seeing the vascular dr

[Guest guest]

Hi all,

I just saw the vascular surgeon today for a consultation. I have nothing wrong,

but I am trying to proactive in my own health care and I took everyones

suggestion and got myself an appointment. He is a very nice guy, he also happens

to be the director of the vascular department. He knew something about VEDS, but

not nearly enough. I handed him the Emergency room CD for VEDS and he was very

appreciative of that. We talked about what tests to have routinely and now that

I think of what he said ...he was bang on. I have an abdominal CT booked for

next week which he is changing to a full aortic as if it was just the ab CT he

would only see a percentage of the aorta. Makes sense to me. I guess that is the

difference between a specialist and the GP. It still blows me away that even he

(the specialist) says you don't look like an ED patient re: lack of stretchy

skin etc. URGHHHHHHHH! Neither my late son or I really showed any outside

physical characteristics of EDS. Nonetheless we still tested positive for VEDS.

We have not heard about our other son yet.

On another subject .....I have talked to a few of you about myself going to see

a medium. (Skeptics and I know there are some of you out there, keep an open

mind). It was an extremely positive experience for my husband & I and we really

felt connected to our son. I have to admit that both my husband & I still have

some doubts, but some of the things she told us...Whew!!! How could she know????

For instance 2 days before we went there I recieved a phone call from a teacher

of my late sons saying he was thinking about us (on the 1st anniversary of

Danny's death) and he wanted to tell us what he thought of Danny, how much he

missed him etc. Well the medium said just that... you recieved aphone call from

a male teacher of your sons. There is no way she could have known that. First of

all I only told my son, husband & sister that lives 2000 miles away about the

phone call and the medium doesn't even have our last name or home number, just

my cell phone number. She also described a few things the night of Danny's death

etc. Anywway just wanted to share a few of those things.

Oh yeah .....one more thing about the vascular doc...he said I should take Udos

oil (I think that is how you spell it.), and he also wants to put me on an

antibiotic for all the time, I think it is something like a tetracycline but it

begins with D. It is supposed to help strengthen the aortic walls. Has anybody

heard of either of these two things (the oil is supposed to be really good for

the vascular system

Thanks as always for listening.

Betty