Guest guest Posted August 7, 2011 Report Share Posted August 7, 2011 Jackie I am so sorry you are in such pain. You will remain in my prayers. Hugs nne To the world you might be one person, but to one person you just might be the world " " May the Lord Bless you and keep you, May the Lord Make his face shine upon you, and give you Peace...Forever " Breast Cancer Patients Soul Mates for Life http://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancer http://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancer Angel Feather Loomer www.angelfeatherloomer.blogspot.com The Cancer Club www.cancerclub.com > High pain days > > Hi friends,.I have been having so much pain all thru-out my body for some > time now. Since I have several illnesses its hard to know which one its > coming from. I think it might be mostly from the RSD, because I have > quite a > bit of swelling and skin pain in my right leg/foot and that is typical > for > some types of RSD. [reflex sympathetic dystrophy]. My left leg and thigh > use > to be my good side but the thigh muscle [quadriceps] seems to be > weakening > and the more I use it the more painful and weak it gets. This is a new > symptom for me. I noticed it a few weeks ago how hard it was to walk back > from the fridge to my desk and make it into my chair. I hang onto a > walker > so I have some support. But man it was really painful. I also have a > disease > that develops painful lumps under my skin and connective tissue and I am > wondering if they are growing deeper to affect the muscles. That happens > as > well as they can wrap around nerves too. See what I mean about not > knowing > what's what? The Dr's don't know either which illness is causing which > symptoms. If it can be tested then they would know. This is just so > frustrating to me. I can be lying in bed and the pain in both legs all > the > way from my feet to my thighs/pelvic area is aching so bad I can't sleep. > I've now been sleeping during the day at my desk, so that makes 2 naps > now. > You would think laying down would relieve the pain, but it seems to be > worse > then. And not the parts that I'm lying on. I can only lay on my back now, > and it's the front of my body that hurts the worse. Go figure. > > Our weather has been very high humidity and low pressure, and not very > warm > but the humidity bothers me quite a bit. Tonight I can smell the swamp > like > smell from the lake and expect " Yoda " to walk thru my door any > minute...lol.inject a little humor here! J [Yoda is the little green > creature from the movie Star Wars for those not familiar with him, and he > came from a swamp] > > One thing that I was wondering, do any of you have any skin involvement > that > creates extremely dry skin? My dr. said it was Icthymotosis [sp], or > something like that. It's only in areas that are the most painful, and > all > the moisturizing doesn't seem to penetrate. > > So I guess that's my update. I just don't know what I will do if I lose > my > ability to walk altogether. Steve can take an early retirement, but the > SS > would be peanuts. L the pains in my legs are so bad I can't even get into > the shower we had modified with grab bars, to take a shower. A bath tub > is > out of the question. Too bad they don't make people washes like car > washes! > Wouldn't that be FUN! Lol.. > > Love and hugs to all, Jackie ____________________________________________________________ GET FREE SMILEYS FOR YOUR IM & EMAIL - Learn more at http://www.inbox.com/smileys Works with AIM®, MSN® Messenger, Yahoo!® Messenger, ICQ®, Google Talk™ and most webmails Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2011 Report Share Posted August 7, 2011 Thanks nne, it's always comforting to know someone is praying for you. Hugs and blessings to you, Jackie :-) High pain days > > Hi friends,.I have been having so much pain all thru-out my body for > some time now. Since I have several illnesses its hard to know which > one its coming from. I think it might be mostly from the RSD, because > I have quite a bit of swelling and skin pain in my right leg/foot and > that is typical for some types of RSD. [reflex sympathetic dystrophy]. > My left leg and thigh use to be my good side but the thigh muscle > [quadriceps] seems to be weakening and the more I use it the more > painful and weak it gets. This is a new symptom for me. I noticed it a > few weeks ago how hard it was to walk back from the fridge to my desk > and make it into my chair. I hang onto a walker so I have some > support. But man it was really painful. I also have a disease that > develops painful lumps under my skin and connective tissue and I am > wondering