Re: In a Bad Bad BAD Relapse - Cait

[Guest guest]

Thanks Cait. I just hate this oh so much.

Amy

..I'm so sorry about your relapse Amy . But please don't be so down on yourself for stopping the copaxone. Who's to say it wouldn't have happened if you hadn't and anyway, beating yourself up just adds stress. Try to think 'just 5 days, then 4, etc' ... hugs, Cait

In a Bad Bad BAD Relapse

Well, this hasn't happened in several years but I went to my neurologist this afternoon to get the results of my annual MRI and the news was awful. Apparently my MRI with contrast lit up like a Christmas tree and I've got new damage in numerous parts of my brain. So I've got to have 5 days of solu-medral drip. This sucks, solu-medrol makes me so sick. I almost would prefer to stay in the relapse! This is what I get for skipping my Copaxone shot for months at a time. Incredibly, I'm one of the 38% of people the stinking shot actually helps. That's baffling considering my usual awful odds. So I'm a little angry at myself over this because next week is going to be in and out of the hospital getting my veins pumped full of hell in a bag. Just had to vent. So my advice to those with RRMS, seriously, no matter what you read on statistics about any medicine you're on, don't skip it.

Amy

[Guest guest]

I had a bad relapse after skipping Betaseron injections and I really beat myself up about it. My neuro said the two aren't connected and that I most likely would've had the relapse anyway.Amy, can you do oral steroids? I've had both oral and IV - IV knock me for a loop BIGTIME, oral lets me go about my day-to-day activities with no side effects.To: MSersLife Sent: Tuesday, July 19, 2011 4:24 AMSubject: Re: In a Bad Bad BAD Relapse - Cait

Thanks Cait. I just hate this oh so much.

Amy

..I'm so sorry about your relapse Amy . But please don't be so down on yourself for stopping the copaxone. Who's to say it wouldn't have happened if you hadn't and anyway, beating yourself up just adds stress. Try to think 'just 5 days, then 4, etc' ... hugs, Cait

In a Bad Bad BAD Relapse

Well, this hasn't happened in several years but I went to my neurologist this afternoon to get the results of my annual MRI and the news was awful. Apparently my MRI with contrast lit up like a Christmas tree and I've got new damage in numerous parts of my brain. So I've got to have 5 days of solu-medral drip. This sucks, solu-medrol makes me so sick. I almost would prefer to stay in the relapse! This is what I get for skipping my Copaxone shot for months at a time. Incredibly, I'm one of the 38% of people the stinking shot actually helps. That's baffling considering my usual awful odds. So I'm a little angry at myself over this because next week is going to be in and out of the hospital getting my veins pumped full of hell in a bag. Just had to vent. So my advice to those with RRMS, seriously, no matter what you read on statistics about any medicine you're on, don't skip it.

Amy

[Guest guest]

I also take the oral stuff--prednisone--when I have an MS flare or bout of TN. It works for me and I don't feel horrible for the "cure".hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: "MSersLife " <MSersLife >Sent: Tue, July 19, 2011 3:39:05 PMSubject: Re: In a Bad Bad BAD Relapse - Cait

I had a bad relapse after skipping Betaseron injections and I really beat myself up about it. My neuro said the two aren't connected and that I most likely would've had the relapse anyway.Amy, can you do oral steroids? I've had both oral and IV - IV knock me for a loop BIGTIME, oral lets me go about my day-to-day activities with no side effects.To: MSersLife Sent: Tuesday, July 19, 2011 4:24 AMSubject: Re: In a Bad Bad BAD Relapse - Cait

Thanks Cait. I just hate this oh so much.

Amy

..I'm so sorry about your relapse Amy . But please don't be so down on yourself for stopping the copaxone. Who's to say it wouldn't have happened if you hadn't and anyway, beating yourself up just adds stress. Try to think 'just 5 days, then 4, etc' ... hugs, Cait

In a Bad Bad BAD Relapse

Well, this hasn't happened in several years but I went to my neurologist this afternoon to get the results of my annual MRI and the news was awful. Apparently my MRI with contrast lit up like a Christmas tree and I've got new damage in numerous parts of my brain. So I've got to have 5 days of solu-medral drip. This sucks, solu-medrol makes me so sick. I almost would prefer to stay in the relapse! This is what I get for skipping my Copaxone shot for months at a time. Incredibly, I'm one of the 38% of people the stinking shot actually helps. That's baffling considering my usual awful odds. So I'm a little angry at myself over this because next week is going to be in and out of the hospital getting my veins pumped full of hell in a bag. Just had to vent. So my advice to those with RRMS, seriously, no matter what you read on statistics about any medicine you're on, don't skip it.

Amy

[Guest guest]

I also take the oral stuff--prednisone--when I have an MS flare or bout of TN. It works for me and I don't feel horrible for the "cure".hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: "MSersLife " <MSersLife >Sent: Tue, July 19, 2011 3:39:05 PMSubject: Re: In a Bad Bad BAD Relapse - Cait

I had a bad relapse after skipping Betaseron injections and I really beat myself up about it. My neuro said the two aren't connected and that I most likely would've had the relapse anyway.Amy, can you do oral steroids? I've had both oral and IV - IV knock me for a loop BIGTIME, oral lets me go about my day-to-day activities with no side effects.To: MSersLife Sent: Tuesday, July 19, 2011 4:24 AMSubject: Re: In a Bad Bad BAD Relapse - Cait

Thanks Cait. I just hate this oh so much.

Amy

..I'm so sorry about your relapse Amy . But please don't be so down on yourself for stopping the copaxone. Who's to say it wouldn't have happened if you hadn't and anyway, beating yourself up just adds stress. Try to think 'just 5 days, then 4, etc' ... hugs, Cait

In a Bad Bad BAD Relapse

Well, this hasn't happened in several years but I went to my neurologist this afternoon to get the results of my annual MRI and the news was awful. Apparently my MRI with contrast lit up like a Christmas tree and I've got new damage in numerous parts of my brain. So I've got to have 5 days of solu-medral drip. This sucks, solu-medrol makes me so sick. I almost would prefer to stay in the relapse! This is what I get for skipping my Copaxone shot for months at a time. Incredibly, I'm one of the 38% of people the stinking shot actually helps. That's baffling considering my usual awful odds. So I'm a little angry at myself over this because next week is going to be in and out of the hospital getting my veins pumped full of hell in a bag. Just had to vent. So my advice to those with RRMS, seriously, no matter what you read on statistics about any medicine you're on, don't skip it.

Amy