RE: Checking in myself

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Tina I am so sorry you are feeling so bad. You will remain in my prayers.

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> Checking in myself

>

> Okay, so we know I have a UTI, even if it's just slight. I may or may

> not

> be having a flare with it. But if it's a UTI only, slight or not, it's

> the

> first time I've ever had to use my cane during a UTI. Thursday night, I

> started having major balance problems, along with spasticity and feeling

> like I was hit with a truck, as well as normal MS flare symptoms.

> Yesterday, the feeling like I was hit by a truck wasn't as bad, but got

> worse the longer I was up. By the time we went to bed, I was using the

> cane

> again. Today, it's going to be 95 degrees, and we have a family get

> together over at my in-law's house. They don't have enough seating for

> all

> of us, so I imagine we'll be spending part of the time outside (cooling

> vest

> and bandana ready to go). I'm taking the cane as a just in case measure

> -

> rather I'm using the cane today as a just in case measure, especially

> once I

> get hot. I have no clue what time we are going to get out of there, but

> I

> know hubby has already told my in-laws that I'm sick and can't handle

> much.

> The bright spot is hubby's aunt might be there, and hubby's brother and

> his

> third wife will be there, and I just adore his wife. Of course my nephew

> will be there, possibly with his girlfriend, but as he's 17, almost 18, I

> can't cuddle him anymore. My Fiorecet, my flexeril, and my klonopin

> are

> in my purse in case I need them. I was hurting so bad when I got up this

> morning I had to grit my teeth and take a hot shower (after only about 6

> hours of sleep). It helped my back, but my other symptoms got worse

> because

> of it.

>

> This is what's getting me down today, I guess. This has been a year of

> firsts, or a somewhat remarkable year for my MS. The first flare in 14

> months in January; a new flare in May - and a UTI right in the middle of

> it;

> I've never had to use the cane because of the heat before, yet this year

> I

> did; and this is the first time I've had to use the cane because of

> either a

> UTI or a flare.

>

> I know the Tysabri won't deal with existing symptoms - but god I'm hoping

> that it will settle my system down enough so that some damage can heal on

> its own. Since I started this antibiotic, some things have gotten

> better.....but most of the MS symptoms have stayed the same. Last time I

> had a UTI after 24 hours on the antibiotic its influence on my symptoms

> was

> gone.

>

> Tina

>

> Sorry, not feeling really great today, just venting.

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[Guest guest]

TinaI'm sorry it's been such a year of "firsts" with your MS. That's pretty crappy, isn't it? Keep your chin up. Kate had really good results from Tysabri. There's no reason you won't have equally excellent results!! Let's keep our fingers crossed!hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: mserslife <mserslife >Sent: Saturday, August 27, 2011 1:47 PMSubject: Checking in myself

Okay, so we know I have a UTI, even if it's just slight. I may or may not be having a flare with it. But if it's a UTI only, slight or not, it's the first time I've ever had to use my cane during a UTI. Thursday night, I started having major balance problems, along with spasticity and feeling like I was hit with a truck, as well as normal MS flare symptoms. Yesterday, the feeling like I was hit by a truck wasn't as bad, but got worse the longer I was up. By the time we went to bed, I was using the cane again. Today, it's going to be 95 degrees, and we have a family get together over at my in-law's house. They don't have enough seating for all of us, so I imagine we'll be spending part of the time outside (cooling vest and bandana ready to go). I'm taking the cane as a just in case measure - rather I'm using the cane today as a just in case measure, especially once I get hot. I have no clue what time

we are going to get out of there, but I know hubby has already told my in-laws that I'm sick and can't handle much. The bright spot is hubby's aunt might be there, and hubby's brother and his third wife will be there, and I just adore his wife. Of course my nephew will be there, possibly with his girlfriend, but as he's 17, almost 18, I can't cuddle him anymore. My Fiorecet, my flexeril, and my klonopin are in my purse in case I need them. I was hurting so bad when I got up this morning I had to grit my teeth and take a hot shower (after only about 6 hours of sleep). It helped my back, but my other symptoms got worse because of it.

This is what's getting me down today, I guess. This has been a year of firsts, or a somewhat remarkable year for my MS. The first flare in 14 months in January; a new flare in May - and a UTI right in the middle of it; I've never had to use the cane because of the heat before, yet this year I did; and this is the first time I've had to use the cane because of either a UTI or a flare.