if they are growing deeper to affect the muscles. That > happens as well as they can wrap around nerves too. See what I mean > about not knowing what's what? The Dr's don't know either which > illness is causing which symptoms. If it can be tested then they would > know. This is just so frustrating to me. I can be lying in bed and the > pain in both legs all the way from my feet to my thighs/pelvic area is > aching so bad I can't sleep. > I've now been sleeping during the day at my desk, so that makes 2 naps > now. > You would think laying down would relieve the pain, but it seems to be > worse then. And not the parts that I'm lying on. I can only lay on my > back now, and it's the front of my body that hurts the worse. Go > figure. > > Our weather has been very high humidity and low pressure, and not very > warm but the humidity bothers me quite a bit. Tonight I can smell the > swamp like smell from the lake and expect " Yoda " to walk thru my door > any minute...lol.inject a little humor here! J [Yoda is the little > green creature from the movie Star Wars for those not familiar with > him, and he came from a swamp] > > One thing that I was wondering, do any of you have any skin > involvement that creates extremely dry skin? My dr. said it was > Icthymotosis [sp], or something like that. It's only in areas that are > the most painful, and all the moisturizing doesn't seem to penetrate. > > So I guess that's my update. I just don't know what I will do if I > lose my ability to walk altogether. Steve can take an early > retirement, but the SS would be peanuts. L the pains in my legs are so > bad I can't even get into the shower we had modified with grab bars, > to take a shower. A bath tub is out of the question. Too bad they > don't make people washes like car washes! > Wouldn't that be FUN! Lol.. > > Love and hugs to all, Jackie ____________________________________________________________ GET FREE SMILEYS FOR YOUR IM & EMAIL - Learn more at http://www.inbox.com/smileys Works with AIM®, MSN® Messenger, Yahoo!® Messenger, ICQ®, Google Talk™ and most webmails ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2011 Report Share Posted August 7, 2011 Sorry to learn you're in such awful pain! I can only pray and ask you have some relief. At least, you're able to keep a sense of humor through this.Dan U dao_nguu@... To: MSersLife From: rubyjax@...Date: Sun, 7 Aug 2011 00:50:46 -0700Subject: High pain days Hi friends,…I have been having so much pain all thru-out my body for some time now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2011 Report Share Posted August 7, 2011 Jacki, I'm sooo sorry you are going through this. One question - for the dry skin, have you tried Eucerin? It's really, well, it penetrates really well. My husband used it for his psoriasis when it's at its worst. They also have a calming wash to use in the shower. I agree that a human wash totally sounds like fun. And it would probably be a great way to cool down in the summer months. I'm guessing that when you lie on your back the reason your front hurts is the muscles tightening? As far as sleeping at you desk, I would take the sleep any way I could get it! When my skin pain acts up real bad, I can't sit on the living room furniture - so I spend my time sitting in my desk chair, as it doesn't have upholstery - it's a vinyl chair. I hope you start to feel better, and soon!Tina Hi friends,…I have been having so much pain all thru-out my body for some time now. Since I have several illnesses its hard to know which one its coming from. I think it might be mostly from the RSD, because I have quite a bit of swelling and skin pain in my right leg/foot and that is typical for some types of RSD. [reflex sympathetic dystrophy]. My left leg and thigh use to be my good side but the thigh muscle [quadriceps] seems to be weakening and the more I use it the more painful and weak it gets. This is a new symptom for me. I noticed it a few weeks ago how hard it was to walk back from the fridge to my desk and make it into my chair. I hang onto a walker so I have some support. But man it was really painful. I also have a disease that develops painful lumps under my skin and connective tissue and I am wondering if they are growing deeper to affect the muscles. That happens as well as they can wrap around nerves too. See what I mean about not knowing what’s what? The Dr’s don’t know either which illness is causing which symptoms. If it can be tested then they would know. This is just so frustrating to me. I can be lying in bed and the pain in both legs all the way from my feet to my thighs/pelvic area is aching so bad I can’t sleep. I’ve now been