing to tell the symptoms and the dangers of VEDS.......

Now anyone here willing to come to court with me? Mercy- how do I do that?

She said ,,,, not your doctor but someone hopefully from a support

group......

I wrote the above a while back and just found it as I was putting stuff

together for the upcoming hearing- some said they would be glad

to write me an e-mail hearing how EDS- VEDS symtpoms and dangers were

affecting them so that I could take them along to court with me- I would really

appreciate it if any of you are able to still do that- as that date is too

fast approaching and I want to be able to be prepared if necessary ....

Especially now that my x married a nurse who claims to know allllllllllll about

it....... uhhuh- yet she had to ask my son what it was a few times and his dad

didn't even know or remember- and he was GIVEN PAPERS at the last hearing in

case of Dakota inheriting it ..... grrrrrrrrrrrrrr @ him.

Anyhow- don't mean to get into the anger session of that twit again oooops

that just slipped on out lol. But if any of you could do this, I'd really

appreciate it, just send me a note - telling the symptoms and dangers of VEDS

and/or EDS and how it affects your lives.

Thanks much in Advance!

Hugsssssssss TJ

[Guest guest]

June 4th

Late in asking -- buttttttttt have till June 4th

Now there is another upcoming hearing stating that we have to have another

go again and because I am on state aid for time being till hopefully SSI

comes thru- my lawyer suggested I get someone from support group to come in

with me at the hearing to tell the symptoms and the dangers of VEDS.......

Now anyone here willing to come to court with me? Mercy- how do I do that?

She said ,,,, not your doctor but someone hopefully from a support

group......

I wrote the above a while back and just found it as I was putting stuff

together for the upcoming hearing- some said they would be glad

to write me an e-mail hearing how EDS- VEDS symtpoms and dangers were

affecting them so that I could take them along to court with me- I would really

appreciate it if any of you are able to still do that- as that date is too

fast approaching and I want to be able to be prepared if necessary ....

Especially now that my x married a nurse who claims to know allllllllllll about

it....... uhhuh- yet she had to ask my son what it was a few times and his dad

didn't even know or remember- and he was GIVEN PAPERS at the last hearing in

case of Dakota inheriting it ..... grrrrrrrrrrrrrr @ him.

Anyhow- don't mean to get into the anger session of that twit again oooops

that just slipped on out lol. But if any of you could do this, I'd really

appreciate it, just send me a note - telling the symptoms and dangers of VEDS

and/or EDS and how it affects your lives.

Thanks much in Advance!

Hugsssssssss TJ

[Guest guest]

Hi TJ

I would do anything to help you out, except I can't be where you are.

I would certainly be willing to write a letter/email, however I myself do

not have any pain issues. Right at the moment VEDS is not affecting me

phsyically. It has kicked the crap out of me emotionally and my life will

never be the same again due to Danny's death and also because I think

everday if this is going to be my last. Just let me know what I can do.

Betty

Late in asking -- buttttttttt have till June 4th

> Now there is another upcoming hearing stating that we have to have another

> go again and because I am on state aid for time being till hopefully SSI

> comes thru- my lawyer suggested I get someone from support group to come

in

> with me at the hearing to tell the symptoms and the dangers of VEDS.......

> Now anyone here willing to come to court with me? Mercy- how do I do

that?

> She said ,,,, not your doctor but someone hopefully from a support

> group......

>

>

> I wrote the above a while back and just found it as I was putting stuff

together for the upcoming hearing- some said they would be glad

> to write me an e-mail hearing how EDS- VEDS symtpoms and dangers were

affecting them so that I could take them along to court with me- I would

really

> appreciate it if any of you are able to still do that- as that date is too

fast approaching and I want to be able to be prepared if necessary ....

Especially now that my x married a nurse who claims to know allllllllllll

about it....... uhhuh- yet she had to ask my son what it was a few times and

his dad didn't even know or remember- and he was GIVEN PAPERS at the last

hearing in case of Dakota inheriting it ..... grrrrrrrrrrrrrr @ him.

>

> Anyhow- don't mean to get into the anger session of that twit again oooops

that just slipped on out lol. But if any of you could do this, I'd really

appreciate it, just send me a note - telling the symptoms and dangers of

VEDS and/or EDS and how it affects your lives.

>

> Thanks much in Advance!

> Hugsssssssss TJ

>

>

>

>

[Guest guest]

Hi TJ

I would do anything to help you out, except I can't be where you are.

I would certainly be willing to write a letter/email, however I myself do

not have any pain issues. Right at the moment VEDS is not affecting me

phsyically. It has kicked the crap out of me emotionally and my life will

never be the same again due to Danny's death and also because I think

everday if this is going to be my last. Just let me know what I can do.

Betty

Late in asking -- buttttttttt have till June 4th

> Now there is another upcoming hearing stating that we have to have another

> go again and because I am on state aid for time being till hopefully SSI

> comes thru- my lawyer suggested I get someone from support group to come

in

> with me at the hearing to tell the symptoms and the dangers of VEDS.......