I know the Tysabri won't deal with existing symptoms - but god I'm hoping that it will settle my system down enough so that some damage can heal on its own. Since I started this antibiotic, some things have gotten better.....but most of the MS symptoms have stayed the same. Last time I had a UTI after 24 hours on the antibiotic its influence on my symptoms was gone.

TinaSorry, not feeling really great today, just venting.

[Guest guest]

TinaI'm sorry it's been such a year of "firsts" with your MS. That's pretty crappy, isn't it? Keep your chin up. Kate had really good results from Tysabri. There's no reason you won't have equally excellent results!! Let's keep our fingers crossed!hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: mserslife <mserslife >Sent: Saturday, August 27, 2011 1:47 PMSubject: Checking in myself

Okay, so we know I have a UTI, even if it's just slight. I may or may not be having a flare with it. But if it's a UTI only, slight or not, it's the first time I've ever had to use my cane during a UTI. Thursday night, I started having major balance problems, along with spasticity and feeling like I was hit with a truck, as well as normal MS flare symptoms. Yesterday, the feeling like I was hit by a truck wasn't as bad, but got worse the longer I was up. By the time we went to bed, I was using the cane again. Today, it's going to be 95 degrees, and we have a family get together over at my in-law's house. They don't have enough seating for all of us, so I imagine we'll be spending part of the time outside (cooling vest and bandana ready to go). I'm taking the cane as a just in case measure - rather I'm using the cane today as a just in case measure, especially once I get hot. I have no clue what time

we are going to get out of there, but I know hubby has already told my in-laws that I'm sick and can't handle much. The bright spot is hubby's aunt might be there, and hubby's brother and his third wife will be there, and I just adore his wife. Of course my nephew will be there, possibly with his girlfriend, but as he's 17, almost 18, I can't cuddle him anymore. My Fiorecet, my flexeril, and my klonopin are in my purse in case I need them. I was hurting so bad when I got up this morning I had to grit my teeth and take a hot shower (after only about 6 hours of sleep). It helped my back, but my other symptoms got worse because of it.

This is what's getting me down today, I guess. This has been a year of firsts, or a somewhat remarkable year for my MS. The first flare in 14 months in January; a new flare in May - and a UTI right in the middle of it; I've never had to use the cane because of the heat before, yet this year I did; and this is the first time I've had to use the cane because of either a UTI or a flare.

I know the Tysabri won't deal with existing symptoms - but god I'm hoping that it will settle my system down enough so that some damage can heal on its own. Since I started this antibiotic, some things have gotten better.....but most of the MS symptoms have stayed the same. Last time I had a UTI after 24 hours on the antibiotic its influence on my symptoms was gone.

TinaSorry, not feeling really great today, just venting.

[Guest guest]

Not a pity party, completely justified.

Hugs

Akiba

 

Oh, and I think the worst part of what has been going on

hasn't been sinking in very clearly until now.  I'm slowly

having more and more problems typing accurately.  It's a

small thing, I know, but something I prided myself on. 

First it was just missed letters here and there, and now

there are weird wiring errors, too, like typing a letter

with your left hand that has the same numbering and

position that that correct letter on your right hand would

be, and transposing letters all the time.

I guess I'm on a pity party this time through. 

On Sat, Aug 27, 2011 at 8:22 PM,

Sharon

wrote:

 

Tina

I'm sorry it's been such a year of

"firsts" with your MS.  That's pretty

crappy, isn't it?  Keep your chin up. 

Kate had really good results from

Tysabri.  There's no reason you won't have

equally excellent results!!  Let's keep

our fingers crossed!

hugs

 

Sharon

This email is a natural hand

made product. The slight variations in

spelling and grammar enhance its

individual character and beauty and in

no way are to be considered flaws or

defects.

 

 

From:

Tina Schmidt

To:

mserslife <mserslife >

Sent:

Saturday, August 27, 2011 1:47 PM

Subject:

Checking in myself

Okay, so we know I have a UTI, even

if it's just slight.  I may or may

not be having a flare with it.  But

if it's a UTI only, slight or not,

it's the first time I've ever had to

use my cane during a UTI.  Thursday

night, I started having major

balance problems, along with

spasticity and feeling like I was

hit with a truck, as well as normal

MS flare symptoms.  Yesterday, the

feeling like I was hit by a truck

wasn't as bad, but got worse the

longer I was up.  By the time we

went to bed, I was using the cane

again.  Today, it's going to be 95

degrees, and we have a family get

together over at my in-law's house. 