sleeping during the day at my desk, so that makes 2 naps now. You would think laying down would relieve the pain, but it seems to be worse then. And not the parts that I’m lying on. I can only lay on my back now, and it’s the front of my body that hurts the worse. Go figure. Our weather has been very high humidity and low pressure, and not very warm but the humidity bothers me quite a bit. Tonight I can smell the swamp like smell from the lake and expect “Yoda” to walk thru my door any minute…..lol…inject a little humor here! J [Yoda is the little green creature from the movie Star Wars for those not familiar with him, and he came from a swamp] One thing that I was wondering, do any of you have any skin involvement that creates extremely dry skin? My dr. said it was Icthymotosis [sp], or something like that. It’s only in areas that are the most painful, and all the moisturizing doesn’t seem to penetrate. So I guess that’s my update. I just don’t know what I will do if I lose my ability to walk altogether. Steve can take an early retirement, but the SS would be peanuts. L the pains in my legs are so bad I can’t even get into the shower we had modified with grab bars, to take a shower. A bath tub is out of the question. Too bad they don’t make people washes like car washes! Wouldn’t that be FUN! Lol.. Love and hugs to all, Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2011 Report Share Posted August 7, 2011 Prayers... T in WY Practical Blackwork Designs http://practicalblackwork.com http://practical-blackwork.blogspot.com " You get a wonderful view from the point of no return... " High pain days Hi friends,…I have been having so much pain all thru-out my body for some time now. Since I have several illnesses its hard to know which one its coming from. I think it might be mostly from the RSD, because I have quite a bit of swelling and skin pain in my right leg/foot and that is typical for some types of RSD. [reflex sympathetic dystrophy]. My left leg and thigh use to be my good side but the thigh muscle [quadriceps] seems to be weakening and the more I use it the more painful and weak it gets. This is a new symptom for me. I noticed it a few weeks ago how hard it was to walk back from the fridge to my desk and make it into my chair. I hang onto a walker so I have some support. But man it was really painful. I also have a disease that develops painful lumps under my skin and connective tissue and I am wondering if they are growing deeper to affect the muscles. That happens as well as they can wrap around nerves too. See what I mean about not knowing what’s what? The Dr’s don’t know either which illness is causing which symptoms. If it can be tested then they would know. This is just so frustrating to me. I can be lying in bed and the pain in both legs all the way from my feet to my thighs/pelvic area is aching so bad I can’t sleep. I’ve now been sleeping during the day at my desk, so that makes 2 naps now. You would think laying down would relieve the pain, but it seems to be worse then. And not the parts that I’m lying on. I can only lay on my back now, and it’s the front of my body that hurts the worse. Go figure. Our weather has been very high humidity and low pressure, and not very warm but the humidity bothers me quite a bit. Tonight I can smell the swamp like smell from the lake and expect “Yoda†to walk thru my door any minute…..lol…inject a little humor here! ☺ [Yoda is the little green creature from the movie Star Wars for those not familiar with him, and he came from a swamp] One thing that I was wondering, do any of you have any skin involvement that creates extremely dry skin? My dr. said it was Icthymotosis [sp], or something like that. It’s only in areas that are the most painful, and all the moisturizing doesn’t seem to penetrate. So I guess that’s my update. I just don’t know what I will do if I lose my ability to walk altogether. Steve can take an early retirement, but the SS would be peanuts. ☹ the pains in my legs are so bad I can’t even get into the shower we had modified with grab bars, to take a shower. A bath tub is out of the question. Too bad they don’t make people washes like car washes! Wouldn’t that be FUN! Lol.. Love and hugs to all, Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2011 Report Share Posted August 7, 2011 Prayers... T in WY Practical Blackwork Designs http://practicalblackwork.com http://practical-blackwork.blogspot.com " You get a wonderful view from the point of no return... " High pain days Hi friends,…I have been having so much pain all thru-out my body for some time now. Since I have several illnesses its hard to know which one its coming from. I think