Re: High pain days

[Guest guest]

Oh Jackie I am SO sorry you are in so much pain my friend. I wish I were there to help you out sweetie. That must be so frustrating to not know where the pain is coming from. Stupid doctors! Are there any tests that they can perform to try and hone in on what's what as you say?

I think that just stinks that you have so much pain you can't even lesirely take a shower or bath!

My sister with MS, has psoriasis (sp?)--that is of an autoimmune disorder as well, perhaps that is what you may have? Worth looking into.

Thanks for sharing what you are going through, Jackie. You must feel so depressed that this is all going on. I hope at least that Steve is strong and supportive to you. You need all the help and encouragement and nurturing you can get--and deserve!

I love you,

Kate

To: MSersLife Sent: Sunday, August 7, 2011 3:50 AMSubject: High pain days

Hi friends,…I have been having so much pain all thru-out my body for some time now. Since I have several illnesses its hard to know which one its coming from. I think it might be mostly from the RSD, because I have quite a bit of swelling and skin pain in my right leg/foot and that is typical for some types of RSD. [reflex sympathetic dystrophy]. My left leg and thigh use to be my good side but the thigh muscle [quadriceps] seems to be weakening and the more I use it the more painful and weak it gets. This is a new symptom for me. I noticed it a few weeks ago how hard it was to walk back from the fridge to my desk and make it into my chair. I hang onto a walker so I have some support. But man it was really painful. I also have a disease that develops painful lumps under my skin and connective tissue and I am wondering if they are growing deeper to affect the muscles. That happens as well as

they can wrap around nerves too. See what I mean about not knowing what’s what? The Dr’s don’t know either which illness is causing which symptoms. If it can be tested then they would know. This is just so frustrating to me. I can be lying in bed and the pain in both legs all the way from my feet to my thighs/pelvic area is aching so bad I can’t sleep. I’ve now been sleeping during the day at my desk, so that makes 2 naps now. You would think laying down would relieve the pain, but it seems to be worse then. And not the parts that I’m lying on. I can only lay on my back now, and it’s the front of my body that hurts the worse. Go figure.

Our weather has been very high humidity and low pressure, and not very warm but the humidity bothers me quite a bit. Tonight I can smell the swamp like smell from the lake and expect “Yoda†to walk thru my door any minute…..lol…inject a little humor here! J [Yoda is the little green creature from the movie Star Wars for those not familiar with him, and he came from a swamp]

One thing that I was wondering, do any of you have any skin involvement that creates extremely dry skin? My dr. said it was Icthymotosis [sp], or something like that. It’s only in areas that are the most painful, and all the moisturizing doesn’t seem to penetrate.

So I guess that’s my update. I just don’t know what I will do if I lose my ability to walk altogether. Steve can take an early retirement, but the SS would be peanuts. L the pains in my legs are so bad I can’t even get into the shower we had modified with grab bars, to take a shower. A bath tub is out of the question. Too bad they don’t make people washes like car washes! Wouldn’t that be FUN! Lol..

Love and hugs to all, Jackie