Guest guest Posted August 27, 2011 Report Share Posted August 27, 2011 Okay, so we know I have a UTI, even if it's just slight. I may or may not be having a flare with it. But if it's a UTI only, slight or not, it's the first time I've ever had to use my cane during a UTI. Thursday night, I started having major balance problems, along with spasticity and feeling like I was hit with a truck, as well as normal MS flare symptoms. Yesterday, the feeling like I was hit by a truck wasn't as bad, but got worse the longer I was up. By the time we went to bed, I was using the cane again. Today, it's going to be 95 degrees, and we have a family get together over at my in-law's house. They don't have enough seating for all of us, so I imagine we'll be spending part of the time outside (cooling vest and bandana ready to go). I'm taking the cane as a just in case measure - rather I'm using the cane today as a just in case measure, especially once I get hot. I have no clue what time we are going to get out of there, but I know hubby has already told my in-laws that I'm sick and can't handle much. The bright spot is hubby's aunt might be there, and hubby's brother and his third wife will be there, and I just adore his wife. Of course my nephew will be there, possibly with his girlfriend, but as he's 17, almost 18, I can't cuddle him anymore. My Fiorecet, my flexeril, and my klonopin are in my purse in case I need them. I was hurting so bad when I got up this morning I had to grit my teeth and take a hot shower (after only about 6 hours of sleep). It helped my back, but my other symptoms got worse because of it. This is what's getting me down today, I guess. This has been a year of firsts, or a somewhat remarkable year for my MS. The first flare in 14 months in January; a new flare in May - and a UTI right in the middle of it; I've never had to use the cane because of the heat before, yet this year I did; and this is the first time I've had to use the cane because of either a UTI or a flare. I know the Tysabri won't deal with existing symptoms - but god I'm hoping that it will settle my system down enough so that some damage can heal on its own. Since I started this antibiotic, some things have gotten better.....but most of the MS symptoms have stayed the same. Last time I had a UTI after 24 hours on the antibiotic its influence on my symptoms was gone. TinaSorry, not feeling really great today, just venting. Quote Link to comment Share on other sites More sharing options...
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