it might be mostly from the RSD, because I have quite a bit of swelling and skin pain in my right leg/foot and that is typical for some types of RSD. [reflex sympathetic dystrophy]. My left leg and thigh use to be my good side but the thigh muscle [quadriceps] seems to be weakening and the more I use it the more painful and weak it gets. This is a new symptom for me. I noticed it a few weeks ago how hard it was to walk back from the fridge to my desk and make it into my chair. I hang onto a walker so I have some support. But man it was really painful. I also have a disease that develops painful lumps under my skin and connective tissue and I am wondering if they are growing deeper to affect the muscles. That happens as well as they can wrap around nerves too. See what I mean about not knowing what’s what? The Dr’s don’t know either which illness is causing which symptoms. If it can be tested then they would know. This is just so frustrating to me. I can be lying in bed and the pain in both legs all the way from my feet to my thighs/pelvic area is aching so bad I can’t sleep. I’ve now been sleeping during the day at my desk, so that makes 2 naps now. You would think laying down would relieve the pain, but it seems to be worse then. And not the parts that I’m lying on. I can only lay on my back now, and it’s the front of my body that hurts the worse. Go figure. Our weather has been very high humidity and low pressure, and not very warm but the humidity bothers me quite a bit. Tonight I can smell the swamp like smell from the lake and expect “Yoda†to walk thru my door any minute…..lol…inject a little humor here! ☺ [Yoda is the little green creature from the movie Star Wars for those not familiar with him, and he came from a swamp] One thing that I was wondering, do any of you have any skin involvement that creates extremely dry skin? My dr. said it was Icthymotosis [sp], or something like that. It’s only in areas that are the most painful, and all the moisturizing doesn’t seem to penetrate. So I guess that’s my update. I just don’t know what I will do if I lose my ability to walk altogether. Steve can take an early retirement, but the SS would be peanuts. ☹ the pains in my legs are so bad I can’t even get into the shower we had modified with grab bars, to take a shower. A bath tub is out of the question. Too bad they don’t make people washes like car washes! Wouldn’t that be FUN! Lol.. Love and hugs to all, Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2011 Report Share Posted August 7, 2011 I am so sorry hear of the high pain you are having Jackie. You mentioned the leg pain at night. Is that different pain than the daytime pain? It would be wonderful if you could remodel your bathroom! My nephew, Greg, has muscular dystrophy. He has a large bathroom with a roll-in shower. He has a special wheelchair just for the shower so he is able to just roll on in and shower when he wants to.... Maybe someday you can have the same set-up.hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Sunday, August 7, 2011 12:50 AMSubject: High pain days Hi friends,…I have been having so much pain all thru-out my body for some time now. Since I have several illnesses its hard to know which one its coming from. I think it might be mostly from the RSD, because I have quite a bit of swelling and skin pain in my right leg/foot and that is typical for some types of RSD. [reflex sympathetic dystrophy]. My left leg and thigh use to be my good side but the thigh muscle [quadriceps] seems to be weakening and the more I use it the more painful and weak it gets. This is a new symptom for me. I noticed it a few weeks ago how hard it was to walk back from the fridge to my desk and make it into my chair. I hang onto a walker so I have some support. But man it was really painful. I also have a disease that develops painful lumps under my skin and connective tissue and I am wondering if they are growing deeper to affect the muscles. That happens as well as they can wrap around nerves too. See what I mean about not knowing what’s what? The Dr’s don’t know either which illness is causing which symptoms. If it can be tested then they would know. This is just so frustrating to me. I can be lying in bed and the pain in both legs all the way from my feet to my thighs/pelvic area is aching so bad I can’t sleep. I’ve now been sleeping during the day at my desk, so that makes 2 naps now. You would think laying down would relieve the pain, but it seems to be worse then. And not the parts that I’m lying on. I can only lay on my back now, and it’s the front of my body that hurts the worse. Go figure. Our weather has been very high humidity and low