They don't have enough seating for

all of us, so I imagine we'll be

spending part of the time outside

(cooling vest and bandana ready to

go).  I'm taking the cane as a just

in case measure - rather I'm using

the cane today as a just in case

measure, especially once I get hot. 

I have no clue what time we are

going to get out of there, but I

know hubby has already told my

in-laws that I'm sick and can't

handle much.  The bright spot is

hubby's aunt might be there, and

hubby's brother and his third wife

will be there, and I just adore his

wife.  Of course my nephew will be

there, possibly with his girlfriend,

but as he's 17, almost 18, I can't

cuddle him anymore.    My

Fiorecet, my flexeril, and my

klonopin are in my purse in case I

need them.  I was hurting so bad

when I got up this morning I had to

grit my teeth and take a hot shower

(after only about 6 hours of

sleep).  It helped my back, but my

other symptoms got worse because of

it.

This is what's getting me down

today, I guess.  This has been a

year of firsts, or a somewhat

remarkable year for my MS.  The

first flare in 14 months in January;

a new flare in May - and a UTI right

in the middle of it; I've never had

to use the cane because of the heat

before, yet this year I did; and

this is the first time I've had to

use the cane because of either a UTI

or a flare.

I know the Tysabri won't deal with

existing symptoms - but god I'm

hoping that it will settle my system

down enough so that some damage can

heal on its own.  Since I started

this antibiotic, some things have

gotten better.....but most of the MS

symptoms have stayed the same.  Last

time I had a UTI after 24 hours on

the antibiotic its influence on my

symptoms was gone.

Tina

Sorry, not feeling really great

today, just venting.

[Guest guest]

Not a pity party, completely justified.

Hugs

Akiba

 

Oh, and I think the worst part of what has been going on

hasn't been sinking in very clearly until now.  I'm slowly

having more and more problems typing accurately.  It's a

small thing, I know, but something I prided myself on. 

First it was just missed letters here and there, and now

there are weird wiring errors, too, like typing a letter

with your left hand that has the same numbering and

position that that correct letter on your right hand would

be, and transposing letters all the time.

I guess I'm on a pity party this time through. 

On Sat, Aug 27, 2011 at 8:22 PM,

Sharon

wrote:

 

Tina

I'm sorry it's been such a year of

"firsts" with your MS.  That's pretty

crappy, isn't it?  Keep your chin up. 

Kate had really good results from

Tysabri.  There's no reason you won't have

equally excellent results!!  Let's keep

our fingers crossed!

hugs

 

Sharon

This email is a natural hand

made product. The slight variations in

spelling and grammar enhance its

individual character and beauty and in

no way are to be considered flaws or

defects.

 

 

From:

Tina Schmidt

To:

mserslife <mserslife >

Sent:

Saturday, August 27, 2011 1:47 PM

Subject:

Checking in myself

Okay, so we know I have a UTI, even

if it's just slight.  I may or may

not be having a flare with it.  But

if it's a UTI only, slight or not,

it's the first time I've ever had to

use my cane during a UTI.  Thursday

night, I started having major

balance problems, along with

spasticity and feeling like I was

hit with a truck, as well as normal

MS flare symptoms.  Yesterday, the

feeling like I was hit by a truck

wasn't as bad, but got worse the

longer I was up.  By the time we

went to bed, I was using the cane

again.  Today, it's going to be 95

degrees, and we have a family get

together over at my in-law's house. 

They don't have enough seating for

all of us, so I imagine we'll be

spending part of the time outside

(cooling vest and bandana ready to

go).  I'm taking the cane as a just

in case measure - rather I'm using

the cane today as a just in case

measure, especially once I get hot. 

I have no clue what time we are

going to get out of there, but I

know hubby has already told my

in-laws that I'm sick and can't

handle much.  The bright spot is

hubby's aunt might be there, and

hubby's brother and his third wife

will be there, and I just adore his

wife.  Of course my nephew will be

there, possibly with his girlfriend,

but as he's 17, almost 18, I can't

cuddle him anymore.    My

Fiorecet, my flexeril, and my

klonopin are in my purse in case I

need them.  I was hurting so bad

when I got up this morning I had to

grit my teeth and take a hot shower

(after only about 6 hours of

sleep).  It helped my back, but my

other symptoms got worse because of

it.

This is what's getting me down

today, I guess.  This has been a

year of firsts, or a somewhat

remarkable year for my MS.  The

first flare in 14 months in January;

a new flare in May - and a UTI right

in the middle of it; I've never had

to use the cane because of the heat

before, yet this year I did; and

this is the first time I've had to

use the cane because of either a UTI

or a flare.

