Re: Gilenya and Tysabri....Re: From Dan: My Update

[Guest guest]

I'm in the "washout" phase :-)Last Betaseron shot was a week ago, first dose observation for Gilenya is a week from today. Guess I'm not much help either, but I'll keep you posted!Subject: Gilenya and Tysabri....Re: From Dan: My UpdateTo: MSersLife Date: Tuesday, July 19, 2011, 1:42 PM

Good luck Dan with making the right choices for your body. Are you off LDN now? There are several on the group who are on Tysabri and several on Gilenya. I can't remember which member had information about both. My memory is bad but I do recall you can be on one and then go to other but not the opposite. LOL... now that helped, didn't it? hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or

defects. To: mserslife Sent: Tue, July 19, 2011 9:31:36 AMSubject: From Dan: My

Update

Hi, y'all:

I went in for a neck MRI a week ago when I reported some new symptoms to my neuro. It turns out there is new activity on the C2 area of the spine. So, I will go back onto a DMT soon. I had been on Copaxone for 4 years but that didn't slow the relapses. Then, I was taking LDN for 1 1/2 years with no slow down in progression. We narrowed our next choices to tysabri or Gilenya (fingolimod).

Anyone here on Gilenya? Any comments on it? I think Kate is on tysabri. Anyone else?Dan U dao_nguu@...

[Guest guest]

I'm in the "washout" phase :-)Last Betaseron shot was a week ago, first dose observation for Gilenya is a week from today. Guess I'm not much help either, but I'll keep you posted!Subject: Gilenya and Tysabri....Re: From Dan: My UpdateTo: MSersLife Date: Tuesday, July 19, 2011, 1:42 PM

Good luck Dan with making the right choices for your body. Are you off LDN now? There are several on the group who are on Tysabri and several on Gilenya. I can't remember which member had information about both. My memory is bad but I do recall you can be on one and then go to other but not the opposite. LOL... now that helped, didn't it? hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or

defects. To: mserslife Sent: Tue, July 19, 2011 9:31:36 AMSubject: From Dan: My

Update

Hi, y'all:

I went in for a neck MRI a week ago when I reported some new symptoms to my neuro. It turns out there is new activity on the C2 area of the spine. So, I will go back onto a DMT soon. I had been on Copaxone for 4 years but that didn't slow the relapses. Then, I was taking LDN for 1 1/2 years with no slow down in progression. We narrowed our next choices to tysabri or Gilenya (fingolimod).

Anyone here on Gilenya? Any comments on it? I think Kate is on tysabri. Anyone else?Dan U dao_nguu@...

[Guest guest]

YOu can go from Tysabri to Gilenya, but not Gilenya to Tysabri, because Gilenya is considered an immunosuppresant - which greatly increases your risk of PML if you are JC +.  I'm going to be starting Tysabri soon.  I see my doc next Monday and start the copaxone washout period, but I don't know how long it has to be.

Tina

 

Good luck Dan with making the right choices for your body.  Are you off LDN now?  There are several on the group who are on Tysabri and several on Gilenya.  I can't remember which member had information about both.  My memory is bad but I do recall you can be on one and then go to other but not the opposite.  LOL... now that helped, didn't it? 

hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or

defects. 

 

To: mserslife

Sent: Tue, July 19, 2011 9:31:36 AMSubject: From Dan: My

Update

Hi, y'all:

 

I went in for a neck MRI a week ago when I reported some new symptoms to my neuro. It turns out there is new activity on the C2 area of the spine. So, I will go back onto a DMT soon. I had been on Copaxone for 4 years but that didn't slow the relapses. Then, I was taking LDN for 1 1/2 years with no slow down in progression. We narrowed our next choices to tysabri or Gilenya (fingolimod).

 

Anyone here on Gilenya? Any comments on it? I think Kate is on tysabri. Anyone else?Dan U dao_nguu@... 

 

[Guest guest]

Thank you Tina. That's what I was trying to remember for Dan!hugs to you SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Tue, July 19, 2011 3:44:14 PMSubject: Re: Gilenya and Tysabri....Re: From Dan: My Update

YOu can go from Tysabri to Gilenya, but not Gilenya to Tysabri, because Gilenya is considered an immunosuppresant - which greatly increases your risk of PML if you are JC +. I'm going to be starting Tysabri soon. I see my doc next Monday and start the copaxone washout period, but I don't know how long it has to be.

Tina

Good luck Dan with making the right choices for your body. Are you off LDN now? There are several on the group who are on Tysabri and several on Gilenya. I can't remember which member had information about both. My memory is bad but I do recall you can be on one and then go to other but not the opposite. LOL... now that helped, didn't it?

hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or

defects.

To: mserslife

Sent: Tue, July 19, 2011 9:31:36 AMSubject: From Dan: My

Update

Hi, y'all:

I went in for a neck MRI a week ago when I reported some new symptoms to my neuro. It turns out there is new activity on the C2 area of the spine. So, I will go back onto a DMT soon. I had been on Copaxone for 4 years but that didn't slow the relapses. Then, I was taking LDN for 1 1/2 years with no slow down in progression. We narrowed our next choices to tysabri or Gilenya (fingolimod).

Anyone here on Gilenya? Any comments on it? I think Kate is on tysabri. Anyone else?Dan U dao_nguu@...