pressure, and not very warm but the humidity bothers me quite a bit. Tonight I can smell the swamp like smell from the lake and expect “Yoda†to walk thru my door any minute…..lol…inject a little humor here! J [Yoda is the little green creature from the movie Star Wars for those not familiar with him, and he came from a swamp]One thing that I was wondering, do any of you have any skin involvement that creates extremely dry skin? My dr. said it was Icthymotosis [sp], or something like that. It’s only in areas that are the most painful, and all the moisturizing doesn’t seem to penetrate. So I guess that’s my update. I just don’t know what I will do if I lose my ability to walk altogether. Steve can take an early retirement, but the SS would be peanuts. L the pains in my legs are so bad I can’t even get into the shower we had modified with grab bars, to take a shower. A bath tub is out of the question. Too bad they don’t make people washes like car washes! Wouldn’t that be FUN! Lol..Love and hugs to all, Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2011 Report Share Posted August 7, 2011 I am so sorry hear of the high pain you are having Jackie. You mentioned the leg pain at night. Is that different pain than the daytime pain? It would be wonderful if you could remodel your bathroom! My nephew, Greg, has muscular dystrophy. He has a large bathroom with a roll-in shower. He has a special wheelchair just for the shower so he is able to just roll on in and shower when he wants to.... Maybe someday you can have the same set-up.hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Sunday, August 7, 2011 12:50 AMSubject: High pain days Hi friends,…I have been having so much pain all thru-out my body for some time now. Since I have several illnesses its hard to know which one its coming from. I think it might be mostly from the RSD, because I have quite a bit of swelling and skin pain in my right leg/foot and that is typical for some types of RSD. [reflex sympathetic dystrophy]. My left leg and thigh use to be my good side but the thigh muscle [quadriceps] seems to be weakening and the more I use it the more painful and weak it gets. This is a new symptom for me. I noticed it a few weeks ago how hard it was to walk back from the fridge to my desk and make it into my chair. I hang onto a walker so I have some support. But man it was really painful. I also have a disease that develops painful lumps under my skin and connective tissue and I am wondering if they are growing deeper to affect the muscles. That happens as well as they can wrap around nerves too. See what I mean about not knowing what’s what? The Dr’s don’t know either which illness is causing which symptoms. If it can be tested then they would know. This is just so frustrating to me. I can be lying in bed and the pain in both legs all the way from my feet to my thighs/pelvic area is aching so bad I can’t sleep. I’ve now been sleeping during the day at my desk, so that makes 2 naps now. You would think laying down would relieve the pain, but it seems to be worse then. And not the parts that I’m lying on. I can only lay on my back now, and it’s the front of my body that hurts the worse. Go figure. Our weather has been very high humidity and low pressure, and not very warm but the humidity bothers me quite a bit. Tonight I can smell the swamp like smell from the lake and expect “Yoda†to walk thru my door any minute…..lol…inject a little humor here! J [Yoda is the little green creature from the movie Star Wars for those not familiar with him, and he came from a swamp]One thing that I was wondering, do any of you have any skin involvement that creates extremely dry skin? My dr. said it was Icthymotosis [sp], or something like that. It’s only in areas that are the most painful, and all the moisturizing doesn’t seem to penetrate. So I guess that’s my update. I just don’t know what I will do if I lose my ability to walk altogether. Steve can take an early retirement, but the SS would be peanuts. L the pains in my legs are so bad I can’t even get into the shower we had modified with grab bars, to take a shower. A bath tub is out of the question. Too bad they don’t make people washes like car washes! Wouldn’t that be FUN! Lol..Love and hugs to all, Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2011 Report Share Posted August 7, 2011 I'm so sorry you're having such a rough time Jackie. Pain itself is bad enough but not knowing where it's coming from only makes it worse. Isn't it possible for your dr to treat your pain without knowing the cause just to give you some relief? It just doesn't seem right that you have to endure so much discomfort ... hugs, Cait