Re: Digest Number 2802/ LANA

[Guest guest]

Hi Bernie,

I already have my family history written and will take that. It

includes what I have been diagnosed with, and just added what Mike

suggested. I plan to insert under the EDS diagnosis, their findings.

Separately, I will journal their suggested

treatments/tests/medications, etc. I also think I'll journal my

perceptions of the tests and the doctors, just for my own use. All

of it except for my perceptions will be placed on my PDA, which I

have with me at all times. In case of emergency, someone could open

it and find my Medical History, which includes all diagnosis and all

medications and all past surgeries. I had brain surgery in 1997,

which would not allow me to have the medication they give stroke

patients in the first hour to try to stop the stroke or lessen the

effects. My PDA also has all my addresses, personal and professional

as well as much, much more. If anyone were considering getting a

PDA, I STRONGLY urge you to do so! It has been a life saver for me

in more instances than one, and it's about the size of a wallet when

it's in it's case.

Bernie, I don't know if your daughter has one or ever considered one,

but my husband got one after he saw how much I use mine, and he now

relies on it heavily. If you remember correctly, he has ADD.

Love Lana

> Lana: Do you mean to journal your signs and symptoms, plus any

> strategies you try? Or other stuff?

> Bernie

>

> Re: Digest Number 2802

>

> Congrats ! And THANKS for the great idea to journal -

I

> hadn't considered that, but I think I will do that. I'm so happy

so

> many of us are in the study, as it can only HELP us ALL!

>

> Love Lana