[Guest guest]

Thank you Tina. That's what I was trying to remember for Dan!hugs to you SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Tue, July 19, 2011 3:44:14 PMSubject: Re: Gilenya and Tysabri....Re: From Dan: My Update

YOu can go from Tysabri to Gilenya, but not Gilenya to Tysabri, because Gilenya is considered an immunosuppresant - which greatly increases your risk of PML if you are JC +. I'm going to be starting Tysabri soon. I see my doc next Monday and start the copaxone washout period, but I don't know how long it has to be.

Tina

Good luck Dan with making the right choices for your body. Are you off LDN now? There are several on the group who are on Tysabri and several on Gilenya. I can't remember which member had information about both. My memory is bad but I do recall you can be on one and then go to other but not the opposite. LOL... now that helped, didn't it?

hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or

defects.

To: mserslife

Sent: Tue, July 19, 2011 9:31:36 AMSubject: From Dan: My

Update

Hi, y'all:

I went in for a neck MRI a week ago when I reported some new symptoms to my neuro. It turns out there is new activity on the C2 area of the spine. So, I will go back onto a DMT soon. I had been on Copaxone for 4 years but that didn't slow the relapses. Then, I was taking LDN for 1 1/2 years with no slow down in progression. We narrowed our next choices to tysabri or Gilenya (fingolimod).

Anyone here on Gilenya? Any comments on it? I think Kate is on tysabri. Anyone else?Dan U dao_nguu@...

[Guest guest]

Hi, Tina:

Do you know the source of the information that one can go from tysabri to gilenya but not vice versa? My nurse practitioner at UCSF couldn't find anything about this. However, she does know about JC+ being a risk for PML. And, if I decide to go on tysabri, they will screen me for it first.Dan U dao_nguu@...

To: MSersLife From: spydre74@...Date: Tue, 19 Jul 2011 17:44:14 -0500Subject: Re: Gilenya and Tysabri....Re: From Dan: My Update

YOu can go from Tysabri to Gilenya, but not Gilenya to Tysabri, because Gilenya is considered an immunosuppresant - which greatly increases your risk of PML if you are JC +. I'm going to be starting Tysabri soon. I see my doc next Monday and start the copaxone washout period, but I don't know how long it has to be.Tina

[Guest guest]

My doctor told me, and she had this chart that showed how the risk of PML increases once you've been on an immunosuppressant.  I think it's even in the information that they hand out - that the risk is higher after immunosuppression. 

Tina

 

Hi, Tina:

 

Do you know the source of the information that one can go from tysabri to gilenya but not vice versa? My nurse practitioner at UCSF couldn't find anything about this. However, she does know about JC+ being a risk for PML. And, if I decide to go on tysabri, they will screen me for it first.

Dan U dao_nguu@... 

To: MSersLife From: spydre74@...Date: Tue, 19 Jul 2011 17:44:14 -0500

Subject: Re: Gilenya and Tysabri....Re: From Dan: My Update

 

YOu can go from Tysabri to Gilenya, but not Gilenya to Tysabri, because Gilenya is considered an immunosuppresant - which greatly increases your risk of PML if you are JC +.  I'm going to be starting Tysabri soon.  I see my doc next Monday and start the copaxone washout period, but I don't know how long it has to be.

Tina

 

[Guest guest]

Hi Dan! Good to see you. Didn't know you were perhaps going on Ty. I found it quite helpful. If you have any questions about it let me know. Hugs to you and WhisperKateiSent from my iPad

Hi, Tina:

Do you know the source of the information that one can go from tysabri to gilenya but not vice versa? My nurse practitioner at UCSF couldn't find anything about this. However, she does know about JC+ being a risk for PML. And, if I decide to go on tysabri, they will screen me for it first.Dan U dao_nguu@...

To: MSersLife From: spydre74@...Date: Tue, 19 Jul 2011 17:44:14 -0500Subject: Re: Gilenya and Tysabri....Re: From Dan: My Update

YOu can go from Tysabri to Gilenya, but not Gilenya to Tysabri, because Gilenya is considered an immunosuppresant - which greatly increases your risk of PML if you are JC +. I'm going to be starting Tysabri soon. I see my doc next Monday and start the copaxone washout period, but I don't know how long it has to be.Tina

[Guest guest]

Hi Dan! Good to see you. Didn't know you were perhaps going on Ty. I found it quite helpful. If you have any questions about it let me know. Hugs to you and WhisperKateiSent from my iPad

Hi, Tina:

Do you know the source of the information that one can go from tysabri to gilenya but not vice versa? My nurse practitioner at UCSF couldn't find anything about this. However, she does know about JC+ being a risk for PML. And, if I decide to go on tysabri, they will screen me for it first.Dan U dao_nguu@...

To: MSersLife From: spydre74@...Date: Tue, 19 Jul 2011 17:44:14 -0500Subject: Re: Gilenya and Tysabri....Re: From Dan: My Update

YOu can go from Tysabri to Gilenya, but not Gilenya to Tysabri, because Gilenya is considered an immunosuppresant - which greatly increases your risk of PML if you are JC +. I'm going to be starting Tysabri soon. I see my doc next Monday and start the copaxone washout period, but I don't know how long it has to be.Tina