High pain days Hi friends,…I have been having so much pain all thru-out my body for some time now. Since I have several illnesses its hard to know which one its coming from. I think it might be mostly from the RSD, because I have quite a bit of swelling and skin pain in my right leg/foot and that is typical for some types of RSD. [reflex sympathetic dystrophy]. My left leg and thigh use to be my good side but the thigh muscle [quadriceps] seems to be weakening and the more I use it the more painful and weak it gets. This is a new symptom for me. I noticed it a few weeks ago how hard it was to walk back from the fridge to my desk and make it into my chair. I hang onto a walker so I have some support. But man it was really painful. I also have a disease that develops painful lumps under my skin and connective tissue and I am wondering if they are growing deeper to affect the muscles. That happens as well as they can wrap around nerves too. See what I mean about not knowing what’s what? The Dr’s don’t know either which illness is causing which symptoms. If it can be tested then they would know. This is just so frustrating to me. I can be lying in bed and the pain in both legs all the way from my feet to my thighs/pelvic area is aching so bad I can’t sleep. I’ve now been sleeping during the day at my desk, so that makes 2 naps now. You would think laying down would relieve the pain, but it seems to be worse then. And not the parts that I’m lying on. I can only lay on my back now, and it’s the front of my body that hurts the worse. Go figure. Our weather has been very high humidity and low pressure, and not very warm but the humidity bothers me quite a bit Tonight I can smell the swamp like smell from the lake and expect “Yoda” to walk thru my door any minute…..lol…inject a little humor here! J [Yoda is the little green creature from the movie Star Wars for those not familiar with him, and he came from a swamp] One thing that I was wondering, do any of you have any skin involvement that creates extremely dry skin? My dr. said it was Icthymotosis [sp], or something like that. It’s only in areas that are the most painful, and all the moisturizing doesn’t seem to penetrate. So I guess that’s my update. I just don’t know what I will do if I lose my ability to walk altogether. Steve can take an early retirement, but the SS would be peanuts. L the pains in my legs are so bad I can’t even get into the shower we had modified with grab bars, to take a shower. A bath tub is out of the question. Too bad they don’t make people washes like car washes! Wouldn’t that be FUN! Lol.. Love and hugs to all, Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2011 Report Share Posted August 7, 2011 I'm so sorry you're having such a rough time Jackie. Pain itself is bad enough but not knowing where it's coming from only makes it worse. Isn't it possible for your dr to treat your pain without knowing the cause just to give you some relief? It just doesn't seem right that you have to endure so much discomfort ... hugs, Cait High pain days Hi friends,…I have been having so much pain all thru-out my body for some time now. Since I have several illnesses its hard to know which one its coming from. I think it might be mostly from the RSD, because I have quite a bit of swelling and skin pain in my right leg/foot and that is typical for some types of RSD. [reflex sympathetic dystrophy]. My left leg and thigh use to be my good side but the thigh muscle [quadriceps] seems to be weakening and the more I use it the more painful and weak it gets. This is a new symptom for me. I noticed it a few weeks ago how hard it was to walk back from the fridge to my desk and make it into my chair. I hang onto a walker so I have some support. But man it was really painful. I also have a disease that develops painful lumps under my skin and connective tissue and I am wondering if they are growing deeper to affect the muscles. That happens as well as they can wrap around nerves too. See what I mean about not knowing what’s what? The Dr’s don’t know either which illness is causing which symptoms. If it can be tested then they would know. This is just so frustrating to me. I can be lying in bed and the pain in both legs all the way from my feet to my thighs/pelvic area is aching so bad I can’t sleep. I’ve now been sleeping during the day at my desk, so that makes 2 naps now. You would think laying down would relieve the pain, but it seems to be worse then. And not the parts that I’m lying on. I can only lay on my back now, and it’s the front of my body that hurts the worse. Go figure. Our weather has been very high humidity and low pressure, and not