Re: TINA........Re: sad news

[Guest guest]

I'm so sorry to read about all the MD in your family. I admit not knowing much about it and used to get MD and MS mixed up. Does this mean that your little great nephew is exhibiting symptoms now? Can they identify the gene and check other family members as well? ... hugs, Cait

They have a form of Becker's MD. The kind my three nephews have didn't really show up until very late teens/early 20s. My great nephew who was just diagnosed has Beckers. It sounds like you are familiar with MD since you asked what form they have.

hugs

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

To: MSersLife Sent: Monday, November 28, 2011 3:03 PMSubject: Re: sad news

Sharon, I know I'm late getting to this, but I'm so, so sorry. About your nephew and great great nephew. What form of MD do they have?Tina

I have three nephews with Muscular Dystrophy. Well I should say "two" because one of the boys committed suicide. The "boys" are 50 and 52 now.

The 50 year old, Greg, has a grandson named Sam. Greg just took Sam to be tested and the results are in-- Sam also has MD. Sam just turned 6 last week. I feel sad for Sammy. Sammy doesn't know yet. How do you tell a 6 year old something like that?

Please keep Sam and his family in your prayers.

hugs

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

[Guest guest]

Actually, I don't know a whole lot, other than it can be in different forms.  I know that when Hawking was diagnosed, he was told he would be dead in two years.  It's now been 20+ years, and he's still going, although with a lot of help.  I know that your nephews, like anyone with a chronic disease has to have great courage.  The MDA drives every year tend to focus on the kids affected, like with Duchenne's, rather than adults.

I pray for courage when they tell your great nephew his diagnosis.  I hope that he can adapt quickly, as children generally adapt quicker and better than adults sometimes.Tina

 

They have a form of Becker's MD.  The kind my three nephews have didn't really show up until very late teens/early 20s.   My great nephew who was just diagnosed has Beckers.  It sounds like you are familiar with MD since you asked what form they have.

hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

 

 

To: MSersLife

Sent: Monday, November 28, 2011 3:03 PM Subject: Re: sad news

Sharon, I know I'm late getting to this, but I'm so, so sorry.  About your nephew and great great nephew.  What form of MD do they have?Tina

 

 I have three nephews with Muscular Dystrophy.  Well I should say " two " because one of the boys committed suicide.   The " boys " are 50 and 52 now. 

The 50 year old, Greg, has a grandson named Sam.  Greg just took Sam to be tested and the results are in-- Sam also has MD.  Sam just turned 6 last week.   I feel sad for Sammy.  Sammy doesn't know yet.   How do you tell a 6 year old something like that? 

Please keep Sam and his family in your prayers.hugs 

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

 

 

[Guest guest]

Yes, my little gr-gr nephew Sammy is exhibiting some symptoms now. He is 6 years old and can't run as far, as fast and tires very easily. That's why his grampa Greg (my nephew with MD) decided to take Sammy to the MD Center in his city. Their particular MD gene is identified and it's only the males that get it. The girls can be carriers. Most of the girls in the family have been tested to see if they are carriers. Sammy's mom was not tested. hugs SharonThis email is a natural hand made

product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Monday, November 28, 2011

8:32 PM Subject: Re: TINA........Re: sad news

I'm so sorry to read about all the MD in your family. I admit not knowing much about it and used to get MD and MS mixed up. Does this mean that your little great nephew is exhibiting symptoms now? Can they identify the gene and check other family members as well? ... hugs, Cait

They have a form of Becker's MD. The kind my three nephews have didn't really show up until very late teens/early 20s. My great nephew who was just diagnosed has Beckers. It sounds like you are familiar with MD since you asked what form they have.

hugs

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

To: MSersLife Sent: Monday, November 28, 2011 3:03 PMSubject: Re: sad news

Sharon, I know I'm late getting to this, but I'm so, so sorry. About your nephew and great great nephew. What form of MD do they have?Tina

I have three nephews with Muscular Dystrophy. Well I should say "two" because one of the boys committed suicide. The "boys" are 50 and 52 now.

The 50 year old, Greg, has a grandson named Sam. Greg just took Sam to be tested and the results are in-- Sam also has MD. Sam just turned 6 last week. I feel sad for Sammy. Sammy doesn't know yet. How do you tell a 6 year old something like that?