I know the Tysabri won't deal with

existing symptoms - but god I'm

hoping that it will settle my system

down enough so that some damage can

heal on its own.  Since I started

this antibiotic, some things have

gotten better.....but most of the MS

symptoms have stayed the same.  Last

time I had a UTI after 24 hours on

the antibiotic its influence on my

symptoms was gone.

Tina

Sorry, not feeling really great

today, just venting.

[Guest guest]

Hi Tina,Sending positive good thoughts your way...Tysabri was a life-saver for me. I used to walk witha cane, but about 4 infusions into it, I was able to walkunassisted. It was grand. I was on Ty for a bit over 2 years,and now I'm back on Copaxone. I have been forgetting myshots, mainly because I'm just so tired of every day injections--the Tysabri was

so nice as I could just float by every month.There were usually nice, friendly folks in the infusion room, andwe'd chat and share stories.My other problem with Copaxone is that I can't inject in my armsanymore; I'm too scared to. For the last few times, I hit a nerve ormuscle or something, that sends shock waves and numbness myentire arm down into my fingers. It's just awful. So, I've given upthe arms.Take care and I hope your UTI resolves

soon.Hugs,KateTo: mserslife <mserslife >Sent: Saturday, August 27, 2011 4:47 PMSubject: Checking in myself

Okay, so we know I have a UTI, even if it's just slight. I may or may not be having a flare with it. But if it's a UTI only, slight or not, it's the first time I've ever had to use my cane during a UTI. Thursday night, I started having major balance problems, along with spasticity and feeling like I was hit with a truck, as well as normal MS flare symptoms. Yesterday, the feeling like I was hit by a truck wasn't as bad, but got worse the longer I was up. By the time we went to bed, I was using the cane again. Today, it's going to be 95 degrees, and we have a family get together over at my in-law's house. They don't have enough seating for all of us, so I imagine we'll be spending part of the time outside (cooling vest and bandana ready to go). I'm taking the cane as a just in case measure - rather I'm using the cane today as a just in case measure, especially once I get hot. I have no clue

what time we are going to get out of there, but I know hubby has already told my in-laws that I'm sick and can't handle much. The bright spot is hubby's aunt might be there, and hubby's brother and his third wife will be there, and I just adore his wife. Of course my nephew will be there, possibly with his girlfriend, but as he's 17, almost 18, I can't cuddle him anymore. My Fiorecet, my flexeril, and my klonopin are in my purse in case I need them. I was hurting so bad when I got up this morning I had to grit my teeth and take a hot shower (after only about 6 hours of sleep). It helped my back, but my other symptoms got worse because of it.

This is what's getting me down today, I guess. This has been a year of firsts, or a somewhat remarkable year for my MS. The first flare in 14 months in January; a new flare in May - and a UTI right in the middle of it; I've never had to use the cane because of the heat before, yet this year I did; and this is the first time I've had to use the cane because of either a UTI or a flare.

I know the Tysabri won't deal with existing symptoms - but god I'm hoping that it will settle my system down enough so that some damage can heal on its own. Since I started this antibiotic, some things have gotten better.....but most of the MS symptoms have stayed the same. Last time I had a UTI after 24 hours on the antibiotic its influence on my symptoms was gone.

TinaSorry, not feeling really great today, just venting.

[Guest guest]

I think it's wonderful your mother-in-law tries to help. I imagine the 'hovering' is annoying though.hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Saturday, August 27, 2011 7:03 PMSubject: Re: Checking in myself

Thanks. Tonight was meh. My mother in law was hovering over me wanting to sit in the "lift chair" which is uncomfortable as all heck - I said no and sat on the comfy couch until dinner. And then when I went outside she was on me to use the ramp rather than the stairs. I use the stairs at home, there's no reason to stop now. It was nice seeing hubby's aunt again, and my brother and sister in law, we had a good time with them. But the "perfect reason" to leave early, of course hubby didn't take advantage of, even when I had to take my painkillers, and we were the last ones to leave. By now the muscles in my left leg are spasming so badly, and in my right ankle, too. The numbness is going down a bit in my hand, so hopefully the rest of this stuff will go away, too.

Tina

TinaI'm sorry it's been such a year of "firsts" with your MS. That's pretty crappy, isn't it? Keep your chin up. Kate had really good results from Tysabri. There's no reason you won't have equally excellent results!! Let's keep our fingers crossed!

hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.