very warm but the humidity bothers me quite a bit Tonight I can smell the swamp like smell from the lake and expect “Yoda” to walk thru my door any minute…..lol…inject a little humor here! J [Yoda is the little green creature from the movie Star Wars for those not familiar with him, and he came from a swamp] One thing that I was wondering, do any of you have any skin involvement that creates extremely dry skin? My dr. said it was Icthymotosis [sp], or something like that. It’s only in areas that are the most painful, and all the moisturizing doesn’t seem to penetrate. So I guess that’s my update. I just don’t know what I will do if I lose my ability to walk altogether. Steve can take an early retirement, but the SS would be peanuts. L the pains in my legs are so bad I can’t even get into the shower we had modified with grab bars, to take a shower. A bath tub is out of the question. Too bad they don’t make people washes like car washes! Wouldn’t that be FUN! Lol.. Love and hugs to all, Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2011 Report Share Posted August 9, 2011 Oh Jackie I am SO sorry you are in so much pain my friend. I wish I were there to help you out sweetie. That must be so frustrating to not know where the pain is coming from. Stupid doctors! Are there any tests that they can perform to try and hone in on what's what as you say? I think that just stinks that you have so much pain you can't even lesirely take a shower or bath! My sister with MS, has psoriasis (sp?)--that is of an autoimmune disorder as well, perhaps that is what you may have? Worth looking into. Thanks for sharing what you are going through, Jackie. You must feel so depressed that this is all going on. I hope at least that Steve is strong and supportive to you. You need all the help and encouragement and nurturing you can get--and deserve! I love you, Kate To: MSersLife Sent: Sunday, August 7, 2011 3:50 AMSubject: High pain days Hi friends,…I have been having so much pain all thru-out my body for some time now. Since I have several illnesses its hard to know which one its coming from. I think it might be mostly from the RSD, because I have quite a bit of swelling and skin pain in my right leg/foot and that is typical for some types of RSD. [reflex sympathetic dystrophy]. My left leg and thigh use to be my good side but the thigh muscle [quadriceps] seems to be weakening and the more I use it the more painful and weak it gets. This is a new symptom for me. I noticed it a few weeks ago how hard it was to walk back from the fridge to my desk and make it into my chair. I hang onto a walker so I have some support. But man it was really painful. I also have a disease that develops painful lumps under my skin and connective tissue and I am wondering if they are growing deeper to affect the muscles. That happens as well as they can wrap around nerves too. See what I mean about not knowing what’s what? The Dr’s don’t know either which illness is causing which symptoms. If it can be tested then they would know. This is just so frustrating to me. I can be lying in bed and the pain in both legs all the way from my feet to my thighs/pelvic area is aching so bad I can’t sleep. I’ve now been sleeping during the day at my desk, so that makes 2 naps now. You would think laying down would relieve the pain, but it seems to be worse then. And not the parts that I’m lying on. I can only lay on my back now, and it’s the front of my body that hurts the worse. Go figure. Our weather has been very high humidity and low pressure, and not very warm but the humidity bothers me quite a bit. Tonight I can smell the swamp like smell from the lake and expect “Yoda†to walk thru my door any minute…..lol…inject a little humor here! J [Yoda is the little green creature from the movie Star Wars for those not familiar with him, and he came from a swamp] One thing that I was wondering, do any of you have any skin involvement that creates extremely dry skin? My dr. said it was Icthymotosis [sp], or something like that. It’s only in areas that are the most painful, and all the moisturizing doesn’t seem to penetrate. So I guess that’s my update. I just don’t know what I will do if I lose my ability to walk altogether. Steve can take an early retirement, but the SS would be peanuts. L the pains in my legs are so bad I can’t even get into the shower we had modified with grab bars, to take a shower. A bath tub is out of the question. Too bad they don’t make people washes like car washes! Wouldn’t that be FUN! Lol.. Love and hugs to all, Jackie Quote Link to comment Share on other sites More sharing options...
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