Re: Re: Link for POTS?

[Guest guest]

,

Thanks for the link. Gosh, I'm so far behind in answering emails. Dylan has

about one third of the symptoms. It's so hard to know what is caused by meds and

what is not. I see in some of the reading that mothers sometimes carry it to

their daughters. What about sons? I just know that I don't sweat, never did. My

mom says I passed out many times as a young kid form overheating too easily. The

Docs say my thermostat doesn't work. I can tell now when I have gotten to hot,

and I know when I'm going to cross that line of no return, sort of speak. My

face turns purple, just before it's to late. I know what that feels like now,

and find something cold, whether it be a cold towel or air-conditioning, and

pediolite. Dylan can sweat some, but he has some of the other stuff. I just

wonder if my inability to sweat, has something to do with his autonomic nervous

system and maybe POTS.

Cindylouwho

Re: Link for POTS?

Of the sites I've visited - the one I believe is most informative and

comprehensive is POTSPLACE.

I'll peruse my notes and see what other articles and sites I've found

to particularly helpful. It will take a few days, though, lots going

on for the next few.

[Guest guest]

,

Thanks for the link. Gosh, I'm so far behind in answering emails. Dylan has

about one third of the symptoms. It's so hard to know what is caused by meds and

what is not. I see in some of the reading that mothers sometimes carry it to

their daughters. What about sons? I just know that I don't sweat, never did. My

mom says I passed out many times as a young kid form overheating too easily. The

Docs say my thermostat doesn't work. I can tell now when I have gotten to hot,

and I know when I'm going to cross that line of no return, sort of speak. My

face turns purple, just before it's to late. I know what that feels like now,

and find something cold, whether it be a cold towel or air-conditioning, and

pediolite. Dylan can sweat some, but he has some of the other stuff. I just

wonder if my inability to sweat, has something to do with his autonomic nervous

system and maybe POTS.

Cindylouwho

Re: Link for POTS?

Of the sites I've visited - the one I believe is most informative and

comprehensive is POTSPLACE.

I'll peruse my notes and see what other articles and sites I've found

to particularly helpful. It will take a few days, though, lots going

on for the next few.

[Guest guest]

No I didn't. That's weird.... I always get your mail. Could you send them again,

when your at home? I'm assuming your at work now. Thanks Lana

Cindy

Link for POTS?

>

>

>

> There are many web sites on POTS. Do any of you have a

favorite? I would

> like to do some more reading on it.

> Thanks, Cindylouwho

>

>

[Guest guest]

Cindy, I just sent them - ran home quick like a fox! I had an errand to do

for work, so I took the opportunity. Hope they come through!

Love Lana 0 :-)

Re: Link for POTS?

..... Dang, Cindy, that's very

frustrating, as I'm leaving town after work today. They were zipped

files. Maybe I'll try to go home at noon and send them. Can you

unzip files? Love Lana

***********************************************

Lana, don't worry, I can wait till you get back. Don't spend your lunch

time on the PC. So Where ya going? Something fun I hope! Cindylouwho

[Guest guest]

For some reason, I'm not receiving the files. When you get back from your trip,

maybe you could send them to Bonnie, and she can send them to me. I wonder what

the problem is? The size of the file, shouldn't matter. Out look express can

hold very large files. Have a great time, what ever your doing!

Cindylouwho

RE: Re: Link for POTS?

Cindy, I just sent them - ran home quick like a fox! I had an errand to do

for work, so I took the opportunity. Hope they come through!

Love Lana 0 :-)

[Guest guest]

Hi All:

My absolute favorite site for practical info on assessing POTS is

www.dysautonomia-eduinfor.org written by a nurse no less. You can even

e-mail them with questions.

Hope this helps.

Bernie