Please keep Sam and his family in your prayers.

hugs

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

[Guest guest]

Yes, my little gr-gr nephew Sammy is exhibiting some symptoms now. He is 6 years old and can't run as far, as fast and tires very easily. That's why his grampa Greg (my nephew with MD) decided to take Sammy to the MD Center in his city. Their particular MD gene is identified and it's only the males that get it. The girls can be carriers. Most of the girls in the family have been tested to see if they are carriers. Sammy's mom was not tested. hugs SharonThis email is a natural hand made

product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Monday, November 28, 2011

8:32 PM Subject: Re: TINA........Re: sad news

I'm so sorry to read about all the MD in your family. I admit not knowing much about it and used to get MD and MS mixed up. Does this mean that your little great nephew is exhibiting symptoms now? Can they identify the gene and check other family members as well? ... hugs, Cait

They have a form of Becker's MD. The kind my three nephews have didn't really show up until very late teens/early 20s. My great nephew who was just diagnosed has Beckers. It sounds like you are familiar with MD since you asked what form they have.

hugs

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

To: MSersLife Sent: Monday, November 28, 2011 3:03 PMSubject: Re: sad news

Sharon, I know I'm late getting to this, but I'm so, so sorry. About your nephew and great great nephew. What form of MD do they have?Tina

I have three nephews with Muscular Dystrophy. Well I should say "two" because one of the boys committed suicide. The "boys" are 50 and 52 now.

The 50 year old, Greg, has a grandson named Sam. Greg just took Sam to be tested and the results are in-- Sam also has MD. Sam just turned 6 last week. I feel sad for Sammy. Sammy doesn't know yet. How do you tell a 6 year old something like that?

Please keep Sam and his family in your prayers.

hugs

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

[Guest guest]

I'm sorry to hear about that.  But that would be an issue, wouldn't it?  Do we have children, knowing this might happen, or do we avoid it?Tina

 

Yes, my little gr-gr nephew Sammy is exhibiting some symptoms now.  He is 6 years old and can't run as far, as fast and tires very easily.  That's why his grampa Greg (my nephew with MD) decided to take Sammy to the MD Center in his city.   

Their particular MD gene is identified and it's only the males that get it.  The girls can be carriers.  Most of the girls in the family have been tested to see if they are carriers.  Sammy's mom was not tested. 

hugs SharonThis email is a natural hand made

product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

 

 

To: MSersLife

Sent: Monday, November 28, 2011

8:32 PM Subject: Re: TINA........Re: sad news

I'm so sorry to read about all the MD in your family.  I admit not knowing much about it and used to get MD and MS mixed up.  Does this mean that your little great nephew is exhibiting symptoms now?  Can they identify the gene and check other family members as well? ... hugs, Cait

 

They have a form of Becker's MD.  The kind my three nephews have didn't really show up until very late teens/early 20s.   My great nephew who was just diagnosed has Beckers.  It sounds like you are familiar with MD since you asked what form they have.

hugs

 

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

 

 

To: MSersLife Sent: Monday, November 28, 2011 3:03 PMSubject: Re: sad news

Sharon, I know I'm late getting to this, but I'm so, so sorry.  About your nephew and great great nephew.  What form of MD do they have?Tina

 

 I have three nephews with Muscular Dystrophy.  Well I should say " two " because one of the boys committed suicide.   The " boys " are 50 and 52 now. 

The 50 year old, Greg, has a grandson named Sam.  Greg just took Sam to be tested and the results are in-- Sam also has MD.  Sam just turned 6 last week.   I feel sad for Sammy.  Sammy doesn't know yet.   How do you tell a 6 year old something like that? 

Please keep Sam and his family in your prayers.

hugs

 

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

 

 

[Guest guest]

Little Sammy will have a great role model in his grampa Greg. Greg lives life to the fullest, travels, was riding a snow mobile until a few years ago.... hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Tuesday, November 29, 2011 2:03 PM Subject: Re: TINA........Re: sad news

Actually, I don't know a whole lot, other than it can be in different forms. I know that when Hawking was diagnosed, he was told he would be dead in two years. It's now been 20+ years, and he's still going, although with a lot of help. I know that your nephews, like anyone with a chronic disease has to have great courage. The MDA drives every year tend to focus on the kids affected, like with Duchenne's, rather than adults.

I pray for courage when they tell your great nephew his diagnosis. I hope that he can adapt quickly, as children generally adapt quicker and better than adults sometimes.Tina

They have a form of Becker's MD. The kind my three nephews have didn't really show up until very late teens/early 20s. My great nephew who was just diagnosed has Beckers. It sounds like you are familiar with MD since you asked what form they have.

hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

To: MSersLife

Sent: Monday, November 28, 2011 3:03 PM Subject: Re: sad news

Sharon, I know I'm late getting to this, but I'm so, so sorry. About your nephew and great great nephew. What form of MD do they have?Tina

I have three nephews with Muscular Dystrophy. Well I should say "two" because one of the boys committed suicide. The "boys" are 50 and 52 now.