> Now anyone here willing to come to court with me? Mercy- how do I do

that?

> She said ,,,, not your doctor but someone hopefully from a support

> group......

>

>

> I wrote the above a while back and just found it as I was putting stuff

together for the upcoming hearing- some said they would be glad

> to write me an e-mail hearing how EDS- VEDS symtpoms and dangers were

affecting them so that I could take them along to court with me- I would

really

> appreciate it if any of you are able to still do that- as that date is too

fast approaching and I want to be able to be prepared if necessary ....

Especially now that my x married a nurse who claims to know allllllllllll

about it....... uhhuh- yet she had to ask my son what it was a few times and

his dad didn't even know or remember- and he was GIVEN PAPERS at the last

hearing in case of Dakota inheriting it ..... grrrrrrrrrrrrrr @ him.

>

> Anyhow- don't mean to get into the anger session of that twit again oooops

that just slipped on out lol. But if any of you could do this, I'd really

appreciate it, just send me a note - telling the symptoms and dangers of

VEDS and/or EDS and how it affects your lives.

>

> Thanks much in Advance!

> Hugsssssssss TJ

>

>

>

>

[Guest guest]

Hi TJ

I would do anything to help you out, except I can't be where you are.

I would certainly be willing to write a letter/email, however I myself do

not have any pain issues. Right at the moment VEDS is not affecting me

phsyically. It has kicked the crap out of me emotionally and my life will

never be the same again due to Danny's death and also because I think

everday if this is going to be my last. Just let me know what I can do.

Betty

Late in asking -- buttttttttt have till June 4th

> Now there is another upcoming hearing stating that we have to have another

> go again and because I am on state aid for time being till hopefully SSI

> comes thru- my lawyer suggested I get someone from support group to come

in

> with me at the hearing to tell the symptoms and the dangers of VEDS.......

> Now anyone here willing to come to court with me? Mercy- how do I do

that?

> She said ,,,, not your doctor but someone hopefully from a support

> group......

>

>

> I wrote the above a while back and just found it as I was putting stuff

together for the upcoming hearing- some said they would be glad

> to write me an e-mail hearing how EDS- VEDS symtpoms and dangers were

affecting them so that I could take them along to court with me- I would

really

> appreciate it if any of you are able to still do that- as that date is too

fast approaching and I want to be able to be prepared if necessary ....

Especially now that my x married a nurse who claims to know allllllllllll

about it....... uhhuh- yet she had to ask my son what it was a few times and

his dad didn't even know or remember- and he was GIVEN PAPERS at the last

hearing in case of Dakota inheriting it ..... grrrrrrrrrrrrrr @ him.

>

> Anyhow- don't mean to get into the anger session of that twit again oooops

that just slipped on out lol. But if any of you could do this, I'd really

appreciate it, just send me a note - telling the symptoms and dangers of

VEDS and/or EDS and how it affects your lives.

>

> Thanks much in Advance!

> Hugsssssssss TJ

>

>

>

>

[Guest guest]

This is perfect right here Betty- Goes to show that pain factor does affect some

and not in others- drs - courts-nurses- everyone really do need to see that

everyone is different and should be treated individually rather than given the

same medications another is on for the diagnosis. Thank you very much- I will

print and add this to my folder as well. Hugsss and God Bless- Love TJ

Late in asking -- buttttttttt have till June 4th

> Now there is another upcoming hearing stating that we have to have another

> go again and because I am on state aid for time being till hopefully SSI

> comes thru- my lawyer suggested I get someone from support group to come

in

> with me at the hearing to tell the symptoms and the dangers of VEDS.......

> Now anyone here willing to come to court with me? Mercy- how do I do

that?

> She said ,,,, not your doctor but someone hopefully from a support

> group......

>

>

> I wrote the above a while back and just found it as I was putting stuff

together for the upcoming hearing- some said they would be glad

> to write me an e-mail hearing how EDS- VEDS symtpoms and dangers were

affecting them so that I could take them along to court with me- I would

really

> appreciate it if any of you are able to still do that- as that date is too

fast approaching and I want to be able to be prepared if necessary ....

Especially now that my x married a nurse who claims to know allllllllllll

about it....... uhhuh- yet she had to ask my son what it was a few times and

his dad didn't even know or remember- and he was GIVEN PAPERS at the last

hearing in case of Dakota inheriting it ..... grrrrrrrrrrrrrr @ him.

>

> Anyhow- don't mean to get into the anger session of that twit again oooops

that just slipped on out lol. But if any of you could do this, I'd really

appreciate it, just send me a note - telling the symptoms and dangers of

VEDS and/or EDS and how it affects your lives.

>

> Thanks much in Advance!

> Hugsssssssss TJ

>

>

>

>