The 50 year old, Greg, has a grandson named Sam. Greg just took Sam to be tested and the results are in-- Sam also has MD. Sam just turned 6 last week. I feel sad for Sammy. Sammy doesn't know yet. How do you tell a 6 year old something like that?

Please keep Sam and his family in your prayers.hugs

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

[Guest guest]

Little Sammy will have a great role model in his grampa Greg. Greg lives life to the fullest, travels, was riding a snow mobile until a few years ago.... hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Tuesday, November 29, 2011 2:03 PM Subject: Re: TINA........Re: sad news

Actually, I don't know a whole lot, other than it can be in different forms. I know that when Hawking was diagnosed, he was told he would be dead in two years. It's now been 20+ years, and he's still going, although with a lot of help. I know that your nephews, like anyone with a chronic disease has to have great courage. The MDA drives every year tend to focus on the kids affected, like with Duchenne's, rather than adults.

I pray for courage when they tell your great nephew his diagnosis. I hope that he can adapt quickly, as children generally adapt quicker and better than adults sometimes.Tina

They have a form of Becker's MD. The kind my three nephews have didn't really show up until very late teens/early 20s. My great nephew who was just diagnosed has Beckers. It sounds like you are familiar with MD since you asked what form they have.

hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

To: MSersLife

Sent: Monday, November 28, 2011 3:03 PM Subject: Re: sad news

Sharon, I know I'm late getting to this, but I'm so, so sorry. About your nephew and great great nephew. What form of MD do they have?Tina

I have three nephews with Muscular Dystrophy. Well I should say "two" because one of the boys committed suicide. The "boys" are 50 and 52 now.

The 50 year old, Greg, has a grandson named Sam. Greg just took Sam to be tested and the results are in-- Sam also has MD. Sam just turned 6 last week. I feel sad for Sammy. Sammy doesn't know yet. How do you tell a 6 year old something like that?

Please keep Sam and his family in your prayers.hugs

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

[Guest guest]

That is a dilemma, isn't it? My oldest brother is the one who had the 3 sons with MD. He also had 4 daughters. Several of my nieces were tested by their choice to see if they carried the gene. One great niece was tested and was found to carry the gene. She had a baby girl by sex selection. That was a very costly procedure for her. I don't know if she will decide to have more children.Of the three original nephews with MD one is the grampa of Sammy and he only has two daughters. One of the nephews had no children of his own but instead raised two stepkids. The youngest of the three original nephews took his own life without knowing his girlfriend was pregnant. She had a boy who just turned 18. As far as I've

heard Zak shows no signs of MD.It is a big decision to make---whether to have a boy knowing the odds of the genetics. SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Tuesday, November 29, 2011 2:14 PM Subject: Re: TINA........Re: sad news

I'm sorry to hear about that. But that would be an issue, wouldn't it? Do we have children, knowing this might happen, or do we avoid it?Tina

Yes, my little gr-gr nephew Sammy is exhibiting some symptoms now. He is 6 years old and can't run as far, as fast and tires very easily. That's why his grampa Greg (my nephew with MD) decided to take Sammy to the MD Center in his city.

Their particular MD gene is identified and it's only the males that get it. The girls can be carriers. Most of the girls in the family have been tested to see if they are carriers. Sammy's mom was not tested.

hugs SharonThis email is a natural hand made

product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

To: MSersLife

Sent: Monday, November 28, 2011

8:32 PM Subject: Re: TINA........Re: sad news

I'm so sorry to read about all the MD in your family. I admit not knowing much about it and used to get MD and MS mixed up. Does this mean that your little great nephew is exhibiting symptoms now? Can they identify the gene and check other family members as well? ... hugs, Cait

They have a form of Becker's MD. The kind my three nephews have didn't really show up until very late teens/early 20s. My great nephew who was just diagnosed has Beckers. It sounds like you are familiar with MD since you asked what form they have.

hugs

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

To: MSersLife Sent: Monday, November 28, 2011 3:03 PMSubject: Re: sad news

Sharon, I know I'm late getting to this, but I'm so, so sorry. About your nephew and great great nephew. What form of MD do they have?Tina

I have three nephews with Muscular Dystrophy. Well I should say "two" because one of the boys committed suicide. The "boys" are 50 and 52 now.

The 50 year old, Greg, has a grandson named Sam. Greg just took Sam to be tested and the results are in-- Sam also has MD. Sam just turned 6 last week. I feel sad for Sammy. Sammy doesn't know yet. How do you tell a 6 year old something like that?

Please keep Sam and his family in your prayers.

hugs

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.